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Patient-Generated Data for Cancer Treatment and Management
Thomas Snitz, BSA and Matthew Villarreal, BSAThe University of Texas at Austin, Health Informatics and Health IT Certificate Program, Spring 2016
ABSTRACT
ACKNOWLEDGMENTS
DISCUSSION AND CONCLUSION
REFERENCES
CONTACT
INTRODUCTION
RESULTS
PURPOSE
New health information technology (HIT) has sparked interest in using patient-generated health data (PGHD) for cancer management and treatment. Personal devices have made the accessibility to PGHD for providers a reality. There are foreseeable benefits and challenges in using PGHD across the cancer control continuum in prevention, detection, diagnosis, treatment, and survivorship. Communication is a key benefit, while security and privacy are important challenges.
METHODS
1. American Cancer Society. (2016). Cancer Facts & Figures 2016. Atlanta: American Cancer Society.2. Bishop, T. F., Press, M. J., Mendelsohn, J. L., & Casalino, L. P. (2013). Electronic Communication Improves Access, But Barriers To Its Widespread Adoption Remain. Health Aff (Milwood). 32(8): 1-10.3. (2011). The Cancer Control Continuum. National Cancer Institute.4. Chung, A. E., & Basch, E. M. (2015). Potential and Challenges of Patient- Generated Health Data for High-Quality Cancer Care. Journal Of Oncology Practice. 11(3): 195-197.5. Gordon, C. R., Rezzadeh, K. S., Li, A., Vardanian, A., Zelken, J., Shores, J. T., Sacks, J. M., Segovia, A. L. & Jarrahy, R. (2015). Digital Mobile Technology Facilitates HIPAA-sensitive Perioperative Messaging, Improves Physician-Patient Communication, And Streamlines Patient Care. Biomed Central. 9(21): 1-7.6. Klasnja, P., Hartzler, A., Powell, C., & Pratt, W. (2011). Supporting Cancer Patients’ Unanchored Health Information Management With Mobile Technology. AMIA Annual Symposium Proceedings Archive. 732-741.7. (2015). Mobile Applications. Cancer.Net.
Cancer is regarded as one of the top leading causes of death in the world. In the United States, it is estimated that there will be 1,685,210 cancer diagnoses and 595,690 deaths due to cancer in 2016 alone.1 The treatment and management of cancer has the potential to be revolutionized by the use of health information technology (HIT). The emergence of new HIT has increased the value and prevalence of patient-generated health data (PGHD). Personal devices such as wearables and smartphone health applications have become mainstream and commonplace, making PGHD more available for providers and individuals themselves. Recently, interest in PGHD has been sparked, as meaningful use 3 requires PGHD to be accepted online with the goal of eventually providing for seamless data exchange between patients and providers.4
In addition, interest in the usability of PGHD for the treatment and management of cancer as well as other chronic diseases has been sparked. Although studies as to the effects of PGHD on other prominent chronic diseases have been done, the potential benefits and challenges in using PGHD specifically for the management and treatment of a patient’s cancer has yet to be looked into.
The purpose of this poster is to explore the benefits and challenges of using a patient’s generated data to help with their oncology management and treatment.
This project was completed with guidance from Dr. Nauert. We used Google Scholar, Science Direct, and PubMed to locate articles for this poster. We used the keywords patient-generated data, cancer, benefits, and challenges. We reviewed articles from the Journal of Medical Internet Research, the Sage Journals, Molecular Oncology, the Journal of Oncology, and the Journal of the American Medical Informatics Association. We used articles published between 2012 and 2015 that reported on the benefits and challenges of using patient-generated data for cancer patients.
We would like to thank Dr. Nauert and Nicole Avellanet. Their continued support throughout the duration of the project was greatly appreciated.
A framework that is used describe the prevention, detection, diagnosis, treatment, and survivorship of cancer.
An example of a health application on smartphones. Cancer.Net is used in the management and treatment of cancer patients.
Figure 2: Cancer.Net: A Health Application Example 7
Table 1: Patient Generated Health Data in Cancer Management and Treatment
Figure 1: The Cancer Control Continuum 3 For the management and treatment portions of the cancer control continuum, the use of PGHD through integrated health care applications (IHCAs) could provide the following benefits:
• PGHD improves the communication between the patient and the provider, and the ability for a patient’s family and friends involvement
• PGHD communication improves a patient’s access to care, improves satisfaction, saves time, and have fewer post-operative complications
• Effective patient-provider commitment is associated with more compliance and success in the modification of a patient’s unhealthy habits and more engagement in the management of their own health
Although there are many advantages in using PGHD for the management and treatment of cancer, there are also the following challenges:
• PGHD communication requires a patient to be engaged in the managing of their PGHD collecting device(s) of choice’s upkeep and usage
• Providers taking part in PGHD communications may experience longer work days without any drop in patient visits
• A provider cultural shift may be required as the inclusion of PGHD in a provider’s workflow runs counter to the currently in place fee-per-service paying model
As IHCAs like Cancer.Net become better able to share PGHD with providers, PGHD communication could be used to better a patient’s access and quality of care, yet it is also important to note the challenges of using PGHD such as the possibility of patient-provider miscommunications and of providers needing to shift culturally.
Tommy [email protected]
Matthew [email protected]
Benefits Challenges Improved access to care Patient has to do work
Improved satisfaction Fee-for-service
Saves time Longer physician workday
Active patient engagement in health management No change in the number of office visits
More patient-physician communication Poor communication could cause a decrease in physician recommendations
Adverse outcomes lessen Poor communication could cause poor outcomes
