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The diabetes
team runs two
holiday camps
per year for
children with
type 1 diabetes.
Each camp is
fully staffed by
diabetes nurse
educators, a
dietitian, social worker and volunteer staff
recruited through Diabetes WA.
The three day/two night October camp takes
place at Ern Halliday. This camp is targeted
towards children 9–10 years of age. The five
day/four night January camp takes place at
Point Walter in Bicton and targets children
11-12 years old.
Princess Margaret Hospital for ChildrenGovernment of Western Australia
Department of Health
Newslet ter of the
Department of Endocrinology & Diabetes
First Edi t ion 2013
Page 1
KIDS AT CAMP
CAMP SPOOK-TACULAR
Thirty-three children attended camp Spook-tacular in October 2012 and took part in a variety of activities including beach games, making sand sculptures, arts and crafts and the spook-tacular disco. Both children and staff had a fantastic time dressing up and dancing at the disco.
Camp members had a surprise visit from Rob Palmer from Better Homes and Gardens who also lives with type 1 diabetes. Rob spent the afternoon with the children talking about living with diabetes and sharing stories. Rob gave a master-class on how to make a box-kite and spent time flying them with the children.
CAMP ROCK STAR – POINT WALTER’S GOT TALENT
Thirty children came to a very hot and exciting Point Walter in January 2013. Everyone had a great time with plenty of games and fun activities on the river, in the pool and on the flying fox. Campers had an air guitar competition and plenty of laughs as they dressed up as rock stars.
Although the camp is primarily about having fun and meeting others living with type 1 diabetes, there is also an element of education woven into the games. Children are encouraged to adopt safe and healthy self care practices. January’s camp saw two children become confident enough to begin doing their own injections. Most of them also became more confident and aware of carbohydrate counting.
Do you think it is harder to manage diabetes in adolescence?
Adolescents think their “parents worry too much about diabetes”. Both groups agreed that they are more concerned about diabetes management than common adolescent issues such as grades, curfew, and smoking. Although the majority (52%) of adolescents identified no problems with managing their diabetes at school, 28% found it difficult to make time.
WHAT’S GOING ON IN RESEARCH
Like other chronic conditions, Type 1 diabetes mellitus (T1D) has an enormous psychosocial impact on patients and their families. Adolescence is a particularly challenging period.
The objectives of a recent research project by the PMH team was to ascertain the themes surrounding the difficulties both adolescents with T1D, and their parents, face with their day-to-day routine and to compare their viewpoints of psychosocial challenges.
A total of 64 adolescents with T1D and 61 parents were recruited from Princess Margaret Hospital’s Adolescent Diabetes Clinics between February and July 2012. Both parents and adolescents completed the questionnaires.
Results identified BGL testing, insulin dosing and emotional stress as the most difficult aspects of diabetes management. Ninety-five percent of patients thought they had sufficient information and education about diabetes, while 77% of parents and 65% of adolescents thought it was harder to manage diabetes in adolescence.
research
This questionnaire has reinforced that patients commonly find adolescence an emotional time during which T1D management is difficult and highlighted some areas which require attention. Following this initiative the Department of Endocrinology and Diabetes at Princess Margaret Hospital will use the “Problem Area in Diabetes Assessment Tool” (PAID) to track levels of distress and predict diabetes development and milestones to potentially reduce the psychosocial impact of diabetes upon lives of adolescents with T1D.
Page 2
Page 3
WHAT CAUSES TYPE 1 DIABETES IN EARLY CHILDHOOD?
The Environmental Determinants of Islet Autoimmunity
(ENDIA) study is finding out what causes Type 1
Diabetes so we can find ways to prevent it. It is
a nation-wide pregnancy cohort study into the
environmental factors of Type 1 Diabetes. The
Chief Investigator of ENDIA is Professor Jennifer
Couper (University of Adelaide) and the WA Principal
Investigator is Professor Timothy Jones (Princess
Margaret Hospital).
There has been a doubling of new cases of Type 1
diabetes in Australia over the last twenty years which
may be in part due to environmental factors.
Understanding how the environment contributes to or
protects against the disease, may allow us to modify
these factors and help prevent Type 1 Diabetes in
the future.
If you are planning or expecting a baby, or have a
baby less than 6 months old, your family may be
eligible to take part in ENDIA. To take part in this
study you or your baby’s father, or baby’s
full-sibling, must have Type 1 Diabetes.
KIDS AT CAMP
Wayne Soon
T) 9340 7974
For more information, please contact
protect
The Australian Dietary Guidelines
(2013) have recently been updated.
The Guidelines provide up-to-date advice
about the amount and kinds of foods we need
to eat to promote health and wellbeing and
have been revised to reflect the latest body
of scientific evidence on nutrition, diet
and health.
Following the dietary patterns recommended
in the Guidelines, promotes nutrients
essential for good health and to reduce
the risk of chronic disorders such as heart
disease, type 2 diabetes, some cancers and
obesity.
The Australian Dietary Guidelines were first
issued in 1982. This 2013 revision of the
Guidelines has focused on food choice, for
example the importance of enjoying a wide
variety of nutritious food like whole grain
cereals (bread, rice, noodles etc.), instead of
the amount of nutrients you should consume
(vitamin C, B12 etc.).Closed-loop study
Dr Tim Jones and his team at the Telethon Institute for Child Health Research are conducting a world first clinical trial and are moving towards the completion of an artificial pancreas or closed-loop system of managing type 1 diabetes.
Dr Jones wants to determine the effectiveness and safety of the system, its real time use, conduct the first at home trials of the system and reduce the burden of diabetes on children. A fundraising site has been developed:http://www.supportchildhealth.org.au/event/closetheloop
Other diabetes research projects can be viewed at http://www.supportchildhealth.org.au
Page 4
UPDATED AUSTRALIAN DIETARY GUIDELINES (2013)
PMH is conducting a study known as the INIT II study to find out if type 1 diabetes is preventable.
PMH is looking for relatives of people with type 1 diabetes because they may be at increased risk of developing this disease. By being involved in the study they may make an important contribution to find out if type 1 diabetes is preventable.
The study is being conducted throughout Australia and New Zealand.
What’s involved?The first phase of the study involves a screening blood test for antibodies which may indicate whether your relatives are at increased risk of developing type 1 diabetes and therefore may be eligible for the study.
The study treatment involves using a nasal spray.
Talk to your relatives today!Any of your relatives aged 4 - 30 years may be eligible to participate in the study. If a relative of yours would like more information about the study, they should visit www.stopdiabetes.com.au, or contact the study co-ordinator.
Alison Roberts (08) 93408486 [email protected]
HELP PROTECT YOUR RELATIVES FROM TYPE 1 DIABETES.
Page 5
supportCity Beach man Ian Gordon did more than just complete the challenge of the Rottnest Swim, he raised more than $12,500 for Diabetes WA.
The City Beach man decided to enter the swim and raise money for the organisation after his son Findlay was diagnosed with type one diabetes just after his third birthday last year.
Gordon’s target was $10,000.
“Just thinking of this little boy (was what kept me going),” he said.
Gordon family photo provided by Diabetes WA
Start for diabetes support� Phoebe Wearne
WA’s first dedicated centre for manag-
ing juvenile diabetes could be helping
families by next year after the State
Government donated land at its Os-
borne Park Hospital site to the cause.
The Telethon Juvenile Diabetes
Family Centre, to be built with funds
from Telethon and Lotterywest, will
provide children and teenagers with
type 1 diabetes and their families
with support on top of their main-
stream hospital care.
It will house a psychologist, dia-
betes nurse, support group, education
facilities and a state-of-the-art kitch-
en to help young sufferers learn how
to eat to best manage their disease.
Health Minister Kim Hames toured
the 1630sqm block of land, valued at
$1.08 million, with centre chairman
Jeff Newman yesterday.
Professor of endocrinology and dia-
betes Tim Jones, who is based at Prin-
cess Margaret Hospital and will lead
the project, said the centre would
complement the medical care chil-
dren received at PMH and fulfil an un-
met need for support for teenagers af-
ter they left PMH.
“PMH provides great medical care,
but when you’ve got chronic disease
you need support in the community
and you need support for your whole
life,” Professor Jones said.
“It also will provide support for
children when they leave PMH, so
that transition period, that danger-
ous time between 16 and 20.”
Mr Newman said he hoped the cen-
tre would help young sufferers accept
their diabetes and carry on with their
lives without seeing it as a burden.
On site: Jeff Newman, Kim Hames and Tim Jones yesterday. Picture: Steve Ferrier
Start for diabetes support� Phoebe Wearne
WA’s first dedicated centre for manag-
ing juvenile diabetes could be helping
families by next year after the State
Government donated land at its Os-
borne Park Hospital site to the cause.
The Telethon Juvenile Diabetes
Family Centre, to be built with funds
from Telethon and Lotterywest, will
provide children and teenagers with
type 1 diabetes and their families
with support on top of their main-
stream hospital care.
It will house a psychologist, dia-
betes nurse, support group, education
facilities and a state-of-the-art kitch-
en to help young sufferers learn how
to eat to best manage their disease.
Health Minister Kim Hames toured
the 1630sqm block of land, valued at
$1.08 million, with centre chairman
Jeff Newman yesterday.
Professor of endocrinology and dia-
betes Tim Jones, who is based at Prin-
cess Margaret Hospital and will lead
the project, said the centre would
complement the medical care chil-
dren received at PMH and fulfil an un-
met need for support for teenagers af-
ter they left PMH.
“PMH provides great medical care,
but when you’ve got chronic disease
you need support in the community
and you need support for your whole
life,” Professor Jones said.
“It also will provide support for
children when they leave PMH, so
that transition period, that danger-
ous time between 16 and 20.”
Mr Newman said he hoped the cen-
tre would help young sufferers accept
their diabetes and carry on with their
lives without seeing it as a burden.
back
Media Monitors Client ServiceCentre 1300 880 082
Copyright Agency Ltd (CAL)licensed copy
West Australian, Perth
06 Feb 2013, by Phoebe Wearne
General News, page 18 - 202.30 cm²
Capital City Daily - circulation 190,251 (MTWTF--)
ID180546824 PAGE 1 of 1
Page 6
what to expect
Sometimes it can be extremely overwhelming
for families when attending diabetes clinic -
especially for the first time. As well as dealing with
the condition itself, there is a whole team of health
professionals, to meet.
When next attending clinic, keep an eye out for
the DIABETES SERVICE - WHAT TO EXPECT
leaflet.
The leaflet provides valuable information about
the PMH Diabetes Service – including what to
expect after diagnosis and the people who make
up the diabetes team who will look after you. And
don’t forget YOU are part of the TEAM.
Feedback please
If you have any ideas about how the newsletter
can be improved please contact Madeleine
(Project Officer) on 9340 7978.
Page 7
f irst-aidDiabetes WA is also available to provide general
education at schools in relation to type 1 and type
2 diabetes. At present, Diabetes WA is providing
these sessions at cost price, for teaching groups
unable to attend the PMH sessions.
Indervidual teachers are able to attend/link-up
to PMH teachers’ seminars. Details are shown
adjacent, under the heading ‘school’.
You may also wish to subscribe to the Diabetes WA
e-Newsletter through the following link:
http://www.diabeteswa.com.au/News_and_
Events/Subscribe_to_eNewsletter
diabetes
TYPE 1 DIABETES & SCHOOL
If you know a school/teacher that would like to increase their understanding and knowledge of diabetes management in schools, PMH runs regular video-conference seminars.
These run from1:30 – 3:00 on the following dates.
Insulin Injections - 10th May and 13th September
Insulin Pumps - 24th May
Topics presented by a multi-disciplinary team include: understanding diabetes; insulin injections or pumps; diabetes first aid; diet; exercise; school management plans and impact/adjustment to diabetes. Questions will also be answered.
* Online registations for seminar attendance at www.pmh.health.wa.gov.au/services/ endocrinology/seminar/index.php
* Video conference linkages can be arranged through: [email protected] or phone 9340 7045.
school
