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www.england.nhs.uk
Learning Disabilities:
Share and Learn Webinar
Siobhan Gorry
Project Officer, NHS England
Sarah Jackson
Project Officer, NHS England
30 June 2016
Transforming care: Children and
young people
Welcome Debbie Barnhurst
Sustainable Improvement Team NHS England
www.england.nhs.uk
Date Topic Guest speaker Venue
28 July 2016
Personal budgets – expectations and
support for Transforming Care
partnerships
and
Transforming care through Shared Lives:
how to set up or develop a Shared Lives
scheme for people with learning
disabilities and complex needs
Martin Cattermole, Personal Health Budgets
Advisor and Diane Domenico,
Personalisation Lead, Learning Disability
programme - NHS England
Alex Fox, CEO and Anna McEwen, Executive
Director of Support and Development -
Shared Lives Plus
Webinar
25 Aug 2016
Co-production and a long term
relationship
and
Regulation of the new care model
Samantha Clark, Chief Executive, Inclusion
North
Theresa Joyce and Sue Mitchell - Care
Quality Commission
Webinar
29 Sept 2016
To be confirmed To be confirmed Webinar
27 Oct 2016
To be confirmed To be confirmed Webinar
24 Nov 2016
To be confirmed To be confirmed Webinar
26 Jan 2017 To be confirmed To be confirmed Webinar
23 Feb 2017 To be confirmed To be confirmed Webinar
30 Mar 2017 To be confirmed To be confirmed Webinar
Learning Disabilities: Share & Learn webinar programme
www.england.nhs.uk
Transforming
care; Children
and Young
People
June 2016
www.england.nhs.uk
“It is our belief that people who present behavioural
challenges can and should be supported in living close
to home, integrated within the community, engaged in
activities that promote optimum quality of life and with
support that ensures protection of their human rights.
They should not be subject to inappropriate, punitive or
harmful restrictions, ineffective treatments or unjustified
and excessive use of medication.”
Report from the Faculties of Intellectual Disability
of the Royal College of Psychiatrists and the British
Psychological Society on behalf of the Learning
Disabilities Professional Senate
www.england.nhs.uk
• Not to be confused with transforming care
• Funding allocated to the CAMHS Learning Disability
Project Autumn 2015
• Clear targets were set for March 2016
• Funding now confirmed until March 2017
• Team being reconfigured based on learning from the
first 6 months
Future In Mind
CAMHS Transformation Programme
www.england.nhs.uk
• To prevent unnecessary admission to hospital and avoid lengthy
stays, ensuring treatment has clearly defined outcomes, planning
for discharge from admission(CTR policy)
• To identify specific pathways that will enable children and young
people to remain with or near to family and get the support they
need aligned to the service model
• To encourage innovative ideas to be tested/evaluated of
supporting CYP and families through a grants process
• To ensure that children and young people with LD and/or autism
leave school with a good education, health and care plan or
other transition plan that supports their transition to adulthood
leading to better outcomes for them and their families.
Aims of the project
www.england.nhs.uk
Regional Strategic Case
Managers
• Sarah Jackson – North
• Siobhan Gorry – North
• Tonita Whittier –
Midlands & East
• Maureen Banda –
London
• Cindy Gordillo– South
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• Eric Barker – project lead
• Sue North – social care and
education advisor
• David Gill – learning disability advisor
• Phil Brayshaw – service model lead
(working with Kevin Elliott)
• Tracy Holmes – project support
The Team
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Steering group Made up of
• Department for Education
• Department of Health
• Parent carer representation
• ADCS
• ADASS
• LGA
• Council for Disabled Children
• NHS England
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Children and young people in
hospital
May 2016
155 children and young people in
hospital.
www.england.nhs.uk
• Constantly changing numbers.
• 116 in patient CYP CTRs completed 37% of which have
led to a discharge or community plan being put in
place.(increase of 36 since 24th January - 10th April 2016)
• 12 community CTRs completed which have prevented 3
admissions.(slow uptake)
• Approx. 31 are deemed not to require a CTR as they do
not meet the criteria.
• There are some anomalies in reporting and recording
which we continue to explore.
Care and treatment reviews
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Children and young people in 52
week residential schools
Local authority survey
undertaken to determine
how many children and
young people with learning
disability and / or autism
are currently in 52 week
residential schools
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• There are currently 1080 children and young people
with learning disabilities and / or autism currently
placed in residential schools for 52 week placements.
• This ranged from a 0 - 36 children and young people
per local authority area.
• A projected estimation of 100% return would indicate
that a likely England wide picture is 1,133 children and
young people with learning disabilities and / or autism
are placed in 52 week residential schools.
Initial data
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• Response rate 98%
Responses
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11 areas had no children or young people
placed in 52 week residential schools
Areas with no children placed
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Distant placements
806 children and young people –
75% are placed in residential schools
more than 20 miles away from
home.
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• 191 were known to be leaving school in 2016
• 16 areas did not know or could not access
data
• Some areas stated this had not yet been
determined
Young people leaving school in 2016
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69% of young people either have or will have an
EHC plan or for those where it is appropriate for
the EHC plan to cease that a social care
transition plan is in place.
How many have transition plans
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Health involvement in transition planning
responses as of 04.04.16
29%
6%
4%
24%
36%
1%
Has the relevant CCGs (or their commissioned services) been appropriately involved in the transition planning and EHC plans
for these young people leaving school in 2016?
All
Some
Few
None
No reply
Bespoke
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• Quality of data and information is variable
• Clear there appears to be no consistent way in
which authorities record this information
• Some areas have struggled to ascertain even the
basic information requested
• Some areas have identified this has been a useful
task in identifying some of these challenges
Learning
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• Grants programme rolled out in
December 2015
• Closing date was 31.12.15
• 63 applications received
• Allocation panel met early January
• Additional funding secured to enable
funding for more grants
• Progressed 22 bids
• Made 22 awards
Grants programme
www.england.nhs.uk
• Cover a broad range of areas
including:
Training and support for parent
carers; workforce development;
advocacy training for young people;
development of materials to support
families, CCGs and local authorities;
regional bid to support the
development of a regional strategic
review and commissioning protocol
for children placed in 52 week
residential schools.
Grants programme
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• Grants programme is
underway and projects
have almost all completed
their activity
• Learning and evaluation is
being collated
• Dissemination of this in
July 2016
Grants programme
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Service model and children and
young peoples pathway
Service model and children and young
peoples work is underway
Led by Kevin Elliott and Phil Brayshaw
Has been linked to some of the successful
grants
Continue to seek feedback from
commissioners and local authorities about
what would be most helpful
Will include activity around youth
offending and this cohort
www.england.nhs.uk 06/07/2016
www.england.nhs.uk
• We will align the aims of the CAMHS LD team
to the regional transforming care partnership
plans and ensure there is robust review and
challenge where necessary in relation to
these plans for children and young people.
Next Steps Overall
www.england.nhs.uk
• Need to clarify appropriateness of CTRs
• Policy review in October
• There have been some anomalies in reporting and
recording which we continue to explore.
• The population of children and young people in
hospital is constantly changing due to admissions and
discharges.
• There are a number of young people for whom a CTR
has been identified as not needed.
CTR Policy Next steps
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• Pursuing areas where young people do not appear to
have a transition plan, or where the response is
ambiguous
• Intend to approach and visit non respondent areas
• Offered support to local authority areas where young
peoples transition planning is not yet in place
• Will be liaising with relevant CCGs to ensure they
consider the need for their engagement in the
transition planning for young people leaving this year.
Next steps – 52 week schools
www.england.nhs.uk
• Consider strategic learning from this work
• Discuss further with DfE / ADCS information and
guidance around how decisions about residential
school placements for children and young people are
made.
• Consider how to more effectively ensure health
engagement in placement, review and transition
planning for this cohort of children and young people.
Next steps 52 week Schools
www.england.nhs.uk
• Learning and evaluation is now being collated.
• Want to review outcomes from projects and learn from
the innovation.
• National event(s) to be held to share the learning from
the grant programmes.
• The team is currently considering how the learning
from these innovative projects can be best shared
nationally and how they can help shape future service
models and pathways for children and young people.
Grants Next steps
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• Ensure that the needs of Children and young
people are included in the all age model.
• The model will include activity around youth
offending services.
Future Service Model Next steps
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Thank you for listening
Any Questions
Visit the NHS England website
www.england.nhs.uk/learningdisabilities
www.england.nhs.uk
The Learning
Disability
Adviser Role
In the Learning
Disability Programme
Carl Shaw and
David Gill
30 June 2016
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Thank you for the invite to talk
about our roles today
Carl Shaw
David Gill
Hello
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Our jobs came about last year,
out of discussions between
• Norman Lamb MP
• Simon Stevens
• Jane Cummings
• National Forum for People with
Learning Disabilities
• and Change
• It was agreed that NHS England should
employ people with learning disabilities
in the programme
• Simon Stevens made it a priority
Background
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• Gavin Harding was the first person
with a learning disability to become
an NHS England employee
• There are now 3 of us working as
Learning Disability Advisers
• Gavin
• Carl Shaw
• David Gill
At the centre of the
Learning Disability Programme
www.england.nhs.uk
• Working for NHS England and
representing people with learning
disabilities and autism is a big honour
• We have important roles in work
stream delivery
• We work on policy
• And engage with people locally about
the work of the team and
Transforming Care
• We are also involved in other areas
of work
Proud to be part of NHS England
www.england.nhs.uk
• We keep it real
• We know what it’s like to have a learning
disability and autism and the ways people
can treat you
• We understand how families feel
• We bring a lot of experience in health, social
care, and the programme to our work and
• Advocacy and voluntary sector experience
• We are equal members of the team
• We ask questions and sometimes we
challenge how things are done
• We bring new ways of looking at things
• We want people to be involved in our work
What do we do?
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My background:
• National Forum for People with Learning Disabilities
• Advocacy
• Local councillor and Mayor
• Personal experience as a patient
• CQC Expert by Experience
• Winterbourne View Board
• Transforming Care Assurance Board
• NHS England Improving Lives / Best Care Now Teams
Now lead adviser for:
• Care and Treatment Review policy
• Hospital discharge standards
• Quality assurance framework
• Forensic
• Linking with Transforming Care in the North
About us - Gavin Harding MBE
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My background:
• NHS England Improving Lives team
• Experience of and learning from Care & Treatment Reviews
• Over 8 years’ experience of building good community services for people with learning disabilities
• Work as a Quality Auditor for Dimensions
• Special interests – communication, health care and community care
Now lead adviser for:
• Medications project
• Expert by Experience hubs
• Quality of Life measures
• Quality checkers
• Responding to concerns/complaints (starting shortly)
• Linking with Transforming Care in the South and London
About us - Carl Shaw [email protected]
www.england.nhs.uk
My background:
• Young people and equal chances
• Experience of community living with Keyring
• Trustee of Speak Up, a leading self-advocacy organisation
• Health work for Rotherham Learning Disability Services
• Special interests – health care, community care, self-advocacy, graphics
Now lead adviser for:
• CAMHS work stream on Children and Young People with learning disabilities and autism
• Linking with Transforming Care in the Midlands and the East
About us - David Gill [email protected]
www.england.nhs.uk
See our email addresses on the slides
Also:
Steve Mbara –
Steve provides day-to-day support e.g.
he can advise about our availability
Maggie Graham –
Maggie works with us in work stream
delivery
How to contact us
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Questions
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Transforming Care for Building the Right Support: turning improvement ideas and thinking into local action
An interactive day where we can work together to close the gap between ‘what we know and what we do’ for services for people with learning disabilities and/or autism.
• Learn about practical techniques to help you remove improvement roadblocks and bring about transformation locally at scale and pace.
• Tell us what you want from the national improvement team, and help shape and inform our free package of improvement support for the 48 TCPs.
• Book an appointment in our improvement clinic and talk to colleagues from the national team and other parts of the care system.
• Understand how the workforce will need to change and how we might need to approach this.
• Network with colleagues, browse our marketplace and share with and learn from others.
• Learn about commissioning differently to transform care.
• Hear examples of how other TCPs are implementing change.
Find out more: www.england.nhs.uk/learningdisabilities/
Or register here: https://www.events.england.nhs.uk/nhsengland/162/home
For further information please contact Phil Thomas [email protected]
Date for your diary:
19 July 2016
