10
Regina Ostomy News SEPT/OCT 2011 In This Issue Leading a Balanced Lifestyle . . . . . . . . . . .1 Donations / New Members . . . . . . . . . . . . .2 Editorial. . . . . . . . . . . . . . . . . . . . . . . . . . .3 Continuing Your Social Life . . . . . . . . . .4 Dry Skin? An ET Nurse’s Advice. . .. . . . .5 How Can Ostomy Surgery Affect You . . . 6 Friends of Ostomates Worldwide . . . . . . . 7 Wardrobe Tips for Guys . . . . . . . . . . . . . . 7 Happy Days! . . . . . . . . . . . . . . . . . . . . . . 8 Individuals With Urostomies . . . . . . . . . .9 Membership Form . . . . . . . . . . . . . . . . . . 10 MEETINGS Meetings are held on the second Tuesday of every month, starting in September, at 7:30 p.m., in the Pasqua Hospital lower level (Rooms 4&5). (No meetings are held during the months of January, July and August) UPCOMING MEETINGS September 13 - Welcome Back / Report on UOAC Annual General Meeting - Coloplast Rep October 11 - Convatec Rep November 8 - Hollister (tentative) December 13 Leading a Balanced Life Style At the end of the day, you are the person who must deal with your ostomy and you are the one in charge of your body and your attitude. Leading a balanced lifestyle is vitally important for success in surviving and thriving with an ostomy. Exercise Having an ostomy may drain you of energy and the temptation to give up exercise is very strong. Instead of doing high energy, high demanding activity, try some gentle things like walking, swimming, playing with your dog, yoga or tai chi. The point is – keep moving, stay active. Exercise is actually good for you and can be very manageable after surgery. Consult your physician or ET nurse before starting any exercise program. Make sure you approach any exercise sensibly; stay aware and mindful of your body and be kind to yourself. Fun, Humor and Gratitude The journey you are engaged in is not only one of a physical nature, but also one of a psychological challenge. Like all major expeditions in this life, winners are determined by their attitude, not just their aptitude. A sense of humour and a zest for fun will fuel that positive attitude, so find every reason to laugh and enjoy the good things in your life. It may not seem like you have much to be grateful for right now, but spend some conscious time deliberating on what they are and you will be pleasantly surprised at how many blessings you have! Emotional Overload Sometimes the psychological impact of an ostomy gets to be too much. On top of the physical symptoms, feelings of uncertainty, embarrassment, aversion to being dependent on others, guilt and self doubt can weigh you down. Be aware of how you are feeling and how these emotions are affecting your quality of life. If depression seems to have taken up residence in your emotional house, seek the help of your physician as there are treatments available to help you through it. Seek the support of family and friends – let them be there for you just as you would be for them. And remember – YOU are not your disease. An ostomy is a part of your life, but YOU are not your diagnosis. You are so much more than that. Adapted from an article in the CCFC website, by Oshawa & Distric Chapter, Mar/Apr 2011

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Page 1: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Regina Ostomy News SEPT/OCT 2011

In This Issue Leading a Balanced Lifestyle . . . . . . . . . . .1 Donations / New Members . . . . . . . . . . . . .2 Editorial . . . . . . . . . . . . . . . . . . . . . . . . . . .3 Continuing Your Social Life . . . . . . . . . .4 Dry Skin? An ET Nurse’s Advice. . .. . . . .5 How Can Ostomy Surgery Affect You . . . 6 Friends of Ostomates Worldwide . . . . . . . 7 Wardrobe Tips for Guys . . . . . . . . . . . . . . 7 Happy Days! . . . . . . . . . . . . . . . . . . . . . . 8 Individuals With Urostomies . . . . . . . . . .9 Membership Form . . . . . . . . . . . . . . . . . . 10

MEETINGS Meetings are held on the second Tuesday of every month, starting in September, at 7:30 p.m., in the Pasqua Hospital lower level (Rooms 4&5). (No meetings are held during the months of January, July and August)

UPCOMING MEETINGS

September 13 - Welcome Back / Report on UOAC Annual General Meeting -

Coloplast Rep

October 11 - Convatec Rep November 8 - Hollister (tentative)

December 13

Leading a Balanced Life Style At the end of the day, you are the person who must deal with your ostomy and you are the one in charge of your body and your attitude. Leading a balanced lifestyle is vitally important for success in surviving and thriving with an ostomy.

Exercise Having an ostomy may drain you of energy and the temptation to give up exercise is very strong. Instead of doing high energy, high demanding activity, try some gentle things like walking, swimming, playing with your dog, yoga or tai chi. The point is – keep moving, stay active. Exercise is actually good for you and can be very manageable after surgery. Consult your physician or ET nurse before starting any exercise program. Make sure you approach any exercise sensibly; stay aware and mindful of your body and be kind to yourself.

Fun, Humor and Gratitude The journey you are engaged in is not only one of a physical nature, but also one of a psychological challenge. Like all major expeditions in this life, winners are determined by their attitude, not just their aptitude. A sense of humour and a zest for fun will fuel that positive attitude, so find every reason to laugh and enjoy the good things in your life. It may not seem like you have much to be grateful for right now, but spend some conscious time deliberating on what they are and you will be pleasantly surprised at how many blessings you have!

Emotional Overload Sometimes the psychological impact of an ostomy gets to be too much. On top of the physical symptoms, feelings of uncertainty, embarrassment, aversion to being dependent on others, guilt and self doubt can weigh you down. Be aware of how you are feeling and how these emotions are affecting your quality of life. If depression seems to have taken up residence in your emotional house, seek the help of your physician as there are treatments available to help you through it. Seek the support of family and friends – let them be there for you just as you would be for them.

And remember – YOU are not your disease. An ostomy is a part of your life, but YOU are not your diagnosis. You are so much more than that.

Adapted from an article in the CCFC website, by Oshawa & Distric Chapter, Mar/Apr 2011

Page 2: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Page 2 Regina Ostomy News

REGINA OSTOMY CHAPTER EXECUTIVE

MISSION STATEMENT The Regina Ostomy Chapter is a non-profit mutual support society for the benefit of people who have had, or are about to have intestinal or urinary diversion surgery.

Our purpose is: • To help people with intestinal and/or urinary diversions

to lead full and productive lives and to provide information and emotional support to their families and caregivers.

• To educate the public about intestinal and urinary diversion surgery.

• To provide trained visitors to those who have undergone intestinal and/or urinary diversions, including preoperative and postoperative visits or phone calls, at the request of the physician or enterostomal therapist.

Sept/Oct 2011

President Agnes Parisloff 761-0221 Past President Lorraine Thompson 757-3954

Secretary Joan Mancinelli 543-0462

Treasurer Gale Miller 789-5139

Visiting Joan Mancinelli 543-0462

Publicity Brenda Frohlick 949-2352

Flowers & Cards Roy & Wilma Trumbley 545-7652

Phoning Gord Kosloski 789-1592

Gail Zipchian 522-8669

Host Christine Jacob 525-8004

Lunch Brenda Frohlick 949-2352

Mailing Lorraine Thompson 757-3954

Mailing labels Ken Matchett 775-1262

Newsletter Muffy Truscott 525-8804

Louise Laverdiere 761-9003

OSTOMY & WOUND CARE CENTRE Pasqua Hospital 766-2271

Lana Klein, RN, BScN, ETN, Program Coordinator

Arleene Arnold, RN, CETN

Jane Wilmot, RN, BScN, ETN

Barb Troy-Hebert, RN, BScN, ETN

Sheryl Walker, RN, BScN, ETN

Patty Gianoli, Office Manager

Angela Banford, Program Assistant

NEW MEMBERS

Raymond Hicton, White City

"There are no strangers here, only friends who haven't met"

BEQUESTS AND DONATIONS We are a non-profit association and welcome bequests, donations, and gifts.

Acknowledgement Cards are sent to next-of-kin when memorial donations are received. Tax receipts will be forwarded. Donations should be made payable and addressed to:

Regina Ostomy Chapter UOA of Canada Inc. 942 Brachman Bay, Regina, SK S4N 7P2

It is with deep regret that we report the death of one of our members. We extend our most sincere sympathies to family and friends.

Roy Trumbley

IN MEMORIAM

We are deeply saddened by the recent death of Roy Trumbley, one of our long term members. For many years, Roy and his wife, Wilma, generously donated their time to send out cards and flowers to the sick and ailing. Roy was also very helpful in arranging for us to use his church for our yearly seminars. Even when his health was failing, he continued to think of us by making a donation towards the cost of this event. His gentle, caring presence and good sense of humor will be greatly missed at meetings and functions. Our heartfelt sympathies go out to Wilma and family.

Page 3: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Page 3 Regina Ostomy News

Editor’s Message Editor’s Message

I’ve mentioned before that when I began as editor of this newsletter, it was composed on a typewriter so one tried to be careful not to make many mistakes. Next came the self correcting typewriter, what a godsend, and finally the computer with its many features for instant corrections. All of this makes me feel old (!) although I was only 38 when I took on the job of editor, more than 20 years ago. The job of editor has now been split in two and we have an able co-editor in Louise Laverdiere. She and I share duties very well, with Louise taking charge of newsletter set up and electronic mailout. She developed the new electronic format and continues to edit and change the look of the newsletter as it evolves. It’s been a

year since we started emailing the newsletter which is gaining in popularity as members receive it faster than the mailed printed version. For my part, I continue to voice my opinion and choose articles as well as alert you to new developments in the ostomy world. We’re a good fit, Louise and me, so here’s to another year!

During June, the Colorectal Cancer Association of Canada brought the Giant Colon Tour to Regina, to the Northgate Mall. The Giant Colon is a 40 foot long, eight-feet tall replica of a human colon through which you walk - complete with replicas of cancerous polyps - while viewing videos about how colorectal cancer develops, along with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan, colorectal cancer is the second most frequently diagnosed cancer yet it is also a cancer that’s preventable and if diagnosed early, easily treatable. A province-wide screening program will soon begin, with self-testing kits mailed to most residents between the ages of 50 and 74 years of age. This is a good start towards prevention of this disease.

We are in need of more female colostomy visitors, especially younger women, to make visits to the hospital. The visiting program is so important for those who have just had surgery. Surely most of you remember the person who came to see you after your surgery, almost like an angel, wearing (gasp!) normal clothes and looking (gasp again!) normal, with answers to all the things you were afraid to ask anyone else. When we have a shortage of chapter visitors, it puts a stress on this most valuable program. It’s very rewarding to be a chapter visitor so we hope some of you will agree to join the visiting program. Trust me, you’ll get such a sense of satisfaction from doing this.

Do you have a beef, a bouquet, or simply a suggestion for topics you wish discussed or covered in the newsletter or at meetings? If so, please write to me, the Editor, and I will pass along your comments or concerns or try to find articles of interest to cover the topic you wish discussed. Please write or email to:

Muffy Truscott 296 Angus Cres Regina, SK S4T 6N4 Email: [email protected] Or phone: 525-8804

This is your newsletter and we hope it reflects your interests and concerns.

Letters to the Editor

Sept/Oct 2011

DONATIONS

Thanks to the following individual who generously donated funds to the chapter:

Raymond Hicton

Page 4: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Page 4 Regina Ostomy News Sept/Oct 2011

4130 Albert St

Landmark location

• Carries extensive line of Convatec Ostomy Supplies

• Free Delivery and Mail Orders

• Convenient Hours

Open 24 Hours

777-8040

Inner Peace If you can start the day without caffeine,

If you can always be cheerful, ignoring aches and pains,

If you can resist complaining and boring people with your troubles,

If you can eat the same food every day and be grateful for it,

If you can understand when your loved ones are too busy to give you any time,

If you can take criticism and blame without re-sentment,

If you can conquer tension without medical help,

If you can relax without liquor,

If you can sleep without the aid of drugs, Then You Are Probably The Family Dog!

Continuing Your Social Life With An Ostomy

Your social life can be as active as it was before surgery. You can enjoy all activities: meeting people, attending concerts, sporting events, civic and social club meetings, parties,

religious occasions or whatever you enjoyed before.

The first time you go out of the house after surgery, you may feel as if everyone is staring at your appliance, even though it is not visible under your clothing. You can feel your appliance on your body, but no one can see it. Keep those questions in mind – Did you know what an ostomy was or where a stoma was located, or what it looked like before you had surgery?

You may also worry about your pouch filling with gas and sticking out under your clothing. A quick trip to the restroom can take care of this problem. If you are worried about your pouch filling up immediately after eating at a social event, remember that people without ostomies often need to go to the restroom after eating and nobody will think it is unusual if you do the same! You will probably find that you need to empty your pouch less often than you need to urinate.

Friendship and love – You may be wondering about your relationship with others. Now that you have an ostomy, you may feel that it will change your present relationships and decrease new opportunities for friendship and love. True friendships and deep relationships on any level are built on trust and mutual understanding. These qualities depend on you and other persons. You have the same qualities you had before surgery and your ability to develop friendships is unchanged. If you care about yourself, others will feel your strength and will not be deterred. If your ostomy does cause a break in friendship, a sexual alliance or even marriage, this relationship was not built upon trust and mutual respect, and probably would have crumbled sometime in the future anyway.

From Tacoma, WA & GB News Review, via Okanagan Ostomy News, Jan 2010

You never really learn to swear

until you learn to drive.

Antacids & Orange Juice Don't Mix Avoid drinking orange juice for at least three hours after taking antacids that contain aluminum, such as Maalox or Mylanta. Orange juice increases the body's absorption of the aluminum in these antacids as much as tenfold and aluminum accumulation can cause calcium loss, which contributes to osteoporosis.

Page 5: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Page 5 Regina Ostomy News

Jolly’s Surgical Supplies 120 Victoria Ave, Regina.

TEL: (306) 522-3833 or (306) 757-2733

Largest selection of Ostomy supplies in the city.

We carry a complete line of: Convatec Hollister Coloplast Nu Hope

As well as ColoMajic Liners and all other Ostomy needs. We offer free citywide delivery, prompt mail orders and

Knowledgeable, personalized service!

Sept/Oct 2011

ETs believe in using the least amount of products, the better! In the case of dry skin or any other skin problem, the first step is to find out why, or what can be causing the problem. Sometimes we need to play detective and start right from the first step.

♦ What is the person washing their skin with? Some soaps can be drying or irritating to the skin. ♦ Are they using baby wipes? Or alcohol swabs? Alcohol can be very drying to the skin. ♦ Are they using a remover wipe? And if so, are they thoroughly rinsing it off their skin after using it? Are they

using a skin barrier wipe such as Cavilon No Sting wipe? Skin barrier wipes tend to coat the skin and create layers so the flange does not stick to the skin. Sometimes there are so many layers that it looks like the skin is dry and peeling.

♦ Are they using powder? Powder is only used if the skin is weepy. It is used to absorb the moisture from the weepy skin. Powder should not be used routinely.

Things not recommended for routine skin care are soaps with lotions such as Dove and Oil of Olay. They leave a residue on the skin and tapes do not stick to it.

Some people go to see their doctor/dermatologist because they have skin irritation under the flange/appliance. The doctor prescribes a cream or ointment that needs to be put on 4 times a day. Then the person comes to see us to find out how they can do that.

I would recommend that if a person has a skin irritation to see their ET nurse first. Then the ET can contact their doctor or dermatologist and work with them to find a treatment which takes into consideration that the person must wear an appliance and therefore cannot use creams or ointments. Most times an ET nurse can solve the skin problem.

Dry Skin? An ET Nurse’s Advice

Andy Manson, RN, ET, Ostomy Care & Supply Centre, New Westminster, via Oshawa & District, May/Jun 2011

Page 6: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Page 6 Regina Ostomy News Sept/Oct 2011

UOA OF CANADA INC.

Suite 501

344 Bloor Street West

Toronto, ON M5S 3A7

e-mail: [email protected] Toll-free telephone number:

1-888-969-9698

Web site URL: http://www.ostomycanada.ca

UOA of Canada Inc. Mission Statement

The United Ostomy Association of Canada Inc. is a volunteer-based organization dedicated to assisting all persons facing life with gastrointestinal or urinary diversions by providing emotional support, instructional and informational services through its membership, to the family unit, associated care givers and the general public

Each person is unique and deals with the circumstances surrounding ostomy surgery in a different way. You need to analyze your situation to determine how to best live with your illness. Because having ostomy surgery affects different people in a number of ways, you may experience some or many of the following concerns: interference with daily activities; interference with physical functioning; changes in lifestyle and/or personality; emotional reactions such as depression, anger, anxiety, helplessness, or guilt; changes in relationships with family members; alteration in your social life; interference with your sleep; feeling that you have less control. What can you do? Your ultimate goal is to take charge and live a happier life, despite having an ostomy. Here are a few strategies that can help you better handle your ostomy and improve your overall health, happiness and productivity. Be a person, not a patient. Make this the foundation of your thinking. You are a person who has had ostomy surgery, not an ill person. The only time you are a patient is when you are in the doctor’s office of the hospital. The way you see yourself living with an ostomy is an essential part of coping successfully. Understanding the unique way that your ostomy affects you and your life. Identify the ways that your ostomy causes problems for you. Are you experiencing any problems with the pouch system, leaking, odor, skin breakdown? How does having an ostomy affect others around you? Does it limit your activities? There are many other factors that may affect you. You’ll want to identify them and determine how you’re going to deal with them. Set overall goals for improving your life. You’ll find that your efforts can include many of the following: improving your ability to cope with a situation; setting reasonable, realistic and achievable goals; aiming to control your life; improving day-to-day functioning; improving your perspective on any problems you may be facing; being more assertive and taking an active part in your healthcare (including dealing with medical personnel); accepting and improving your ability to deal with the emotional consequences of your ostomy; increasing your ability to handle negative emotions; focusing more on your strengths and diminishing the

impact of weaknesses or limitations of having an ostomy; doing things that you like and spending less time on things you dislike; enhancing positive relationships; improving participation in your social network; improving your life satisfaction and quality of life. Pinpoint what you need to help improve your life. Think about all the difficulties you have living with an ostomy. Write these down on the left side of a folded piece of paper. On the right side, next to each item, write down things you can do to improve each one. Note as many alternatives that you can. Ask others for additional ideas, especially if you are not sure what to do about certain things. Keep adding to your list and plan how you will use these ideas to improve your life. Anticipate the negative. There are negative things that can happen during life with an ostomy, but some of these things could happen if you didn’t have an ostomy! The more you anticipate and prepare, the better you will cope. Isn’t this true of us all, ostomy or not!

How Can Ostomy Surgery Affect You?

By Robert H. Phillips, Ph.D., via Springfield, MA OAGS Newsnotes & S. Brevard Fl, via Okanagan Ostomy News, April 2010

Page 7: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Page 7 Regina Ostomy News Sept/Oct 2011

Friends of Ostomates Worldwide Canada is an organization that has been in existence for over 25 years. It was founded by Maria Siegl who saw the need to help people throughout the world who were deprived of good quality ostomy supplies. While we here in Canada have the best of surgeries and access to choices of ostomy supplies, the truth is that in many countries that is not the case.

What FOW(C) does is collect unused ostomy supplies from across Canada. We sort, pack and send these supplies to the neediest places in the world. In October of 2010 we shipped over 2100 pounds of ostomy supplies to India, Bangalore specifically. There are some 3000 people just in that one city who do not or cannot afford the ostomy supplies needed. As well, the volunteer there cannot afford to pay for the shipping costs to get the equipment to them. That is where FOW(C) comes in, we not only pack and sort but pay for the shipping (in this case it was a little over $1700 US to get the donated supplies to them.

We need your help and the help of your chapter members to help defray the cost of shipping.

I thank you for taking the time to read this and hope you will pass along to all your members my best wishes and look forward to a positive response from you and your members and chapter.

Friends of Ostomates Worldwide Canada (F.O.W.)Shipping Costs

Lorne Aronson, President (UOA of Canada)

(Vancouver Editor’s Note: Those wishing to make a financial donation to FOW(C) may do so with the form below. Official tax receipts will be issued by FOW for your contribution).

Wardrobe Tip for the Guys I would like to bring to your notice, and those of your readers, a small observation I have made over the past few months. I have a sigmoid colostomy – appliance on lower left abdominal wall. I began to run into some problems with my appliance during the summer – coming loose and/or leaking within a few days of putting on a new one. I had reached the point where I was having to change as often as 2 or 3 times a week. I wasn’t sure why, so I gave it some thought. I realised that I had put on about 4 -6 lbs , and that my waist band was marginally tighter. So I tried the experiment of not wearing a belt, but wearing braces (suspenders). Lo and behold, this worked like a charm! I have not, in the past 4 months had ANY leakage, or loosening of the seal, and I now only have to change appliances about once every 8-10 days.

This is not a new discovery – I have seen advice to ostomates frequently to wear braces, but have not seen many of these advice givers expand on the reason for this. So, gentlemen, if you have expanded your girth even slightly – it doesn’t take much – throw away your belt and assume the braces. They are more comfortable too.

by P.J. Thompson, Metro Halifax Chapter, via Vancouver Ostomy Highlife, Mar/Apr 2011

Page 8: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Page 8 Regina Ostomy News

MEDICAL 1

Physician and Healthcare Supplies

550 10th Ave., Regina, SK Phone 352-8874

We stock: Coloplast Convatec Hollister

Colomajic Liners Related Products

Free delivery (within city limits)

We submit S.A.I.L. claims on your behalf

We accept Visa, Mastercard and Debit Card

Sept/Oct 2011

They looked at me and smirked slightly, not believing that I wasn’t nervous. I smiled and nodded, attempted a joke, but I could see the doubt in their eyes. Understandable, I suppose, as I was minutes away from being wheeled into an OR and having a five foot organ clipped out of me forever. But I promise that I wasn’t nervous. Okay, that’s a bit of a lie in some ways. I

was nervous to wake up after the Ostomy surgery and be consumed by nausea from the anaesthesia. I was nervous that my family would have a meltdown during the 7 hour wait. But I wasn’t nervous about losing the organ. I know that sounds insane but it’s true. When you’ve had every drug and been labelled a, primary non-responder (which I swear is GI term for loser), losing the organ that has tried to destroy your life for 7 years doesn’t seem like a huge loss to mourn. I can’t remember falling asleep exactly whether or not I had been put under in the OR or in the holding area, I just remember waking up and rolling around in agony, moaning, as the nurses put the pain controller button in my hand and coaxed me to press it. A hefty 10 hours after my family had sobbingly left me, they rushed to my side, patting my hand and smiling. And so began my journey into the recovery, the post-surgery battle to get back on my feet. After a week of two steps forward and one back, I was finally released from the hospital, worn but smiling. They wheeled me out with my army of massive balloons and family, and for the first time in a long time I felt the August sun against my face. My Granddad stood by my side and whispered that these were happy days. I smiled at him, not mentioning the scars across my abdomen, the pain, or even the loss of my organ because he was right, I was going home and I was on my way to health, and that means happy days. My Mom had emailed some of my doctors letting them know about the surgery. Most of the responses contained best wishes, but one also contained something that took me by surprise and

slight horror - sympathy. A doctor was passing along her sympathies to me. It shocked me to say the least since there was nothing to be sorry for, only a future to be excited for. I found it almost offensive; anyone who knows what my IBD history has been would offer congratulations in a heartbeat and never sympathies. One of my roomies in the hospital, a witty older woman who served as my pseudo Grand mom for several days, offered the following advice off a magnet on her fridge: With enough caffeine, anything is possible. While I’m sure that is true, I think that also with enough determination (and perhaps medicinal drugs), anything is possible. There isn’t a scorecard in life, no referee to blow the whistle when you fall down. But that’s okay, because what matters isn’t as much what happens to you as it is how you understand and interpret what happens to you. I lost almost my height in an organ, I will never go to the bathroom normally again that could make anyone terribly upset. But I’m giving myself a future by letting go of my colon, I’m freeing myself of the pain and that makes this experience a positive one. So, you see, my Granddad is perfectly right - these are happy days. Life is unfair, but that doesn't mean that it can't be wonderful. Crohns has changed my life - the physical changes are obvious, but it has empowered me to achieve my dreams, given me the strength to believe in myself, and I've been honoured to meet incredible people who deserve a cure. Step by step, penny by penny, we are part of the cure. And then one day, we will be saying “happy days”.

“Happy Days ”

By Jennie David

Halifax Ostomy News June/11

Jennie David, 19 from Halifax, is a second year student at Boston University who’s had Crohns for eight years. She is chair of the youth committee of Crohns and Colitis Foundation of Canada.

Page 9: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Page 9 Regina Ostomy News Sept/Oct 2011

People with urinary diversions no longer have a storage area (a bladder) for urine. Therefore, urine should flow from the stoma as fast as the kidneys can make it. In fact, if your urinary stoma has no drainage after even an hour, it is of serious concern. The distance from the stoma to the kidney is markedly reduced after urinary diversion surgery. Any external bacteria have a short route to the kidney. Since kidney infection can occur rapidly and be devastating, prevention is essential.

Wearing clean pouches and frequent emptying are vital. Equally important is adequate fluid intake, particularly fluids that acidify the urine and decrease problems of odor. In warm weather, with increased activity, or with a fever, fluids should be increased to make up for body losses due to perspiration and increased metabolism.

It is important to be aware of the symptoms of a kidney infection:

• Elevated temperature

• Chills

• Low back pain

• Cloudy, bloody urine

• Decreased urine output

All ileal conduits normally produce mucus in the urine, which give it a cloudy appearance. Blood in the urine is a danger signal. Thirst is a good index of fluid needs.

Important: If urine is collected for urinalysis, either routine, microscopic (R&M) or for culture and sensitivity(C&S), or if you are asked to give a sterile urine specimen, be sure your doctor and nurse know a sterile specimen must be taken directly from your stoma and not from the pouch. Bacteria build up in the pouch constantly. You will always get a false positive test result.

If they are not sure how to do this, do the following:

• Remove your pouch

• Clean your stoma

• Bend over

• Catch the urine in a sterile cup

Individuals with Urostomies: Fluid Management and Infection

by Juliana Eldridge, WOC/ET Nurse; edited by B. Brewer; UOAA Update, January 2011, via North Cetnral OK Ostomy Outlook, April 2011

I was driving with my three young children one warm summer evening when a woman in the convertible ahead of us stood up and waved. She was stark naked! As I was reeling from the shock, I heard my 5-year-old shout from the back seat, 'Mom, that lady isn't wearing a seat belt!'

Page 10: Colorectal Cancer Association of Canada - Regina …archive.colorectalcancercanada.com/IMG/pdf/Ostomy_news...with healthy lifestyle tips to keep you and your colon healthy. In Saskatchewan,

Regina Ostomy News

REGINA OSTOMY CHAPTER ADDRESS 942 Brachman Bay

Regina, SK S4N 7P2

Phone 789-5139 or

e-mail: [email protected]

PRODUCTS MENTIONED IN THIS NEWSLETTER ARE NOT NECESSARILY ENDORSED BY THE

REGINA OSTOMY CHAPTER. SEE YOUR DOCTOR FIRST BEFORE TAKING ANY OF THEM!

Charitable Registration No. 119114213RR0001

MEMBERSHIP FORM

Membership in the Regina Ostomy Chapter is open to all persons interested in ostomy care and rehabilitation and includes a subscription to Regina Ostomy News as well as Ostomy Canada. Annual membership dues are $30 for the year, September 1, 2011 to August 31, 2012. ( ) New member ( ) Renewal ( ) Change of Address ( ) Unable to pay but wish to join NAME: ________________________________________ ADDRESS: ____________________________________ POSTAL CODE: ____________________ CITY/TOWN: _____________________________ PHONE: __________________ PLEASE CHECK ALL THAT APPLY: ( ) Colostomy ( ) Ileostomy ( ) Urostomy ( ) Continent ostomy ( ) Partner/family member ( ) Medical/Professional Please make cheques payable to: Regina Ostomy Chapter and mail with this form to: 942 Brachman Bay, Regina, SK S4N 7P2.

MEMBERSHIP The membership fee is $30 annually, which includes a subscription to our local newsletter which is published 5 times a year plus a subscription to Ostomy Canada, a UOA of Canada Inc. publication.

VISITING SERVICES

We provide lay visiting service, at the request of the physician, patient or enterostomal therapist, either pre-operative, post-operative or both. The visitor is chosen according to the patient’s age, sex, and type of surgery. A visit may be arranged by calling the Visiting Chairperson or by contacting the South Saskatchewan Stoma Rehabilitation Centre at 766-2271.

Check out the Regina Ostomy Chapter

website at www.reginaostomychapter.com

Sept/Oct 2011

June, 2011 2 colostomy 3 Ileostomy 1 Urostomy Total of 6 Visits

July, 2011 2 colostomy 2 Urostomy 2 Ileostomy Total of 6 Visits

August, 2011 3 Colostomy 2 Ileostomy Total 5 Visits

Visiting Statistics

ALL were hospital visits and all were post op visits.