United OstomyAssociationsof America, Inc.

LINCOLN OSTOMY ASSOCIATION

UOAA

Communication channels and methods for the next generation of ostomates are changing according to Mallory Trecaso, Lin-coln Ostomy Association’s new young adult outreach coordinator. Providing advice and support to mil-lennials might look like a well-timed text or Instagram message. Trecaso is bridging this gap by volun-teering on the board of directors at the LOA

while offering support to younger people. Millennials account for a third of Americans and are the largest share of the U.S. workforce. While millennials want to hear information, they also want to find their information independently. Originally from Akron, Ohio, Mallory is attending the University of Nebraska - Lincoln pursuing her MFA in Studio Art with a focus in photography. She also serves as a

ambassador of Stealth Belt. “I’ve gotten texts from new ostomates with simple questions like, how do I shower with this thing,” she said. “I’m not a nurse, but I want to be a familiar and trusted voice who’s closer in age and can relate.” Trecaso represented LOA at the national UOAA conference in California. To connect with Mallory, email lincolnostomy@gmail.com.

YOUTH

February 2018 • Lincoln Ostomy Association

Lincoln Ostomy Association names Young Adult Outreach Coordinator Mallory Trecaso

Lincoln Ostomy Association benefits members, community Network and support LOA meetings are held the first Sunday of the month. Times and locations are found at:ostomynebraska.com/lincoln/

Health care & supplies From home health supply companies to local medical profession-als and facilities, LOA maintains great relations to those supporting ostomates.

EducationLOA takes pride in pro-viding the best education for ostomy support in Nebraska through the Sparrow newsletter, the award-winning LOA web-site and great speakers. http://ostomynebraska.com/lincoln

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Support for youth found at rally camp

Children’s Health & Medical Center, located at 3000 S. 84th Street, Omaha, provides ostomy care with Pediatric healthcare professionals working under the supervision of the child’s primary care physician. For more information, please contact Children’s Home Healthcare at 402-955-7777.

SIMPLESTART Ostomy Care KitAccessory Products Designed to

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Products Included in Kit:- Peri-Stoma Cleanser & Adhesive Remover - No-Sting Skin Barrier Wipe- Ostomy Skin Barrier Powder- Skin Barrier Conforming Seal- Skin Barrier Arcs 1”- Skin Barrier Arcs 2”- Assure C Odor Eliminator- Transparent CTF Drainable Pouch & Clip

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The Lincoln Ostomy Association supports ostomates of all ages including adolescents living with bowel and blad-der conditions. A National Youth Rally Medical Team is a mixture of WOCNs (wound

ostomy continence nurses) and other licensed medical professionals who host young campers for fun, self confidence and education regarding their conditions. Some volunteers were campers who now promote optimal health and

self-management throughout the week. The 2018 rally takes place July 16-21 in Boulder, Colorado. Contact Mary Beth at: registrar@youthrally.org April Gimlen at: 510-769-9295 or visit www.youthrally.org

3838 N 63rd St, Lincoln, NE 68507

Positive benefits Anything that fires feelings of joy and contentment leads to positive thinking and that improves health. A study, by the Journal of Research in Personality, exam-ined 90 students who were placed into two groups. The first group wrote about a very positive experience each day for three consecutive days. The second group wrote about a control topic. Three months later, students who wrote about positive experiences had better mood levels, fewer visits to the health center and experienced fewer illnesses. Research from the Harvard School of Public Health in 2001 says optimism is linked to lowered risk of heart disease in older men and University of Pittsburgh researchers report that optimistic women have less thickening of the carotid artery walls. A 2009 Women’s Health Initiative Study for the American Heart Association journal suggests that a posi-

tive mental outlook is associated with reduced evidence of coronary heart dis-ease and total mor-tality in post-meno-pausal women. In 2000, Mayo Clinic researcher Toshihiko Maruta, M.D., published a 30-year study of 839 patients, indicating a pessimistic view was a risk factor for early death, with a 19 percent increase in the risk of mortality. Even after adjusting for age and gender, pessimists had a higher mortality rate than those who tested as optimistic.

According to a panel held by ostomy products manufactur-er Hollister, over 50 percent of all convexity-wearing osto-mates would benefit from, or need to wear, an ostomy belt. These belts help maintain an even pressure over the peri-stomal skin, and for some patients they can be used to enhance the convex effect by applying more pressure than achieved when wearing the flange without a belt. They can also help hold the flange in place on flaccid abdomens, or those ostomates whose stomas are located within a skin fold.

Convexity couples well with a belt

Every day may not be good, but there’s good in every day!

Wide Selection of Ostomy Supplies Personalized Customer Care Lifestyle Tips and Advice

Call Now! 1-800-675-7342 shieldhealthcare.com/welcome

Stronger with Shield

3 Three ReasonsYou Are Stronger

With Shield

1

2

3

The physicians and staff of Gastroenterology Specialties and Lincoln Endoscopy Center specialize in the diagnosis and treatment of disorders of the esophagus, stomach, intestines, gallbladder, liver and pancreas; including colon cancer, irritable bowel syndrome, acid reflux, liver disease, Crohn’s disease and more.

4545 R Street Lincoln, NE 68503Phone: 402-465-4545

INDIGESTIVE DISEASE

ADVOCATE study shows reduced skin damage

Several studies have shown that Crohn’s disease is becoming more common in children and adults in the United States. In 2004-2005, 43 children and 214 adults per 100,000 people had Crohn’s disease and 27 children and 235 adults per 100,000 people had ulcerative colitis. In 2008-2009, these estimates rose to 48 children and 236 adults per 100,000 people for Crohn’s disease and 29 children and 248 adults per 100,000 people for ulcerative colitis. According to the United Ostomy Association, more than 450,000 people in the U.S. have a stoma (ostomy) and nearly 120,000 new ostomy surgeries are performed each year. The average age of those with an ostomy is 68 years old, but ostomates range in age from infants to the elderly. All require pre- and post-surgery support, education and coun-seling after their surgeries. This is where a specially-trained wound, ostomy and continence nurse is essential.

Is IBD becoming more common?

Comfort, convexity and skin issues all come to mind for ostomates when choosing a brand of product. While the Lincoln Ostomy Association does not advocate for any particular product, we constantly look for product updates so members can make the best choice. Hollister recently pub-lished a study called, “ADVO-CATE,” in which 153 adults from 25 locations in the U.S., Canada and Europe, were seen between March 2015 and January 2017. The study compared Hollister CeraPlus (which includes ceremides) skin barrier against products without ceremides to compare costs and the occurrence of peristomal skin compli-cations. According to Hollister, “CeraPlus skin barrier users in the ADVOCATE

study experienced a clinically mean-ingful reduction in the occurrence of peristomal skin complications (PSCs) and PSCs were significantly more likely to resolve in a 4-week period with the use of CeraPlus skin barri-ers. Individuals using CeraPlus skin barriers experienced a 26.9 percent relative reduction in PSCs in compar-ison to those using Hollister Ostomy

Care non-ceramide barriers, although the difference was not statistically significant. Significantly more partici-pants were ‘very satisfied’ with the overall barrier performance as compared to the Hollister Ostomy Care non-ceramide barrier control group” The ADVOCATE study demonstrated a cost savings utilizing CeraPlus skin barriers over the 12-week period, as compared

to the Hollister Ostomy Care non-ce-ramide control group. The use of CeraPlus skin barriers resulted in a 14 percent relative reduction in stoma-re-lated cost of care (supplies and select accessories, topical treatments and healthcare visits) on costs of stoma care and occurrence of PSCs.

LOA goes high-tech for national expert The Lincoln Ostomy Association welcomed a national ostomy advocate, Laura Cox, from Shield Health Care for it’s January meeting via a confer-ence link provided by Bryan Health. Cox provided information on her story as a young ostomate. She discussed everything from attitude to products. She opened the floor to LOA members to collect feedback. Cox travels the country connecting osto-mates and brought some best practices for ostomy groups. Cox said her experience as an os-tomate also prompts training at Shield Health Care. “At Shield, we had our customer service people wear a pouch for sever-al days,” she said. “They were enlight-ened to what we get to do all the time.

I was really pleased to see how they all reacted.” Shield Health Care has been a great support to the LOA in 2017 sponsoring the Sparrow twice and bringing extra education to members through articles and videos featuring Lau-ra Cox. One video covers a wide array of topics that would be handy for new and veteran ostomates. The video is also available at ostomy-nebraska.com/lincoln. Fourteen points that Laura addresses are: leaks; noise;

dressing; body image; going out in public; sports, leisure and other activi-ties; friends; dating and sex; sleeping; odor; hydration and travel.

Dwight Eisen-hower was the 34th president of the U.S. He was a five-star general who led the Allied invasion of Nazi-occupied Europe during World War II. He was also known for easing Cold War tensions, launching the Space Race and creating the Federal Interstate Highway System. While many people were aware of his health issues, not many peo-ple knew that “Ike” also had an ostomy. In May 1956 – halfway through his 8-year presidency – Eisenhower was diagnosed with Crohn’s disease. His doctor performed a per-manent ileotransverse colostomy to remove a bowel obstruction. Five days after surgery, he resumed conducting official business.

While many ostomates may not consider themselves disabled, they are protected under the Rehabilitation Act of 1973 and the Americans with Disabilities Act against employment-based dis-crimination in the workplace. Some employers, not familiar with ostomy surgery, may react negatively or treat ostomates differently. Individuals who feel they have been discriminated against due to their ostomy or continent surgery, or due to certain needs result-ing from surgery, should not be embarrassed or reluctant to rely on the protections offered under the ADA.

You liked Ike?He was in our boat

ACROSS1. Betel palm6. Precipitation10. Iraqi missile14. Element with the symbol “B”15. To (archaic)16. “Born Free” lioness17. Void or empty18. Places19. At the back20. Reiterates22. Process of allocating re-sources24. Great Lake25. Selected26. Actress Nicole ______29. ____ d’etat30. Long period of time31. Frighteningly37. Former LA Dodger pitcher Carlos _____39. Anger40. Name from the Greek word meaning “Of Delos”41. Starring44. Contented sound45. Prince of Midian46. Wicker48. Formally honored52. Native of northern Japan53. Radical derived from pro-pane (chemistry)54. A founder of the Theatre Guild, designer Lee ________58. Debauched person59. Angle between a stem and leafstalk61. _____ Princess of Wales62. Association (abbrev.)63. Less than ten64. God of the east wind (Greek mythology)65. Started (slang)66. Ceased to exist67. Strike forcefully

DOWN1. Shortened2. Part portrayed3. Historical periods4. Despised5. City in Turkey6. Currency7. Bowel opening8. International Telephone and Telegraph9. A quack remedy10. Fine line on typefaces11. Athletic shoe spike12. Customary practice 13. Challenged21. “Gilligan’s Island” actress ____ Louise23. Speedy25. Actress Mamie van _____26. 11th letter of the Hebrew al-phabet27. Electrical engineers group28. Name from the Greek word meaning “Gift”29. Native of the Lesser Antilles32. Covered the inner surface33. A radioactive element34. Oversupply35. Italian currency36. Wool, or story38. Polish currency 42. “Emerald Isle”43. Sinister or unnerving47. Positively charged electrodes48. Small marine fish49. Got up50. Bloodsucking insect51. Tip over52. Was unwell54. Trigonometric function55. Actress ____ Gilbert56. Burden57. US humorist Ogden ____60. Roman numeral for 12

Sam walks into his boss’s office. “Sir, I’ll be straight with you, I know the economy isn’t great, but I have three companies after me,

and I would like to respectfully ask for a raise.” After a few minutes of haggling the boss finally agrees to a 5 percent raise, and Sam happily gets up to leave. “By the way,” asks the boss as Sam is getting up, “which three companies are after you?” “The electric compa-ny, water company and phone company,” Sam replied.

“I’m happy to see you too!”

to Frontier Home Medical for sponsoring the printing of our Lincoln Ostomy Association Sparrow!Thanks!

Our family helping yours.

4550 O Street, Lincoln | phone 402.465.0033 | FrontierHomeMedical.com

DIABETIC SHOES & CUSTOM INSERTS

SLEEP STUDIES & SLEEP THERAPY

COMPLEX REHAB MOBILITY SOLUTIONS

INCONTINENCE PRODUCTS

HOME & PORTABLE OXYGEN

HOME & BATHROOM SAFETY

BEDS & SUPPORTS INFANT CARE & ACCESSORIES

HOME MEDICAL SUPPLIESare just around the corner!

President Denise 402-464-7544Vice President Melinda 402-421-7636Secretary Beverly 402-525-9271Treasurer Val 402-489-7709Visitation Sally 402-419-8817Communications John 402-310-3496

Lincoln Ostomy Home VisitsLOA provide an ostomy visitors program which offers one-on-one support by a trained certified visitor. Visits can be made in person to the hospital, home or by telephone to answer initial concerns of the new patient. A visitor serves as a positive role model for a new ostomate. Visitation Coordinators are Mallory & Sally (402) 419-8817.

MeetingsLocations will be announced at:http://ostomynebraska.com/lincoln/March 4, 1-3 p.m.................Stress reliefApril 8, 1-3 p.m................................TBDMay 6, 1-3 p.m........................ColoplastJune 3, 1-3 p.m.......................ConvatecJuly 8, 1-3 p.m................................TBDSept. 25................Ostomy Conference

Contact, AdvertiseContact or visit LOA to learn more about support group meetings, ostomy prod-ucts and educational opportunities. lincolnostomy@gmail.com. Sparrow is a quarterly publication for the Lincoln Osto-my Association. If you’d like to advertise or to submit an article, email lincolnosto-my@gmail.com

Ostomy Nurse Contact Ann Lif RN, BSN, CWOCNBryan Medical Center 402-481-2018Amanda Paprocki RN, BSN, CWOCN Bryan Medical Center 402-481-2018Cindy Skinner RN, BSN, CWOCNBryan Medical Center 402-481-2018Lisa Jones RN, MSN, CWOCN, CFCNBryan Medical Center 402-481-2018Annie Ocampo MSN, RN, CWOCNMadonna Rehab 402 413-3652Joan Junkin RN, MSN; wound/ostomy consultantThe Healing Touch, Inc.joanjunkin@gmail.comRhonda R. Souchek, RN BSN CWONInpatient Wound & Ostomy NurseCHI Health St. ElizabethRSouchek@stez.org

On the web at:http://ostomynebraska.com/lincoln

Lincoln Ostomy Association Sparrow7400 Helen Witt DrLincoln, NE 68512lincolnostomy@gmail.comUnited Ostomy

Associationsof America, Inc.

LINCOLN OSTOMY ASSOCIATION

UOAA

Independence, service found at

Frontier Home For 22 years, Lincolnites have cruised into Frontier Home Medical on 45th & O Streets for everything from wheelchairs to CPAP to incontinence products. The business was started by Smokey Cornelius who holds plenty of experience with home medical equipment and services. She looks to provide independence back to those with restricted mobility. “Frontier does a great job with customer service,” said Director of Sales and Clinical Operations Jodi Woodard, RN. “We have clinicians on hand who can bring a high level of expertise to go with the products.” Woodard said Frontier customer also receive special service due to the statewide network of stores. Frontier serves greater Nebraska in Cozad, North Platte, Lincoln, Omaha, Kearney, McCook and Grand Island. Contact Frontier at 888-326-3818 to help you find the perfect equipment to suit your needs.

Director of Sales and Clinical Operations Jodi Woodard, RN, said medical expertise and service makes Frontier stand apart.