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22 nd Alzheimer Europe Conference Vienna 2012. What is a Dementia Adviser and what do they do? Jenny La Fontaine Professor Dawn Brooker Jennifer Bray Association for Dementia Studies. Association for Dementia Studies. Aims. Background What does the data tell us about the role? - PowerPoint PPT Presentation
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22nd Alzheimer Europe Conference Vienna 2012
What is a Dementia Adviser and what do they do?
Jenny La FontaineProfessor Dawn Brooker
Jennifer Bray Association for Dementia Studies
Association for Dementia Studies
Aims• Background• What does the data tell us about the role?• How do Dementia Advisers perceive their role
and the Knowledge, Skills and Attributes needed to deliver the role
• Opportunities and challenges in delivering the service, and thoughts for the future
Association for Dementia Studies
Acknowledgements• Department of Health England• The Alzheimer’s Society England, NHS Worcestershire and
Worcestershire County Council, England• The Dementia Advisers, Lorrain Cullen, Patricia Spencer and
Rachel Thomson and their Manager Gill Carter• The Dementia Adviser Service Implementation Group,
including Dawn Brooker, Kathy Dale, David Hitchen, Kumbi Mandinyenya, Carole Edwards and Bernie Coope
• All participants in the evaluation in particular the people living with dementia and their families and supporters
Association for Dementia Studies
Background• Bid for funding for “demonstrator site” submitted to
Department of Health England in June 2009• Collaborative project between NHS Worcestershire
(Primary Care Trust), Worcestershire Health and Care NHS Trust, Joint Commissioning Unit, Alzheimer’s Society England and University of Worcester
• Two full-time Dementia Advisers (DA), employed by Alzheimer’s Society England, commenced in December 2009 covering 2 localities
• Working alongside the Early Intervention Dementia Service (EIDS) Worcestershire
Association for Dementia Studies
The Evaluation• Compare and contrast the impact and effect of the
provision of services following diagnosis with and without a DA
• Consider the experience of the DA for people living with dementia and their family/ carers
• Determine the skills, facilitators and barriers to the success of the DA role
• Enable commissioners to make evidence based decisions regarding the impact of such services and their ongoing financial support
Association for Dementia Studies
FINDINGS FROM THE CLIENT RECORDS SYSTEM
Association for Dementia Studies
Who is referred?• 329 referrals in total
(Jan 2010 – March 2011)• 190 for Wyre Forest• 139 for Redditch &
Bromsgrove• Majority of referrals
were for carers or family members• Not the intended clients
Association for Dementia Studies
Person with dementia Carer/Family Member/Friend
0
20
40
60
80
100
120
140Summary of referrals per area
Wyre ForestRedditch & Bromsgrove
Num
ber o
f ref
erra
ls
Referral source• People living with
dementia• EIDS & CMHT main
referral source• Carers and family• Self referrals as well
as EIDS & CMHT• Wide range of
organisations/groups actively referring to DA service
Association for Dementia Studies
EIDS
CMHT
Voluntary Sector
Carer, family member or friend
Self referral
Social Services
GP
Person with dementia
Other NHS
Housing Association
Other
0 10 20 30 40 50 60
Referral sourceCarer/Family Member/Friend
Person with dementia
Number of referrals
Nature of contact with clients• DA requires strong
communication skills• Phone calls (less than
20 minutes)• May be first contact
with client• Often initiated by client
• Meetings (around 1 hour)• More in-depth
knowledge required
Association for Dementia Studies
52%
5%
14%
8%
16%
4%
1%Summary of type of contact
Phone call
Meeting at office
Meeting at client's home
Meeting elsewhere
Letter
Other
The breadth of the Dementia Adviser role
• Provide information on a range of dementia-related topics• Medical• Social• Emotional• Financial• Legal
• Broad knowledge required by the DA
Association for Dementia Studies
Diagnosis
Living well
Money
Health
The future
Emotions
Legal decisions
Relationships
Driving
Other
0 50 100 150 200 250 300
Type of information provided
Number of times provided
Signposting• DA needs wide
knowledge base of services in their area• Created a
Guidebook of services
• Suitable services do not always exist
Association for Dementia Studies
Advice and support (emotional)Advice and support (financial)Advice and support (general)
AdvocacyDay support
Dementia cafésDementia support
Home supportHome support from other providers
Information provisionOutings and day trips
Residential/nursing home careSinging for the brain
Social careSocial events
TrainingTransport
Other services
0 10 20 30 40 50 60 70 80
Guidebook services referred to
Number of times referred to service
FINDINGS FROM THE QUALITATIVE INTERVIEWS
Association for Dementia Studies
Alongside through the Journey
“I have had a few people phone me
up, these are people who I have met before, then
probably about 2-3 months later, they're phoning me now saying ‘could you come out and see us
again’”
“A point of contact for people with
dementia and their
carers, their families”
Association for Dementia Studies
Assessment
Association for Dementia Studies
“You’re picking up on everything when you first meet, meet them anyway. You’re picking up on, you know, are they getting their benefits, their entitlements, have they thought about the future, where are they in their diagnosis. So it was about, you know, how they were feeling and, is there anything they’re struggling with, did they need. So I was trying, you try and pick out what it is you can help with. Are they isolated, are you looking about, you know, is this person going to benefit from some peer support, you know? Are they going to benefit from being more involved, be getting out into the community more? Is it more on a personal level? Coping strategies, is it about the memory?”
The Work of the Dementia Adviser
• Accessing services• Advanced planning• Information re accessing financial support• Information giving, relating to illness and coping• Enabling identification of practical solutions• Reframing
Association for Dementia Studies
University of Worcester Association for Dementia Studies
DA
Self Management
Interpersonal Skills
Resilient, Enabling Assertive and
Confident
Knowledgeable
What Works?• Partnership Working• Face to face contact, and continuity • Clarity of role (and boundaries of role)• Preparation of the area and services• Being outside of statutory provision• Networking Networking Networking Networking
• Resilience
Association for Dementia Studies
Thank you for Listening!
Photographs of people living with dementia taking part in The Enriched Opportunities Programme
