Patient Overview Prostate CancerSharing Facts, Decisions and Understanding in Patient-centered Prostate Cancer Care

2018-07-04Ingela Franck Lissbrant, MD, PhD

With permission from Sven-Åke Ekberg PSA é

Garmo

Prostate CancerYesterday and Today

• 10 million inhabitants• General, tax funded, health care insurance since 1955• No national health service - 21 counties provide health care• A confederation of six Regional Cancer Centers provide

National Clinical Guidelines and National Quality Registers

Sweden

NPCRNational guidelines

Nationwide 199898% capture vs Cancer Registry

Cancer characteristics, work-up, primary therapy24 hours from reporting to display of data

National Prostate Cancer Register (NPCR)

RATTEN - Open Online Report from NPCR

Stattin Br J Urol Int 2018www.npcr.se/RATTEN

Public and transparent reportingInteractive reporting system

’Tailor’ reports for each unit - benchmarking

2004 2018

CabazitaxelAbirateronEnzalutamidRadium-223DenosumabApalutamidGalaterone?TAK?Olaparib?Pembrolizumab?Niraparib?……….

Docetaxel

Treatment options

1. Patient Overview Prostate Cancer“A shared understanding”

PROM – Patient Reported Outcome Measures

• Report before visit

• Displayed at visit

http://www.ntnu.edu

Visualisation PROM

2. Provide metrics on departmentperformance

•Do we follow guidelines?

•Performance over time?

•Performance comparedwith other health careproviders?

3. Treatment patternsPolicy makers, Pharmaceutical industry, Patients

4. Research – epidemiology, biobanking, randomised trials

Future

Doctor – From God to Guide

Patient – From Passive Object to Active Subject

“Gutenberg Moment”

Topol, 2015

The cancer patient´s burden

To concludeIt is only by a common understanding of the real needs and the existing possibilities that we can ask the right questions and find the

meaningful answers

With the patient and for the future

2018-07-04Förnamn Efternamn

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