2016 Annual Report - Almost Home Kids...1% 84.2% goes to Programs and Services 15.8% for Fundraising and Management Our Financial Summary Our fiscal year 2016 runs from September 1,

Almost Home Kids 2016 Annual Report Liska + Associates 691043 12.13.15 Released

2016 Annual Report


Front Cover: Caitlyn with Stefanie, AHK RN

Angeria with Karla, AHK Clinical Aide

At Almost Home Kids our Mission is to provide transitional care in a home-like setting to children with complicated health needs, training for their families and respite care.

Almost Home Kids — 2016 Annual Report

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The Almost Home Kids model is present in any place there is a need without regard to geographical boundaries. All key community and policy stakeholders are fully committed to the AHK model and recognize it as the premiere standard of care.

As 2016 draws to a close, all of us at Almost Home Kids celebrate another exciting and inspiring year. During the last year, we challenged ourselves to extend our reach to serve more children with complex medical needs. As we plan to bring our program to new communities, we strive to maintain our exemplary clinical standards at each Almost Home Kids. In a time when the healthcare landscape is changing rapidly, AHK has remained steadfast and constant, providing critical services to a growing population of children with complex medical needs. The care doesn’t end with the children; AHK provides the family with support and functions as a safety net within the community.

Our Mission is the driving force behind all of our decisions. Our decisions, then, provide the directions we take; providing transitional care to children with complex health needs, training their families, and delivering respite care. Our fundamental care requires excellence in nursing and clinical protocols. AHK strives to create a place that replicates a cozy, home-like setting and a fun, relaxed, loving atmosphere.

Our wonderful volunteers, committee members, and board members keep us going. We extend our heartfelt appreciation for all you do. We always need more volunteers and engaged committee and board members. We have a multitude of opportunities for you to experience. We would love your input, expertise and guidance. On behalf of the AHK staff and board members, we would like to thank you for your time and wisdom. Your support and positive ideas are the fuel that keeps us moving forward making AHK a successful, innovative and essential organization.

Sincerely,

Deborah A. Grisko, RN President & Executive Director

Josh Prangley Chairman, Board of Directors

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The Almost Home Kids Model AHK is licensed by the Illinois Department of Health, under the Alternative Healthcare Delivery Act as a Children’s Community Health Care Center (501c3). It is the only community-based facility in a home-like setting in Illinois dedicated exclusively to the care of children with complex medical conditions. The organization is poised to share its expertise with other institutions therefore increasing the capabilities and capacity of the region to care for children with complicated health needs.

How We Do It

Transitional Care — A bridge from hospital to home

AHK provides a 120-day Transitional Care Program for children who are ready to be discharged from a hospital but for whom preparations at home need to be made. In a comforting environment, children receive 24-hour medical and nursing support from skilled pediatric nurses. AHK trains families on how to both care for their child with medical complexities and how to prepare their home.

Respite Care

The Respite Care Program at AHK offers children a comfortable place to stay with access to medical and nursing support while their parents/caregivers tend to personal or urgent family issues. The Respite Transportation Program provides round trip transportation for children from their home to an AHK facility.

Community Support

In addition to training and care, AHK provides community resources and activities that become a support system the family can depend on for years to come.

Adrianna with Morgan, AHK RN

Medically Complex DefinedChildren who have medical complexities and are in a stable condition, but dependent on life-sustaining medications, treatments and equipment and have a need for assistance with daily-living activities.

Eligibility Requirements■ Ages from Birth to 21■ Children who are Medically Complex■ Children who are Technology Assisted

Services■ Medical Home Provider■ 24/7 care by Pediatric Advance

Life Support (PALS) and Ventilator Certified Registered Nurses

■ On-site Pediatric Medical Director■ Speech Therapy■ Occupational Therapy■ Physical Therapy■ Development Therapy■ Nutrition Consultation■ Weekly Care Conferences■ Discharge Coordination Meetings■ Individual Educational Coordination■ Fully Accessible Playground (Naperville)■ Beautifully Landscaped Grounds with

Wheelchair Accessible Paths (Naperville)■ On-site Respite■ Emergency Respite■ Respite Transportation Services■ Case Management ■ Parent Advocacy Assistance■ Care Coordination — Medical Team■ On-site Pediatric Nurse Practitioner■ Counseling Services■ On-site Social Worker■ Medical Education Program■ Sleep Study Program■ On-site Certified Child Life Specialist ■ Dental Consults

Community of SupportFrom navigating the healthcare system to providing emotional support, Almost Home Kids introduces families to a continuum of care that is community based.


The Continuum of Care for Families

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Quantifying our Outcomes and Developing Programs Based on Need

Almost Home Kids continues to track statistics and data on many aspects at Almost Home Kids to help us improve our own performance and become an even better advocate for children with medical complexities. In 2010, under the guidance of Program Committee Chair at the time, Kathleen Ruroede, PHd, MEd,RN, AHK began tracking demographic and clinical data. This allowed AHK to understand the population changes of the children we care for in a more measured and thoughtful way. As a result we understand the wide range and trends in diagnosis and have developed new programs based on the needs of the children we serve, as well as continuously train and educate our clinical team and help hospitals identify children that would benefit from our unique and innovative model of care. We also use this data to help legislators and regulators understand this population of children as well as educating other medical centers across the country that are looking to bring an Almost Home Kids to their Community.

Mackenzie during her transitional care stay Angeria’s parents received translation services through Lurie Children’s

Elee with OT Vicki

Christian with Dr. Smith and a group of Medical Education Residents during their rotation at Almost Home Kids

Families transitioning their child with medical complexities home after what might have been a lengthy stay in the hospital can be a daunting prospect for any parent. Working closely with both the case management team at Ann & Robert H. Lurie Children’s Hospital of Chicago and the case management team from Almost Home Kids, transitioning their child to AHK is introduced early on to families as a benefit that provides a practical and needed bridge from hospital to home. Having the community case management team in the acute care setting helps families understand the importance of going to AHK to insure an effective transition home. Prior to coming to Almost Home Kids, parents are encouraged to tour their local AHK to see firsthand the home-like environment and start to visualize what care will look like outside of the intensive care unit. Being part of the continuum of care at Lurie Children’s, as well as collaborating with multiple other children’s medical centers in Illinois as well as nationally and internationally, provides that necessary safety net for families and a resource they can depend on whenever needed.

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61% Individuals

17% Foundations

12% Corporations

9% In-Kind

1% Civic

Almost Home Kids Private Donations: $1,037,643

For each dollar contributed to Almost Home Kids:

61%

12%

17%

9%

1%

84.2% goes to Programs and Services

15.8% for Fundraising and Management

Our Financial SummaryOur fiscal year 2016 runs from September 1, 2015 to August 31, 2016. During this time, AHK’s Program Expenses totaled $6.1 million, which includes investments toward expansion initiatives. Our expenses are up 4.7 % over last year and the increase is attributed to clinical programming costs. This year, we enhanced the capabilities for our clinical team and increased efficiency in care coordination by adding traveling nurses that alternate to Chicago or Naperville based on daily census needs.

After receiving $3.9 million fee for service revenue from the State of Illinois, third party insurance companies and cash payments, AHK turned to philanthropy to close the gap for our medical services.

With the generosity of 1,093 donors, AHK’s fundraising contributions for the year tallied $1,037,643.

The organization remains focused on fundraising efficiency and is committed to providing critical healthcare services for children, regardless of the family’s ability to pay. The inherent shortfall resulting from actual cost of clinical care versus reimbursement rates is omnipresent. AHK raises unrestricted dollars to fund the operating shortfalls and provide Respite Care services to ensure that families and caregivers receive a much needed break from 24/7 caregiving.


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1 Hannibal getting ready to go home 2 Christian Burtin during his stay 3 Outside fun with the parachute 4 Mackenzie with volunteer Kate

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Our Thanks

Your Support Makes an Impact■ Almost Home Kids provided 6,642 total days of care in Fiscal Year 2016, a 9% increase over the previous

year. Whether families need transitional care or respite from the 24/7 care of a child with special healthcare needs, Almost Home Kids is always there.

■ To date, the Keith Veselik, MD, Medical Education Program which launched in 2015 has welcomed more than 150 medical students, residents and fellows from 6 different universities and 5 medical systems!

■ In fiscal year 2016, 58% of monetary donations to Almost Home Kids were made online!

In an effort to better steward the donations entrusted to us, as well as the environment, we have omitted the multiple page listing of our donors this year in the Annual Report.


Board of Directors Josh Prangley JP Morgan, Executive Director, Investment Banking Chairman/Board President

Theresa Danko Stantec, Vice President, Business Development Vice Chair

Julia Chappell Community Volunteer

Deborah A. Grisko, RN Almost Home Kids, President and Executive Director

Michael Hoffman, MD Elmhurst Clinic, Pediatrician

Marty Koehler Assurance Vice President, Employee Benefits

Richard A. Mark Retired Deloitte

Matthew Mullarkey Centerpoint Properties Sr. VP, Special Projects

Bill Neustadt Neuco, Inc., Chairman (Retired) Immediate Past Chairman/Board President

Paula Noble Lurie Children’s Hospital Former Chief Financial Officer

Lakesha Rose RosePhillips, Principal

Christopher Schenkenberg Grant Thornton, Partner

Michelle Stephenson, DNP, RN, NEA-BC Lurie Children’s Hospital Executive Vice President and Chief Operating Officer

Jessica Strausbaugh Lurie Children’s Controller

Marita Sullivan JMG Financial Group, Chairperson

President’s CouncilDan Ault Cabrera Capital Partners Principal

Paul Bogdanski Grant Thornton, Senior Manager

Jen Clune Clune Construction, Sr. Vice President

Josette Goldberg Goldberg Executive Coaching, President

Bregan Herrold Director, Global Financial Planning Beam Suntory

Jen Horsley MYNFO Senior Vice President

Kimberly Hyla Standard Parking Marketing and Sales Manager

Carolyn Johnson Continental Automotive, Senior Staff Engineer

Ann B. Karch, MD Pediatrician

Bethany Keown Community Volunteer

Katie Ossman Water Street Healthcare Partners Vice President

Tom Roth Retired

Susan Schwartz Corboy & Demetrio, Partner

Matt Szeghy Sales Manager Prescient Solutions

Sarah Tromans The Drake Hotel Director of Finance

Kathy Wennerstrum Community Volunteer

Medical Advisory Committee (MAC)Michael Hoffman, MD Elmhurst Clinic, Pediatrician Chair, Medical Advisory Committee

Cynthia Booth, MSN, RN, APN Home Care Program Liaison UIC Division of Specialized Care for Children

Brian Dacy President, LifeTech

Larry Desch, MD Advocate Hope Children’s Hospital Division Chair, Pediatric Dev.

Joel Frader, MD Lurie Children’s Attending Physician, Critical Care

Denise Goodman, MD Lurie Children’s Attending Physician, Critical Care

Natalia Henner, MD Lurie Children’s Dept. of Pediatrics/Neonatology

Ann B. Karch, MD Pediatrician

Dr. H. Kim, MD Edward Hospital Director of Pediatric Emergency Room

Roopal Marlow Lurie Children’s Pharmacy

Peter J. Smith, MD Comer Children’s Hospital, Associate Professor of Pediatrics

Edward Traisman, MD NorthShore University Feinberg School of Medicine Clinical Professor of Pediatrics

Keith Veselik, MD Loyola University Medical Center, Professor of Pediatrics

Almost Home Kids StaffApril Alexander, MBA, BSN, RN Director of Nursing

Layenie Anderson, RN Director of Case Management

Chris Bender, MD Medical Director – AHK Naperville

Michael Hoffman, MD Associate Medical Director

Ann B. Karch, MD Associate Medical Director

Deborah A. Grisko, RN President and Executive Director

Jessica Panice, MSN, RN, PCNS-BC Clinical Educator

Maria Ragusa, APN APN – Almost Home Kids Naperville

Abigail Riley, APN APN – Almost Home Kids Naperville

Peter J. Smith, MD Medical Director – AHK Chicago

Almost Home Kids would like to acknowledge the dedicated individuals who serve on our board in Naperville and in Chicago. Their work and involvement makes an immeasurable difference in the lives of our children.

Naperville Location 7 South 721 Route 53 Naperville, Illinois 60540630.271.9155

Chicago Location 211 E. Grand Avenue, 6th FloorChicago, Illinois 60611312.229.0170

AlmostHomeKids.org

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“Focusing on each day as it comes and truly living the happiness that each day can provide; even when it becomes far from the parameters that we had once defined as happy or perfect fills us with joy. Almost Home Kids helped us to fully realize this WAS a possibility. They empower parents to take their children home!” Jon Freeman (Peter’s dad)

Documents

2016 Annual Report - Almost Home Kids...1% 84.2% goes to Programs and Services 15.8% for Fundraising and Management Our Financial Summary Our fiscal year 2016 runs from September 1,