Volume 36 Issue 3 2016 San Diego HemopHilia Walk – october 8hasdc.org/wp-content/uploads/vol36-issue3-web.pdf · 2016-09-12 · Volume 36 Issue 3 2016 Join us for our 4th Annual

GeneTherapyNewspage 13

The Official Newsletter of the Hemophilia Association of San Diego County | Volume 36 Issue 3 2016

Join us for our 4th Annual San Diego Hemophilia Walk. The Walk will be held on Saturday, October 8 at NTC Park in Liberty Station. The day will kick off with a Vendor Fair and Fall Festival, followed by the 5K Walk. Participate as a walker, start a team, volunteer at the event or donate.

There’s fun for everyone at the San Diego Hemophilia Walk. Come

enjoy games and refreshments as you connect with members of the local bleeding disorders community. Awards will be given for the best team costume, top fundraising team and the top individual fundraiser.

National Walk events began in 2008, when the National Hemophilia Foundation (NHF) created this collaborative fundraising program to

help chapters raise funds to support research and provide programs and direct services. In just eight years, NHF and its chapters have raised more than $14.5 million and engaged more than 66,000 walkers and over 5,600 teams.

Register online today: walk.hemophilia.org/sandiego

San Diego HemopHilia Walk – october 8

SaveOneLifepage 4

CaliforniaCoastalRidepage 3

WellnessCornerpage 12

Page 2 | Bloodlines • Volume 36 Issue 3

H E M O P H I L I AA S S O C I A T I O N

O F S A N D I E G O C O U N T Y

OffIceRsSean Pentz, [email protected]

Misty McCartney, Vice [email protected]

Nicole Chen, [email protected]

Shelley Flores, [email protected]

DIRectORs at LaRgeYvette BryantRenatto Medranda Vernon Polk

staffNooshin Kosar, Executive [email protected]

Lisa Heffernan, Director of Programs & [email protected]

DIscLaImeRsThe Hemophilia Association of San Diego County (HASDC) does not endorse any particular pharmaceutical manufacturer or home care company.

Please Note: The companies whose advertisements are listed herein have purchased this space, and are NEVER provided with members’ names, addresses or any other personal details. Paid advertisements and paid inserts should not be interpreted as a recommendation from HASDC, nor do we accept responsibility for the accuracy of any claims made by paid advertisements or paid inserts.

Since we do not engage in the practice of medicine, we always recommend that you consult a physician before pursuing any course of treatment.

Information and opinions expressed in this publication are not necessarily those of the Hemophilia Association of San Diego County, or those of the editorial staff.

Material printed in this publication may be reprinted with the express prior written permission from the Executive Director. Number and quarterly date must be included.

3550 Camino Del Rio North, Suite 105San Diego, CA 92108Tel (619) 325-3570Fax (619) 325-4350E-mail: [email protected]

WebsIte: WWW.hasDc.ORg

find us on facebook

@HemophiliaSD

@hasdc

Esquina dE la dirEctoraNooshin Kosar, Directora Ejecutiva de HASDC

It has been another busy summer here at HASDC filled with summer camps, educational dinner programs and the California Coastal Ride for Hemophilia. Now that we have had more s’mores than we would like to admit, we are focusing on our upcoming walk and making it the most successful to date. We encourage you to join us on Oc-tober 8th and enjoy our fall festival at Liberty Station.

The holidays are approaching and in the spirit we will be handing out

Thanksgiving Har-vest Bags to the attendees of our In-dustry Symposium in November. Please visit our website for more information or to register.

I want to wish ev-eryone a successful school year and look forward to seeing you at an up-coming event this fall.

Aquí en HASDC hemos tenido otro ve-rano muy ocupado, con el campamento de verano, cenas con programas edu-cativos y la carrera ciclista por hemofilia a lo largo de las costas de California. Después de haber comido más s’mores de lo que queremos admitir nos esta-mos concentrando en nuestra próxima caminata y tratar de hacerla una de las más exitosas hasta ahora. Los animam-os a que se unan a nosotros en Liberty Station el 8 de octubre y se diviertan en

nuestro festival de otoño.Los días festivos se acercan y en el

espíritu de estos estaremos regalando bolsas de alimentos para el Día de Gra-cias a los asistentes al Simposio de la Industria en noviembre. Por favor visite nuestro sitio web para más información o para inscribirse.

Quiero desearles a todos un `exitoso año escolar y espero verlos en los even-tos que tendremos este otoño.

THANK YOu 2016 TEEN CAMP SPONSORS

Director’S corner NOOshIN KOsaRhasDc executIVe DIRectOR



$20 Full Registration Adult$10 Full Registration ChildIncludes walk t-shirt and goodie bag

Please join us for our second annual Industry Symposium. Families and caregivers will have direct access to manufacturers in the bleeding disorders community and have the opportunity to learn and network during educational sessions. Each familiy will receive a Thanksgiving Celebration Gift that includes all the fixings for a Thanksgiving meal. Childcare will be provided. Visit the HASDC website to register.

sunday, November 1310:00 am – 5:00 pmWestin gaslamp san Diego910 broadway circle, sD 92101

Save tHe Date – HaSDc inDuStry SympoSium

Bloodlines • Volume 36 Issue 3 | Page 3


Save one life “DIsease aND DIsasteRs cOme aND gO LIKe RaIN, but heaLth Is LIKe the suN that ILLumINates the eNtIRe VILLage.” - KeNyaN PROVeRb

Save One Life is a nonprofit international organization that offers individuals, families, companies and organizations the opportunity to sponsor a child or adult with a bleeding disorder in a developing country. unlike many other programs where funds are pooled, Save One Life beneficiaries receive money directly from their sponsors, with only a small percentage given to the national or local organization that registers and cares for them. In May 2016, Save One Life sent over $170,000 to 1,200 beneficiaries registered with 41 program partners.

HASDC proudly sponsors Zakayo, and adult in Kenya who is living with a bleeding disorder. Laurie Kelley, President and Founder of Save One Life recently visited Africa and sent us this report.

“I’m back in Africa where, contrary to popular belief, it is not scorching hot but cool and pleasant, lush and green. It’s winter here, and the mornings are moist and overcast, later clearing to blue skies and mild temperatures. I’m in Kenya, visiting the children and young men who participate in Save One Life. We work through our in-country program partner, the Jose Memorial Haemophilia Society, established ten years ago by Maureen Miruka, mother of a child with hemophilia. They’ve been fantastic to work with! In just over just two days we visited six families around Nairobi and the neighboring town of Murang’a.”

www.saveonelife.net

Kenya


Michael, 30 years old, lives with hemophilia A.

Visit Novoeight.com today to learn more.

Indications and UsageNovoeight® (Antihemophilic Factor [Recombinant]) is an injectable medicine used to control and prevent bleeding in people with hemophilia A. Your healthcare provider may give you Novoeight® when you have surgery.

Novoeight® is not used to treat von Willebrand Disease.

Important Safety InformationYou should not use Novoeight® if you are allergic to factor VIII or any of the other ingredients of Novoeight® or if you are allergic to hamster proteins.

Call your healthcare provider right away and stop treatment if you get any of the following signs of an allergic reaction: rashes or hives, difficulty breathing or swallowing, tightness of the chest, swelling of the lips and tongue, light-headedness, dizziness or loss of consciousness, pale and cold skin, fast heartbeat, or red or swollen face or hands.

Before taking Novoeight®, you should tell your healthcare provider if you have or have had any medical conditions, take any medicines (including non-prescription medicines and dietary supplements), are nursing, pregnant or planning to become pregnant, or have been told that you have inhibitors to factor VIII.

Your body can make antibodies called “inhibitors” against Novoeight®, which may stop Novoeight® from working properly. Call your healthcare provider right away if your bleeding does not stop after taking Novoeight®.

Common side effects of Novoeight® include swelling or itching at the location of injection, changes in liver tests, and fever.

Please see brief summary of Prescribing Information on following page.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

Novo Nordisk Inc., 800 Scudders Mill Road, Plainsboro, New Jersey 08536 U.S.A.

Novoeight® is a registered trademark of Novo Nordisk Health Care AG. © 2015 Novo Nordisk All rights reserved. 1114-00024070-1 April 2015

Novoeight®— designed to fit into your world

An injectable medicine used to control and prevent bleeding in people with hemophilia A

Two 20-nanometer filters used in a 5-step purification process

PurityNovoeight® offers the highest storage temperature for the longest timea–up to 86˚F for 12 months

PortabilityIn one of the largest clinical trials of a recombinant factor VIII to date, there were 0 inhibitors confirmed in 213 previously treated patientsb

Reliability

a Compared with other recombinant factor VIII products.b People with previous inhibitors and those new to treatment were not included in the trial. People with hemophilia A may develop inhibitors to factor VIII.

Please see Prescribing Information for complete storage instructions.

8Terms and conditions apply.


lively Summer at uc San Diego HealtHThe Hemophilia and Thrombosis Treatment Center (HTTC) at uC San Diego Health had an exciting summer filled with adventurous activities for our patients. Being physically active has been shown to be a vital component in hemophilia care by decreasing the joints’ vulnerability to bleeding episodes, improving cardiovascular health, increasing general fitness, and enhancing overall quality of life. In July, uC San Diego Health hosted a one-day kayaking adventure in Coronado. We also hosted our first SPIN class, where participants rode static bikes working towards enhancing their endurance, muscle strength, and overall fitness.

In August the HTTC team began hosting a weekly Aquatics Fitness Class, one hour in length and held at the Canyonview Pool on the uCSD campus. During the aquatics class participants enjoy a wide variety of exercises, which work

joint range of motion, muscle strength, and stability, while decreasing stress on the joints. Please contact the center for more information on the Aquatics Fitness Class.

On September 28th our Rock Climbing Program will begin again. The indoor rock climbing classes will go on for 12 weeks at the Mesa Rim in Sorrento Mesa. Participants will not only work on improving their climbing skills, but also enhance joint range of motion, muscle strength, balance, and general fitness in a safe and very fun environment. Please contact the center for more information on the Rock Climbing Program.

call or visit their website for more information:

www.health.ucsd.edu/hemophilia or 858.657.6028

uc San Diego Health Hemophilia

& thrombosis treatment

center

Save tHe Date – uc San Diego HealtH Httc

For all patients with bleeding disorders and their family members. Take part in educational sessions, informative discussions, and fun and engaging activities for people of all ages. Please visit the uC San Diego Health HTTC website for detailed information and to register.

saturday, september 2410:00 am – 4:00 pmucsD La Jolla campus – great hall

uc san Diego healthhemophilia & thrombosis treatment center8929 university center Lane, suite 201san Diego, ca 92122858.657.6028www.health.ucsd.edu/hemophilia


When it comes to your factor therapy, you have choices. And at Biogen, we recognize the importance of continued

research as well as supporting the hemophilia community. See if now might be the right time for you to make

a change—learn more about our therapy options as well as our range of financial, educational, and community

support programs.

© 2016 Biogen. All rights reserved. HEM-US-0679 01/16

Edgar Vega | Phone: 562.413.4852 | E-mail: [email protected]

To learn more about these options, contact your CoRe Manager:

/BiogenHemophiliaCoRes /BiogenHemCoRes

about your factor options? Want to Know More


Cuando se trata de su terapia con factor, tiene opciones. Y en Biogen reconocemos la importancia de la

investigación continua, así como del apoyo a la comunidad hemofílica. Compruebe si ahora podría ser el

momento oportuno para hacer un cambio: obtenga más información acerca de nuestras opciones de terapia,

además de nuestra gama de programas de apoyo financiero, eucativo y comunitario.

© 2016 Biogen. Todos los derechos reservados. HEM-US-0866 03/16

Edgar Vega | Teléfono: 562.413.4852 | Correo electrónico: [email protected]

Para obtener más información acerca de estas opciones, comuníquese con su gerente CoRe:

/BiogenHemophiliaCoRes /BiogenHemCoRes

acerca de sus opciones terapéuticas con factor? ¿Desea saber más


california coaStal riDe LIsa heffeRNaNDIRectOR Of PROgRams & eVeNts

2016 marked the 15th year of the California Coastal Ride for hemophilia, von Willebrand disease and other bleeding disorders. The California Coastal Ride is a fundraising fitness challenge benefiting the four California hemophilia chapters and the Hemophilia Council of California (HCC). Participants cycle over 500 miles from San Francisco to San Diego to raise awareness and funds for the bleeding disorders community.

The 2016 team, including 18 dedicated cyclists and more than 20 support and gear (SAG) volunteers, began their 7-day adventure on August 14th. Riders cycled 60 to 100 miles each day; nightly accommodations, meals, snacks and beverages were provided. The team traveled down the beautiful coast of California, with stops including Big Sur, San Simeon and Santa Barbara. Riders tested themselves mentally and physically, gained an immense sense of accomplishment, and advocated for individuals with bleeding disorders.

For more information on becoming a sponsor, volunteer or rider for the 2017 fundraising event, please see the HCC website at www.hemophiliaca.org or contact HASDC.

rEcorrido ciclista por las costas dE california

2016 Hasdc ridEr – His story

Lisa Heffernan, Directora de Programmas y Eventos

Giovanny Pernudi

El 2016 marcó el 15to año del recorrido ciclista por las costas de California por hemofilia, la enfermedad de von Willebrand y otros desórdenes sanguíneos. Este recorrido por las costas de California fué un reto a la condición física de los ciclistas y lo hacen para reunir fondos que benefician a los cuatro capítulos de hemofilia de California y el Concejo de Hemofilia de California (CHC). Los participantes recorren más de 500 millas desde San Francisco hasta San Diego para despertar el interés y reunir fondos para la comunidad de desórdenes sanguíneos.

El equipo del 2016, compuesto por 18 dedicados ciclistas y más de 20 voluntarios (SAG) que proporcionaron su apoyo empezaron ésta aventura de 7 días el 14 de agosto. Los ciclistas recorrieron de 60 a 100 millas cada día. Alojamiento nocturno, comidas, meriendas y refrescos fuerón proveídos. El equipo viajó a lo largo de las hermosas costas de California, con paradas en Big Sur, San Simeón y Santa Bárbara. Los ciclistas se pusieron a prueba mental y físicamente, obtuvierón un gran sentido de logro y ayudarón a personas con desórdenes sanguíneos.

Para más información de cómo ser un patrocinador, voluntario o ciclista para el evento del 2017 para reunir fondos, por favor vea el sitio de HCC en www.hemophiliaca.org o comuníquese con HASDC.

“So, four years ago I got my right ankle fused. At that time I felt as though that was it for me, and that I would not be able to do anything remotely athletic for the rest of my life. Completing the Coastal Ride this year is my biggest hemophilia accomplishment to date. It just proves that hemophilia isn’t necessarily a hindrance to living a full and active life. The encouragement I received from the volunteers and the riders was awesome, and I hope to be able to continue this ride in future years.”

“Pues bien, hace cuatro años que mi tobillo derecho fué fundido. En ese momento me sentí como que si eso era el final para mí y que no podría hacer nada remotamente atlético por el resto de mi vida. Completar el recorrido por la costa éste año es uno de mis más grandes logros de hemofilia hasta la fecha. Esto solo prueba que hemofilia no es necesariamente un impedimento a vivir una vida completa y activa. El aliento que recibí de los voluntarios y compañeros ciclistas fué increíble y espero poder participar en este recorrido en años futuros.”

ciclista dE Hasdc dEl 2016Giovanny Pernudi


SAVE THE DATE HASDC Holiday Celebration

TOY DRIVE !"#$%&'()#*+$,-*%.*)$/0$&*1"2&'(',3$4"+$5'((*/#,+)67$

)'7*,7*$,+)$".&*#$/(**)'+8$)'7"#)*#7$

9:.$,$71'(*$"+$,$%&'()67$;,%*$.&'7$&"('),0$7*,7"+<$="07$,+)$)"+,>"+7$?'(($8"$.&#":8&$.&*$@ABCD$?"#E7&"2$

,+)$/*$8'4*+$."$.&*$%&'()#*+$,.$":#$@"('),0$D*(*/#,>"+F$B**E'+8$+*?3$:+?#,22*)$."07$;"#$%&'()#*+$G$.&#":8&$HI$0*,#7$";$,8*$JKLM$4,(:*NF$B:88*7.*)$'.*17$'+%(:)*O$C"((73$A%>"+$!'8:#*73$

P:7'%,($Q.*173$=""($R'.73$,+)$KLM$=,#8*.$S'T$D,#)7F$$

!"#$%"#&'()$*)+'$,,-./-*'#"0'/123'!-,-45-2'6'$C#"2$,.$@ABCD$UV%*O$$

WGGM$D,1'+"$C*($X'"$Y"#.&3$B:'.*$HMG3$BC$ZLHM[$9(*,7*$%,(($."$4*#';0$*(4*7$,#*$'+$.&*$?"#E7&"2F$$

Saturday, December 10 12:00-3:00 pm Handlery Hotel San Diego 950 Hotel Circle North, SD 92108

Holiday Crafts - Lunch - Surprise Guests - Gifts for the Children Look for details and invitations in November. Register online: www.hasdc.org/events

Save tHe DateraDy cHilDren’S HoSpital HemopHilia & tHromboSiS treatment center family Daysaturday, October 2211:00 am — 2:00 pm3030 children’s Way, Room 113Invitations to be mailed; RsVP required858.576.1700 extension 3066 for information


PP-HEM-USA-0280-01 © 2015 Pfi zer Inc. All rights reserved. November 2015

Scan the QR code or visit Pfi zerFactorSavingsCard.com to download your card today.*

Get your card online now…

Beginning in 2016 (follow these steps):1. Get your prescription for a Pfi zer factor product from your doctor.

2. Visit Pfi zerFactorSavingsCard.com and fi ll out a brief registration form.†

3. Save and print your card right from your computer. The card is now activated.

4. Keep your card and use it for every purchase until the maximum benefi t has been reached or the card has expired, whichever comes fi rst.

This card will be accepted only at participating pharmacies. This card is not health insurance. No membership fees. You will receive a total benefi t of $12,000 per calendar year, or the amount of your co-pay over one year, less a patient fi nancial responsibility of $10 per month, whichever is less.

If you have any questions about the use of the Pfi zer Factor Savings Card, please call 1-888-240-9040 or send questions to: Pfi zer Factor Savings Program, 6501 Weston Parkway, Suite 370, Cary, NC 27513. The Pfi zer Factor Savings Card cannot be combined with other offers and is limited to one per person.

*Terms and conditions apply; visit Pfi zerFactorSavingsCard.com for complete terms and conditions. For commercially insured only. Medicare/Medicaid benefi ciaries are not eligible.†You can also request a card from your doctor, or by calling 1-855-PFZ-HEMO.

Eligible patients can save up to $12,000 annually on co-pay, deductible, and coinsurance costs with the Pfi zer Factor Savings Card.

Save up to $12,000 in 2016!


Back to school time can be a hectic time for both you and your children These are some of the best back to school tips to help ensure this school year gets off to a great start!

1. Visit the school Walk or ride the route your child will take and make note of school patrols, crossing guards and high traffic areas along the way. Talk to your kids about NOT talking to strangers and find out what, if any, policies your child’s school has regarding early arrivals or late pick-ups. Learn about the school’s entrance and exit policies. Then, if you can, pop in and check out what the inside of the school looks like.

2. Introduce yourself to your child’s teacherIntroduce yourself to your child’s teacher and ask him or her about the preferred method of communication. (Some teachers are active on email and social media, while others prefer the phone or in-person meetings.)

3. make homework a PriorityMake homework time a daily habit. Find a quiet and consistent place at home where your child can complete his or her homework. If your child is having difficulty with his or her homework, make an appointment with the teacher sooner rather than later.

4. set up a study areaSet up a special place at home to do school work and homework. Remove distractions. Make it clear that education is a top priority in your family: show interest and praise your child’s work.

5. take charge of tV and electronics timeLimit the time that you let your child watch TV or play on electronic devices. When you do decide to do TV time, make it a family affair. Talk together about what you see and ask questions after the show ends.

6. get everyone to bed On timeDuring the summer, children aren’t always on a schedule, which is understandable. But, proper rest is essential for a healthy and productive school year. Help your kids get back on track sleep-wise by having them go to bed earlier and wake up earlier at least a week in advance of when school actually starts. (The National Sleep Foundation recommends 9-11 hours of sleep for children ages 6-13, and 8-10 hours of sleep for teens ages 14-17.)

7. make healthy mealsLet’s face it – no one can concentrate when they’re hungry. Studies show that children who eat healthy, balanced breakfasts and lunches do better in school. Fix nutritious meals at home, and, if you need extra help, find out if your family qualifies for any child nutrition programs, like the National School Lunch Program.

8. get a check upIt’s a good idea to take your child in for a physical and an eye exam before school starts. Most schools require up-to-date immunizations, and you may be asked to provide paperwork showing that your child has all the necessary shots and vaccines. So, check your state’s immunization requirements. And, always keep your own copies of any medical records.

9. Read with your child every NightMake a plan to read with your child for 20 minutes every day. Your example reinforces the importance of literacy, and reading lets you and your child explore new worlds of fun and adventure together.

Reprinted from the US Department of Education blog. See www.ed.gov for more information.

Wellness (wel-nis): the quality or state of

being healthy in body and mind, as the result of a

deliberate effort.

LIsa heffeRNaNDIRectOR Of

PROgRams & eVeNts

WellneSS corner

9 back to ScHool tipS for parentS


El regreso a la escuela puede ser muy agitado para usted y sus niños. ¡Éstos son algunos de los mejores consejos para el regreso a la escuela y asegurarse que éste año escolar tenga un gran comienzo!

1. Visite la escuela Camine o recorra en carro la ruta que su niño tomará. Durante éste recorrido tome notas sobre patrullas escolares, guardias de cruce de calle y áreas con mucho tráfico. Platique con sus hijos sobre no hablar con extraños y averigüe si la escuela tiene reglas acerca de llegar temprano o recogerlos tarde. Aprenda sobre las reglas de la escuela acerca de entradas y salidas. Si puede, entre y mire como es el interior de la escuela.

2. Preséntese al maestro(a) de su niño(a) Preséntese con el/la maestro(a) de su niño(a) y pregúntele cuál es el mejor medio de comunicación. (Algunos maestros(as) están al tanto de su correo electrónico y medios de comunicación social, mientras que otros prefieren el teléfono o una reunión en persona.)

3. haga de la tarea una prioridadHaga de la tarea un hábito diario. Encuentre un lugar callado y constante en su casa donde su niño(a) pueda hacer su tarea. Si su niño(a) está teniendo dificultades con la tarea, haga una cita con el maestro(a) lo antes posible, no lo deje para después.

4. escoja un lugar para estudiar Escoja un lugar especial en su hogar para hacer trabajos de la escuela y tareas. Remueva distracciones. Déjeles entender que la escuela es una prioridad en su familia. Demuestre interés y elogie el trabajo de su niño(a).

5. tome control del uso de la televisión y objetos electrónicosLimite el tiempo que le permite a su niño(a) ver la televisión o usar juegos electrónicos. Cuando decida usar la televisión; hágalo como una actividad familiar. Hablen de lo que ven y haga preguntas después del final del programa.

6. todos deben de acostarse tempranoDurante el verano los niños no siempre se acuestan temprano, lo cual se entiende. Pero

suficiente descanso es fundamental para un año escolar saludable y productivo. Ayude a sus niños a acostumbrarse al horario de dormir acostándolos y levantándolos más temprano por lo menos una semana antes de que empiece la escuela. (La Fundación Nacional del Sueño recomienda que los niños de 6 a 13 años duerman de 9 a 11 horas y de 8 a 10 horas para los adolescentes de 14 a 17 años.)

7. Prepare comidas saludablesSeamos reales – nadie se puede concentrar cuando tiene hambre. Estudios demuestran que aquellos niños que comen desayunos y almuerzos saludables obtienen mejores resultados en la escuela. Prepare comidas nutritivas en casa y si necesita ayuda; averigüe si su familia es elegible para participar en algún programa de nutrición para niños como El Programa nacional de almuerzos escolares.

8. Llévelos a un chequeo médico Es una buena idea llevar a su niño(a) a que le hagan un examen físico y examen de los ojos antes de que empiece la escuela. La mayoría de las escuelas requieren que las inmunizaciones estén al día y le pueden pedir documentos que muestren que su niño(a) tiene todas las inyecciones y vacunas necesarias. Así que investigue cuales son los requisitos de inmunización del estado. Siempre mantenga sus propias copias de todos esos documentos médicos.

9. Lea con su niño(a) todas las noches Haga un plan de leer con su niño(a) por veinte minutos todas las noches. Su ejemplo refuerza la importancia del alfabetismo y la lectura le permite a usted y a su niño(a) explorar nuevos mundos de diversión y aventuras juntos.

Reproducido del blog del Departamento de Educación de EE. UU. Para más información vea www.ed.gov.

bienestar: la cualidad o el estado

de estar saludable en cuerpo y mente

como resultado de un esfuerzo deliberado.

LIsa heffeRNaNDIRectORa De

PROgRammas y eVeNtOs

eSqina Del bienStar

9 conSejoS para loS papaS para el regreSo a la eScuela


© 2016 Emergent BioSolutions Inc.

All rights reserved. CM-FIX-0027

Watch the videos at

PatientIXperiences.com

Manufactured by Cangene Corporation, a subsidiary of Emergent BioSolutions Inc. and distributed by Cangene bioPharma, Inc., a subsidiary of Emergent BioSolutions Inc.

IXINITY [coagulation factor IX (recombinant)], IXperience, and any and all Emergent BioSolutions Inc. brand, product, service and feature names, logos, slogans are trademarks or registered trademarks of Emergent BioSolutions Inc. or its subsidiaries in the United States or other countries. All rights reserved.

Learn about Nathan’s IXINITY®

Buil� on s�ren��h and e�perience. Po�ered b� our commi�men� �o �ou.�e belie�e �he rela�ionship be��een Ba�al�a and Shire and our commi�men� �o �he communi�ies �e ser�e is a po�er�ul combina�ion.

Combinin� 60 �ears �i�h �0 �ears o� dedica�ed his�or� �o �he Hemophilia and rare disorders communi�ies� �e ha�e e�en more resources �o le�era�e. �nd� �e�ll con�inue �o consis�en�l� pursue ad�ancemen�s in �he �rea�men� o� bleedin� disorders.

�ou can coun� on us because �e�re here … s�ron�er �han e�er.

B�� is a �rademar� or re�is�ered �rademar� o� Ba�al�a Incorpora�ed� a �holl� o�ned� indirec� subsidiar� o� Shire plc. SHI�� is a �rademar� or re�is�ered �rademar� o� Shire Pharmaceu�ical Holdin�s Ireland �imi�ed or i�s a�lia�es.June �016 USBS/M�1/16-0488a

Biotherapies for Life® is a registered trademark of CSL Behring LLC.©2016 CSL Behring LLC 1020 First Avenue, PO Box 61501, King of Prussia, PA 19406-0901 USA www.CSLBehring-us.com COA15-11-0087f 1/2016

A century of experience…a future of discovery

Continuing the legacy of Emil von Behring, recipient of the �rst Nobel Prize in medicine, CSL Behring specializes in developing biotherapeutics

for serious and rare conditions, including hemophilia A and B.

AT CSL BEHRING, WE’RE WORKING TO UNVEIL INNOVATIVE SOLUTIONS

IN HEMOPHILIA A & B


hemophilia association of san diego county 3550 Camino Del Rio North, Suite 105 San Diego, California 92108

PA

Non-Profit Org.U.S. Postage

IDPermit No. 589San Diego, CA



hasdc 2016 calendar of eventsSeptember 18 Hispanic Education Day/Día Educativo Hispano Hacienda Hotel, Old Town

September 24 UC San Diego Health HTTC Patient Wellness & Education Day Location TBA

October 8 San Diego Hemophilia Walk NTC Park, Liberty Station

October 20 Educational Dinner Program – (Biogen) Phil’s BBQ, Point Loma

October/November Holiday Toy Drive DelivertoHASDCOffice

October 22 Rady Children’s Hospital HTTC Family Day Rady Children’s Hospital

October 29 Backpacks & Bleeders - Kayaking La Jolla Cove

November 13 Industry Symposium Westin San Diego Gaslamp

December 6 Educational Dinner Program – (Novo Nordisk) Location TBA

December 10 Holiday Celebration Handlery Hotel, Mission Valley

Subject to change. Advance registration is required for all events. Please visit our website for event details and online registration - www.hasdc.org/events

Documents

Volume 36 Issue 3 2016 San Diego HemopHilia Walk – october 8hasdc.org/wp-content/uploads/vol36-issue3-web.pdf · 2016-09-12 · Volume 36 Issue 3 2016 Join us for our 4th Annual