CYP IAPT measure and data structures

CYP IAPT Data Managers Training28 Feb 2012

http://www.iapt.nhs.uk/cyp-iapt/routine-outcome-monitoring-as-part-of-iapt/

Plan

• A guide to the overall structure of the CYP data spec

• Timetable for data submissions• The export specification

Assessment

Both:

•Strengths and Difficulties Questionnaire (SDQ)•Revised Child Anxiety Questionnaire (RCADS)

Session-by-session

• Symptom tracking:– At least one measures from the resource pack– (If none apply, then use the “how are you doing”

Impact measure)• One of– Goals, or– General well-being (CORS)

• Feedback– CSRS, or– Feedback questionnaire

Example symptom measure: Panic

Review

• SDQ• RCADS• CHI-ESQ

Data hierarchy

The data specification

• Specifies what data should be collected• What format it should take

Ordered 0 No problem1 Minor problem

requiring no action2 Mild problem but

definitely present3 Moderately severe

problem4 Severe to very

severe problem999 Not known

Demographics

NHS_ID NHS ID

SERVICE_ALLOCATED_PATIENT_ID Locally service assigned patient ID, used if and only if NHS number is not available. Assumed to be unique at local level but not across global dataset.

SERVICE_ID Service identifier, e.g., a trust or specific service

DOB The date on which a PERSON was born or is officially deemed to have been born.

GENDER GenderETHNICITY Ethnicity

Period of Contact examples

PERIOD_OF_CONTACT_START Period of contact start dateCASE_CLOSURE_STATUS Case status

PERIOD_OF_CONTACT_END_DATE Period of contact end date (case closure date)

CASE_CLOSURE_REASON Closure reason

Event examples

EVENT_DATE Event/session date (e.g., therapy session, home-completed questionnaire, telephone follow-up). Date of event rather than of data entry.

EVENT_TIME Event/session timeEVENT_TYPE Event/session type

COMPLETION_POINT Point in period of contact when event occurred

APPT_ATTENDED Attendance at appointment

Questionnaire examplesPANIC_QUESTIONNAIR

E_VERSIONPanic Subscale of Revised Child Anxiety and Depression (PANIC) -questionnaire version

PANIC_COMPLETED_BY

Panic Subscale of Revised Child Anxiety and Depression (PANIC) - completed by

PANIC_01 Panic score (RCADS) 1. When I have a problem, I get a funny feeling in my stomach

PANIC_02 Panic score (RCADS) 2. I suddenly feel as if I can't breathe when there is no reason for this

PANIC_03 Panic score (RCADS) 3. When I have a problem, my heart beats really fast

PANIC_04 Panic score (RCADS) 4. I suddenly start to tremble or shake when there is no reason for this

PANIC_05 Panic score (RCADS) 5. When I have a problem, I feel shakyPANIC_06 Panic score (RCADS) 6. All of a sudden I feel really scared for no

reason at allPANIC_07 Panic score (RCADS) 7. I suddenly become dizzy or faint when there

is no reason for thisPANIC_08 Panic score (RCADS) 8. My heart suddenly starts to beat too quickly

for no reasonPANIC_09 Panic score (RCADS) 9. I worry that I will suddenly get a scared

feeling when there is nothing to be afraid of

Windows for data submission

Quarter Dates Submission window

Q1 2012 January – March 1–15 April 2012

Q2 2012(Q1 refresh)

April – June 1–15 July 2012

Q3 2012(Q2 refresh)

July – September 1–15 October 2012

Q4 2012(Q3 refresh)

October – December 1– 15 January 2013

Q1 2013(Q4 refresh)

January – March 1– 15 April 2013

Data to extract

Records which have been either

– Created, or– Amended

during the submission period

File types

Hierarchy File Prefix

Data Submission File Type

1 DEM Demographic File

2 POC Period of Contact

3 EVENT Individual Contact File

4 QUES Questionnaire Files (one for each questionnaire)

Data hierarchy again for export

Data hierarchy• Questionnaire (QUEST) submissions also need an

associated– Individual Contact (EVENT) file,– period of contact file (POC), and– Demographic (DEM) file.

• Individual Contact/Event record (EVENT) submissions need an associated– Period of contact file (POC), and– Demographic (DEM) file.

• Period of Contact (POC) submissions need an associated– Demographic (DEM) file.

• Each Demographic (DEM) record submitted will not have an associated parent as it is at the top of the file hierarchy.

Upload process

Upload page

Service IDs for submissions

London(UCL/KCL)

Manchester (Salford Cognitive Therapy

Training Centre)Reading

101 Cambridge 201 North Pennine 301 Oxford

102 Hertfordshire 202 South Pennine 302 Buckinghamshire

103 Sussex 203Manchester & Salford

303 Swindon

104 Greenwich 204 Derby 304 Wiltshire

105Lambeth & Southwark

205 Barnsley 305Bath & NE Somerset

106 Haringey 306 Bournemouth

107South London & Maudsley

307 Dorset

108 Westminster 308 Poole

109 Wandsworth 309 Glouchestershire

QUESTIONS?