Moving the Needle - ACCEL the Needle_3 30_16_Update.pdfmethods to teens in Delaware by using qualitative (focus group) and quantitative (electronic surveys) methods and a CBPR approach

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Aligning public health outcomes with the Delaware State Health Improvement Plan and Delaware Department of Public Health Strategy Goals by Assessing Relevance

CEO informs ACCEL on funding decisions and research activities. Value of Information:

1) Probability that the research will produce a useful answer/product

2) Size of the impact on an affected/eligible individual 3) Number of individuals affected

4) Probability/extent to which the research results will actually be disseminated and implemented 5) Duration/lifespan of the benefit

Moving the Needle

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Map of Public Health Impact in Delaware

Additional Research Activities

Clinical-Based Research

Grant Writing Activities

Presentations

Conferences & Events

Research Retreat

Promote Healthy Lifestyles

Achieve Health Equity

Improve the built environment to promote walking, biking, etc.

Increase Access to Healthy Foods

Provide Data through Robust IT infrastructure Reduce tobacco and tobacco substitute use

Improve Access to Behavioral/Mental Health Services Improve Access to High Quality & Safe Healthcare

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Promote Healthy Lifestyles Funding Source

Project Title Purpose & Intended Reach Award Year

Geographic region Targeted Age/Population

PILOT

Rehabilitation of Walking Following Stroke

The primary objective of the proposed project is to develop a scientific framework to maximize functional locomotor outcomes following stroke. We will examine the extent to which improving metabolic capacity will facilitate improvements in locomotor function.

2013

Charleston, South

Carolina

Older Adults

PILOT

A Virtual Environment for Stroke Rehabilitation

This project will address the following Specific Aims (1) Determine the number of daily movement repetitions and treatment effect achieved by inpatients in a stroke rehabilitation hospital who self-direct VE practice sessions during non-therapy hours (evenings, weekends) compared to standard evening activities; and (2) Determine the number of daily movement repetitions and treatment effect achieved by in-home stroke survivors who self-direct daily VE practice sessions compared to a group of in-home survivors with a standard self-directed exercise program.

2013

Charleston, South Carolina

Older Adults

PILOT

Rehabilitation of Microfracture Surgery: From Molecular Study to Clinical Trial

To build a novel research strategy by which the microfracture procedure and post-surgical rehabilitation can be simulated on cartilage-bone transplants and to provide new knowledge for microfracture-related patient care and will more broadly be applicable for the evaluation of other cartilage repair techniques (i.e. osteochondral allograft and cartilage tissue engineering)

2013

Young

adults/Athletes

PILOT Leveraging Neighborhood Social Networks and Social Capital for Childhood and Adolescent Obesity Prevention

Assess neighborhood social capital and social supports identified by adolescents and their service providers in the Southbridge community of Wilmington, Delaware.

2013

Wilmington

13-19

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Funding Source



ACE

Examining Survivors of Cancer and Physical Activity in Delaware (ESCAPADE): A community-based participatory research approach

To develop a community-based physical activity needs assessment for Delaware cancer survivors and service providers utilizing a community-based participatory research (CBPR) approach. This CBPR will identify physical activity and cancer care priorities, and guide the development of strategies and programming to improve the quality of physical activity in cancer care, including its communication, coordination, and delivery to cancer survivors and their support networks.

2014

Wilmington

All ages

MRDA The Role of Stress Elbow Ultrasound in Ulnar Collateral Ligament Injury

To use stress ultrasound to identify youth baseball pitchers that may be at risk for serious elbow injury prior to the development of any symptoms

2014 Wilmington (Nemours)

Youth baseball pitchers

PILOT

The role of Guanylyl Cyclase C and its ligands in pediatric obesity

Understand the role of the GUCY2C pathway in the etiology of obesity, and modulating the pathway to prevent obesity, will confer significant benefits for obesity research, obese adolescents, and obese adults

2014

Adolescents

MRDA

Mind Your Walk: Integrative Intervention for Disease Management in Knee Osteoarthritis

To develop effective and easily disseminated walking-based interventions that reduce disability and also maintain joint structure for sedentary non-obese older adults with mild-moderate radiographic and symptomatic knee osteoarthritis (OA)

2015

Charleston, South Carolina

Older Adults

PILOT

mHealth tool to support assessment of community-based mindful walking in knee Osteoarthritis (MUSC)

To implement an innovative community-based intervention (Mind Your Walk) that improves both the quality and quantity of walking in older adults with mild-moderate radiographic and symptomatic knee osteoarthritis (OA)

2015

Charleston, South

Carolina

Older Adults

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Funding Source



PILOT

Evaluation of a novel paradigm to personalize AFOs for individuals post stroke

To implement a personalized medicine approach to improve walking and overall function of individuals who have sustained a stroke through objectively customized ankle braces.

2015

Stroke patients/Older

adults

PILOT

Promotion of physical activity after total knee replacement

To develop a physical activity program that uses a Fitbit monitor (FITBIT) to motivate daily walking in people after Total knee replacement (TKR). An intervention is needed that motivates and provides adequate capacity for older adults walking after TKR.

2015

Older Adults

ACE

Inclusion of adults with intellectual disabilities in Delaware Fitness Programs

To develop a research protocol that would assess the effectiveness of the system of least prompts procedure with a video prompting on the acquisition of muscle-strengthening exercises of young adults with intellectual disabilities (ID), ages 19-29 years participating in a community organization.

2015

Recruited through

EPIC and Autism Delaware.

19-29

MRDA

Technology-Based Parenting Intervention for Families of Young Children with Obesity

Develop an intervention consisting of brief, tailored, culturally-sensitive videos to provide guidance on the use of evidence-based parenting techniques for managing a child's obesity-related behaviors, incorporating qualitative feedback from parents during the development process and will evaluate the impact of the intervention on parental self-efficacy, child obesity-related behaviors, and child weight. Target are for parents of obese children between the ages of four and eleven years presenting for an initial visit to the Nemours Weight Management Clinic

2015

Nemours Weight Management Clinic

Parents of obese children between the ages of 4-11

years

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Achieve Health Equity Funding Source


Geographic Region Targeted Age/Population

PILOT

A mixed methods study of the Wise Guys Program

To implement a mixed-methods study to evaluate an evidence-based, male-focused curriculum, Wise Guys. We are examining the effectiveness of the curriculum in impacting teen knowledge, attitudes, and behaviors related to safe sexual behavior across the state

2014

Delaware -- statewide

13-19

MRDA Use of Electronic Pre-Visit Questionnaire on the Quality of Preventative Well-Child Care

To support families and clinicians by evaluating the impact of electronic pre-visit questionnaires on health equity, shared decision making and child health outcomes.


Parents and guardians of adolescents

ACE

A community-based participatory approach to assessing Delaware Parents’ knowledge, attitudes, and preferences about LARC for teens

To explore the parents' knowledge, attitudes, and setting preferences for LARC in efforts to increase the number of providers providing these methods to teens in Delaware by using qualitative (focus group) and quantitative (electronic surveys) methods and a CBPR approach. The results of this project will be used to inform policymakers, health care providers, and health care systems on ways to increase LARC acceptability and use in order to lower teen pregnancy rates in Delaware.

2015


Parents and guardians of adolescent

females

ACE

A Community Based Participatory Research Approach to Assessing the Value of Community Health Workers in Delaware

To elicit a community-based participatory research model in the engagement of multiple perspectives; including administrators, implementers, and users, in development of patient-centered evaluation measures assessing the value of Community Health Workers. Also to develop an implementation plan for use of patient-centered, community oriented evaluation tools for CHW work across the state.

2015

Delaware – statewide

All ages

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Improve the built environment to promote walking, biking, etc. Funding Source



ACE

Establishing a baseline health assessment in economically distressed communities of north Charleston

The South Carolina State Ports Authority (SCSPA) plans to build a new marine container terminal on the Cooper River to open in 2017. This expansion will likely result in a disproportionate increase in exposure to hazardous air and water pollution among disadvantaged communities residing near the port in an area designated as the Lowcountry Alliance for Model Communities (LAMC). Funds will be used to design and implement a baseline health assessment in the LAMC area

2015

North Charleston, South Carolina

All ages

Increase Access to Healthy Foods Funding Source



ACE

Evaluating the Impact of healthy food Product offerings and tastimals marketing at the zoo

Innovative partnership between UD and the Brandywine Zoo to combat obesity and promote good nutrition will build on national efforts to improve the food in zoo concession stands. The project will support the development of healthier food options at the zoo in conjunction with healthy food promotion activities.

2015

Wilmington

All ages

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Provide Data through Robust IT Infrastructure Funding Source



Big Data Integrating State Medicaid Paid Claims, Substance Abuse, and Mental Health Data

Examining premature mortality rate of the 250,000 Delawareans who have Medicaid as primary insurance

2014 Delaware -- statewide

All Ages/

Medicaid patient

Big Data

Building a Bigger Bridge

To enhance an existing database by adding clinical data from a large, multi-specialty practice in Delaware with clinical data from several large EHRs, registry data from inpatient and ambulatory settings, and claims data from Medicare and Medicaid. Together, this dataset provides an increasingly comprehensive view of the longitudinal care of patients with Ischemic Heart Disease in Delaware.


All ages

Big Data

C3PO Protocols for Data Integration and Analysis

Propose to apply Clinical Personalized Pragmatic Predictions of Outcomes (C3PO) at MUSC to predict acute care utilization demographic and comorbidity data for adult patients with stroke and cardiovascular disease (CVD) risk factors and to build readiness for its adoption at Christiana Care.

2014 U.S. Department of Veterans Affairs (VA), MUSC, CCHS

Adult patients with stroke and cardiovascular disease (CVD)

Big Data

Linking Data for Kidney Care

To investigate the effectiveness of the health care delivery system in providing and coordinating care for patients with chronic kidney disease (CKD) in Delaware. Our long-term goal is to improve the care of patients with CKD, to delay the progression, and reduce hospitalizations.


Patients with CKD stages 3

and above

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Reducing Tobacco and Tobacco Substitute Use Funding Source



ACE

Designing an approach for including youth with disabilities in the YTS

This proposed project brings together the communities of persons with disabilities, public health practitioners and academic researchers to assess strategies for including youth with disabilities in public health surveys, thereby providing better information to guide prevention and control interventions for all of Delaware's children.

2014


4-19

(preK-12)

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Improve Access to Behavioral/Mental Health Services Funding Source


Geographic Region

Targeted Age/Population

MRDA

Family Psychosocial Risk Assessment and Intervention in Pediatric Heart Center

Infants with severe forms of Congenital Heart Disease (CHD) undergo one or more heart surgeries, often involving lengthy hospitalizations and perioperative complications, and can have long-term medical and developmental challenges. Systematic assessment of family psychosocial risk (concerning racial and socioeconomic disparity) and the development of targeted interventions for this population of families are important steps toward improving family-centered care, connecting at-risk families with evidence based psychosocial interventions and, ultimately, reducing health disparities by addressing psychosocial factors that may contribute to disparities.

2014

Wilmington (Nemours)

All ages, Families w/ infants diagnosed w/Congenital heart disease

MRDA Screening for Psychosocial Risk in Pediatric Sickle Cell Disease

To establish the acceptability and use of the Psychosocial Assessment Tool (PAT) for the Sickle Cell Disease (SCD) population.


All ages, Families/Patients w/ Sickle Cell

MRDA

Family-Based Psychosocial Interventions in a Pediatric Cardiac Center

Evidence-based family psychosocial screening tools and interventions are needed to optimize the outcomes of these medically fragile children and their families. To initiate a program of research that will include the development and testing of a psychosocial intervention to prevent medical traumatic stress and enhance family functioning for families of infants with Congenital Heart Disease (CHD).


All ages, Families w/ infants diagnosed w/Congenital heart disease

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Improve Access to High Quality & Safe Healthcare Funding Source



MRDA

Development of Prenatal Consultation Training in Pediatric Surgery Fellowship

Prenatal consultation for future parents of babies with congenital anomalies can be a difficult and overwhelming experience for patients. The pediatric surgeon plays an essential role in this consultation process but current training may not adequately prepare surgeons for this role. Objective is to better define the goals of prenatal consultation and use this information to design training modules for pediatric surgeons in training.


Pediatric surgeons

MRDA

General Pediatrician as Specialist- Embedding within Subspecialty Divisions to Improve Access to Care, Patient Satisfaction, Healthcare Costs, and Outcomes

A new model has been implemented at Nemours to use a general pediatrician for evaluating and treating a subset of these patients appropriate for a generalist with specific knowledge of the specialty. Aim to verify that this model is beneficial to patients in terms of outcomes, costs, and satisfaction and examine how this model can be more widely used within Nemours and other institutions to improve health care delivery, decrease costs, and affect outcomes.


Adolescents

MRDA

A Systematic Approach to Patient Engagement in the Discharge Process

The goal is to develop a structured patient engagement strategy in the discharge process in conjunction with patients and health care providers to empower active participation of patients in care and improve their health and health care utilization outcomes after discharge. Also to gather information from groups involved in patient engagement at Christiana Care

2015 Newark and Wilmington, Delaware (CCHS)

>18 years

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Funding Source



PILOT

Visual Sepsis Risk Profiling tool

To identify signals of sepsis, and to integrate predictive analytics and human factors to advance the presentation of multivariate data for clinical use in predicting the risk of sepsis in a hospital setting with the intent of multiple targets for dissemination including professional organizations in the field of health care management, information technology, human factors, and systems engineering

2015 Newark and Wilmington, Delaware (CCHS)

>18 years

MRDA

Parental use of MyNemours patient portal for result acquisition and its effect on anxiety

To develop a program to examine the uptake and impact of patient portal access by caregivers of children with cancer and blood disorders. More specifically, to examine the role of health literacy in patient portal use and utility for caregivers and how access interplays with anxiety levels and ultimately relates to patient outcomes with the goal of improving our delivery of care. Research within Nemours


All Ages/ Caregivers of children with cancer and

blood disorders

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Clinical-Based Research 2013: Mannose- Binding Lectin & Neurodevelopment Outcomes After Cardiac Surgery

2013: Utility of a Clinically Relevant Decision Aid for Parents Facing Extremely Premature Delivery

2013: Estrogen and Endothelin-1 Receptor Responses in Women

2013: Hedgehog Activation in Triple Negative Breast Cancer

2014: Clinical and Biological Impact of Early Initiation of Inhaled Nitric Oxide in Infants with Hypoxic Respiratory Failure and Pulmonary Hypertension

2014: Use of Simvastatin to Attenuate Ventilator Associated Lung Injury

2014: Combining Resting EEG and Event Related Potentials to Predict Outcome after Coma

2014: Effects of radial artery catherization on radial dimensions and endothelial function

2014: Silicon nanowire facilitated cardiac repair following myocardial infarction

2014: Role of Inflammation in SCD-Related Pain in Children with Sickle Cell Disease

2014: Silencing Gli1 with Spherical Nucleic Acids to Overcome Multidrug Resistant Cancer

2014: Energy Balance & Outcomes of Obese, Mechanically Ventilated Patients in ICU

2014: Patient Engagement Informing a Randomized Clinical Trial

2015: Identifying effective therapies in sepsis through the application of personalized phenotype staging

2015: Elevated wall tension induces region-specific profiles of proteases and pro-inflammatory mediators supporting degenerative aortic remodeling

2015: Combination of epigenetic approaches for pediatric acute myeloid leukemia therapy

2015: Development of primary ovarian cancer cell lines and xenografts to evaluate oncogene-targeted therapies in ovarian cancer

2015: Assessing the impact of Gli1 inhibitory nanoparticles on breast cancer stem cells

2016: Transpyloric feeding and microaspiration-induced lung injury in preterm infants

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Grant Writing Activities NIH R01 –PA-13-292: Behavioral and Social Science Research on Understanding and Reducing Health Disparities – target February 2016 submission.

Engaging Stakeholders to develop a patient-centered research agenda for chronic kidney disease in Delaware- Claudine Jurkovitz

Integrating SMART Technology to Promote Physical Activity in Older Adults- Greg Dominick

Community Engaged Scholars Network (CESN) within the CTSA consortium: Carolyn Jenkins (not funded)

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Presentations Community Meeting: The Delaware ACEs Story, Trauma Matters Conference

PAS-ACEs and Child Flourishing

3/2014: 1st Annual ACCEL Conference- Community Engagement and Outreach Workshop ( No Heart Left Behind/Cardiovascular Outreach Prevention Program, Health Coaches, DM/Ammon/Practice)

5/2014: Learning from Each Other- Building Academic-Provider-Community Partnerships for Research

7/2014: ACCEL Presentation at Healthy Kids of Delaware

12/2014: ACE Award Kick-Off Event

1/2015: ACE Poster for Youth Tobacco Survey for Disabled Teens

2/2015: Photovoice at ACCEL Conference

3/2015: ACCEL presentation for Brain Injury Committee

3/2015: Community Coalition to Improve Health Outcomes- Example of Childhood Asthma (Innovative Discoveries Series)

3/2015: Research in Diet, Nutritional Status, and Energy Balance in Infancy (Innovative Discoveries Series)

3/2015: Healthy Food Access: Intervention Trends, Research Findings (Innovative Discoveries Series)

4/2015: Opportunity and Activism in the Streets of Wilmington (Innovative Discoveries Series)

4/2015: Disparities in Obesity Among U.S. Adolescents with Disabilities (Innovative Discoveries Series)

4/2015: Making Sense of Adolescence (Public Forum)

4/2015: Integrating Community Engagement and Outreach Across the Delaware Clinical & Translational Research Program (ACCEL- Translational Science Meeting in Washington, D.C.)

5/2015: Learning from Each Other- Building Academic-Provider-Community Partnerships for Research (2nd ACCEL CEO Partnerships Conference)

6/2015: Healthy Public Policy: The Raw Politics of Equitable Population Health (National Leadership Institute)

7/2015: Community Engagement- A Critical Part of the ACCEL Program (Delaware BioScience Breakfast)

7/2015: Pre-Diabetes and Community Based Prevention (Innovative Discoveries Series)

7/2015: ACCEL’s Junior Investigator Network

9/2015: Promoting Clinical and Translational Research through Community Engagement and Outreach (2015 IDeA Conference)

9/2015: The role household mental illness plays on cumulative adverse childhood experiences

9/2015: The Impact Adverse Childhood Experiences have on Flourishing among Children (2015 IDeA Conference)

10/2015: Piloting the Care-Management and Palliative Care (CMAP) Program (Focus on Excellence- CCHS)

10/2015: NAPCRUG Community Engagement Methods Workshop

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10/2015: Collaborations in Global Health- The Global Network for Women’s and Children’s Health Research (Innovative Discoveries Series)

10/2015: Field Trials in Developing Countries: The PURE study findings (Innovative Discoveries Series)

11/2015: Tobacco Use and Prevention Joint Section Webinar (APHA 2015)

11/2015: Increasing Value to Medical Practices and Public Health: Adding Embedded Registered Dieticians (APHA 2015)

11/2015: Camp FRESH- An innovative approach to improving risk factors for at-risk adolescents (APHA 2015)

11/2015: Health Ambassadors: Essential Community Linkages to Promote Health Before, During, and After Pregnancy (APHA 2015)

11/2015: No Heart Left Behind: Successful delivery of mental, nutritional, and cardiovascular health messages to both teens and adults (APHA 2015)

11/2015: Moderators: Annual Invited Panel on International Maternal, Neonatal, and Child Health (APHA 2015)

11/2015: Community Center of Excellence in Women’s Health: A cross departmental, hospital-based approach to community education/outreach (APHA 2015)

11/2015: Tobacco Prevention: bringing together partners from states, sections, and national groups (APHA 2015)

National/State Conferences & Events 2013: ACCEL CEO Conference

2014: 1st Annual DE-CTR ACCEL Research Meeting

2014: ACE AWARDS KICKOFF

2014: UD Press Conference Kick-Off

2014: CEO Academic-Providers-Community Partnerships for Research Conference

2015: 2nd Annual DE-CTR ACCEL Research Meeting, Charleston, SC

2015: CEO-Academic-Providers-Community Partnerships for Research Conference

2015: Nemours Community Research Exchange Spring

2016: ACCEL Community Research Exchange Spring

Research Retreat 2015: Center for Biomechanical Engineering Research (CBER) Research Retreat

Development of a Community Based Participatory Research (CBPR) Grant Proposal addressing Infant Mortality amongst African Americans in Delaware

Statistical Research in Differential Privacy

Biomaterial Advances for Children’s Health

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Promote Healthy Lifestyles

Achieve Health Equity

Improve the built environment to promote walking, biking, etc.

Increase Access to Healthy Foods

Provide Data through Robust IT infrastructure

Reduce tobacco and tobacco substitute use

Improve Access to Behavioral/Mental Health Services Improve Access to High Quality & Safe Healthcare

A Mixed Methods Study of the

Wise Guys Program

A Community-Based Participatory

Approach to Assessing Delaware

Parents’ Knowledge, Attitudes,

and Preferences About LARC

for Teens

Integrating State Medicaid

Paid Claims, Substance Abuse,

and Mental Health Data

Evaluating the Impact of

Healthy Food Product

Offerings and ‘Tastimals’

Marketing at the Zoo

Documents

Moving the Needle - ACCEL the Needle_3 30_16_Update.pdfmethods to teens in Delaware by using qualitative (focus group) and quantitative (electronic surveys) methods and a CBPR approach