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8/3/2019 Living the Life of a Miracle
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Living the Life
of a MiracleFinding God’s grace
during a deep trial
JAMES MEAD
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Living the Life of a Miracle. Copyright © 2011 by James Mead. All rights
reserved. No part of this book may be used or reproduced in any manner
whatsoever without written permission from the author, except in the case
of brief quotations embodied in critical articles or reviews.
ISBN: 978-0-9831961-1-2
Published and printed in the United States of America by
The Write Place. Cover and interior design by Alexis Thomas,
The Write Place. For more information, please contact:
The Write Place709 Main Street, Suite 2
Pella, Iowa 50219
www.thewriteplace.biz
Copies of this book may be ordered from The Write Place online atwww.thewriteplace.biz/bookplace
Article on page 64 used with the permission of the editor of the
Knoxville Journal-Express.
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James Mead
iii
Dedication
There are so many people that have encouraged me during this process.
The doctors and nurses at the VA hospital and at Iowa Methodist Hos-pital that, in truth, saved my life, cannot be thanked enough. The neurosur-
geon who operated, even though he had never seen such a case and did not
know how exactly to proceed, the neurologist who was able to recognize my
stroke in time to save my life, the intensive care nurses who took good care
of me (and my family), and the physical therapists who guided me through
the process all need to be recognized for their dedication and care.
My church family; words cannot express how grateful I am to be asso-ciated with such a generous church. During the time when I was in the hos-
pital, the church communicated very clearly to my family that they would
be cared for. They were not to worry about my salary, my vacation, or other
problems; their job at this time was to worry about me, not my paycheck.
Thank you!!! However, not only in Knoxville but throughout the country,
various churches prayed for my recovery, visited the hospital, and cared for
my family in a way that can never be repaid. I am absolutely humbled when
I think of the numbers of people that directly impacted my family during
this time.
To my colleagues who visited me with regularity during my hospital
stay (to the extent that the nurses began wondering about me because so
many pastors stopped in): your care and concern for my well-being means
the world to me. Skip Hansen and Sue Shaw, who took special interest
in my condition and updated other churches around the state and the
nation: thanks.
And to my family: God only knows how this impacted your lives and
the internal struggles that you have been faced with from day to day. My
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Living the Life of a Miracle
iv
parents and brothers drove several hundred miles to be with someone who
would only vaguely remember it later; I cannot say enough what it means
to me that you were there when I needed you. My children never stoppedbelieving that God would not take their Daddy away from them; they chal-
lenged me to keep trying even when it was hard. Even now, my children
constantly remind me to stop what I am doing, to slow down; they can see
when I am physically tired.
And to my wife, Laura, who never stopped loving me, even though
there were days when I was very unlovable. Throughout the depression, the
mood problems, the physical limitations, and the emotional volatility, shewas always there when I needed her. Without her help and support I do not
believe I would have been able to do what I did.
There has never been a moment when she visibly lost her faith in a
loving God; even if things did not work out the way she wanted, she always
trusted God. I love you and appreciate you more than you know.
But most of all, I want to dedicate this work to my Lord and Savior
Jesus Christ, without whom this book would be unnecessary. Not only wasI able to survive a surgery and overcome overwhelming odds, but I was able
to overcome the most debilitating illness of all: the separation from God
that I triumphed over simply by trusting in Jesus Christ and putting all my
faith in Him and believing that He is all-sufficient for me and for my needs.
I am grateful for my life that was spared; but I am eternally grateful for the
salvation that has been offered through His shed blood.
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Contents
Dedication _____________________________________________ iii
Contents________________________________________________v
Foreword ______________________________________________vii
Preace ________________________________________________ ix
PART I: This is Me _______________________________________13
CHAPTER 1: A little background _________________________15
CHAPTER 2: An interesting series o events ________________21
CHAPTER 3: A surprising change ________________________25
CHAPTER 4: Uh oh ___________________________________29
CHAPTER 5: A miraculous recovery ______________________35CHAPTER 6: Some things to ponder ______________________39
PART II: What is it Like? ___________________________________57
CHAPTER 7: I’m sorry, this can’t really be happening ________59
CHAPTER 8: Starting to adjust to my new lie ______________73
CHAPTER 9: A minor setback ___________________________79
Chapter 10: Moving on ________________________________85
CHAPTER 11: My new lie _____________________________91
APPENDIX 1: Doctor notes _________________________________99
APPENDIX 2: The diagnoses rom various doctor visits __________ 103
APPENDIX 3: “I am in the middle o a crisis, what now?” _________105
APPENDIX 4: Laura’s thoughts ____________________________107
APPENDIX 5: Requests or prayers _________________________115
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James Mead
vii
Foreword
“There is no such thing as a problem. There are only opportunities for
God to do something. It depends on how you look at it.” If I had adime for every time I have sat with someone swimming in the depths of
defeat, overcome by fathoms of despair, and treading in what seems to be
the last few seconds of their very breath—I would be a very rich man. And
yet, the difference at these times between great gain and great loss is not
what happens physically. The greatest indicator sometimes on the telling
dial of our life is what we carry away from these tough times. Life hits ev-
eryone hard sooner or later. The question is, “Will I go to God and tell himhow big my problems are?” Or, “Will I look at my problems and tell them
how BIG my God is?” Jim and his family have chosen the latter.
Be prepared to walk through the real life processes of a family struck
by an unexpected blow at a seemingly “out of season” time. But then again,
that’s when hardships always strike. Their timing usually makes no sense.
Yet, delivered through the permissive hands of One much wiser, our greatest
pains can become our greatest triumphs. Someone said, “God never wastes a
hurt if we’ll let Him write His story with it.” Someone else said, “God never
uses a man greatly until he hurts him deeply.” God, in His wisdom, has done
His part and now Jim is having the privilege of living out his.
As you read this storyline, try to put yourself in their shoes. Learn
what you can from their struggles, their challenges, and their laughter and
tears. For in the end, we will all write our own story. I trust God will use
their example to help us all be better penmen.
Sincerely,
Pastor Rick Groover
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James Mead
ix
Preface
U nfortunately, the word “miracle” is thrown around very loosely: it was a
miracle that the New York Giants won the Super Bowl in 2008, it wasa miracle the University of Northern Iowa beat Kansas University during
March Madness in 2010, and it was a miracle that the Texas Rangers beat
the New York Yankees in the American League Championship Series in
2010. When the American hockey team defeated the Soviet hockey team
in the 1980 Winter Olympics, it was called the “Miracle on Ice.” Miracles,
apparently, happen on a daily basis in insignificant arenas; so, when some-
one experiences a bona fide touch from God, it is no wonder that the word“miracle” seems shallow.
However, I believe that I experienced a true miracle from God. On
December 8, 2008, I suffered a massive stroke. Surgery was not performed
until December 10, some forty hours after my initial stroke, revealing severe
damage to my cerebellum and brain stem. I underwent a decompressive cer-
ebellar evacuation and craniotomy; the MRI after the surgery revealed that
a large portion of my cerebellum had been removed and two strokes were
visible in my brain stem.
When I suffered my stroke in December 2008, there was little hope
given for any recovery. According to the surgeon, there was a small chance
of surviving the surgery; if I survived the surgery, less than a thirty per-
cent chance existed of waking up, and a zero percent chance of experienc-
ing a meaningful recovery. Dr. Piper, the neurosurgeon who performed my
surgery, told my family that surgery was merely an attempt to save my life;
it would not reverse the impact of the stroke.
They were told to anticipate a long recovery involving no less than
one year of inpatient physical therapy and rehabilitation just to relearn how
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to walk; and they were given the prognosis that I could be in outpatient
physical therapy and rehabilitation for up to two years as I tried to learn
to walk normally. The neurologist suggested that I may never walk again,never feed myself, never communicate. In short, I might live life like an
infant—able to take in information and process the information, but not able
to use the information or to communicate my needs. In other words, it was
a dark, hopeless prognosis.
When I was asked what I believed about my future, I simply responded
that it did not matter what happened to me: God was still good. Regardless
of whether I ever regained the ability to write or walk, my circumstancesdid not impact God’s good nature. He was still good, even if my outlook was
bleak. With that in mind, I began physical therapy on December 29, 2008.
What followed was nothing short of miraculous; after a mere three days of
inpatient physical therapy, I was released from the hospital. I required no
outpatient physical therapy, and less than one month after my stroke, I was
back at work.
What is contained in the pages of this book is a chronicle of my life
prior to my stroke, the stroke and subsequent surgery, and a snippet of my
blog over the last few years. My prayer is that you will be enlightened, a
little more, to the mysterious ways in which God works in our lives, and get
a snapshot into the mind of a stroke survivor.
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Living the Lifeof a Miracle
Finding God’s grace
during a deep trial
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PART I
This Is Me
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When I sat down to write this book about one event in my life, I realized
it was necessary, though hard, to give some background and some
of the circumstances that led up to my crisis. Why was this situation such
a shock? The miracle of life is the center of attention; but many times the
history is forgotten.
As I look at my history, there is nothing that would point to an im-
pending stroke: I was not physically abused, I was not overweight, I did
not have out-of-control blood pressure, my cholesterol was well within safe
limits, and I was very healthy. I had spent five years in the army doing
physical training every day—push-ups, sit-ups, running two to five miles,
and doing physical fitness training. Really, I had always been an exercise
nut. When I was a kid my parents always knew where to look for me: I was
usually at the playground at my school playing basketball. More recently,
I had spent most of my mornings at the local recreation center playing
basketball, lifting weights, and running on the treadmill. That is not to say
CHAPTER 1
A little background
“History must be written of, by and for the survivors.”
ANONYMOUS
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16
that I was the poster-boy for good nutrition, but I
was not unhealthy. I had done everything possible
to stay in good shape.Let me back up a little bit to give a more com-
plete picture of where I was and the reason this
event was such a shock to so many people. My dad
had been a pastor from the time I was eight years
old; I did not spend my childhood moving around
like some people do. We had only lived in two places (that I can remember):
we lived in Montevideo, Minnesota, where my dad was involved in evange-lism and led music for Calvary Baptist Church, and then, in 1979 when I
was eight years old, we moved to Gering, Nebraska, where my dad served
as the pastor of Gering Baptist Church. I can remember going to Gering
Valley Country School, McKinley Elementary, Gering Junior High School,
and then graduating from Gering High School in 1989. It was, really, a very
stable and enjoyable life.
I have three brothers, all of who did their best to make sure I remem-
bered that I was the youngest. (At one point my dad just stopped fixing the
holes from where we would wrestle and bust through the wall.) When we
gather for holidays or family reunions now, well, it is just a brotherly love-
fest, but I thought for a long time that they thought of me more as a bother
than as a brother. Other than that, I really had, for all intents and pur-
poses, a relatively boring upbringing. There were Christmas plays, church
choir concerts, speech team contests, and high school musicals; I worked
at Schwann’s, Country Kitchen, and Bonanza (and for a little while at the
Platte Valley Truck Wash cleaning out cattle trailers…THAT was a dirty
job); but there was nothing that really stood out about my early life. I was,
basically, a loner. I had some good friends and I had a good time in high
school, but I did not do anything that would leave an impression on future
generations.
In 1989, after I graduated from high school, I entered the army and
was trained as a Russian linguist and signals intelligence analyst. I had donebasic training at Fort Dix, New Jersey, and then spent the next forty-seven
weeks immersed in Russian culture at the Defense Language Institute in
“That is not to
say that I was
the poster-boy orgood nutrition,
but I was not
unhealthy.”
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Monterey, California; I learned the language, I studied the habits of the
Russian people, and I learned as much as I could about their military. (At
one point I spoke Russian so well that a new instructor who heard me talk-ing mistook me for another instructor.) After language school I went to the
Goodfellow Air Force Base in San Angelo, Texas, to study to be a signals
intelligence analyst. I arrived in Texas in August of 1990 and graduated in
April of 1991.
In 1991, while I was in the military between assignments, I married
my high school sweetheart. I met Laura when I was in 9th grade; we began
dating when I was a junior in high school and married four years later whenshe was a senior in high school and I was on
my way to Germany in the military. We had
planned our wedding date for October 1992
(eighteen months after Laura’s graduation); but
things took an interesting twist. I was originally
scheduled to graduate from intelligence school
on February 7, 1991, with my first duty station
at Fort Drum, New York; that would keep me
close enough to Laura to allow a 1992 wedding.
However, I was medically unable to continue with my training class (they
thought I was having some problem with my appendix so they had me sit
out class in case it happened to flare up; it never did, but I was still unable
to complete school with my original class) and I actually graduated on April
4, 1991. By then I had new orders, orders sending me to Augsburg, Ger-
many. So, we had a decision to make: we could get married before I left for
Germany, or we could wait until I returned in 1993. (I have told people that
Laura begged me to marry her before I left because she could not stand the
separation; truthfully it was the other way around.) So, on March 13, 1991,
we planned the marriage for a month later. We had been married for exactly
six days when I left on April 19 for my duty station in Augsburg; Laura
did not arrive until June 26, after she had graduated high school and I had
secured a place to live in Germany.On June 30, 1992, my son was born in Germany. (That is a story in
itself, but suffice it to say that he was born on German soil, in a German
“In 1991, while
I was in the
military between
assignments, I
married my high
school sweetheart.”
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Living the Life of a Miracle
18
hospital, because the military hospital had closed. Therefore he is a German
citizen and an American citizen…I know, it is pretty stupid since I was in
the military, but, oh well.) My wife was struggling with preeclampsia, soBrendan was born five weeks premature via Cesarean section and had to
be in the hospital for several days after birth. Due to his early birth and
other factors, his lungs were not very strong and he struggled with asthma
for the first few years of his life. As a result of those health problems, and
there being no military hospital in Germany, my young family went back,
in December 1992, to Gering, Nebraska, to live with my parents and to be
nearer military hospitals. It was not until April 1993 that I was granted acompassionate reassignment to Fort Carson, Colorado.
In April 1993, we moved to Colorado Springs, Colorado, where I
served at Fort Carson. Although I had done my training in strategic intel-
ligence, I was placed in a field unit as a field intelligence analyst with the 2nd
battalion, 12th infantry regiment S-2. Though I was never in a combat zone,
I served during a stressful time in our country. I was in Texas when Opera-
tion Desert Storm began (and ended); I was in Germany when the Soviet
Union began its breakup; and I was witness to the fighting in the Balkans,
the war in Yugoslavia, and the strife in the Czech Republic. I guess it is more
than a coincidence, then, that I was flagged for high blood pressure several
times during my service in the military. However, even though it was a little
elevated, it was not out of control.
I started my ministry life at First Baptist Church of Peaceful Valley in
April 1993, while still in the army. I worked with the pastor, led the youth
group, worked with the choir, preached when the pastor was gone; pretty
much anything I could do to gain as much experience as possible. I ended
my enlistment in 1994 and had considered buying a home, starting a new
church, and settling in Colorado Springs, but in April 1995, we felt the Lord
calling us to leave our home in Colorado to enroll in Bible College at Trinity
Baptist College in Jacksonville, Florida.
We really enjoyed our time in Florida; Bible College was hard and I
had to attend college full time as well as work nearly full time (though it
was part time I was expected to work until the job was done—sometimes
six or seven hours a day at UPS). But, I was afforded the opportunity to see
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James Mead
19
poverty first hand as I worked in the bus minis-
try and at the Trinity Rescue Mission, a place
for the homeless to find temporary shelter, ininner-city Jacksonville. It was very difficult, but
a valuable experience in ministry.
It was during this time that my oldest
daughter was born. Once again, my wife had
struggled with preeclampsia and had found
herself in the hospital. This time, however, the
condition worsened and Shaylee was born twoand one-half months premature and also had
to be born by Cesarean section. After her birth,
Shaylee had to spend twenty-five days in the hospital. She, too, struggled
with asthma as a result of her early birth. (No one would guess it today,
though; she is active in softball, volleyball, band, and other school activities.)
During that time, however, I was able to continue my ministry life; I
was asked to be associate pastor of Central Baptist Church in Orange Park,
Florida. I really learned a lot during those early times of service and can
trace my current life experiences all the way back to that little church in
Orange Park. That experience led to a life-changing moment for me; I had
been in ministry part time as well as working part time at UPS. While I was
gaining experience at Central Baptist Church, God was preparing me to
begin serving the church full time.
I graduated from Trinity Baptist College with a BA in church min-
istries in May 1999, and later that month was contacted by Grace Baptist
Church in Zachary, Louisiana, to consider coming to their church as a full-
time minister of youth, music, and education. My family and I visited the
church in Louisiana and decided, after much prayer and discussion, that if
the church wanted us to come, we would be willing to move to Zachary.
This, again, would prove to be a life-changing experience for me.
After two pregnancies that had ended with preeclampsia and Cesarean
sections, it was only natural to be a little nervous about future pregnan-cies; but in July of 2000, my wife announced that she was, again, expecting.
Madelyn was born March 8, 2001 by, you guessed it, Cesarean section. This
“We really
enjoyed our time
in Florida…I was aorded the
opportunity to see
poverty frst hand
as I worked in the
bus ministry and at
the Trinity Rescue
Mission.”
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Living the Life of a Miracle
20
time, though, my wife did not struggle with pre-
eclampsia and Madelyn was our first full-term child.
This proved to be a pivotal time in our life because,although Laura did not struggle with preeclampsia
and Madelyn was not born premature, we had talked
things over with our doctors and had come to the
conclusion that Madelyn would need to be our “ca-
boose.” Our family complete, we began to change our focus to long-term
plans. With that in mind, I began contemplating the possibility of changing
my focus from associate pastor to senior pastor of a church. More stabilityand more reliability.
Although we loved the Christian school and the work with the youth
in Louisiana, in June 2002, we again moved, this time to Iowa. I had ac-
cepted the position of senior pastor at First Baptist Church in Stratford,
Iowa. Stratford is a very little town that has, as its own moniker, “a tiny little
village.” However, we found that this tiny little village had great possibilities
for ministry and we did our best to find those possibilities. I truly believed
that I would retire from this church; my family loved the area, the people of
the town (I mean village) were great, and the church was friendly and very
receptive to the idea of new ministries. We had seen so many great things
happen in this small community of 700 or so. We were able to witness the
growth of that church from an average Sunday attendance of about 65 to
about 150 in less than 5 years; we saw a Wednesday night program go from
a dream to a reality, ministering to over 60 children each week; and we saw
the church expand its outreach by hiring a youth pastor. These were very
exciting times in our family, in our church, and in our faith. But, as often
happens in life, things would take an unexpected course.
“Our amily
complete, we
began to changeour ocus to long-
term plans.”
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CHAPTER 2
An interesting series of events
So, we found ourselves in Stratford, Iowa, a quaint little village with a rich
history and strong family ties. We absolutely loved our life there. Living
as a pastor in small-town Iowa carries with it the connotation of being
a community leader. (In 2003 I was told I received the largest number of
write-in votes for mayor in Stratford; though I never agreed to be a candi-
date, did not campaign, and did not actively seek any public position, people
voted for me anyway.)
Though life was good, things would take
an interesting twist in 2005. As difficult as the
situation would be, we would later learn that it ap-
peared to be in the Lord’s plan, but that did not
make it any easier to endure. On November 12,
2005, Stratford experienced something that would
forever change the landscape of the village, and
would forever change the landscape of our lives.
“I am so glad that nothing in our lives ever takes God by surprise.”
DR. GENE WOODS
“On November 12,
2005, Stratord
experienced
something that would
orever change thelandscape o
our lives.”
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It was just a normal Saturday; we ran into town (over a thirty-mile
drive), spent the day in some of the stores in Fort Dodge, and returned in
the early afternoon. We noticed that the temperature was very warm for No-vember, and there were storm clouds in the distance. It did not appear to be
anything out of the ordinary, so, we ignored it. When we arrived home, we
did our normal activities: we unloaded our groceries, we checked our phone
messages, and we had our son take the dog outside. He came inside and told
us that Carly (our dog) was acting a little strange. We did what any sensible
parent would do: we said that Brendan was imagining things and he should
take the dog outside until she “did her business.”After that, things began to happen very quickly; we saw on the news
that we were under a tornado watch (in November, sure, we ignored it). But
we agreed that our younger kids should go to the basement. We continued
watching the weather reports and decided, at some point, we, too, needed to
go to the basement to ride out the storm. My wife
and I had to go upstairs because the Schwann’s
salesman was at our door; we invited him to wait
inside until the storm passed, but he said that he
had one more stop to make just up the road and
he would stay at that house. Then we noticed
something strange: the leaves were moving in one
direction, but they were not blowing around on the
ground; they were several feet in the air! So we
hurried to the basement again and waited for what
we knew was coming. When I looked out one of
the windows, I remember telling my wife, “Come
look at this.” A tornado was passing less than one
hundred feet from our house. We were able to see it pass through the city
park and continue on its path.
When the house stopped shaking, we looked out our window and
saw what can only be described as total destruction: our neighbor’s house
was completely destroyed, there were several trees on top of our friends’house across the street, the tornado had torn the roofs off of several homes
around us, and one lady had lost her life. Several people in our church had
“A tornado was
passing less thanone hundred eet
rom our house.
We were able
to see it pass
through the city
park and continue
on its path.”
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James Mead
23
experienced severe damage to their homes and lives. Visiting missionaries
had windows completely blown out in their van, and most of their belong-
ings were destroyed. In short, it was a complete disaster area; yet our housewas completely intact and nearly untouched. (There were a few shingles that
needed to be replaced, but that was all!)
The church spent the next few weeks cleaning up property and help-
ing friends rebuild and restart lives. Other churches, charitable groups, and
mission agencies gathered from all over the state of Iowa to assist the re-
building projects. The devastation caused by the tornado really made my
family wonder if, perhaps, we should look into some life insurance. Twoweeks later, we would make up our minds for certain.
We had spent the Thanksgiving holiday with
my parents and family in western Nebraska. We had
been home for a few days and were wavering between
leaving Saturday or Sunday. If we stayed for Sunday
morning, we would want to spend the morning in
church, reconnecting with old friends and enjoying
the quiet time; after our experience just a few weeks
before, we felt a little peace and quiet was badly
needed.
We decided to watch the news to see if bad weather was predicted for
either Saturday or Sunday; that would be a deciding factor in our decision.
The latest weather reports indicated that there was a chance of rain on
Sunday and it would be spotty, but it would be relatively warm. Because no
bad weather was predicted, we decided to stay for church on Sunday and
then leave after church.
We had pretty good roads and fair conditions for the first one hun-
dred miles or so of the trip; but when we neared North Platte, Nebraska,
the snow started to fly. At first, there were just flurries, so we pressed on,
hoping to make it to Kearney, where we could spend the night. As we left
North Platte, the snow began to intensify. It continued to worsen and at
some point, we were experiencing blizzard, white-out conditions. Trafficon Interstate 80 was reduced to ten to fifteen mph. At one point, we were
following a semi-truck and could not see his tail-lights…from less than ten
“Ater our
experience just
a ew weeks
beore, we elt a
little peace and
quiet was badlyneeded.”
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feet! So, we were forced to leave the interstate and found ourselves in Cozad,
Nebraska. (I have often joked, since then, that in the dictionary, under “no-
where,” it displays a picture of the Cozad water tower.)For the next few days and nights we were huddled with a few hundred
other travelers in an emergency shelter at the United Methodist Church in
Cozad. How in the world the weather went from “a chance of spotty show-
ers and warm temperatures” to one of the worst November blizzards in the
last forty years in that part of Nebraska, I will never know. But that was the
case, and we again found ourselves in less-than-desirable circumstances. We
were known as the emergency family: we survived a tornado on November12, and then we found ourselves in an emergency shelter during a blizzard
on November 27.
Needless to say, when we got back to Strat-
ford, we set up some appointments with our insur-
ance agent to arrange to get life insurance. What we
did not know then was that I would have a stroke
three years later, rendering me uninsurable; so even
though the tornado and the blizzard were bad situa-
tions, they actually wound up being used for good!
“What we did
not know then
was that I would
have a stroke
three years later,
rendering me
uninsurable.”
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CHAPTER 3
A surprising change
April 29, 2007
Dear First Baptist Church family:
Many times in our lives God allows situations to begin preparing us for a change
in ministry. Such was the case in July of 2001 when I received a call from Berean
Bible Church of Fort Scott, Kansas, asking if I would consider coming to can-
didate to be their pastor. Though I ultimately turned down their offer, it began
preparing me to receive a call in October of 2001 from Tim Anderlik asking if I
would consider moving my family from Baton Rouge, Louisiana to this place called
Stratford, Iowa, to assume the senior pastorate of First Baptist Church. We all
know how that turned out.
My time at First Baptist is cherished. We have many successes. There have
been many souls that have come to Christ and expressed their faith through baptism.
“If any of you lack wisdom, let him ask of God, that giveth to all
men liberally, and upbraideth not; and it shall be given him.”
JAMES 1:5
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The AWANA program is a beacon of Christ’s love to children throughout this area.
Prayer and Bible study is a mainstay of this ministry because God is its guiding
force. I believe that First Baptist’s best days remain ahead of her, as God’s people remain faithful to their calling.
My family and I have a wonderful life in Stratford; but in June of 2006, the
Lord began again to prepare my heart for a transition in ministry. With the first
contact from Trinity Baptist Church of Santa Barbara, California, and over the
past ten months, several opportunities have presented themselves, and yet, the peace
of God was not present in my heart with any of them. I ultimately ended conversa-
tions with each church that had contacted me.However, in December of 2006, I received a letter from New Covenant
Church in Knoxville, Iowa, asking me to consider a transition in ministry. When
this opportunity presented itself, I struggled with a range of emotions; yet, I found
peace within my heart. I received this counsel from my dad, who has faced this kind
of decision many times. He said, “Jim, you cannot allow your emotions to make this
decision for you. You have to make this decision based upon what you believe the
Lord is leading you to do, and then trust that it is right.” So, I am following God’s
leading, even though it is not an easy transition to make.
I wish I could convey to you the difficulty my family has had in making this
decision. I appreciate this church for the love they have demonstrated and the support
they have given these past five years. Please know that I had not been in an active
search process; rather, circumstances presented themselves in a way that indicated
that our Lord may be preparing my family for a ministry elsewhere. The reason
for pursuing this possibility was motivated by a desire to follow God’s leading, even
if that leading may result in a change for my family; it would not be motivated by
anything that the members of this church did or failed to do.
And so, it is with a heavy heart that I announce my resignation as senior
pastor of this great church to assume the senior pastorate of New Covenant Church
in Knoxville. I will assume the pastorate at New Covenant on July 1 of this year.
My last service here will be June 10, allowing my family two weeks to move and get
established in our new home before we begin serving there.
We have had a great journey with you as we have served the Lord together for the last five years. I want you to remember that we made this journey together; I did
not build this church, we built it together as the Lord has led. Never lose faith, never
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forget His leading in the past, and never abandon the desire to do more than ever
before. God’s timing is always perfect, His ways are always perfect, and His leading
is always perfect. Psalm 119:105 says, “Thy word is a lamp unto my feet and a light unto my path.” Trust God, not just to illuminate your steps, but to illuminate
the path. Together with your new pastor, you will continue to build this church as
you continue your journey of faith. My prayer is that the Lord will allow me to
experience the same types of ministry successes in Knoxville that I have experienced
in Stratford.
Let me close by relaying to you the sentiments of the Search Committee at
New Covenant. After our meeting there, the chairman of the committee said to me,“Though we are excited about the prospect of you coming here, at the same time we
feel sorry for your church in Stratford. We have just completed the process they are
going to begin and we will be praying with them and for them as they begin their
search process.”
Please know that this church will always hold a special place in our hearts.
You have become very dear to us, and we will always consider you as part of our
family. May the peace of God guide you as you now begin this new phase of your
faith journey.
With that, our family made a change; we
followed the Lord on a new adventure as we began
a ministry in Knoxville, Iowa. It was different; we
were used to life in a village and now had to adjust
to life in a bigger town. Knoxville is, by no means,
a metropolis, but it is larger than Stratford. Some
say that the population of Knoxville is 8,000;
others say that it is closer to 10,000. Either way, it is significantly larger
than 700!
I cannot say that we, as a family or as a church, fully understood the
reasons for moving to Knoxville; I was not moving closer to my family, I
was not moving closer to my wife’s family, and the church in Knoxville was
not much larger than the church in Stratford. (In fact, per capita, it was sig-nificantly smaller…) To make a long story short, it did not make sense. As I
said earlier, I felt as though I could have retired from First Baptist Church;
“We ollowed the
Lord on a new
adventure as we
began a ministry in
Knoxville, Iowa.”
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they loved us, we loved them, and we really loved the town. But, when God
begins doing a work in your heart, you follow, even if it does not make sense.
In Knoxville we began enjoying a full life: Brendan was doing verywell in school (he was active in band, jazz band, choir, chamber choir, and
the school musical), Shaylee and Madelyn were both en-
joying school and were both involved each summer in
softball. We were preparing to introduce new events to
the church: a Family Fun Night at the recreation center
during the winter, a church camping weekend and service
in the park in the summer, and a Fall Festival, completewith chili cook-off, pumpkin decorating, and bonfire in autumn. Life was,
really, very good for our family.
“Lie was,
really, very
good or our
amily.”
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CHAPTER 4
Uh oh
During the next chapter of my life, the timetable begins to get fuzzy for
me and I have to rely on what I have been told by others. The events
of the next few weeks would change the course of my life and the lives of
everyone in my family and the churches I have served.
I can remember the date: December 8, 2008. It was my day off, so I
spent the day just goofing around; I think I played the Wii for awhile, I took
my wife to lunch, and I went to get a massage…stuff I would do on any
other day off. When I went to my wife’s workplace later in the day, I told
her that my muscles were really aching, almost like I had the flu; perhaps, I
surmised, the massage had really gone deep into my muscles, making me a
little sore. We just chalked it up to stress, a cold, and general sleepiness.
That day was my dad’s birthday, as well, so I called him that evening
to wish him a happy birthday. He was not home, so I talked to my brother,
Dennis, for some time. I remember telling him that I did not feel too hot and
“And he said unto me, My grace is sufficient for thee: for my strength
is made perfect in weakness. Most gladly therefore will I rather glory
in my infirmities, that the power of Christ may rest upon me.”
2 CORINTHIANS 12:9
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that I was just going to go home and go right to bed. I asked him if he would
wish our dad a happy birthday for me, in case I could not get in touch with
him later.I don’t remember coming home and I don’t remember going into my
bedroom to lie down. A few hours later (it could have been a few minutes
later, I am not really sure), my wife says she came in to have me remove my
contacts before I was too far gone. When I got up to go into our bathroom,
she noticed that I stumbled a few times, so she asked me what was going on.
She says I told her that I must just be tired.
I woke up at 4 a.m. on December 9 with a throbbing headache, prob-ably the worst headache that I can remember. (I had been suffering with
severe headaches for the last several weeks, so
I was not alarmed; I know now that those were
some of the signs of an impending stroke. Glad
I know it now…) I remember feeling as though
the room was spinning. I told my wife that it
seemed to get a little better if I closed my eyes,
but the sensation didn’t go away completely.
I really did not feel that I needed to go to the
emergency room; but I called the 24-hour nurse
to ask what she would recommend. After I talked with her for awhile, she
told me to go to our local hospital, just in case something was really wrong.
When I got out of bed, things really went from bad to worse. I could
not keep my balance because of the spinning sensation; I was nauseous,
I could not seem to make my legs work to walk, and I started vomiting.
Finally my wife alerted our son (who was sixteen at the time) to help her
get me to the car and to watch his sisters while we went to the hospital. We
successfully made it to the car and drove to the local ER, which was just
across the street from our house.
I struggled, but with my wife’s help I made it into the ER and they
took me to one of the trauma rooms to wait for the on-call doctor. We were
experiencing a pretty severe ice storm, so the doctor was delayed a shorttime in getting to the hospital. In the mean time, I was given some medicine
for pain and blood pressure and slept until the doctor arrived.
“I woke up at 4 a.m.
on December 9 with a
throbbing headache,
probably the worst
headache that I canremember.”
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At some point (I really do not know
what time) it was suggested that a spinal
tap be performed to rule out spinal menin-gitis. A CT scan had not revealed any obvi-
ous swelling in my brain; but the spinal tap
would decide if they needed to be worried
about a worsening condition. The spinal
tap did not show any meningitis, so the
mystery continued: why would a thirty-
eight-year-old man with no obvious swelling and no sign of meningitisbe so lethargic and complain of severe headaches and dizziness?
Because I did not have private insurance but was going to the VA
hospital for care, I was transferred to the VA Central Iowa Health Care
Hospital in Des Moines, and they, too, were baffled by my situation. My
blood pressure was elevated, so it was suggested that perhaps I was suf-
fering from some intestinal disorder and hypertensive hydrocephaly. My
wife was told that perhaps I would be able to go home on Wednesday,
after my blood pressure was under control and they were able to address
my dizziness.
I had been relatively alert (or so they tell me) to this point, talking
with visitors and communicating with nurses (although I do not remem-
ber having any conversations); but Tuesday night I began to sink deeper
into lethargy. Dr. Kumar, the attending physician at the VA hospital, sug-
gested that I might be lethargic due to heavy amounts of medicine and
painkillers, so he ordered a complete stop to the medicine to make sure
my state was not due to the drugs.
Wednesday morning, I was even more lethargic and sinking deeper
into an unresponsive state. The doctors tried several different tests and
medicines to attempt to diagnose my problem, but the mystery continued.
It was roughly noon when Dr. Benjamin, one of the VA neurologists, was
making rounds and was told by a nurse to pop into my room; I was not
responding to any medicine and my condition had the other staff baffled.Dr. Benjamin came to my bedside, noticed that I was in a semi-fetal
position and that I was unresponsive to any stimuli. She opened my eye-
“Why would a thirty-
eight-year-old man with
no obvious swelling andno sign o meningitis be
so lethargic and complain
o severe headaches
and dizziness?”
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lids, examined my eye movements, and said, “Uh oh.”
(My wife told me later that she had a definite sinking
feeling; you never want to hear a doctor say “uh oh”when they look at you.) Dr. Benjamin ordered an im-
mediate CT scan. She was told that I was scheduled
for an MRI at 3:45 p.m. at another local hospital. Her
response was simple: he does not have until 3:45, he needs to go now.
A CT scan was done within the next few minutes and an MRI was
scheduled to follow shortly; Dr. Benjamin had seen the results of the CT
scan and asked my wife to join her in her office. While in the elevator, Dr.Benjamin asked my wife if I had suffered any trauma to the back of my
head recently. She said that she did not need to see the results of the MRI
to know what was happening: I was actively stroking in my cerebellum and
brain stem and would need surgery immediately to relieve the pressure in
my brain. I was having a bilateral cerebellar infarction, and the swelling had
caused at least two strokes in my brain stem.
The cerebellum is a region of the brain that plays an important role
in motor control. It is also involved in some cognitive functions such as
attention and language, and probably in some emotional functions such
as regulating fear and pleasure responses. Its movement-related functions
are the most clearly understood, however. The cerebellum does not initi-
ate movement, but it contributes to coordination, precision, and accurate
timing. It receives input from sensory systems and from other parts of the
brain and spinal cord, and integrates these inputs to fine-tune motor activ-
ity. Because of this fine-tuning function, damage to the cerebellum does
not cause paralysis, but instead produces disorders in fine movement, equi-
librium, posture, and motor learning. If I slipped into a coma, there would
be no chance for survival. The next, obvious question in Laura’s mind was
this: is there any hope? Dr. Benjamin suggested that, if I slipped into a coma
there would be nothing they could do, but they could do a procedure before
I became comatose that would, hopefully, relieve the swelling in my brain.
Normally neurology patients would be sent to Iowa City for surgery; butLaura was told that I would not survive the two-hour trip, so the surgery
would have to be performed at one of the local hospitals!
“She opened
my eyelids,
examined my eyemovements, and
said, ‘Uh oh.’”
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Dr. Benjamin asked if Laura would like her to contact her mom or dad;
she was horrified when Laura told her that her mom had passed away only a
month before. So the doctor contacted my parents to inform them that theirson was very ill and they needed to come as soon as possible. When asked
how serious it was, she simply told my parents that if they wanted to see
their son alive, they needed to leave immediately. I guess you could say that
things were pretty bad.
Within the hour, my parents left their home in Gering, Nebraska, to
make the ten-hour trip to Knoxville, Iowa. As they were traveling to the
hospital, the congregation from my church, as the news spread of my con-dition, began to assemble at Iowa Methodist Hospital. At one point, there
were no less than sixty-five people gathered in the waiting room to hear any
news about my condition. The news from the surgeon was not what they
wanted to hear.
Things had very rapidly gone downhill for me; the MRI revealed
severe swelling in my brain, causing compression of the brain stem result-
ing in several brain-stem strokes. The vertebral artery had dissected (in
other words, the artery had ruptured), resulting in a clot that impeded the
flow of blood to the right side of my cerebellum, while the diminished blood
flow from the dissected artery deprived the left side of my cerebellum of
oxygen. Those two factors led the doctors to predict a very bleak future.
My children were excused from school and escorted to the hospital by
Laura’s co-worker; my immediate family and my church family were huddled
together in the surgery waiting room of Iowa Methodist Hospital, wait-
ing for the doctor to give them some news about my prognosis. Just before
surgery began, my children and my wife were accompanied by a nurse into
a trauma room where I was being prepared for surgery. They were given
the opportunity to spend a few minutes with me before the emergency cra-
niotomy and cerebellar evacuation; a final few moments with their husband
and dad to say their goodbyes.
When Dr. Piper spoke to my family, he cautioned them about expect-
ing too much; surgery, he explained, was nothing more than an attemptto save my life. It would not reverse the impact of the stroke. If, he stated
flatly, I was unfortunate enough to live, I would be facing a life confined
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to a wheelchair or hospital bed. I would be facing the
future existence of an infant: capable of absorbing in-
formation and processing it, but incapable of any typeof communication. I would never feed myself, never be
able to walk normally, never speak normally; in essence,
I would be totally different from the man that existed
before December 7! But, if Laura wanted him to pro-
ceed with the surgery, he would; if not, I would be gone in a matter of
hours.
“Surgery…
was nothing
more than anattempt to save
my lie.”
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CHAPTER 5
A miraculous recovery
My family was told that I would probably be facing no less than one year
of inpatient physical therapy; after nearly seventy-five percent of my
cerebellum had been removed, walking was absolutely out of the question
in the immediate future. I was transferred to the VA Central Iowa Health
Care Hospital in Knoxville, Iowa, on December 23, 2008, for rehabilitation
and therapy. I spent several days adjusting
to the new environment as the therapist
made some initial observations concerning
my long-term outlook for therapy.
I started therapy after an evaluation on
December 26, 2008, with an understanding
that I would be facing at least one year of in-
patient rehabilitation. Those were very hard
days for me. I can remember struggling to
write my name; I struggled to walk just a few
“There is no such thing as a problem. There are only
opportunities for God to do something.”
PASTOR RICK GROOVER
“I started therapy
ater an evaluation on
December 26, 2008,
with an understanding
that I would be
acing at least one year o inpatient
rehabilitation.”
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feet; it was hard to transfer myself from my bed to the wheelchair. When I
tried to walk, it was as if my legs were not responding to the promptings of
my brain; they just would not cooperate. I distinctly remember my first mealin the Knoxville Rehabilitation Center; I was wheeled into the dining hall and
offered a bib. I remember thinking, “I don’t need that; that is for people who
are really sick.” So, I refused and went to my meal without it. On the tray was
a scrumptious meal of pureed HOT DOG. (By the way, if you have never had
a meal of pureed hot dog, you just have not lived!) I lifted my plastic spoon to
my mouth, and watched with horror as the entire spoonful of hot dog ended
up in my lap; sure enough, I could not feed myself without help. It was atough existence.
Needless to say, the road ahead of me looked bleak; I did not even have
the strength to walk around the physical therapy room. It was a struggle
for me just to stand for a few minutes. I was tested for my dexterity and
found that I had basically none. My speech was slurred, my thoughts were
scattered, and my muscles were weak. In short, I was a mess!
I can still remember my first day of real physical therapy. It was De-
cember 29 and Liz, my physical therapist, had me try to walk on a treadmill.
After a few minutes (or seconds, I am not sure), she
asked me if I wanted to rest. I told her that I had
twenty-three hours to rest; I was only given one
hour of physical therapy a day and I was going to
use every minute of it. By the end of the first day of
sessions (physical therapy, occupational therapy, and
kinesiotherapy), I was able to stand, walk, and talk
more clearly. The second day, I was upgraded from
a wheelchair to a walker; a small step but quite an
accomplishment for me! I spent the majority of my time in therapy trying
to strengthen my muscles and gain more coordination.
By the end of my therapy on December 30, I was given the green
light to go from a walker to a cane. When I was cleared to try walking the
halls, I was nearly unstoppable; it felt so good to walk…even if I did notknow where I was going, I was going to keep walking! On December 31,
I did most of my occupational therapy standing up to strengthen my legs
“I was only given
one hour o
physical therapy
a day and I was
going to use everyminute o it.”
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and I worked on getting in and out of bed, cooking oatmeal, and mastering
getting into the shower. I could, quite literally, feel myself getting stronger.
Later on December 31, I had a meeting to discuss my progress and it wasdecided that I had made significant improvement and could go home on
pass…after only three days of therapy.
On January 1, 2009, I came home for four days on pass and was done
with therapy! I was officially discharged from the rehabilitation hospital on
January 6, and returned to work on January 7 (less than one month after
my stroke). I returned to full-time work as a pastor, including preaching
during the Sunday morning service, on January 25; it had only been one andone-half months since the emergency brain surgery that should have left
me incapable of any movement.
Since my recovery, I have had several follow-up appointments with
the neurology team. All of the doctors have had the exact same sentiment:
we have left the medical and entered the miraculous! There is absolutely no
medical explanation for my recovery. I have less
than thirty percent of my cerebellum working,
I have two visible strokes in my brain stem, and
the scan shows severe damage to the pons area
of my brain stem. The summary of all my doc-
tors is this: my recovery is not simply rare, it has
never happened before. It is not just that I have
recovered, it is that I have recovered so quickly
and have no visible signs of a stroke: I do not
have a noticeable limp, I rarely slur my words, my vision has been affected
but is highly functional, and my balance problems are hidden to most. (That
is not to say that those problems do not exist, just that they are not obvious.)
So now I live; but, my life is changed. Now I live the life of a miracle!
“All o the doctors
have had the exact
same sentiment: we
have let the medical
and entered the
miraculous!”
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CHAPTER 6
Some things to ponder
Coincidence: according to Merriam Webster’s Collegiate Dictionary, it means
“a group of concurrent events or circumstances remarkable for lack of
apparent causal connections.” So that plants a question in my mind: were
the events that surrounded my stroke remarkable for their lack of apparent
causal connections? There are several events that happened in a relatively
short period of time, which taken together suggest
that they were not coincidental at all, but were or-
chestrated in such a way that each event, combined
with other events, created a perfect scenario for a
miracle. Did God orchestrate the events of my life
in such a way that it created this scenario? If He
did, could that also mean that He wishes to do the
same for others? It gives me great comfort to know
that the circumstances of my life did not take God
by surprise; rather, He divinely orchestrated the
“The foolishness of God is wiser than men;
and the weakness of God is stronger than men.”
1 CORINTHIANS 1:25
“It gives me
great comort to
know that the
circumstances
o my lie didnot take God by
surprise.”
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Living the Life of a Miracle
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events of my life for His purposes.
Taken independently, all the things that happened in the last few years
before I suffered my stroke would be quite simply random, but when theyare interpreted as a whole the question of whether it is coincidence or not
is valid. Is it mere coincidence that I moved from a church and home thirty
plus miles from a decent hospital to a church and home that has one right
across the street? Is it mere coincidence, also, that I was convinced to secure
life insurance less than three years before a stroke that would render me
uninsurable? Surely a few events could be coincidental, but a more extensive
look reveals things that appear to be much more.There are several things that seemed inconsequential at the time but
now appear to have been done for a purpose. Sometime in 2003 I was taking
my oldest daughter to the doctor; while I was there I asked him to take
my blood pressure just so I could see how I was doing. It was a little high,
but not really elevated, so I did not worry about
it. About six months or so later, I was taking
my son to the same doctor and asked, again, for
him to take my blood pressure. Again it was a
little elevated, but not so high that it concerned
me. In the summer of 2004, my wife and I were
going to change health insurance companies to
one that allowed more health savings account
contributions. I received a phone call from the
Health Insurance Underwriting Service, and
they informed me that they were going to raise my premium by twenty-five
percent and they would waive me from any coverage for heart problems.
Why? The doctor had written on my chart that I had chronic high blood
pressure; that caused the insurance company to place me in the “high risk”
category for heart disease. So, I submitted an application to the VA for cov-
erage under the Department of Veterans Affairs; I was accepted, so I no
longer needed supplemental insurance. Had I kept private insurance, my
stroke would not have been covered.As I had mentioned before, I had no life insurance before the events of
2005 led me to apply for it. Had I not done that, I would not have been able
“Had I kept private
insurance, my
stroke would
not have been
covered.”
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to secure life insurance because I was a high risk. As tragic as those circum-
stances were, they convinced me that I needed to pursue life insurance and
seek coverage for my family. Had those events not happened, there is a verygood possibility that I would not have sought out coverage for my family.
Less than one year before I came to Knoxville, the church had made a
decision to purchase a new parsonage for the pastor. The old parsonage was
a two-story home, and the only bathroom in the house was on the second
story; the master bedroom was on the top floor, the garage was detached
from house. The new parsonage was one level; two bathrooms with a master
bedroom on the main floor and a master bathroom. The garage was attachedto the house. Had the house still had two floors, I would not have been
able to live there immediately following my stroke; at that time, I could not
maneuver stairs so I would have had to stay in the hospital until I could
adequately manage steps.
I have said earlier that the doctors could not identify my problems
during the early stages of my illness. They tested me for spinal meningitis,
they thought I had some sort of intestinal infection, and it was assumed
that my high blood pressure was caused, mainly, by the extreme pain and
dizziness. It was not until Wednesday mid-morning that a stroke was iden-
tified. Because of the swelling and the massive damage to my brain stem,
transporting me to Iowa City, and the VA neurosurgeons, was out of the
question. Surgery had to be performed at a local Des Moines hospital. That
allowed for the congregation from my current church and my former church
to gather with my family at the hospital. Had I been transported to Iowa
City, the likelihood of my family enduring that situation alone would have
been much more likely. School for my children was still a possibility because
Dad was in a Des Moines hospital rather than an Iowa City hospital; my
son could still be involved with the school musical, my girls were able to go
to their school with their friends rather than being placed in an unfamiliar
situation.
I mentioned earlier that I felt as though I could have retired from the
church in Stratford; it was really a perfect situation for my family. So whenwe moved to Knoxville it did not make any sense to me, to my family, to my
church, or to people who were giving me advice. But I felt that God wanted
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me in Knoxville, perhaps because He knew what was in my future, though
I did not. As early as 1995, plans were made to close the Knoxville campus
of the VA Central Iowa Health System; one roadblock after another wasencountered so that the hospital was still available for me in December of
2008. The Knoxville campus did eventually close—in December of 2009.
And last, but certainly not least, was the surgeon; Dr. John Piper was
the neurosurgeon who performed the craniectomy and cerebellum retrac-
tion. As it happens, Dr. Piper is perhaps the single greatest neurosurgeon in
the state of Iowa; he is well-respected by the neurologists in Des Moines,
Iowa City, and Cedar Rapids. Several of the doctors who have talked withme concerning my surgery have all said the same thing: if I could handpick
anyone to perform that surgery, Dr. Piper would be that person. Is it just
a coincidence that he was available for surgery that day? Is it mere coinci-
dence that, though he normally does not accept VA patients, he agreed to do
my surgery? Is it mere coincidence that Dr. Benjamin, my neurologist, was
not supposed to see me but decided to just “pop in?” Are all of these happen-
ings merely coincidental or did God divinely orchestrate things for His pur-
pose? Perhaps someone reading this is saying that it is in fact coincidental; but
I choose to believe that it was all the work of a loving God who knows
all things.
So, what if things had not worked out so well for me? What if I was
not able to walk again, or talk again, or feed myself ? What if all that was
true? That is a good question, but the answer is still the
same: God is still righteous, He is still good, and His
love is always the same. My circumstances do not influ-
ence how good God is to man. My wife asked me one
time what I would do if everything they said would
happen to me were actually true? My response was
that I would just have to do what I have always done:
adapt and overcome. I can remember, though, telling her and my kids to
remember this one thing: no matter what happens to me, God is still good.
Perhaps there is someone reading this that has experienced a tragedy in life;what can I say to them? God is still good. Fortunately, God is not bound
by my circumstances and He is never surprised by anything that happens.
“God is God,
and I am
not.”
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This may not be proper English, but I really believe it is true: God is God,
and I am not; therefore, I do not have the right to decide what happens in
life and I do not have the authority to question what occurs. Two thingsthat I NEVER do anymore: I never start a sentence with “God can’t,” and
I never start a sentence with “God has to.” He is God, He can do whatever
He chooses to do; but also, He is God, He can NOT do whatever He chooses
NOT to do.
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Some of the young people from my youth group in Louisiana.
A good old-fashioned Louisiana crawfish boil for the youth group.
My first church—First Baptist church in Stratford, Iowa.
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Celebrating the 150 th anniversary of the church.
The view from our doorstep on November 12, 2005, after a tornado
passed 100 feet from our house.
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Across the street, you can still see the tornado clouds in the distance.
My wife and my girls in our front yard preparing to cross the street.
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At our house, the sand was still in the sandbox and the trampoline was
not touched!
Less than one block from our house.
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Fifteen days after the tornado, we are in another emergency
shelter.
Taking refuge in the United Methodist Church.
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Notice the date: November 29. We had been forced into the
shelter on November 27!
New Covenant Church
in Knoxville, Iowa.
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Left: December 21, 2008;
only thirteen days removed
from my stroke.
Below: My mom and dad
came and spent nearly a
full month in Iowa; we cel-
ebrated Christmas in the VA
hospital.
My brothers,
David (left)and Dennis
(right), came
to visit me in
the hospital.
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Left: Me and my girls
in the hospital.
Right: Less than three months from
my stroke, I was able to ride my bike,
run, play basketball, preach…all
things that I was given no hope of
doing ever again.
Christmas party with the youth in Louisiana.
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Skyler Dillon and Jeffrey
Garza; Jeffrey went on
to establish Life’s Jour-
ney Church in Zachary,
Louisiana.
First Baptist Church in Stratford, Iowa.
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My kids: Shaylee (left), Brendan, (middle), and Madelyn (right).
Christmas 2004
A little light in an otherwise dark tunnel.
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The large white
spaces are areas
of my cerebellum that have been re-
moved by surgery. A
normal cerebellum
scan shows no white
(caused by dye that is
used to identify empty
spaces).
The larger and
smaller areas are
strokes in the brain
stem due to swelling.
A normal brain stem
scan would show no
white. Barely vis-
ible are darker areas
in the brain stem,
indicating areas of
lesions on the brain
stem.
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PART II
What Is It Like?
What is my life like now? For a glimpse into the mind of a stroke
survivor, I will include portions of my blog: misspellings, bad gram- mar, and everything. At times it seems like mindless rambling, but
these are my real thoughts, my real feelings, and my real emotions.
My blog can be accessed at: astrokestory.blogspot.com.
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CHAPTER 7
I’m sorry, this can’t really be happening
MONDAY, JANUARY 12, 2009
This will be my first post…You know what’s funny about a stroke...I know,
I know, there’s nothing funny...but the funny thing is that I heard my wifetalking about this peron who had a stroke and I thought to myself, “Hmm,
who had a stroke that I don’t know about...” Then I looked around and found
that I was the only person in a hospital bed and figured she must be talking
about me.
The interesting thing is that I remember everything up to the str0ke,
but I don’t remember the stroke itself. I can remember things I would rather
forget (like this season’s primaries and presidential election) but of that 2
weeks I have no recollection.
I’ll have to take my wife’s account of that 2 weeks as gospel because
I don’t remember it. (I do remember talking to a lady from the first church
I pastored and she said that she tried to come see me when I was in the
hospital. I said that she should have just said that she was there, because I
would not have known it!)
Speaking of my wife, I have to give her quite a bit of praise because
she was in my hospital rooms from the time I had my stroke until I was
released to the Knoxville VA. The only reason she wasn’t in my room then
was because we live only 6 blocks from the VA center in Knoxville - not to
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mention the other men I was sharing a room with. :-)
Anyway, I was talking about my stroke. My wife says that I had a CT
scan, but I don’t remember getting that from Knoxville Hospital & Clinics.They initially tested me for spinal meningitis because that was they thought
I had. Then she says I was transported to the Des Moines VA, but I don’t
remember that. You want to know what else is funny, I have phone calls
on my cell phone that I know I made because my wife remembers talking
to me, but I don’t remember making those calls. Anyway, then my blood
pressure came down and they told my wife to go home because the CT scans
were clear. Then my blood pressure went really high and they did anotherCT scan. THAT scan showed something different from the other scans. Dr.
Benjamin asked my wife if I had any trauma to my head recently. My wife
answered that I had a massage the day before. Dr. Benjamin said that I would
not survive a trip to Iowa City and for that purpose she recommnded that I
be transferred to Iowa Methodist to have surgery by Dr. Piper.
The type of stoke I had is called an Intracerebral Hemorrhage. I had
one major stroke in my cerebellum and 2 or 3 minor strokes in my brain
stem. I was not supposed to survive the surgery. If I survived, I had a 50/50
chance of waking up. If I woke up, the doctors said that I would never be
the same and I should just be in a wheelchair drooling.
I said that for this purpose, as I sit here, it has been less than 5 weeks
post surgery! God has been good to me. I realize that not everyone gets
a gift like this from God, but the Drs. are astounded by my recovery. The
nurse that gave me my final medicine at the rehab center said, I’ve never seen
a faster recovery!’”
Every day I live now I live for the One who gave life to me. There is no
scientific reason why I am sitting at my computer writing this now; there is
only one reason and it is because God has been looking out for me. You may
not believe in Him, but all I can tell you is that I was released 3 weeks and
1 day after having surgery on my brain. THAT is a mystery to the Drs. But
it is no mystery to me, because I know the One that says there is a balm in
Gilead. I know the One Who is the Great Physician. I don’t know a doctor,but I know The Doctor.
When I Woke up…I had a bunch of stitches in my head. My wife said
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I also had a shunt in to relieve the pressure is my head. Dr. Bejamin said (to
my wife) that I only had 2 or 3 hours before I passed away from the pressure
on my brain and in my head. My head (5 weeks removed from surgery) stillitches but I have had all the stitches removed completely.
I woke up in CCU at Iowa Methodist hospital. I vaguely remember
people coming to see me. I don’t remember anything they said, I just re-
member that they were there. I had surgery on December 10th and I woke
up on I think December 13 or 14. I was moved onto the 5th floor of Iowa
Methodist and was then given the option (at the bargain rate of $2,000 -
$6,000 a DAY) to move to Younker Recovery and Rehab. I served in theArmy from 1989 unil 1994 so I qualified for VA treatment at the VA rehab
center in Knoxville.
I don’t remember being at the Des Moines VA the first time, but I
remember this trip to the Des Moines VA center. I was there from Decem-
ber 20 thru December 22. Then I was transferred on December 22 to the
Knoxville VA rehab center. I stayed in Knoxville Rehab until January 1st.
After that I was on pass and then I was released completely from Physical
Therapy and Occupational Therapy. I still have to see the Speech therapist,
but I will only have to go to see in 2 weeks and then I will see what happens
from there.
TUESDAY, JANUARY 13, 2009
I guess I should back up…My wife first suspected I was having the
stroke on December 9th pretty early. At first she didn’t know what to think
because I was just stumbling around. I don’t remember much of that morn-
ing, but my wife says that I was hitting my head against the wall trying to
get to the bathroom and such. That was when she called the local hospital
911 because it was only 4 a.m. and she did not want to wait until 8 a.m. when
all the Dr. offices opened. She wound up calling the nurse at Mercy 911
and she said that I should go to the local emergency room to get treatment
ASAP.I can only guess that I was having symptoms of the stoke 3 or 4 weeks
before my actual stroke because I wa having sudden intense headaches.
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Looking back, I can see that was a sign of a stroke, but I attributed it to
using a new bathroom cleaner. Now the Drs. think I had a “perfect storm”
sort of speak that all came together. I had borderline high blood pressure, Iwas taking over the counter cold midication that raised my blood pressure,
I was taking herbal remedies which only raised my already high bl00d pres-
sure, and I had a massage the morning of the 8th of December. None of
those things are dangerous independently, but together they think it was
what caused my stroke.
The Drs. are also trying to figure out what would casue a 38 year old
man in pretty good shape (I was going to the Rec. Center everyday and hadlowere my Cholesterol by 68 points in a year) to have a stroke. They think it
may be a genetic problem that casued weakness in the muscle that surrounds
the blood vessel that allowed blood to leak into the brain. That, combined
with all the aforementioned things, may have caused the stroke. They are
not certain, but that is what the think.
The rest of the next 2 weeks are just a blur to me. My wife says that I
was actually at 2 hospitals in Des Moines, but I can only remember waking
up at CCU in Iowa Methodist. My wife says that abotu 30 - 50 people from
my church were there on during my surgery and for the first few days. I
don’t remember them, but I will take her word for it. She also said that my
brain swelling was so severe before the surgery that my kids had to come in
and spend a few minutes to tell me goodbye if I didn’t make it through the
surgery. My associate Pastor, Ethan Book, was in my room or at the hospital
constantly throughout my hospital stay. He was tremendous to me and my
wife during this difficult time for me.
I also had visitors from the first church I pastored in Stratford, Iowa.
I don’t remember what they said, I just remember them being there.
Laura (my wife) said that my surgery lasted 4 or 41/2 hours. They
Drs. had to repair the muscle and the vein and then suction out the bleedign
and then they put a shunt in to relieve the pressure that was building in my
head. Dr. piper said to my wife to expect 6 months of intense therapy. But
I have fooled the Drs. and today is my 5 week anniversary of my surgery. Ihave been bck to work for about a week and Laura has been back to work for
a week too. God is good
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WEDNESDAY, JANUARY 14, 2009
It is taking awhile…It is taking awhile to get used to everything inmy body being different than it used to be, but I am slowly getting used to
it. My hands are the worst of it. I can’t seem to get my hands to do what I
want them to do. I can’t write, I can’t type. I guess I can a little, but I am not
like I used to be. I used to type and write without thinking, but now I have
to think about everyting I write and type.
I can’t clap like I used to. I clap different from the way I did the rest of
my life. I know, I know it is a little thing, but I can’t do anything like I usedto. It is a big thing when you realize that everything in your life will be dif-
ferent. Whenever I have a headache, I have to ask myself if this is a normal
headache, or am I having another stroke. Whenenver I have a simple cold I
will never again be able to take over the counter medicine. I will have to go
to a Dr. It is a small price to pay, but it is different from the first 38+ years.
I might talk normal again, but I might not talk normal. It is going to take
awhile, but I will get used to this, too.
THURSDAY, JANUARY 15, 2009
I had my follow up from Iowa Methodist…I had a good follow up. The
Dr. said that I was doing well. He was actually astounded by my progress.
He had me walk heel to foot, touch his finger, touch my nose and many other
things. He did reccomend that I go to Iowa City to follow up with a stroke
specialist. But, he was very pleased with everything I told him. His only area
of concern was with my INR because it was a little low. He wants it at be-
tween 2 and 3. It was only 1.48. So, he wants to keep me on the Warfarin as
long as my INR is low. The VA wants me off the Warfarin in about 2 more
months. Then they want me on low dose Aspirin for pobably the rest of my
life. But the Dr. at Iowa Methodist wants to see me on Warfarin longer. But
he was just offering his suggestion.
He also said that the reason I have problems at night is because I havehad both sides of my cerebellum removed. Apparently there are 5 parts of
your body that are necessary for balance. If any one is gone, then when
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another is taken away, it makes balance worse. He said, before I had a chance
to tell him, that I was stumbling around at night. That is because the eyes
are another part of your body that is necessary for balance. Because mycerebellum is gone, that makes my eyes much more important. If my eyes
are gone, then my cerebellum becomes more important. If my cerebellum is
gone, then my balance will be shot.
Overall it was a good visit and he was genuinely astouned when he
saw me. The last time he saw me, I was in a hospital bed and I could not even
do anything on my own. Now I am able to do everything on my own, even
walking!!!
SATURDAY, JANUARY 17, 2009
I will try to post the newspaper article about me here.
Knoxville rallies behind minister
Article used with the permission of the editor of the Knoxville Journal-Express.
It may be next to impossible to prove the existence of miracles, but an ordeal for one
Knoxville family may make a strong case in favor of it.
“I shouldn’t be having this conversation with you,” Pastor Jim Mead of the
New Covenant Church said last week. Jim suffered an intra cranial hemorrhage
and several mini strokes in his brain stem on Dec. 9. He was told that most people
who suffer these attacks on the brain either find themselves confined to a wheelchair
or dead.
Around 4 a.m. Dec. 9, Jim told his wife, Laura, that he felt funny. He was
stumbling around and vomiting. They believed he had meningitis, so they went to
the Knoxville hospital and clinics. He was transferred to the Knoxville VA Medical
Center, then to the Des Moines VA. Jim underwent three CT scans and an MRI.
A VA neurologist asked Laura if Jim had suffered any head trauma. Jim
was stroking and his brain was beginning to swell.
“I remember asking, ‘Is there any hope?’” Laura said. “It was just an awful prognosis.” Laura called Jim’s parents to let them know what was going on.
Jim, who served five years with the Unites States Army needed emergency
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brain surgery. The VA typically has its patients receive that kind of treatment in
Iowa City.
“I didn’t have time,” Jim said. He was transferred to Iowa Methodist Medi- cal Center.
The stroke had affected both sides of his brain, a condition his doctors had
never experienced before. If, after the operation, he slipped into a coma, there would
have been no hope.
The Mead children, Brendan, Shaylee and Madelyn, had been left in the care
of New Covenant’s Associate Pastor, Ethan Book. Laura called them to let them
know what had happened.“We just prayed and gathered arouund Jim in the trauma room,” Laura said.
The doctors were not giving her a lot of hope. “I felt like, basically, we were saying
goodbye.”
As the family told Jim how much they love him, a surgical nurse looked on.
Laura said the nurse was crying and asked permission to offer Jim up for prayer.
Laura obliged.
“We were just surrounded by people who love God,” Laura said. The emotion
turned to laughter momentarily when young Madelyn said that she didn’t want
Daddy to die, “because he’s the fun one.”
Meanwhile, the community was rallying behind the Mead family. Word had
spread about Jim’s condition. As Book remembers it, the crowd in the waiting room
grew to approximately 50 visitors.
“It was just unbelievable,” Book said. “The were so many people there.”
People offered money, food, whatever the family needed. Book credits his church
with having many leaders, willing to step up in times of crises, but those who
showed support went beyond New Covenant’s congregation
“It made you thankful for the community,” Book said. The Mead’s have an
extensive list of people they want to thank for their assistance during the ordeal.
Among those specifically mentioned were KHC, the Knoxville VA, Jason and Lily
Maasdam, Ross Leeper, Jacke Duffy and Doug Wilson. Overall, they want the
community to know how grateful they are for everyone who helped their family.
“I don’t know how everything circulated,” Laura said. “I was just over- whelmed.”
During and after the surgery, Laura said they begged God for a miracle. She
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believes He delivered.
“When medicine ends, God is only getting started I think,” Laura said. Jim
never lost his faith, nor did he become angry with God. He and Laura live by the philosophy that God is good, even when one’s circumstances are not.
“We’re just full of gratitude,” Laura said.
Laura never left Jim’s side. She had been told that even though Jim survived,
he would face months of therapy and he may never again be the man he was.
Jim believes God looked down upon him and showed mercy. Weeks after sur-
gery, the only effect still noticeable is slurred speech.
“Given time, I think my speech will come back, too,” Jim said. Laura said Jim was determined to adapt and overcome this challenge. He amazed physical
therapists at the Knoxville VA with his progress. Not only have his physical abilities
come back, but Laura says his memory and personality are there as well. She joked
that when she asks him, “Have you lost your mind?” he can reply, “Yes, I have.”
Jokes aside, Jim says the support Laura has given him has been tremendous.
As a result of the stroke, Jim is on medication. He believes it is a small price
to pay. The scientific reason behind Jim’s stroke is not known for sure. Doctors have
told the Mead’s the likely cause is a “perfect storm” of conditions unique to Jim.
Jim was on blood pressure medication, then went off it. Around the same time,
he got a cold, took medicine to treat it, which raised his blood pressure again. There
is also a chance Jim has a congenital weakness in the muscle. On top of that he had
a massage the day before. All of these things may have combined to cause the stroke.
Jim’s ordeal did impact the message New Covenant’s congregation received.
Book said he did not have time to think about taking over the leadership of the church.
“We just have each other’s backs’” Book said. He learned a lot about faith,
watching in amazement at the faith Jim and Laura displayed as they faced this
challenge.
“He’s just a present example of want God can do,” Book said.
Jim will return to the pulpit on Jan. 25. He has already resumed his work
with the AWANA group. The first time he walked into an AWANA meeting after
the surgery, the children were ecstatic. A similar reaction came when he made it to
a church service earlier this month. Getting back to his old routine has helped his recovery, Jim believes.
Jim says God was testing him. Satan saw the positive impact he was having
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on the community and tried to strike him down.
“I think that God just said, ‘You’re going to be back’,” Jim said. “if one more
person comes to church, if one more person is saved, it’s worth it.”
SUNDAY, JANUARY 18, 2009
Today I led the service at church...The morning started with a meet-
ing (informal, of course) with the deacons. It was decided that I would do a
“dry run” for next week by doing the opening prayer, the announcements,
the pastoral prayer and the pastoral song. It was a re3ally good feeling tobe able to do all that and not be tired. It felt good to be back in the pulpit.
Swann Juline preached, so I didn’t have to. Ethan was at winter retreat for
the Senior High so he was unavailable. I often joke with him about having “a
vacation” but I know that it is a lot of work taking the Sr. High to retreat.
MONDAY, JANUARY 19, 2009
Tonight I should practice driving…This may be a big night for me.
I should practice driving in a parking lot tonight. This should be a great
night. I am a little bit nervous getting behind the wheel again, but I think
I am ready. I don’t know yet what will be expected of me from the VA on
Wednesday. I have to call tomorrow and find out if the VA needs me to
bring my own vehicle, or if they will provide it.
I will also be practicing tonight for Sunday. Overall this should be a
big night for me. I know it has not even been 6 weeks yet, but it seems like it
has been an eternity. My dad has been struggling with this for over 7 years.
I know that it can be done, but it has been hard. I don’t know what is harder,
knowing I can and am not allowed, or not being allowed. If I simply wasn’t
allowed, then that would be all of it. I simply would not do it. BUT since I
can, but am not allowed, it is harder because I know it is something I used
to do, but will have to work into it.
Speaking of things I used to be able to do, I used to be able to do jumping jacks easily and now I have a hard time doing them. I think that it
is because I do not have a good cerebellum the rest of my body wants to take
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over. Maybe, maybe not. All I know is that when I jump it feels weird.
TUESDAY, JANUARY 20, 2009
Today I really thought about things...This morning I really thought
about things from my wife’s perspective, in fact from everyone else’s per-
fpective and I thought, “How selfish have I become.” I have given little
thought to how the other person feels toward me. I have only thought how
they must affect ME. I never thought about the woman who graduated from
William Penn and I was not there to congratulate her. I never thought aboutthe kids in the band and how they must feel doing a benefit for someone
most of them have never met. I never thought about my kids, how they
must have felt the first few days watching me in a hospital bed not knowing
what would happen to me. Most of all, I never thought of how my wife
feels. She has had to do all of the driving, all of the ice-scraping, all of the
bill paying, all the running to the bank, all the running to the store, all the
picking up the kids from their activities. I could say, “Yeah, but she did not
have a stroke.” The question comes when I ask myself the question, “Would
I do the same for her?” I think, in fact I know, the answer, “Yes.” Is it because
I feel obligated? No. It is because I love her and want her to be as at ease as
possible. So, does she baby me a little? Yes. Only because she does not EVER
want anything like this to happen to me again. So, for the rest of the time, I
will keep my mouth shut and only do what I am allowed. IF I do more that
I should, I NEED to get fussed at. I need to understand that what happened
to me did not only affect me; it has affected everyone that comes in contact
with me and my situation. I need to understand that the people that have
been most effected by what happened to me are the ones who love me the
most. If they look at me differently, then so be it. The responsibility really
falls on me. It is about time I stop expecting everyone else to change their
response to me. They did not have the stroke; I did. It is my responsibility
then to change my response to them as well. It is time, as John McCarthur
would say, for me to be gentle in my response to every person. They don’tknow what it is like to have a stroke, but it is WRONG for me to expect
them to know what it is like. The things I cannot control, I won’t try to; the
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things I can control I will and nothing more.
WEDNESDAY, JANUARY 21, 2009
Last night my wife really opened up about the ordeal…I don’t know, I
guess I never thought about how it was for her to see my ice glass, or to see
me laying on a hospital bed unresponsive. I know that the stroke affected me
in a tremendous way, but I have never stopped to think about how it affected
my wife and kids. She told me the kids were crying when they got to the
hospital because they did not know if they would ever see daddy again. Thatis pretty terrifying for children 7 and 10, not to mention a 16 year old that
is just about ready to finish his first year driving.
It was a pretty traumatic experience for everyone involved, which
makes me appreciate them more that I am home. Yeah, it irritates me when
my 16 year old does not get his jeans into the laundry room and then com-
plains that he does not have any jeans. Or when my 7 and 10 year old fight
over a littlest pet shop toy. But, the alternative is having them bury their
father, and that makes me enjoy the little things. I may not like all them, but
I enjoy seeing them.
FRIDAY, JANUARY 23, 2009
Today was another big day...First, it is the last working day before my
big day. I go back to preaching this Sunday. My mom says that I am like a
cat on a hot tin roof. I cannot sit still. I pace all over and I am fidgety. I can
only guess that it is because of this Sunday. The church (which, I am gateful
for) is really making a big deal over this Sunday. This will be my first Sunday
back, so, yeah, I’m a little nervous.
Second, I got my license. If you have been following my blog, you
know what a big deal this is. I feel now that I have a level of independence
that I did not have before. I drove to my wife’s business while she was at
work by myself. It felt great to be behind the wheel again. I DID have alaughing fit at her office (I don’t know if I said anything that funny or if it
was a part of what the Dr. told me to expect.) But, anyway, I drove alone
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for the first time since December 8th. Boy, did it feel good.
Third, I ran across the street. Now, normally I am not supposed to run
and I am not supposed to now, but I was experimenting. It felt weird. I haveabsolutely NO coordination. I was not able to run like I could before. (as a
side note, it will be funny when I am allowed to play basketball again to see
if I am able to run then). The running was not bad, like I did not feel bad
afterward, but I just do not have any coordination at all.
Next, I went out to Kin Folks to celebrate the fact that I got my li-
cense back. It was really good. I have not been to Kin Folks for about 3 or 4
months. Tonight I went out with my wife, my 2 girls and my parents. (Myson was at a basketball game). I had a hard time, in fact I could not, finish it
all. Whatever the night, I had a big day.
SUNDAY, JANUARY 25, 2009
Last Night I had a good time at the Rec. Center…
Now, I have to be honest. (Why is it that preacher’s always tell you
that they are being honest now...). I was a little apprehensive before because
I did not know how much I would be able to do. Would my limitations get in
the way of once I got on the floor? When I arrived, I found out that I did not
have to worry about the weight room and the exercise room because we did
not have that reserved. I did not venture into the pool (even though I could
have as long as I stayed in the shallow end). That only left the gymnasium.
When I arrived, I could do very little, so, I was worried.
After everyone else started to arrive, I loosened up a bit. I had a good
time fellowshipping with the people there. I guess we had 75 - 85 there.
Considering how cold it was (about 8 degrees) I thought it was a good
turnout. Over the night, I found myself doing more in the gym. At the
beginning, as I said, I could do next to nothing. By the end of the night, I
was running across the gym floor and shooting 3-pointers (I even made a
few!!!) Overall, it was a good night.
I told my wife, “One night down, one more day to go.” Today will bemy first attempt at preaching since my stroke. I have preached some where
in the vicinity of 600 sermons...this is the first one I am genuinely nervous
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about. Will I forget; will I fall; will I be able to preach like I did before?
All these questions and more are running through my mind. I will update
everyone after I preach today.
SATURDAY, JANUARY 31, 2009
I realize that this is a post most people won’t understand...But you will
never know what it feels like to have every decision, and every word scruti-
nized for its accuracy. Now, before I go on I want to say that I know that the
people who say something have only my best interests in mind, but it stillgive a stroke victim (or anyone else who has a problem communicating) a
sense that everyone is just waiting for you next mistake. It really gives you
a sense that every word you say is checked for it accuracy.
Some people don’t know what I am talking about, but when it happens,
you will know it. For intstance, the other day I needed to go to the post
office and I said the bank on accident. Could it have been the stroke? Maybe.
The truth is I probably would say that wrong word before I had anything
wrong with me. The truth is that people are more in tune to it now. Before, I
might say something wrong and people would just overlook it...now if I say
something wrong people are more attune and they bring it to my attention.
Now, as I said before, it is something that I just have to get used to because
the people who say something have my best interests in mind. (I guess you
could say it this way...am I asking them to STOP saying something to me
when I get it wrong, no. I just want people to be aware that I am aware of it
and it bothers me about me, not about them).
It will be something I have to carry for (presumably) for the rest of
my life. I will probably always have a slight speech problem. If I don’t, fine.
But I am planning on it. So, for the next who-knows-how-many-years I will
have to plan on my speech being scrutinized. (Just a side note, I think I pay
more attention to my speech problem than anyone else. For instance, I was
just talking with someone the other day and they said that if I did not tell
them I had a stroke, they would not have guessed.) So, I just have to get usedto keeping my feelings to myself about my speech. This will probably be the
only post about this on this blog.
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CHAPTER 8
Starting to adjust to my new life
MONDAY, FEBRUARY 2, 2009
Yesterday was the first day doing everything for me...Yesterday was a big
day. Not as big as last Sunday, for sure, but it was a big day nonetheless.
For the first time since my stroke, I was able to teach my Sunday school
class, preach the Sunday morning message, visit the hospital, and do a small
group at Westridge nursing home. I had one person tell me (after I told
them I had a stroke) that if I hadn’t told them, they would not have guessed
that anything was different about me.
I have to say that it was the first time that I felt “normal” for a whole
day. I was able (I think) to convey all the messages I wanted; I was able to
preach and think on my feet a little; I was able at the nursing home to take
some of the people’s thoughts and tell what I wanted them to know. For the
first time (I know I have said it before) I really had to reach back and feel the
scar from my surgery to know that something had happened.
Now, I am still having issues with my typing, but that is to be ex-
pected. The Dr. said that since I had part of my cerebellum removed, that isresponsible for coordination and typing takes an incredible amount of coor-
dination to do really well. So that has not come back completely. Tonight my
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wife asked me what percentage I think I am now. I think overall I am about
90% of what I was on December 7th. My typing, though, is maybe 75-80%
of what it was before. I have several misspellings; several times I have tobackspace because I hit the wrong key, and many times I write ahead of
myself. I can only think it is because my mind operates so much faster than
my hands that I get ahead of myself and type a letter that comes in 3 more
words. For instance, I may type a “c” because I know it is coming rather than
typing an “m” even though it is the next letter. All I can say is it is WEIRD.
Other than that, I am almost back to normal (those of you who know
me may feel bad for my wife right now). I still stumble from time to time andI have to force my right leg not to cross my left leg. But most of the time I
do really well.
TUESDAY, FEBRUARY 3, 2009
Well, today I saw my VA neurologist...To sum up a long conversation
with Dr. Benjamin, she could not believe that I could sit up, walk, touch her
finger or really anything because it requires some coordination. Since I no
longer have a cerebellum (or very little of one) that SHOULD be IMPOS-
SIBLE. Not just difficult, but not possible. I guess I could sum it up by
saying that I had a great visit with her.
There was a surgical resident in the room with us. She knew nothing
about me, but she also said that I should not be able to do anything. (Not
that Dr. Benjamin did not know what she was talking about, but the resident
did not have any reason to think anything out of the ordinary about me.)
Dr. Benjamin also let the resident (and me) see the CT scans from before my
surgery. She showed me where the cerebellum was infarcting (stroking). Ba-
sically, I would have to agree with her assessment that I no longer have an
operating cerebellum left. She also showed me where the CT scan showed
my brain swelling, putting pressure on my brain stem.
As a side note, I also found out that I should NOT have had a spinal
tap while I was having a stroke. Apparently the local hospital thought I washaving spinal meningitis (which was a logical assumption) but they never
explored the option of a stroke. They assumed I was having spinal menin-
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gitis from the first second I walked into the ER.
Dr. Benjamin was AMAZED that I could walk anywhere without a
cerebellum. Now, if I was being transparent for a minute, it is a humblingthing to hear a Dr. say that it should be IMPOSSIBLE for me to do what
I am doing without a cerebellum. It can be a very humbling experience to
hear them talk about you like you are some sort of FREAK. Now, it may be
difficult to hear, but I will take it over the alternative any time.
WEDNESDAY, FEBRUARY 4, 2009
Today, I’m having a little bit of a pity party...Now, fundamentally I un-
derstand that I should not be able to do able to do what I am doing. I get that
part, and for that I am grateful. But until you have had a stroke, you really
are not able to sympathize with me. It has given me a new appreciation for
people that chastise me when I say that I know what they are going through.
I cannot explain everything, but I have problems controlling my emotions.
Saying that I shouldn’t have the problem does not take away the fact that I
do. I have some problems with my speech. Really, it does not matter what
area I should struggle with, the fact is I do.
Yesterday, I went on facebook and saw a page for classmates of mine
that are no longer with us (I will celebrate, if you want to call it that, my
20th graduation anniversary this summer). The truth is, I almost made that
list. I nearly died. Until it has happened to you, it is really an insult to say
that you know what I am going through. The truth is, no one knows what
it is like to wake up and find out you had conversations of which you have
no recollection; no one knows what it is like to find out what all the Drs are
saying about me; no one knows what it was like to see the scans and find that
I did not have a minor stroke, but I had a major stroke in my cerebellum and
minor strokes in my brain stem. To see the scans before and after, I really
did not have a grasp of what the situation was...now I know and it scares
me. The truth is, people do not know what it is like. That is not to say that
some people do not know what it is like to have agony. People struggle withagony, I know, but saying that I should react like I would for a bad cold is
wrong, too. Simply put, I had a stroke...I nearly died...I should be, according
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to medicine, a vegetable for the rest of my life...I ought to be in a hospital
bed for the rest of my life...how do YOU think you would react to that?
FRIDAY, FEBRUARY 6, 2009
There are little things that some people take for granted...Today I had
a nice relaxing lunch with my wife. This may seem like a normal day out to
most people, but it meant something bigger to me: it meant that I was still
here to take her to lunch; it meant that I was able to sit with her; it meant
that I did not have to communicate with a board, and it meant that for themost part I was not on a special diet because of my stroke. I just had a won-
derful time with her. I cannot express how much it means to be able to spend
quality time with her. Each time my kids throw themselves on me, it means
a lot to me. My youngest, who has a hard time putting everything together,
sometimes says that I cannot do things because I was sick. She is right...I
have limitations; life as I once knew it is over. But what I gave up is nothing
compared to what I still have with my wife and children. I have been more
than just blessed to watch my kids grow up or just have a relaxing time with
my wife out for a simple lunch.
While I am on the subject, this is about as close as I have come to a
“normal” night out. I went to the hospital to visit a churchgoer, and while
we were mulling over where to go for dinner, some people from our church
invited us out. So, we had a nice night at Applebee’s and really had a nice
conversation. It really felt good. I even told my wife that I noticed (which
means I was paying attention) that I did not slur my words as much when
I was in a restaurant as when I was just riding somewhere. Maybe it is
because I try harder when I am in mixed company than when I am nearly or
totally alone. It is something to think about.
Now I am waiting for my son to get back from his job. He had to drop
off some tax stuff and get his check. These are great days...I get to wait up
for my son and 10:30 p.m. Considering the alternative, I will take staying up
anytime.
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SATURDAY, FEBRUARY 7, 2009
Today I found out something very important...I can still ride a bike!!! Wewent down to the North Overlook of Lake Red Rock and walked the trails.
We had a picnic and I had a good day withe the family. We took our bikes out
and rode around. We watched people fishing and just had a good day.
As a side note, according to the State of Iowa, I am permanently dis-
abled! I get a permanent fishing license effective the day of my stroke. From
now on, I will never have to buy a fishing license again. Now, I am not saying
that I am permanently disabled, but the state of Iowa does and so they gaveme my license.
Slowly I am getting back to normal...I made a visit to a recent visitor
to the church and made a trip to Wal-Mart. I know that people are sick of
me saying it, but I have to reach up every now and then to remind myself
that anything significant happened to me. At night I am reminded all the
time because I tend to slur my words when I am tired. But, I plan to go to
church tomorrow and do everything (my associate is out of town, so I will
have to do the announcements in addition to preaching). Basically, I am get-
ting back to normal.
THURSDAY, FEBRUARY 12, 2009
I had a great day today...Let me start by saying that most people say
that they would never know I had a stroke if I did not tell them. I know that;
I understand that. I only tell them in case I make a mistake then maybe they
will be more likely to overlook it. Anyway, today I was at the hospital to visit
someone from the church and in came the Dr. We struck up a conversation,
and then my stroke came up (because I was given the choice of doing rehab
in that institution). the Dr. asked which person (me or my wife) had the
stroke. Now, this was not a normal person...this was a neurologist, someone
who deals with stroke patients every day. Now, on the surface someone may
say that this is a small deal. But, if you are the one who had a stroke and aDr. who deals with strokes does not know that you are the one who had a
stroke, that is a big deal.
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After that, we went to Sam’s Club. I could have had a field day in there.
It seems like everything I saw was something the kids would really like.
Sometime I want to spend an entire day just getting whatever I want (I wishI had that kind of money). Anyway, it was a good day. Just spending the day
leisurely with my wife was great...having the Dr. not know which one had
the stroke was only icing. The real joy came in spending some time alone
with my wife. We didn’t have an agenda, we didn’t have a Dr. appointment,
we did not have to get home at a certain time for the kids (because they were
being picked up by someone else). It was a really great time.
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CHAPTER 9
A minor setback
SATURDAY, FEBRUARY 21, 2009
I know it has been a long time since I posted...I have been in the hospital for
the last week. It all started when I went to the ER Monday and they did a
scan to see if I had a blood clot. Once it was determined that I did not have a
clot, they gave me a muscle relaxant, told me that I just had a pulled muscle,
and sent me home.
The next morning I was taking my daily medicine, when I passed out.
I guess I was out for about 2 or 3 minutes. My wife said that she thought
I was dead because my eyes were open, but I was not responsive. She im-
mediately called 911 and they brought me to Knoxville hospital. Initially
the ER thought I passed out because my heart rate dropped, but then they
determined after many tests that I passed out from the pain in my leg. After
many tests and a cardiologist that wanted to put in a pacemaker, they said
that I was bleeding in my leg, which caused my heart rate to drop, resulting
in my passing out.
I spent 5 days in the hospital, not knowing if I would need surgery ornot. The problem was that I was on coumadin, which allowed me to bleed
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in my leg, but would complicate a surgery. First, they had to reverse the ef-
fects of coumadin to stop the bleeding in my leg, then they had to raise my
hemoglobin, making sure that the bleeding had stopped. After several daysof observation, they finally let me go home today, but I have to monitor my
leg at home and I have to see my Dr. on Monday.
Other than that, I had a great week. I told my wife it may be the only
time I leave the hospital weighing more than I did when I went in, because
I could not eat on Monday until 5 p.m. and I did not eat on Tuesday until 5
p.m. So the rest of the week I ate BIG meals for breakfast, lunch and dinner.
Ethan, again, filled in great for me. He did a funeral (at the time I didnot know it would be his first funeral), visited several people in the hospital
and visited me. I know that he tends to downplay how much he does for me,
but it really is a comfort to know that I can go to the hospital and things will
be taken care of in my absence.
My wife, who has been through a lot, really did a great job this time
again. Unlike the first time in the hospital (which was life threatening) she
saw me pass out and thought me to be dead. I appreciate all she does and
maintaining things when I am in the hospital. My kids, too, have been a
source of great pleasure, not grief. They have been through a lot the last
couple of months, but continue to do things like any other kids. I have really
come to appreciate my family, as if not before, in the last few months.
Tomorrow I should go back to church. I will have to go easy for a
couple months. But, we’ll see what develops over the weeks. I guess that is
all that I have to write now. But I will write more later.
MONDAY, FEBRUARY 23, 2009
I didn’t get any good news today...well, sorta…I went to the VA for a
follow up today. After they took my blood, I just did normal things around
the house. But, when I went back the Dr. said that he did not buy the fact that
I just had borderline high blood pressure, was on over-the-counter medicine,
went for a massage and had a stroke. Basically he said what people have beensaying for a long time: people my age just don’t have strokes. What he said
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is that people have those conditions every day, but they don’t have strokes.
So, now I just have to wait to find out what the stroke specialist says. He is
concerned that they don’t know what caused my stroke yet.I am going through a time that I am unfamiliar with. I cannot do cer-
tain things that I used to be able to do, and I don’t like it. The truth is that I
need help doing almost everything. As much as I appreciate people who are
willing to do things for me, I hate the fact that I cannot do them. I struggle
with everything, and what I don’t struggle with, I have problems doing. I
need help going downstairs, walking from room to room, going to work...
everything. I know it is only a temporary setback while my leg heals, but Ihave often said that I HATE this new reality.
I spent last night thinking that I wish I could just rewind to before my
stroke. The fact is that everything HAS to be linked to my stroke. I can only
hope that life gets back to normal pretty soon.
WEDNESDAY, FEBRUARY 25, 2009
I am in an emotional whirlwind…I am still having some problems with
my emotions. I tend to laugh a lot when I laugh, cry a lot when I cry and
I get really angry when I get angry. Every Dr. tells me it is a side effect of
my stroke, but I have to learn to get control of it. For instance, when I laugh
at work or with my wife, I laugh until I can hardly breathe. When I cry, I
cry over simple things like movies that never used to make me cry (like Elf
and the Princess Bride). When I deal with the kids, I catch myself getting
short (it usually takes me by surprise...I think I am controlling things and
my family will tell me to calm down when I think I am). It is just something
I will have to get used to, and try to recognize the signs of its oncoming and
overcome it.
On a side note, I go to the Dr. on Tuesday to see a stroke specialist.
There is a part of me that wants the Dr. to find nothing out of the ordinary
and that she is as baffled as me. On the other hand there is a part of me that
wants the Dr. to find something and tell me what the treatment is. That wasI will no longer have to wonder what is wrong with me.
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FRIDAY, FEBRUARY 27, 2009
I did a little reminiscing today...Just a little bit ago I finished lookingat pictures of my when I was in the hospital. Some of the pictures I admit-
tedly cannot remember vividly. I remember that it was taken, but I cannot
remember the whole situation. It brought back a lot of memories. Some of
them I would rather forget, like being in the hospital. Others I remember
fondly, like my parents and brothers, David and Dennis, visiting me.
More than anything else, it makes me aware of where I am and where
God has brought me. I know that I have said it many times, but the truthis that I nearly died, I have had many doctors tell me that I cannot do the
things I am doing, and no doctor so far can figure out what happened to get
me in my situation. I realize how much my wife, children and the rest of
my family had to go through. I also know that my church family had to go
through a lot.
For right now, I am just rejoicing to be alive and enjoying my daugh-
ter’s 11th birthday. Soon, my other daughter will celebrate her 8th birthday
and I will be here to see that, too. My son will celebrate his 17th birthday in
less than 5 months. The truth is that I am here for it, and I almost was not
alive to enjoy their birthdays. I am just resting in God everyday.
MONDAY, MARCH 2, 2009
I had an interesting day yesterday...Ok, by now most of the regular
followers of my blog know that I try, unsuccessfully at times, but I try to
keep most of the posts pretty positive. I write about what I did, what I tried,
and sucess I had, a Dr. visit that went extremely well (as all my Dr. visits
so far have done). But, this will not be one of those posts. Yesterday was
a really interesting day. I would say that as long as I stayed busy, I had a
normal day. But, when I was at home, just sitting, I was really down. I can’t
explain it, I was just a Negative Nelly all day at home. That is not like me. I
am usually an Ollie Optimist.When everyone else is down, I can usually find a reason to be encour-
aged. But, yesterday I was in the dumps all day at home. I can only guess
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why: it is because I saw pictures from before my stroke, and I was missing
that life. The truth is, my current existence stinks. Oh, I am getting used to
it and I am not going to go Postal on someone, but truthfully it stinks. I haveto learn almost everything over again. Not how to do it, but what I can or
cannot do. Since I have had my “setback” it is worse. My leg hurts when I
try to do something as simple as put my shoes on. If my leg does not hurt,
then it is my chest where I fell. My entire left side hurts. My wife and I can
only guess that when I passed out, I must have hit the doorway first before I
hit the ground. So, I have to try everything a new way. Even yesterday while
preaching, I had to preach from a chair. I know I should be rejoicing that Iwas able to perform my job, and I am thankful for that, but it was different,
and it was all due to my stroke and the after-effects of that one event.
Now, I am feeling better today. Maybe I was just tired and needed
to sleep; maybe I have to be busy and I am facing a new week; maybe my
appointment tomorrow is coming quickly and I am excited about it...regard-
less, I feel better today. I will feel best when I am DONE with Drs. and I can
finally get back to feeling better.
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CHAPTER 10
Moving on
TUESDAY, MARCH 3, 2009
Today is my appointment in Iowa City…Well, today is the day that I have
been waiting for a month. I hope (of couse, it depends on what she says)
that after today I will be done seeing doctors. The only nice thing is that you
have to be accepted to Dr. Davis, but my understanding is that SHE wants
to see ME. It is nice to see a Dr. that wants to see you instead of vice versa.
Anway, I should know more after today than I have ever known before. The
Dr. today is a stroke specialist. I have seen neurologists before, but each of
my neurologists want me to see THIS Dr. apparently she is the best in Iowa
dealing with strokes. If I stump her, then I don’t know what I will do next.
A part of me wants her to say that she cannot see anything wrong with
me, she is baffled, so I just have to go home. At the same time, another part
of me wants her to find something wrong with me, tell me what causes it,
what the prevention is and to have a nice day. I cannot have both, but either
would be nice.
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WEDNESDAY, MARCH 4, 2009
I had my appointment with the stroke specialist yesterday…All I cansay is that I don’t think I could have had a better appointment. First, I need to
say that she was surprised, not at the fact I am walking because she thinks I
would have gotten there soon anyway, but she was surprised that I was walk-
ing as soon as I am. When she came to get me, she said that she expected to
see me in another state, but not walking. Then, once I was in her office, she
revealed the “smoking gun” that no one else has been able to find, yet. Before
my appointment yesterday I had an MRA of my upper chest, neck, and head.In the hospital, they only did an MRI, MRA and CT of my head and neck.
What she said is that I have an artery, the left ventricular artery, to my brain
that is completely blocked. Now, I know that sounds bad, but she said that in
my case it is good because it will not allow further clots to go to my brain, but
I am getting ahead of myself. Basically what happened is that sometime in the
past, when is unimportant, but somteime in the past my artery became totally
occluded. Something happened, it could be a fall, a strain, a cough or anything
that created a tear in that artery. (BTW, my headaches were caused by the tear
in the artery,not by anything else). The tear allowed blood to leave the artery
and form a clot. Something happened (it could or could not have been the mas-
sage) that allowed the clot to move into my brain and caused the stroke. The
good news is that there is less than a 10% chance of recurrence in 10 years.
The other good news is that she took me off (I will go off it over time) all the
meds from the VA. She took me off Simvastatin (Zocor) because my stroke
was not caused by a buildup of cholesterol. She also is taking me off of all the
blood pressure medications because my blood pressure was only 108/54 at the
appointment and she said it was too low. (Incidentally, she thinks that I passed
out more from low blood pressure than anything else because I was bleeding
in my leg and I only have one ventricular artery to feed my brain with blood).
Basically she wants my blood pressure top number to stay between 120 and
130 because I only have one artery feeding my brain and she wants my heart
to pump hard enough to feed my brain constantly. (Right now it stays between115 and 120). Overall, it was a GREAT appointment, she does not think I
have to worry about a reoccurence of my stroke, she took me off all the VA
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meds (I am on 81mg of aspirin and Folic acid as a preventive, but that is over-
the -counter). The ONLY restriction I have (it is more precautionary than
anything else) is that I cannot do anymore “Thrill Rides” at an amusementpark, I cannot do any slides at a waterpark, I cannot ride horseback...basically
I cannot do anything that might manipulate my neck. Of course, how often
do I do those things...maybe once a year! So, unless somethin else happens, IF
(and I do not want one) I hae another stroke, she waid that it will not likely be
related to this one...it sounds like this is one and done.
THURSDAY, MARCH 12, 2009
I have not posted in a few days...Ok, so I know that I have not posted
in a few days. It has not been an oversight, I have just not had anything
to write. However, tomorrow is another big day. I have an interview with
KCWN in Pella about my stroke. I have spent the last few days just looking
over the emails and the prayer requests for me. I have also looked at the sur-
geon’s report. I guess the best thing to say is that my situation was pretty
grave. The surgeon that did my surgery said in his notes that surgery would
MAYBE save my life, but it would not erase the deficiencies from the stroke.
He told my wife that I might not ever be the same. Truthfully, he told my
wife that I might not survive the surgery, but without the surgery I would
certainly die from the swelling.
All I know for sure is that no one, no Dr. has anticipated me being
this far this soon. They said that I MIGHT get back some of my capacity
back over time, but NOT NOW. That is one thing I have a perfect score on:
EVERY Dr. said that I should have a recovery time of 6 months or more.
I know it is overused, but only God knows why I was back in the pulpit in
less than 2 months. I give all the credit first to God for every step I take,
and second to the surgeon that did the surgery, because he had never done
a surgery like mine before. I can only guess how he felt doing a surgery for
the first time, and it was on ME.
I may not have all the answers, but I know the person that has all theanswers and one day I will get to see him face to face and ask Him why He
spared my life.
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WEDNESDAY, MARCH 18, 2009
One thing that will probably not go away for a long time...I don’t knowwhat to write this morning. In truth, my situation has changed, and because
of that everything has to change. But, at the same time, I HATE being
treated like I am a stroke survivor. By this, I mean that every time I have
borderline blood pressure, every time I have shortness of breath, every time
I have some sort of pain, and every time I don’t feel “right” people think
I might be having another stroke, or worse. Never mind that the stroke
specialist has already told me that this will probably “never happen again”.Never mind the fact that I can do other things generally well. It seems
as though everything is being filtered by that one event. Now, I can deal
with it. I am not going into a depression, I am not feeling worthless, it just
annoys me. Maybe it shouldn’t. Maybe I should just be grateful that people
really care about me. OK, I do and I am. But it still annoys me. What I
wonder is this: do people not trust me? I feel like EVERY situation MUST
be worse than I think, EVERY situation MUST be something more than
I am making it. No matter what I am experiencing, it is not a “normal”
experience. Interesting, if I had a cold on December 8th, no one would
think anything of a little coughing or a slight raise in blood pressure. BUT
now my blood pressure has to STAY between 120 and 139 over 70 and 89.
Regardless of whether I have a cold or not; regardless of if I feel bad or
not. It is a little frustrating. I know, I know...it is only because people don’t
want a repeat of what happened. Granted. But, what happened to me is, by
every Dr. estimate, a fluke. It was not caused by anything I did or did not do.
It was caused by a collapsed artery in my chest, a tear, and a clot that went
to my brain. My BP had NOTHING to do with my first stroke...Sorry, I just
had to vent a little frustation.
SUNDAY, APRIL 5, 2009
I have had many occurrences of this...I guess it was the first time Ihad been “caught” this week at my office. I was in my Office Administra-
tors office when I simply wiped my mouth. She said, quite astonished, “Are
you drooling?” I answered, a little sheepishly “Yes”. The truth is I have
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had about one or two times a week of drooling. The nearest I can tell, it is
because my muscles in my mouth are not fully recovered and strengthened
from the stroke and sometimes it allows drool to leak out. I have gotten usedto it, but, like I said, I got caught the other day. It is something I will have
to live with until my mouth is strengthened, maybe for the rest of my life.
It is not a big deal...it is just a little bit and I simply wipe my mouth. What
brought it to my attention today is that I had to wipe my mouth while I
was preaching today. I told my wife that I might have to start carrying a
handkerchief with me...
WEDNESDAY, APRIL 15, 2009
Okay, today was a good day for me...I know that when you are writing
a blog about all the struggles and/or triumphs of recovering froma stroke,
you are supposed to write about big stuff: Dr. appointments, handicapped
parking, fishing licenses, riding bikes, etc. You know, big stuff. Today was
big, but for a little reason. I mowed the grass today. Now, on the surface that
seems like a small thing, and it probably is. But, when you realize all that
I have been through, it was a real boost to my morale to be able to mow
the grass without having to stop, without being REALLY tired afterward,
basically, I mowed the grass like I did before. When I think about all the
obstacles that I could be facing and all the roadblocks that many people
face, being able to do anything is big, but mowing the grass, because it is
a relatively menial task, takes on a bigger sense to me. I really feel normal:
not that mowing the grass made me normal again, because I cannot erase
what happened to me, but it made me FEEL normal again, and for that I am
thankful and I really had a good day.
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CHAPTER 11
My new life
At this point, having gained some insight into the ways in which the stroke
has affected me personally and having glimpsed some of the changes that my
family has had to make, I will change my focus to my new life. I will only include
those blog posts which pertain to my new life.
THURSDAY, APRIL 30, 2009
I am getting used to my new lifestyle...I met with my deacons the other
night, as well as the Administrative Board of my church. I have to say that
they were very supportive. They are advocating me taking the morning off
on Monday’s and then every afternoon off for awhile. They are also in favor
of me having my Associate Pastor preach for me once a month if I need him
to. It is still hard to adjust. I started my new schedule this week, and I do
admit that I feel better, but the emotional is still hard to come to grips with,
even though the physical is better. Tomorrow I will go to my first Iowa
Baptist Conference meeting since my stroke. I am going on Friday night be-
cause the conference recorded a video of my testimony and they will showit Friday night. I am excited about that. I will be excited to get back to
“normal”. I am really trying hard to be “normal”, maybe “normal” will just
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come naturally if I just relax a little. It is just hard to relax, knowing what I
have been through and what lies ahead. I will just try to take every day, and
if I struggle, then I struggle. I will try not to allow each struggle to effectthe next day so much.
WEDNESDAY, MAY 27, 2009
I am struggling with my BP...Well, they are adjusting my BP medicine
again. I appreciate the fact they want to minimize how many I take, but it is
a little irritating to have a normal BP (130/80 is normal), and now I haveBP readings that are all over the board. In the morning it is normal, and
then it ranges from normal, to really high (165/105) at night. I have another
appointment on Friday to follow up with the Dr. to try to give me a more
normal BP. For the time, I am only on 20 mg of Lisinopril. I used to be on
20 mg of Lisinopril and 5 mg of Amlodipine. Since they took away the
Amlodipine, my BP has been crazy. I don’t know if the BP is normal while
I adjust to the medications, or if I need to be on Amlodipine. The problem
is that I want to self-medicate and just take the Amlodipine. The problem is
that it may not be the best for me. I guess that I will have to wait until Friday
to find out what I will be taking. I know, patience, patience, patience!
FRIDAY, JUNE 12, 2009
I am having a new problem...You know, I told my wife last night that
for the last 6 months I have been one big ball of pain. For the last 10 days or
so, my back has been hurting. Not like I pulled a muscle or worked too hard,
but I feel like my actual bones hurt. So, I am going to VA again today. The
good thing is that this will be the first visit to the VA for a non-stroke visit
in 5 1/2 months. The bad thing is, my back is really bothering me. It does
not always hurt, but I fell it is more an aggravation. I hope it is just from
working too hard and not the sign of another problem. I have had all the
problems I can take for awhile.My cold seems to be subsiding a little, finally. I told some people in my
church that I used to get a cold, be run-down for 3 or 4 days, and then be
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back, somewhat, to normal. But, now I have had this cold since the 31st of
May. I just cannot seem to get better. I feel some better, then at night I get
all congested and cough-y. This is unusual for me...I usually get better in afew days, not a few weeks.
SATURDAY, AUGUST 22, 2009
I got the results of my scans...Before I begin, I think it is important to
remind people that sometimes even the Dr. make mistakes. When I went for
my MRA yesterday, they were going to do 2 tests: one MRI on my head, andan MRA on the vessels in my head. Dr. Davis had ordered an MRA of the
vessels in my chest, too, to make sure the artery in my chest is not making
its own bypass. Well, when I told them about the MRA of my chest, they
said they would have to call because they did not have paperwork on it. Sure
enough, they were supposed to be doing a chest MRA, so they wound up
doing 3 tests instead of 2.
And the results are..................I am doing very well. Dr. Benjamin said
my MRI looked GREAT; no changes, which is good. My MRA’s show that
the artery in my chest is NOT forming its own bypass, meaning that the
artery is totally occluded - that is, if a blood clot goes to my brain again, it
won’t be through that artery.
Really, I don’t know that I could have had better test results. The
strokes are still there, obviously, but there is nothing new to report. Overall,
it was a really good visit.
MONDAY, NOVEMBER 16, 2009
I had another follow up with Physical Therapy today…I have been
having some problems with weakness in my left leg lately. It bothered me,
a little, and I decided to go to the Dr. He gave me a consult to Physical
Therapy. They told me a couple things; one I already knew, but feared and
the second I anticipated but did not know for sure. The thing I already knewwas that the muscles in my legs are strong and fine. There is no deficiency
in the strength of my legs. What I feared was that the problem is really a
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neurological problem, balance issue and not a strength issue. Where this
can be a problem is that this “problem” probably will not get better but will,
over time, get worse. That was no surprise; what was a surprise was thatthere are exercises I can do that can “hopefully” teach me to regain balance.
In other words, the nerves probably will not get better, I can just relearn
how to do certain things. The weakness is not, in truth, weakness; it is a
balance issue. So, I have some more exercises to do over time that will hope-
fully re-teach myself how to do some things. I will keep you posted on how
things go.
MONDAY, JANUARY 25, 2010
This is getting repetitively redundant...I know that it has been awhile
since I last posted...in fact, it was quite awhile before Christmas. Several
significant events have transpired since my last post...I celebrated the one
year anniversary of the day I was released from the ICU, I celebrated the 1
year anniversary of the day I was released from Methodist Medical Center,
I celebrated the 1 year anniversary of my release from the VA, and I cel-
ebrated the 1 year anniversary of my return to the church; in short (I know,
too late), this has been a busy time.
Perhaps most significant has been my MRI in Des Moines. This MRI
was done off the VA campus and it was the first MRI conducted by someone
other than the VA. When the MRI tech finished the first set of pictures, she
came on the intercom and asked how long ago my stroke was. When I an-
swered it was 12 months ago, she just said, “Huh...” and that was all she said.
I worried for the next 2 weeks about what that “Huh” meant. On January
22, I had another follow up with my neurologist and she said that probably
it was because of what my scans showed...at leas 75% of my cerebellum is
either gone, dead or not functioning. In addition, there are 2 relatively large
infarctions in my brain stem. In short, the MRI tech probably cannot believe
that someone with that scan is walking into the office. What it says to me
is that my recovery is truly miraculous...not just that the VA neurologistshave never seen a recovery like this, but no one has ever seen a recovery like
this. It is very humbling to think that the Lord has seen fit to bestow this
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recovery on me...He has allowed me to share my experiences with my fellow
classmates on Liberty. edu, He has allowed me to share my experiences with
my church; He has allowed me to share my experiences with my fellow pas-tors and their churches.
So, what does this mean for me? I really don’t know. I still worry each
day that my ability to overcome my situation will come to a screeching halt;
that does not seem very likely but it is a constant concern. I would be lying
if I said that I did not worry every time I walk on the ice, or get up in the
middle of the night. But, for right now, I am simply trusting the Lord to
give me the abilities to follow Him every day.
FRIDAY, FEBRUARY 26, 2010
Someone reminded me of something very important today...After
reading my blog post from yesterday (i.e. me complaining about my wait at
the VA), someone made a very simple and yet profound statement to another
person about me. The comment was, “Listen to the dead guy complaining
about the wait at the VA”. I do have to remember that the worst wait is
just an inconvenience; it is small in comparison to the alternative - DEAD.
Thanks for putting up with me whining about my wait and please don’t
hesitate to remind me to be thankful for all the blessings that I have...this
winter, although it is seemingly endless, is just a nuisance; the car-line at
school, even though some people don’t know how to drive, are just irrita-
tions. In truth, anything above ground is very good. Thank you, God, for
every day that I am alive.
WEDNESDAY, OCTOBER 13, 2010
Heading to my TBI appointment today…I have been referred to the
TBI (Traumatic Brain Injury) appointment today. I have had some problems
lately with “jumpiness” in my left eye and have had balance issues (more
than usual) lately. Last week (either Tuesday or Wednesday) I stood up andthen fell back into my chair. This is not the first time it has happened, but I
have just learned how to deal with it. Also, last weekend (October 2) I lost
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my balance carrying groceries in from the truck. I wound up on the ground
for a second. I did not hurt myself at all, but I did lose my balance. I do not
have balance problems on a regular basis, but it is foolishness on my part tobelieve that the balance issues do not exist. The other day, perhaps 3 months
ago, I lost my balance in church while I was preaching and had to steady
myself on one of the edges of the staircase. Apparently I did a good job of
disguising it, because no one seemed to notice; but that does happen from
time to time. Again, these are just things that I deal with and most people do
not seem to notice.
SATURDAY, NOVEMBER 13, 2010
After a short visit to the ER, here is what I found...I found out some-
thing that I had already known; that is, that the jumpiness in my eyes and the
uncontrolled blood pressure is in reality a side effect of the initial stroke. Be-
cause my stroke affected my brain stem, as I get tired my brain no longer has
the ability to compensate for my weakness. Although the Dr. did say that it
is theoretically possible that I am having a new round of TIAs, it not really
a viable possibility because I do not have any other symptoms: headache,
dizziness and nausea. The only “symptom” I have of a TIA is blood pressure
that goes relatively quickly from normal (130/85) to very low (115/65) to
very high (176/104). (By quickly, I mean in a matter of days, not hours). So,
he told me what I already know: the best treatment is to get more rest, relax
and give my body time to completely relax when I have “down time”.
WEDNESDAY, DECEMBER 1, 2010
Sometimes I forget how others are effected...Today I ran into my
daughter’s 4th grade teacher. As we were chatting, she told me that she was
grading a recent test and one of the answers made her cry. In Social Studies,
they are talking about planning events and how it might not happen exactly
as was planned. On the test, the question asked was “Name a time that youplanned something that did not happen the way you expected.” My daughter
wrote that she had been planning a birthday party, but then her daddy had
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a stroke so it did not happen. I almost fell apart at the school; I have spent
so much time focusing on my own difficulties that I did not take the time
to think how others are still dealing with the situation. Yes, it was nearly 2years ago, but that does not erase the difficulties that some have had dealing
with the result of that event. So, thanks Mrs. Kamp for reminding me that,
even though I sometimes do not hear about those difficulties, it does not
mean they do not exist.
***I continue to struggle, but I am doing better all the time. My Blood
Pressure continues to be a work in progress, but the TBI clinic just thinks
that, since the stroke effected my brain stem and the PONS area of mybrain, it will be very difficult to keep in regulated all the time. As has been
the story for the last 2+ years, I am simply thankful for the time the Lord
has given me with my kids, with the church and with my wife. For those of
you that have been regularly praying for me, thank you. I really do appreci-
ate it.***
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APPENDIX 1
Doctor notes
ADMISSION DATE: 12/10/2008
CHIEF COMPLAINT: Bilateral cerebellar infarction
HISTORY OF PRESENT ILLNESS: The patient was sent over emergently
from the VA by the neurologist. He apparently a couple weeks ago had a cold
and was treating himself with cold symptom medications. There is also one
report that he had undergone chiropractic manipulation but apparently talk-
ing with family it was not a chiropractor it was just a massage therapist and
there was really no substantial manipulation of his neck. Regardless, two
nights ago he said he really did not feel well at all and went to bed. He woke
up at 4:00 in the morning and had significant vertigo, headache and nausea
and vomiting so they did ultimately take him into the emergency room. A
head computerized axial tomography scan at that time was negative. They
did do a lumbar puncture to make sure he did not have any signs or symptoms
of infection given he history of cold symptoms which apparently by report
was negative. He was sent to the VA for further evaluation. Subsequentlyhe has been diagnosed with cerebellar infarctions based on computerized
axial tomography scans and magnetic resonance imaging scans that were
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performed and fortunately these are bilateral and they appear to involve the
pica distribution. However the concerning things is apparently the patient
yesterday was wide awake and lucid and today progressively over the dayhas become significantly more lethargic and developed bilateral extraocular
motility defects. Because of this, they obtained a scan which shows early
hydrocephalus as well as significant posterior fossa swelling.
PHYSICAL EXAMINATION
GENERAL: He is a very lethargic patient that will arouse with stimulation.He will answer a few questions with simple yes and no answers but it sounds
like he has significantly gone downhill even over the last several hours.
NEUROLOGIC: He has extraocular motility that is very hard to charac-
terize but I do think it looks like interocular ophthalmoplegia or perhaps
polycranial nerve involvement but clearly abnormal. His pupils are small
and remain perhaps minimally reactive. He does seem to have diminished
gag response. He does move his extremities but it is hard to get a detailedexamination but Babinski is present bilaterally on exam. Gait and station
were not tested.
CARDIOVASCULAR: Regular rate and rhythm.
LUNGS: Appear to be clear but the breath sound are somewhat diminished
IMPRESSION: This gentleman has the above mentioned problems. I havehad a chance to look at the films. I have reviewed them with our radiologist.
Initially the films were not available but they did finally show up from the
VA. In the interim, since we really did not know exactly what was going
on we did get a computerized axial tomography scan so we have been able
to compare this. It looks like he has got fairly extensive pica infarcts of the
bilateral cerebellar hemispheres. Because of this, I think we will plan doing
a midline decompression in light of his deterioration where we will try to
do stroke resection bilaterally and patch the dura as best we can to give it
room for swelling. The patient also probably would benefit from an external
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ventricular drain at least in the short-term given the significant problem
that he has. I was fairly frank with the family that obviously surgery is not
going to change his overall course with respect to the stroke. He will stillhave deficits from this even if he does survive. What surgery is is an attempt
at saving his life because of the progressive swelling that he has developed
and an the anticipation that this is heading downhill fast enough that he will
die from the brain stem compression. They do understand that the stroke
still may progress and he may be significantly disabled or even die despite
doing surgery that surgery does have risks of infection, cerebrospinal fluid
leakage that might require pseudomeningocele repair at a later date particu-larly since we may not be able to get watertight dura closure if there is sig-
nificant swelling. We also did discuss the risk of intracranial hemorrhage,
infection and they wished to proceed with surgical intervention.
John G. Piper, M.D.
CT HEAD WO CONTRAST
INDICATION: History of bilateral cerebellar infarcts
COMPARISON: There is no previous imaging for comparison
TECHNIQUE: 5 mm images of the brain were performed without intrave-
nous contrast administration
FINDINGS: There are areas of decreased attenuation identified in the cer-
ebellar hemispheres bilaterally. This may represent bilateral PICA infarcts.
Other etiologies for vasogenic edema cannot be excluded. The previous
imagining on this patient is not available for comparison. There is compro-
mise of the fourth ventricle. Mild hydrocephalus is consistent with mass
effect.
IMPRESSION: There are areas of decreased attenuation within the cer-ebellar hemispheres bilaterally. By history, these represent areas of infarc-
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tions on the previous MRI examination. That examination is not available
for comparison.
CT HEAD WO CONTRAST: CRANIOTOMY FOLLOW-UP
FINDINGS: Head CT without contrast: a ventricular shunt catheter enters
the right frontal region. Its tip projects near the midline in the right lateral
ventricle. The ventricles are within normal limits in size. There is no evi-
dence of focal cerebral abnormality or hemorrhage. Postoperative changes
present in the posterior fossa. Regions of increased density and air bubbles
are present centrally within both cerebellar hemispheres. The occipital cra-
niectomy has been performed.
IMPRESSION: Postoperative Change. Apparent bilateral cerebellar resec-
tion sites are present. Air bubbles are present at both sites.
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APPENDIX 2
The diagnoses from
various doctor visits
12/12/08 MRI of the brain and skull reported craniectomy changes of the
posterior fossa; extensive areas of infarction of the cerebellar hemispheres
in the PICA distribution as well as the pons and middle cerebellar pend-
uncles.
4/23/09 VA neurology note: noted to have mild nystagmus on lateral gaze
and mild 6th cranial nerve palsy with slight left facial droop.
1/6/11 DIAGNOSES: Stroke, affecting the bilateral cerebellum and pons,
due to dissected vertebral artery, with the residuals of: fatiguing, mild dys-
phagia, mild aphasia, left hemiparesis with mild weakness and fatiguing and
lack of endurance of left extremities, episodic tremors, episodic dizziness,
headache from occipital muscle tension headaches, intermittent tinnitus. Al-
though there is no evidence of damage to cranial nerve VI nor VII per se;
the veteran has had damage to the pons, the area where the cranial nerves
originate, the dizziness and tinnitus are consistent with inappropriate pro-
cessing of signal coming from the labyrinth and cochlea along CN VIII to
the areas of the brain damaged in the strokes.
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APPENDIX 3
“I am in the middle of a crisis, what now?”
M
any times tragedies come into the lives of people who don’t know
how to respond properly. Questions swirl in their minds: Why me?
Why now? Why this? What do I do? Where can I go? Who can I talk to?
Please understand, first, that these questions are perfectly normal. It seems
popular to say that those questions are not helpful; although it might be true
that they are not, they are natural. There are just a few suggestions that I
can give, based upon my experiences.
First, know that our circumstances do not change God’s character. He
is still good, regardless of what might be happening to us. The one thing I
tried to communicate to my family was this: even if things do not work out
well for me, God is still good; regardless of what happens to me it does not
change God’s character.
Second, I would make this suggestion: never give up, never let your
situation dictate what you do. When I was in therapy, Liz, my physical
therapist, asked me if I needed a break. My response was simple: I have
twenty-three hours to rest; I will not take a break now. I had to trust that
my therapist knew what she was doing and would not do anything to hurtme, but would do everything to help me. If I have learned any one thing
from my circumstance it would be this: my best is ALWAYS good enough,
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regardless of how bad it might seem to me; LESS than my best is NEVER
good enough, regardless of how good it might seem to me.
Third, I would suggest this: learn to talk TO your shepherd. In Psalm23, the psalm is, really, divided into two sections. In the first three verses,
David, the psalmist, talks ABOUT his shepherd:
The LORD is my shepherd; I shall not want. He maketh me to lie
down in green pastures: he leadeth me beside the still waters. He
restoreth my soul: he leadeth me in the paths of righteousness for his
name’s sake.
He spent the majority of his time speaking ABOUT his shepherd. But,when he went through a great trial, he spoke TO his shepherd:
Yea, though I walk through the valley of the shadow of death, I will
fear no evil: for thou art with me; thy rod and thy staff they comfort
me. Thou preparest a table before me in the presence of mine enemies:
thou anointest my head with oil; my cup runneth over. Surely goodness
and mercy shall follow me all the days of my life: and I will dwell in
the house of the LORD for ever.Did you notice that he changed his focus? He spoke TO the shepherd.
When you are in the midst of a trial, please know that you can speak TO
your shepherd.
Finally, I would always remember the words from Psalm 3:5: “I laid
me down and slept; I awaked; for the LORD sustained me.” Seldom did I
reflect upon those words and rely on them as sincerely as in the days follow-
ing my stroke and during my hospitalization. I had to know that it was the
Lord who sustained me; my own strength was not sufficient to provide any
miracle. Whatever happened to me was always perfect; not because it was
inherently good, but because God did it and that meant it was good, even if
it did not seem so to me and my family.
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APPENDIX 4
Laura’s thoughts
I really thought it would be a nice addition for you to read what my wife was
thinking and what she was going through during this time. As I have said, those
days are quite fuzzy and I do not have a good assessment of what happened. For
instance, I do not remember having conversations with anyone from mid-afternoon
December 8, until about December 18, but my wife tells me that I did. So, here are
her thoughts, in her words, about that period of time.
“December 8, 2008, marks the beginning of life as I now know it…
that day started out as any other day…the kids went to school, my
husband had the day off and I went to work and the day progressed as usual.
When my husband picked me up for lunch, he told me he still wasn’t feeling
‘up to par.’ He’d been suffering from a cold for three weeks or so. We chatted
over lunch and went back to work.That evening I did not get off work until 6:30; Jim picked me up from
work and we went to Hardee’s for supper. We visited while we ate and then
we went to Wal-Mart. Jim had been talking to one of the ladies from our
church, but then we left and went to pick up our girls from dance class.
Jim called his dad to wish him a happy birthday; while speaking with
his brother I heard Jim say that he still wasn’t feeling very well. From there
we went home and Jim went to lie down on the bed. I cleaned up in thekitchen, got the girls ready for bed, and then I went in to check on Jim. I
had him get up and take out his contacts. On his way back to the bed he
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stumbled some, but when he laid down and closed his eyes he said he felt
better. As long as he kept his eyes closed he wasn’t dizzy. I thought maybe
he had vertigo. We both fell asleep and I awoke again at 4 a.m. to the soundsof Jim stumbling and banging into the walls trying to get to the bathroom.
I got up and helped him in the bathroom and then helped him back to the
bed. He told me his head hurt and the room was spinning when he had his
eyes opened. I called our local emergency department. They recommended
we wait until 8:00 a.m. and contact Jim’s primary care doctor.
I got off the phone and told Jim what they had suggested. Now he was
shifting side to side holding each side of his head. I decided to call anotherarea emergency department. This time they had me call the 24-hour nurse
help line. I spoke with the nurse first and then she asked if Jim could speak
with her. He did talk with the nurse for what I believe was probably fifteen
minutes or more. He was lucid and his speech was not slurred. She recom-
mended we go to our local emergency room. When I helped Jim sit up to
get his sweatshirt on he began to vomit. I helped him to the bathroom and
got him cleaned up. I went downstairs to wake up our sixteen-year-old sonto help me get his dad into our vehicle.
When we arrived at the emergency room, Jim’s blood pressure was
167/109. He was nauseated and had a headache. They took some blood for
lab work and gave him medication for the nausea and pain. As the medi-
cations took effect Jim was relaxed and chatty. Several members of our
congregation came up and Jim visited with them all. The doctor ordered
a spinal tap because she believed Jim was suffering from spinal meningitis.
I signed the form to allow the procedure. (I later was to learn that when
you are stroking in that area of your brain performing a spinal tap creates
a sort of vacuum and can cause instantaneous death.) The spinal tap came
back negative. Because Jim is a veteran, arrangements were made to transfer
him to the VA hospital in Des Moines. When I reached the hospital Jim
was comfortably situated in the emergency room. He was coherent, joking
around, and feeling pretty well. The doctor said they would admit Jim for
hypertension and a stomach virus. He would most likely be discharged the
following day and sent home with blood pressure medications.
Friends from church and I went out to lunch after Jim was settled in
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his room. When I returned from lunch Jim was very sleepy. The nurse said
it was the effect of the medication. I plugged in his cell phone and told him I
was going home to get the kids and I would call him once I got there. I gavehim a kiss and went home. I picked up our kids from a friend’s house. We
had no school that day due to an ice storm so the kids had enjoyed a very fun
day with friends. I went to Wal-Mart, put gas in the vehicle, took the kids
to McDonald’s, and called Jim. He told me he was feeling better but now his
blood pressure was 200/50. I asked him to please call for a nurse right away.
We got off the phone. My daughter wanted to talk with her daddy so
I called him again. No answer. We tried several more times. No success. Igot home and looked up the VA phone number on the internet and was con-
nected with a nurse at the nursing station; she told me the doctor was trying
to reach me. I was beginning to get very anxious. The doctor called me back
a short time later. He told me Jim was experiencing left-sided numbness and
weakness and his blood pressure was spiking. They did another CT scan.
(The first CT scan had been done at our local ER and had been negative.)
The doctor told me this scan looked normal to him as well but he was send-
ing it off to an internet radiologist to confirm.
Our associate pastor picked me up and drove me to Des Moines for
which I will forever be grateful. He talked with me and kept my mind off of
fearing the worst. When we arrived Jim had been moved to a private room
because he had again vomited. He was very, very lethargic. He would answer
questions when we talked with him but he didn’t initiate conversation. His
blood pressure was normal at this point. Our associate pastor left around
2:30 a.m. I believe. Jim needed assistance to use the restroom so I called the
nurse. They ended up inserting a catheter.
By 8:00 the next morning Jim was again experiencing weakness and
numbness on the left side, double vision, and very slurred speech. The doctor
came in and said he was going to put in a consult with the neurologist.
Fortunately, the neurologist came in around 11:30, I believe. She opened one
of Jim’s eyes and said, “Oh no.” She opened his other eye and said that Jim
needed a scan right now. He was scheduled for a MRI at another hospital at3:45 that afternoon. She said he could not wait for that. They immediately
took Jim down for another CT scan and an MRI. After the CT scan the neu-
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rologist, Dr. Benjamin, came to the waiting area and took me to her office.
On the way up to her office she asked me if Jim had suffered any trauma to
the back of his head. I told her he had not. She took me into her office alongwith another staff member and had me sit down. She told me that even
without waiting for the MRI results she knew exactly what was happening
with Jim. He was stroking on both sides of his cerebellum and his brain
stem. She said that the swelling would eventually compress the brain stem
to the point Jim would slip into a coma and die. I asked her, ‘Is there any
hope?’ She told me they could try to do a procedure to relieve the swelling.
She called it a ‘decompressive craniotomy.’ She told me that normally theprocess would be that they would send the patient to the VA hospital in
Iowa City where the neurosurgeons are located but in Jim’s case he wouldn’t
survive the trip. She asked what hospital in Des Moines I would like him to
go to and I left that to her discretion.
She then asked me if there was anyone she could call for me…my
mom, maybe? I shared with her that my mom had passed away five weeks
earlier. I did ask her if she would call Jim’s parents and explain the situation
to them. That’s another thing I’m forever grateful for. My heart was break-
ing and I just didn’t want to be the one to deliver that kind of news to his
parents. I left her office and remember going into a bathroom. I locked the
door and laid on the floor. I remember thinking of all the times in scripture
that God performed a miracle for His people. I remembered doing the Bible
study by Beth Moore, ‘Believing God.’ I called out to God and told him that
I KNOW He is the God of miracles and I know He can spare Jim’s life IF
He chooses to. I begged Him to save Jim’s life.
I then went to Jim’s room. I saw the cup of ice I had been using to wet
his parched lips. I remember crying and wondering if that would be the last
act of love I’d ever do for him. Our associate pastor arrived in the room with
me and hugged me while I asked him what on earth I would tell our kids.
He and the nursing staff helped me gather up our belongings and we went
down to wait with Jim for the ambulance that would take him to Methodist
Hospital. I was allowed to ride in the ambulance to the hospital with Jim.When we arrived, and when they took him out of the ambulance, he said his
head hurt. They took him into a trauma room and immediately he was given
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attention. They performed another CT and then the doctor came in to speak
with me.
By now quite a few people from church had arrived and two of myco-workers had picked up our children and were on their way up to the
hospital. The doctor told me that the damage from the strokes was very
extensive. The only hope of survival was to do the surgery the neurologist
recommended. He also told me that surgery was only an attempt to save
his life but it would not diminish the affects of the stroke. I don’t think I
understood exactly what he was telling me at that time. I didn’t realize then
that if Jim survived he would most likely be like an infant, able to take ininformation but unable to communicate, walk, talk, feed himself, etc. I know
Jim wouldn’t want to live like that. I told the doctor to go ahead with the
surgery.
Then our children arrived. I knelt down and drew them close to me.
I told them that God loves their daddy even more than we do. I told them
daddy had an injury in his head and he was bleeding internally. I told them
the doctor was going to do surgery but daddy might be going to Heaven
today. I told them that daddy would want us to remember that God is good
all the time. No matter what is going on in our life, God is still good. Bad
things that happen in our lives do not change God’s character. We all cried
together.
Then came the time to take Jim into surgery. The staff directed ev-
eryone else to the waiting area and the nurse who was transporting Jim had
the girls and me follow her. She took us into a room and pulled up a chair
so our youngest daughter, Madelyn, could stand on the chair to reach her
daddy’s face to tell him she loved him. Our oldest daughter, Shaylee, dripped
tears on her daddy’s face and gown as she told him how much she loved
him. I watched as our oldest child, Brendan, stroked his dad’s face and told
him how much he loved him. Then I got close to Jim and kissed him and
told him how much I loved him…how much we all loved and needed him.
I looked over then at the nurse and she had tears streaming down her face.
She asked what his profession was. I told her he was a pastor. She asked if she could quick contact her church and have him put on their prayer chain.
I absolutely agreed to that! I was thankful that God had provided men and
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women of faith to surround Jim at this time.
We left that little room and the nurse took Jim one direction and we
went the other. I took our kids into the waiting area that was filled with somany of our friends from two different churches we had served. I was so
thankful because I knew all the prayers that were going up on Jim’s behalf.
We waited four and one-half hours and then the surgeon came out and told
us that things had gone very well. He said that when he began removing
as much dead/damaged tissue as he could Jim’s brain receded back into the
cavity and began to pulse normally. He said that was a very good sign. He
made it clear to me that we were on step 1 of 100 but if he could have chosenhow he wanted this first step to go it went perfectly.
Now you know how it all started from my perspective. Jim and I will be
celebrating our 20th anniversary this year. I am so thankful that God joined
us together in this crazy partnership called marriage and that He chose to
heal Jim and give us more time together here on this earth. At the time of
his stroke Jim was thirty-eight years old, I was thirty-five, Brendan was six-
teen, Shaylee was ten, and Madelyn was seven. This ‘event’ seemingly came
out of nowhere. Nothing could have prepared any of us for this. However, I
can say with certainty that God carried us through. All of us. Life now truly
is different. Nothing will ever be the same as it was before his stroke. I can
honestly say that some things are better. I have a greater appreciation for
life. I have a deeper understanding that life is fragile and fleeting. It is not to
be taken for granted. It is a most precious gift from God. Each time one of
my girls crawls up on my husband’s lap I feel myself ‘clouding up to rain.’
So full of gratitude that their daddy is still here to hold them when they are
happy, when they are sad, when they are hurting. Each time Brendan calls
and talks with his dad to get his advice and share an inside joke my heart just
melts. Each time Jim and I take a walk together or watch a movie or watch
our kids having fun I am reminded again of how much God has blessed us.
He is a great God. He is faithful. I would NEVER have chosen for Jim to go
through what he’s gone through but I believe God has a plan for each of us
and even though the path He takes us on is difficult He doesn’t leave us totravel it alone. My family and I were surrounded by God’s wonderful people
and we were the recipients of their generosity. They willingly gave of their
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time and their finances. They shared our grief and our joys. I thank God
for His faithfulness to us and the faithfulness of His people. I don’t know
why God spared Jim’s life and yet we’ve begged God to spare the lives of others in the past and His answer has been no. I am learning that God is
God and I am not. I don’t have to understand His decisions. I just need to
trust Him, to lean on Him. I believe that His plans for Jim, me, Brendan,
Shaylee and Maddy are good plans. I trust Him when He says He will work
all things together for good…however, not ALL THINGS are good. As we
move forward our prayer and hope is that God will use what He’s done in
Jim’s life to bring Him glory and to touch people who’ve been hurt, who’velost loved ones, who might be filled with bitterness and anger towards God.
Jim says on a regular basis from the pulpit, God is good no matter what your
circumstances are…and he believes it.”
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APPENDIX 5
Requests for prayers
The following are a series of emails that were sent from the Iowa Baptist
Conference office to the churches in Iowa, recording their thoughts on my surgery
and recovery.
December 10, 2008
Dear IBC Pastors & Friends,
Pastor Jim Mead of Knoxville has been hospitalized at Methodist Hospital
in Des Moines and was rushed into emergency surgery Weds. 12-10-08 at
4 pm. Jim has had a series of strokes and is in serious condition. Surgeryif possible is 50/50. Please be in prayer for Jim and Laura and their family.
Please do not call Laura. She is in contact with the church family and close
friends are with her. We will update this as soon as we know anything.
Pastor Mike Fendley, Stratford FBC
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December 11, 2008, 9:30 am
To All Who Prayed!The effect of our prayers is so powerful. It is the God of all creation who
hears our prayers. He listens with compassion and mercy to the cries of
our hearts... and responds perfectly to the love He hears expressed by His
people for one another. Laura Mead told me last night that following the
insertion of the shunts, the surgeon reported, “We have a long way to go.
But if you could choose how each step were to go along the way, this first
step has gone as well as anyone would have wanted it to go!” This is notover. Jim will remain sedated and on a ventilator for several days... facing
“damage” unknown to us... but fully known to God... and within His deepest
healing touch. He is not finished yet. He still wants to hear from us. And
so we continue to cry out for mercy and grace. Keep praying. I will be
heading to Methodist hospital (Des Moines) this morning... and will report
what I learn.
Skip Hansen,
Director of Transition
December 12, 2008,11:30 am
To All Who are Praying!
...waiting day-by-day and hour-by-hour for those small improvements
which demonstrate the healing power of an awesome God... even hidden
deep within the individual cells of a human brain. Jim started running a
fever late yesterday... and perhaps seems weaker. And yet, He opens his eyes
when someone speaks... and he can grip the appropriate hand when asked to
do so. He even raised his hand in welcome to a friend! In prayer... let’s offer
up to the God the glory we can/will give HIM for what He mercifully does
with this young man’s life!
Skip Hansen
Director of Transition
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December 15, 2008, morning report
To All Who are Praying!
You won’t believe it! He’s standing upright... but only for several seconds.
Talking... but a bit garbled to the listener. Eating... through a nasal tube?!
Yummy! Knows the right year... at least most of the time. “Spacey”... but
not all the time! Getting somewhat stronger... but too weak to notice the
difference. And weaker... because of all the effort! It is a mixed report of
wonder and awe at the good grace of God!A recent conversation between the doctor and Laura went something like
this: Laura... “How is Jim really doing? Is he on the normal track (time-
wise) for recovery?” The doctor responded... “We are way beyond all that.
We are into the miraculous.”
Medical Prognosis: The doctors are now saying the journey will be long,
but they see potential for a full recovery! Now THAT’s good news... or shall
I say God News! Yes, I shall!
Skip Hansen
Director of Transition
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