Reducing Barriers to Patient Engagement
Stanford Medicine X 2014
Amy GleasonChief Operating Officer
CareSync
Board of Directors Cure JM
Mom of Morgan
Morgan’s StoryOur road to the diagnosis, navigating a web of providers,
and finding our care team support.
caresync.com 800.587.5227 © Continuum Labs, Inc. Private and Confidential
Morgan’s Story
The Road to Diagnosis
Rash on elbows and hands.
Feb-May 2009
Saw primary care provider. Given a topical treatment.
May 2009
Broken foot. From walking.
July2009
Missing a lot of school for stomachaches and headaches.
December 2009
“I am not strong enough to tumble.”
May 2010
Rash now on knees and ankles. Visit primary care physician.
May 2010
May 2010
Diagnosed with psoriasis. Referred to a dermatologist.
Visited dermatologist. Likely psoriasis, but did a biopsy, just in case.
June 10,2010
“I am very sorry, but your daughter has a very serious condition called Juvenile Dermatomyositis.”
June 18, 2010
June 18, 2010
Referred to Pediatric Rheumatologist. Started prednisone, ordered labs and MRI.
June 18, 2010
Pediatric Rheumatologist Dr. Nickeson’s first available appointment was on September, 30.
June 18,2010
Found Cure JM on Google after desperately searching. Connected
with parents who referred us to Dr. Pachman. Appt for July 19.
When Patients Aren’t Engaged
• Higher Costs for patients with lower Patient Activation Measure scores (PAM)
• 32% of ordered tests are duplicates because the results are not available
• Patients give incorrect or incomplete medication lists 39% of the time in the ER
• 70-80% of diagnoses can be made from the patient’s story alone
• 60-80% of what the patient is told at a visit is forgotten within 3 days.
Reducing Barriers to Patient Engagement
• Access to Information
Access
Fill out different forms for each facility and repeat each year
Getting Better
Reducing Barriers to Patient Engagement
• Access to Information
• Meaningful Information
Meaningful Info
Meaningful Info
Meaningful Info
Gaming puts data in a new perspective
Reducing Barriers to Patient Engagement
• Access to Information
• Meaningful Information
• Collaboration
Morgan’s Web of Providers
HospitalAll Children’s
ACH SpecialistsDr. Casadante
Neurology
Dr. EwigPulmonary
GastroenterologyDr. McClenathan
Gastro
Dr. WarnickOrthopedic
Primary Care & Rheumatology
Dr. YousefFamily Doc
Dr. NickesonRheumatologist
Super SpecialistsDr. PachmanChicago, IL
Dr. RiderNIH in DC
BayCare SpecialistsDr. Arasu
Gastro
Dr. BelongieDermatology
Other SpecialistsAmy Ponce
School Nurse
Chris SequenziaPhysical Therapist
Morgan’s Additional Care Team & Support
Morgan’s care team is so much more
than just her providers. She relies on
daily support from her parents,
grandparents, siblings, aunts &
uncles, and the communities of other
JM families.
Collaboration
Reducing Barriers to Patient Engagement
• Access to Information
• Meaningful Information
• Collaboration
• Communication and Convenience
Convenience and Communication
Convenience and Communication
Meet patients where they are already
Removing Barriers to Access
• Make the data meaningful to the patient and family (and to the medical providers)Meaningful Information
• Provide EASY Access to ALL information
• Provide ways for all people involved to collaborate around the patient
• Make healthcare convenient to the patient and provide communication tools that meet their preference and expectations
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