Open Data & Health: food for thoughts

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La presentazione portata all'evento Open Sanità per stimolare in circa 20 minuti spunti e riflessioni sulla salute, open data, spunti da alcuni paesi europei e molto materiale da dove far partire discussioni, tra Open Data, Big Data e Personal Data.

Text of Open Data & Health: food for thoughts

  • O P E N D ATA & H E A LT H F O O D F O R T H O U G H T S M A T T E O B R U N A T I E P S I P L A T F O R M C O R R E S P O N D A N T F O R I TA LY #ePSI #opendataitaly
  • W H AT I S E P S I P L AT F O R M ? Funded by the European Commission Europe's One-Stop Shop on PSI Re-use News, happenings Best practices Engaging the community European Public Sector Information Platform E P S I P L AT F O R M . E U
  • H E A LT H A N D D ATA : A L O N G S T O RY H T T P : / / V I S U A L O O P. C O M / 1 7 8 0 8 / D ATA - V I Z - N E W S - 4 3
  • S O M E E U I N S I G H T S
  • G 8 O P E N D ATA C H A R T E R H T T P : / / L ATA . O R G . LV / W P - C O N T E N T / C O N F / AT V E RT I E D AT I / O P E N % 2 0 D ATA % 2 0 P O L I C Y % 2 0 - % 2 0 L ATA % 2 0 - % 2 0 D R I Z Z I . P D F
  • O P E N D ATA B A R O M E T E R O C T O B E R 2 0 1 3 H T T P : / / W W W. O P E N D ATA R E S E A R C H . O R G / D L / O D B 2 0 1 3 / O P E N - D ATA - B A R O M E T E R - 2 0 1 3 - G L O B A L - R E P O RT. P D F
  • I TA LY & H E A LT H A S O P E N D ATA H T T P : / / T H E O D I . G I T H U B . I O / O P E N - D ATA - B A R O M E T E R - V I Z /
  • O P E N D ATA & E C O N O M I C VA L U E M C K I N S E Y E N D O F 2 0 1 3 H T T P : / / W W W. M C K I N S E Y. C O M / I N S I G H T S / B U S I N E S S _ T E C H N O L O G Y / O P E N _ D ATA _ U N L O C K I N G _ I N N O VAT I O N _ A N D _ P E R F O R M A N C E _ W I T H _ L I Q U I D _ I N F O R M AT I O N
  • W H AT S G O I N G O N H T T P : / / E C . E U R O PA . E U / H E A LT H / S T R AT E G Y / D O C S / I N V E S T I N G _ I N _ H E A LT H _ I N F O G R A P H _ E N . P D F
  • S O M E A C T I O N S F R O M T H E T O P epSOS (European Patient Summary Open Services) W W W. E P S I P L AT F O R M . E U / C O N T E N T / O P E N - H E A LT H - C A R E - D ATA Patient Summary individuals ePrescription
  • W H AT S H E A LT H D ATA ?
  • - Public spending and public policy on health care - Performance indicators of individual health care providers - General, anonymised information on population health statistics - Specific information about individuals (e.g. patient records) W W W. E P S I P L AT F O R M . E U / C O N T E N T / O P E N - H E A LT H - C A R E - D ATA
  • - Public spending and public policy on health care - Performance indicators of individual health care providers - General, anonymised information on population health statistics - Specific information about individuals (e.g. patient records)
  • I T S A N E C O S Y S T E M O F D ATA H T T P : / / I M A G E S . T H E G O V L A B . O R G / W O R D P R E S S / W P - C O N T E N T / U P L O A D S / 2 0 1 4 / 0 6 / N H S - F U L L - R E P O RT. P D F
  • A V E RY B I G E C O S Y S T E M : N O T O N LY O P E N G O V E R N M E N T D ATA
  • D ATA E C O S Y S T E M - > D ATA M A S H U P health data (e.g. occurrence of certain diseases) + environmental data (e.g. measurement of air quality) + location data = R E D U C E P U B L I C H E A LT H R I S K
  • U K E X P E R I E N C E O N O P E N H E A LT H
  • A G O O D S TA R T H T T P : / / I M A G E S . T H E G O V L A B . O R G / W O R D P R E S S / W P - C O N T E N T / U P L O A D S / 2 0 1 4 / 0 6 / N H S - F U L L - R E P O RT. P D F
  • N H S R O A D M A P O N O P E N D ATA 2005 2007 2011 2012 2013 2014 NHS Information Centre NHS Choice Open Data White Paper Open Data Health and Social Care Act The Power of Information 10 year plan - IT Strategy CareConnect Pilot ( feedback ) Memorandum of Understanding with US
  • N H S O P E N D ATA
  • N H S O P E N D ATA
  • N H S O P E N D ATA
  • 6 VA L U E P R O P O S I T I O N S
  • I T S A P R O C E S S A C O N C E P T U A L F R A M E W O R K
  • I T S N O T S O S I M P L E
  • S O M E T I M E S H A P P E N S H T T P : / / W W W. T H E G U A R D I A N . C O M / C O M M E N T I S F R E E / 2 0 1 4 / F E B / 2 8 / C A R E - D ATA - I S - I N - C H A O S
  • H T T P : / / W W W. C D E . O R G . U K / S O M E T I M E S H A P P E N S
  • F R A N C E E X P E R I E N C E O N O P E N H E A LT H
  • H T T P : / / W W W. S C O P E S A N T E . F R / # /
  • H T T P : / / D ATAV E Y E S . C O M / # ! / E N / P R O J E C T S / S C O P E - S A N T E
  • D E M A N D D R I V E N P R O C E S S W W W. E P S I P L AT F O R M . E U / C O N T E N T / E TA L A B - P U B L I S H E S - F R E N C H - D I R E C T O RY- P U B L I C - H E A LT H - D ATA - A N D - L A U N C H E S - P U B L I C - O N L I N E - C O N S U LTAT I O N
  • O P E N D ATA E N G A G E M E N T http://www.opendataimpacts.net/engagement/
  • P O R T U G A L
  • H E A LT H D A S H B O A R D http://www.dgs.pt/dashboard/
  • I TA LY N E X T S T E P S , F R O M T H E T O P
  • S O M E P R O B L E M S H T T P : / / W W W. A G E N D A D I G I TA L E . E U / E G O V / 9 0 2 _ A L - V I A - I - P I A N I - R E G I O N A L I - P E R - I L - FA S C I C O L O - S A N I TA R I O - E L E T T R O N I C O . H T M G O V E R N A N C E ?
  • S T R AT E G Y ? H T T P S : / / G R O U P S . G O O G L E . C O M / D / M S G / S PA G H E T T I O P E N D ATA / M S D N S P J P 9 Q G / G J M J R 9 K A 5 _ G J Dati Ospedali ... ma in CC-ND-NC - march 2014
  • S T R AT E G Y ? dati.salute.gov.it
  • S T O RY T E L L I N G O N R E C O R D ? H T T P : / / W W W. S T O R E P R O J E C T. E U /
  • H A C K I N G T H E S T O RY T E L L I N G , P U B L I S H I N G A L L Y O U R D ATA A S O P E N D ATA H T T P : / / W W W. A RT I S O P E N S O U R C E . N E T / N E T W O R K / A RT I S O P E N S O U R C E / 2 0 1 3 / 0 4 / 1 3 / L A - C U R A - A N - O P E N - S O U R C E - C U R E - F O R - C A N C E R - AT- T E D M E D /
  • T O M A K E U S M O R E H U M A N , W E A R E A L L C O N N E C T E D
  • S O M E T I P S F R O M T H E S O C I E T Y
  • M AY 2 0 1 4 : A P P L E H E A LT H K I T H T T P S : / / D E V E L O P E R . A P P L E . C O M / H E A LT H K I T /
  • J U N E 2 0 1 4 : G O O G L E F I T H T T P : / / W W W. F O R B E S . C O M / S I T E S / PA R M Y O L S O N / 2 0 1 4 / 0 6 / 1 2 / E X C L U S I V E - G O O G L E - T O - L A U N C H - H E A LT H - S E R V I C E - G O O G L E - F I T- AT- D E V E L O P E R S - C O N F E R E N C E /
  • W H O H A S T H E D ATA ? Public sector actor Single person on its own device Private sector actor A new online service as intermediator
  • I G N O R E D ATA , F O C U S O N P O W E R H T T P : / / M AT H B A B E . O R G / 2 0 1 4 / 0 5 / 2 0 / I G N O R E - D ATA - F O C U S - O N - P O W E R /
  • T H E P O W E R I S W H E R E T H E D ATA I S N T H T T P : / / M AT H B A B E . O R G / 2 0 1 4 / 0 5 / 2 0 / I G N O R E - D ATA - F O C U S - O N - P O W E R /
  • 2010 H T T P : / / W E B L O G S K Y. C O M / 2 0 1 0 / 0 5 / 0 2 / P R O J E C T- V R M - A N D - E - PAT I E N T S /
  • P R O V I D E R - C E N T E R E D V S PAT I E N T - C E N T E R E D H T T P