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Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

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Page 1: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer
Page 2: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

Why survivorship care?

What informed our center’s

development?

What is available?

How do you access the services?

Page 3: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

2.9 million breast cancer survivors in the US

1.85% of the female population are breast

cancer survivors

Approximately 40% of female cancer

survivors have survived breast cancer

Patients diagnosed with cancer have an

estimated 64 percent chance of surviving

five years

Multiple short- and long-term side effects of

breast cancer and its treatment

Page 4: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

Raise awareness of the needs of cancer survivors

Establish cancer survivorship as a distinct phase of cancer care

Act to ensure the delivery of appropriate survivorship care

Drawn from Cancer Patient to Cancer Survivor: Lost in Transition, 2006 • Institute of Medicine •

www.iom.edu

Page 5: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

Patients completing primary treatment should be provided with a comprehensive care summary and follow-up plan that is clearly and effectively explained

Use systematically developed evidence-based clinical practice guidelines, assessment tools, and screening instruments to help identify and manage late effects of cancer and its treatment.

Drawn from Cancer Patient to Cancer Survivor: Lost in Transition, 2006 • Institute of Medicine •

www.iom.edu

Page 6: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

Possible side effects and prevention of them

Provide diet info for during chemo

Refer to a PT to improve range of motion in arm and avoid lymphedema

Provide info on treatment associated menopause and fertility issues

Husbands need support and information too

Cancer is very hard on a marriage and marriage counseling is essential

Page 7: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

Clinical management and life skills follow-up

A plan for and a journal to track ongoing tests, screens, scans

All body systems should be included

Diet and exercise professionals

Access to mental health professionals to help sort out the “new normal”

Better communication among treating physicians, surgeons and family practice physician

Page 8: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

• Endocrine/metabolic and medical issues program (bone health, cardiovascular health, weight, diabetes, fertility, menopause, sexual dysfunction,

Assessment and recommendations by Internist for side-effects of cancer treatment

Further assessment and treatment as needed by Endocrinologist

Assessment and education by Registered and Licensed Dietitian

Assessment and training in physical activity by Masters and PhD-level Clinical Exercise Physiologists

Referral as needed to Palmer Physical Therapy for Women

Page 9: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

• Psychological issues program

Assessment and counseling for emotional and

quality of life issues

Assessment and rehabilitation program for

cognitive side effects (chemobrain)

Assessment and counseling by Certified Sex

Therapist & Marriage Counselor

Page 10: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

• Survivorship Care Plan

Multi-Disciplinary team

Discussed with survivor and provided to all care

team members

Patient Navigation

Comprehensive survivorship plan that

includes exercise, diet, emotional health

and screening and follow-up plans

Page 11: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

• Rural Access to Care

Telephone, e-mail, or other internet resources

Nutrition counseling support,

Physical activity counseling support

Facilitated group support, psychological support

Page 12: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

• Educational Opportunities

Public - informational sessions at the medical

school for breast cancer survivors, friends and

family

Professional - Kansas Journal of Medicine

(quarterly on line journal) and CME offerings

Page 13: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

• Research - An overarching goal!

Chemobrain research

Nutrition research

Physical activity research

Psychological issues research

Page 14: Why survivorship care?wichita.kumc.edu/media/livelearn/101210b.pdf · Raise awareness of the needs of cancer survivors Establish cancer survivorship as a distinct phase of cancer

Location: 9300 East 29th Street North, Cypress Medical Park, Suite 209

316-293-2655 – Crystal will start the process for you

www.KUwichitaSURVIVORSHIP.kumc.edu

Face Book page coming soon!