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John Baumann’s Inspiring “Nifty Nine” Daily Action Steps: Creating Your Own Personalized Plan to Live Life to the Fullest With (or without) Parkinson’s Disease M. Scott Peck starts out his monumental work, The Road Less Travelled, with three powerful words, “Life is difficult.” Difficult does not translate to bad, it just means that sometimes in life things do not come easy. Dealing with Parkinson’s is difficult. That sure is an understatement if I ever heard one. I describe myself as an inspiring, insightful, informative and oft-times humorous speaker who just so happens to have had Parkinson's for over a decade. In my life BP (before Parkinson's), I was an attorney, officer of a listed public corporation, and avid athlete. In my life WP (with Parkinson's), I am an inspirational speaker, author of several books, faculty member of the University of Louisville, guest commentator on CNN Headline News, Chair Emeritus of the Kentucky Make-A-Wish Foundation Board of Directors, and, most importantly, Bernadette's husband. I present here a novel and all-inclusive approach to living life to the fullest whether or not you have Parkinson's disease in the form of nine daily action steps.
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Orlando's first Moving Day! National Parkinson
Foundation's Awareness event presented by Florida
Hospital!
THANKS for having us
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MYSTERIOUS WAYS
How to actually Embrace your Parkinson’s disease
and, for that matter, any other life-
changing adversity.4
IDENTITY
YOU ARE NOT PARKINSONS
Retreat – Jimmy V
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WHO?
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LIFE BEFORE PARKINSONS
I FEEL YOUR PAIN
WE ALL HAD ONEDoctors, lawyers, executives,accountants, politicians, actors, athletes,even a Pope,
….every job you can imagine.
I love being an Attorney
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LIFE CHANGING ADVERSITY
Diagnosed with Parkinson’s diseaseYour spouse/parent/child getting PDYou or family the victim of a crimeLoss of a job/ DemotionDeath of a Loved OneOther ILLNESS, DISEASE OR INJURYBECOMING A CAREGIVER
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INTRODUCING
What I like to call The Nifty Nine Action Plan to
Embrace Adversity11
HOW TO LIVE LIFE TO THE FULLEST
YOU NEED A PLAN:THE NIFTY NINE
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FIRST: RESEARCH• New procedures• New medications • What works for others• What has not worked• The best doctor• The emotional stages
SHOUT OUT13
THE EMOTIONAL ROLLERCOASTER OF
PARKINSON’S
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SHOCK
White light
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DENIAL DISBELIEF
autopsy
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ANGERISOLATION
FEAReyes
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SADNESSHOPELESSNESS
DEPRESSION
Black hole
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WAKE UP CALL
TIME TO “GET OVER IT”
Barn door – for the best
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If you don’t stop, I CAN’T HELP YOU
Art of Transformation – Downloadable Book
Pick a Day and Commit to it in Concrete25
SECOND: EAT HEALTHY FOOD
• VEGATABLES: Especially Green
• ORGANIC
• NON-ANIMAL PROTIEN
• FRUIT and unsweetened juice
• PURIFIED WATER
• GLUTEN-FREE
FIND A FARMERS MARKET
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HEALTHY FOOD continued
DON’T PUT UNHEALTHY THINGS IN YOUR BODY
• Sugar (especially Drinks/ Soda)• Artificial Sugar (especially diet Drinks)• Processed Foods/ GMOs• Fried Food• Animal Protien
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THIRD: EXERCISE
EXERCISE• Beyond Your Comfort Zone• Every Day (almost)• Sweat, Stretch, Strengthen
Davis Phinney Victory Summit
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FOURTH: WILL
• Find YOUR Inner Strength
• You have the POWER within you
• Give yourself NO CHOICE
• DRIVE, DESIRE, DETERMINATION
• Intestinal FortitudeWeird kids
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FIFTH: MENTAL HEALTH
• Stay mentally active euchre - crossword
• Do part-time what you used to do full-time
• Write a book of what you have learned in life
• Get more rest
• Spend more time with family
• Reduce stress – just say “no” –DON’T Over-commit
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SIXTH: YOUR TRIBE
IDENTIFY YOUR SUPPORT SYSTEM
YOUR TRIBE/ VILLAGE
• Family and other Caregivers
• Health Care Professionals
• Parkinson’s Associations
• Exercise Partners
• Financial Planners
• Attorneys (if necessary) Employment – Benefits – SS Disability
• WHO ELSE???
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SEVENTH: ATTITUDE
• Positive Attitude rock – cheer – worst thing
• Inspiration is Everywhere Tori story – 30 for 30
• Impossible is a Temporary thing moon - math
• Remove your Blinders Overboard
• Continually Question Awareness
• See Beyond what is Apparent
• The mind is a powerful force placebo
• Simplify your life
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EIGHTH: SILVER LINING
• Use our new found “abilities” stare - poker
• Help others - new perspective on life
• Develop lasting friendships in the PD community
• Humbling Experience:
Become more loving, kind and compassionate
(I was an A…………)
• Express appreciation to our icare partner love you
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NINTH: PURPOSE
• WHAT is YOUR PURPOSE?
• WHY were you put on this earth?
• Do the answer to these questions have something to do with Parkinson’s?
Maybe. Maybe not. Find yours.
• Faith in yourself, Faith in others,
Faith in your higher power, and
Faith that your life has PURPOSE
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The ultimate result of enacting this plan is:
I am healthier now, over ten years into my PD, in body, mind and
spirit,than I ever was before I
started exhibiting the symptoms of PD.
- John BaumannParkinson’s Proud since 2002
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iCARE Partners Experience
DISBELIEF – DENIAL
ISOLATION – SADNESS
AWKWARDNESS - ANGER
FEAR – DEPRESSION
SHOCK
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Quality of Life
WE have the POWER to have the HIGHEST QUALITY OF LIFE that
we can POSSIBLY HAVE.
TAP INTO THAT POWER.
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Life ain’t always beautiful
Sometimes it's just plain hard
Life can knock you down,
it can break your heart….
But the struggles make you stronger
And the changes make you wise
No, life ain’t always beautiful
But it's a beautiful ride
What a beautiful ride.
- songwriter Gary Allan
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Michael J. Fox Quote
“For everything this disease has taken, something of greater value has been given -sometimes just a marker that points me in a new direction that I might not otherwise have traveled.”
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Michael J. Fox Quote
“So, sure, it may be one step forward and two steps back, but, after a time with Parkinson’s,
I’ve learned that what is important is making that one step count, ….. always ….”
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ALWAYS REMEMBER
"Too often we underestimate the power of a touch, a smile, a kind word, a listening ear,
an honest compliment, or the smallest act of caring,
all of which have the potential to turn a life around."
- Leo Buscaglia
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FOR THE BEST
My mother is still not convinced
• BUT look at where I am TODAY office
• And look at how healthy I am TODAY
• And now YOU are blessed to know what to do.
Someone certainly does work in
“MYSTERIOUS WAYS”
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THANK YOU SO MUCH
We will be available to talk, answer questions and sign
any books (Decide Success, Courageous Stories of
Inspiration and Roadmap to Success) for the rest of the event.
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