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Inspire Rare Disease Health Communities at a Glance

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People affected by rare diseases come to Inspire's health communities for peer-to-peer information and support. The number of discussions and the types and depths of connections are what make the communities invaluable to tens of thousands of patients and caregivers worldwide.

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Page 1: Inspire Rare Disease Health Communities at a Glance

80,000 POSTS

POSTS

POSTS

POSTS

POSTS

POSTS

61,000

46,000 6,000

27,000

THREEYEARS AGO

ONEYEAR AGO

56,000

THREE-YEAR GROWTH RATE

203%

“I have received an incredible amount of information from so many people.” –Parent of child with von Hippel-Lindau (VHL) disease

RARE DISEASEHEALTH COMMUNITIES

Posts in 2013 by Rare Disease Community Members (Selected communities, through Dec. 2013)

24,000 31,000

80,000+MEMBERS WHO ARE IN AT LEAST ONE OF INSPIRE'S 20+ RARE DISEASE COMMUNITIES as of Dec. 2013

FOUNDATION FOR SARCOIDOSIS RESEARCHCOMMUNITY

NEUROFIBROMATOSIS NETWORK COMMUNITY

EHLERS-DANLOS NATIONAL FOUNDATION COMMUNITY

SCLERODERMA FOUNDATION COMMUNITY

GENETIC ALLIANCE COMMUNITY

TUBEROUS SCLEROSIS ALLIANCE COMMUNITY

“Most of us will never meet in person, but here is a place where we all understand the diagnosis, the concerns, and what it's like to live with this.” –Woman with Neurofibromatosis Type 1

Inspire is the patient engagement company. We build and manage peer-to-peer online health support communities for over 425,000 patients and caregivers, and help industry connect to members for the purpose of clinical research, marketing research, and promotion. Find out more at www.corp.inspire.com, or by contacting us at [email protected].

www.Inspire.com