Visioning a Successful Cancer Information and Support Service

Maureen BlackNational Cancer Information and Support Manager (Scotland)

People have a right to get the clear, accurate and up-to-date information they need, when they need it presented in a way that meets their needs.

NHS inform

Visioning a Successful Cancer Information and Support Service

Context for NHS inform

• Better Health Better Care (SG, 2007) recognised the need for a national health information and support service

• Better Cancer Care (SG, 2008) highlighted the importance of cancer as a priority for the national service

• NHS 24 tasked with delivery of new national generic service - renamed NHS inform using three key delivery channels, web, telephone and face to face services rooted in the community

• Aim to deliver the new service in Partnership with Voluntary Sector, Scottish Government and National Health Education Services (NES)

NHS inform

“A single, shared health information online resource bringing together quality assured local and national information from the NHS and other sectors via three 3 channels of delivery”

1. A national health information helpline2. A single shared on-line resource3. A network of branded health information and

support centres embedded in local communities.

NHS inform Governance Structure Cabinet Secretary

Better Health Better Care (2007)Better Cancer Care (2008)

Scottish Government Mutuality Equality and Human rights Board

NHS InformAdvisory Board

(Generic information and support)

NHS Inform Project Board

National Cancer Information and Support Steering Group

NHS Inform – Cancer Information and Support Structure

National Cancer Information and Support Steering

Group

Web based Cancer

Information and Support

Telephone – Cancer

Information and Support

Face to Face Cancer

Information and Support Services

Health LiteracyManage

Knowledge Networks

Visioning a Successful Cancer Information and Support Service NHS inform - Principles

• Patient Centred and Patient Driven• Do not duplicate• Co-ordinate and integrate existing services• Quality Assured information • Work in Partnership, Patients and Public, NES,

SG and VS • Build on good practice develop models• Work across organisational and sector

boundaries

Visioning a Successful Cancer Information and Support Service

WORKSHOP SESSIONS

1. Our task: To vision what a successful Cancer Information and support service will look like in three years. HOW …through

2. Workshop sessions looking at: • Web based cancer information and support• Telephone and,• Face to Face Cancer Information and Support

Services• Underpinned by a workshop session on Health

Literacy and Knowledge Management.

Visioning a Successful Cancer Information and Support Service Where are we now?

• Range of disparate, overlapping information sources

• Duplication of effort, expense and fragmentation

• Need for information “tailored” to individual• Need to support “hard to reach” groups,

disadvantaged communities• Information literacy

Not just about technology

Visioning a Successful Cancer Information and Support Service Deliverables

• Face to face = develop national information and support networks linked through a community of shared knowledge.

• Web-base: Quality assured national shared cancer information content: NHS inform = Cancer Zone

• Telephone – Provide a national cancer information and support help-line as part of NHS 24 national helpline.

• Tailored cancer information for cancer patients as part of a national initiative.

Challenge is how we integrate and co-ordinate the above delivery channels.

Knowledge Managed Networks

• “Knowledge Management should be a fully joined up story”

• “It should be a combined human and technical system that tailors support to the needs of the individual”

NES Enabling Partnerships: Sharing Knowledge for a mutual NHS

Workshop SessionsVisioning a Successful Cancer Information and Support Service

• Format: 4 thirty minute workshop sessions• Aim: To vision how a successful national Cancer

Information and Support Service will look in 3 years

• 4 Questions: Relate to NHS inform 3 key delivery channels:

1. Web2. Telephone3. Face to Face Cancer Information and Support

Services4. Additional Workshop Session on Health Literacy

and Knowledge Management.