Tami Goldsmith

Disclosures

I received no compensation, financial or otherwise, for today’s presentation.

Luke “Pooch” Goldsmith Down Syndrome 1983

Celiac Disease 2003

Hypothyroidism 2003

Osteopenia 2007

Seizure Disorder 2010

Sleep Apnea 2013

Osteoporosis 2014

Non-responsive Celiac Disease 2015

Cholesteatoma 2016

Teeth are falling out 2016

My Conversation With Myself

Be Thankful it’s not WORSE

Muster up a POSITIVE attitude

Symptoms to Diagnosis – Didn’t happen OVERNIGHT

Diagnosis to Relative SUCCESS –This won’t happen

overnight

Sit back – take a deep BREATH – look around our home

– and

MAKE OUR PLAN!

. . . is your best lifeline!

Advanced

Preparation. . .

My First Steps 1. CLEAN the kitchen

2. Separate the GLUTEN from the Gluten Free

3. Inventory all HUMANS in our home

4. Make sure EVERYONE has food security

5. Re-stock fridge, freezer, pantry and LABEL

What I’ve Learned From Our Kids

… Home is their SAFE, SOFT, LANDING PLACE

Toddlers to Teenagers

Toddlers We direct EVERY aspect of their lives

Home

Preschool

Daycare

Mealtime

Nighttime

Social time

Medical time

Be UPBEAT AND POSITIVE to minimize the negatives of the gluten-free diet

EARLY READERS Introduce INTERACTIVE approach

Grocery store scavenger hunt with a few FRIENDS

Remember: They are innocent and deeply curious-Perfect time to make a great and positive impression

The good news is—They still really like us! We’re still COOL! Make it really FUN!

COLLABORATE with teachers and other parents

Luke’s Fasano Feast board game, age appropriate for Early Readers

PRE-TEENS Introduce UNIQUE methodologies

Age-appropriate/PARENT-APPROVED GF Apps

Interactive APPS—Pinterest, Snapchat, Others?

Invite FRIENDS into home and COOK TOGETHER

CREATE home environment with TOOLS and PRODUCTS to feed themselves

PRACTICE eating out: Restaurants, Fast-food Joints, Other People’s Homes

Give your child a chance to SHINE

Have Fasano Feast, Will Travel . . .

. . . Life’s a

Beach!

TEENAGERS!

Treat them like young adults

TEACH-LEARN-EMPOWER with good, safe choices

Learn the consequences

Be prepared to NEGOTIATE; NO GLUTEN is only non-negotiable

Invite them to plan menus, food shop, and COOK

PRACTICE, PRACTICE, PRACTICE

Fasano Feast Fan and

Founder of the “Fasano Diet”

Why Is Pooch Smiling?

HUMOR: Your Saving Grace

Things to REMEMBER Note to the Chef: 5 Senses and Theme Nights

Our Doctors and Dieticians provide the SCIENCE We provide the ART

Don’t Settle for Limping Along LAUGH Out Loud

Attitude is EVERYTHING Non-Edible REWARD

Pooch’s Journey Continues . . . With Sam on Board . . .