The Empowered Patient – involved in his / her care and medical record

Dr Amir HannanFull-time General Practitioner, Haughton Thornley Medical Centres, Hyde, Cheshire (www.htmc.co.uk)

Information Management & Technology Lead Tameside & Glossop PCT

Primary Care Lead, NW SHA

Member of the HealthSpace Reference Panel, NHS CfH (www.healthspace.nhs.uk)

Member of the Clinical Leaders Network (www.cln.nhs.uk)

amir.hannan@nhs.net

Cartoon taken from www.mediclicks.net

Summary

• What is an empowered patient?• How do patients become empowered?• What systems can patients use?• 3 success factors for Patient Empowerment• What services / systems are required to make this a success ?• What can such patients do?

What does “empowered” mean?

• To invest with power, especially legal power or official authority• To equip or supply with an ability

www.dictionary.com

What is an “empowered patient” ?

www.theempoweredpatient.com

Our goal is to raise public awareness about pressing patient safety issues including adverse events, medication errors, hospital-acquired infections and communication failures.

What is an “empowered patient” ?

Patient safety ?Strategy / implementation ?Passive / active patient ?Dependent / Independent / Inter-dependent ?Born with innate ability / nurtured ?Empowered patient who asks the doctor to do something vs disempowered patient who is given choice!Is there a role for an “empowered patient” in the “complex chaos” of the NHS ?

The “Empowered Patient”

Reactive vs Proactive

Passive Enabled Informed Empowered

Patient Person Family

Delivering the vision

Starts with a person…....who may or may not become a patient…...who has certain needs…...who comes to us for help…...who wants to know that we will deliver……the care they deserve……with dignity……with professionalism……and above all respect for them as a person……living amongst a community……wanting the best that we can offer….

Data Information Knowledge

Structures Processes Outcomes

Where does “Information” sit ?

Knowledge Skills Attitudes

Family of classifications

Sharing the records

Immediate Care

Continuing Care

Preventative

Health Promotion

Patients Public

Admin Government Standards

Science & Research

Clinicians

What critical success factors are needed to enable Patient Empowerment?

• Patients and the Public• Partnership of Trust• The Paradigm Shift in Healthcare

(Please contact me and I will send copies of the papers that define the above)

What do I want my clinical system to tell me?

Is this patient

“IT positive”

or

“IT negative”?

Real-Time Digital Medicine

www.nhs.uk

HealthSpace - www.healthspace.nhs.uk

HealthSpace - www.healthspace.nhs.uk

Summary Care Record

www.connectingforhealth.nhs.uk/systemsandservices/nhscrs/scr

HealthSpace Advanced

Patient Access to GP electronic health record

Patient Access to GP electronic health record

The first Health 3.0 website in the world linking information and services for patientsand families in one place to enable and support eMPOWERed patients!

Practice Website Informing Patientswww.htmc.co.uk

Real-time Digital Medicine from a patient perspective

What happens when the wider public

are informed ?

“Yours” magazine

NHS online? Yes please!

Letter from an empowered patient

after he saw a “negative” article

about IT systems in the NHS.

The battle lines have begun…

Summary

• Patients CAN access their electronic health records on-line• Not a question of IF but rather WHEN and HOW• Strategy and implementation go hand in hand• NHS CfH and others ARE delivering tools to help support the

culture change• Patients ARE driving the competition and the organisational

change necessary• What are YOU doing to SUPPORT the empowered patient?

Primary Health Care Specialist Group conferenceMeet Empowered Patients 1-2nd July 2008 www.phcsg.org