The Development of Kia Ora e Te Iwi

Hazel Neser Pauline Wharerau Cancer Society of New Zealand Best Care Whakapai Hauora Wellington Division Charitable Trust, Palmerston North

Shaking up the Living Well Programme: The Development of Kia Ora e Te Iwi

PONZ Conference November 2011

Development of Kia Ora e Te Iwi | 2011


This journey starts with a story about:

Relationships/

Whakawhanaungatanga and Aroha


A working party was convened by the CSNZ during 2009 to work on ways to strengthen capacity and

capability for the Living Well Programme (LWP)


1. This programme is one of the support services offered by the Cancer Society of New Zealand (CSNZ)

2. Delivered in Aotearoa NZ for 20 years

3. Maori participation has remained low

4. Willingness to work in partnership with Maori providers to develop LWP for delivery by and for Maori


The aims of LWP are to:

Increase knowledge of cancer and its treatments Encourage discussion in a safe setting Learn from each other Build on coping skills Discuss common concerns Raise awareness of support options Assist with survivorship issues


Equity of access to appropriate support for all patients and whanau/famiy

Guiding policy:

Matatuhi Arahi Service Plan for Maori (Wellington Division)

Cancer Control Strategy


What happened next?

Phase 1: Getting acquainted

Phase 2: In this together

Phase 3: A new arrival in the

whanau!


Phase One: Pre-‐Pilot 2009-‐2010 Getting Acquainted

LWP Working Group used a community-based approach to build relationships with a local Maori provider working in cancer control, Kokiri Marae, to pre-pilot LWP:

Promote understanding of programme Delivery of facilitator training and support Resources needed to support pre-pilot Process evaluation

including participant evaluation

Kokiri Marae, Seaview, Wellington

Manager: Teresea Olsen


Feedback and evaluation from Kokiri Marae and whanau:

local in-put for each session of LWP identified resources needed developed plan to promote programme developed generic base-line framework for a 6-week programme


Phase Two:

July 2010 April 2011


July 2010 Expressions of Interest called from CSNZ to facilitate pilot of LWP August 2010 3 Maori Health Providers from throughout NZ notified of successful applications


October 2010 8 MPH staff attended LWP facilitator training at Kokiri Marae, Seaview, Petone February and Six week pilot programme March 2011 held at Te Hotumanawa o Rangitaane Marae, Palmerston North April 2011 Facilitator debrief in Wellington


Programme adverstised on Kia Ora FM89.8 Rangitaane Iwi Radio Station alongside other normal avenues of media and organisational networks, RCTS and other local Maori Health Providers Maori clients and whanau of Maori Cancer Co-ordination Service at Best Care (Whakapai Hauora) Charitable Trust


Te Whare Tapa Wha model underpins promotion of kaupapa taha wairua, taha whanau, taha tinana, taha hinengaro


Marae-based: familiar environment where they feel safe to share their experiences and korero Tikanga maori practices ensure whanau are comfortable and familiar with karakia, manaakitanga, whanaungatanga and waiata


What is cancer? Nutrition & diet Personal reactions Self Care Where to from Here?

Key Message: gaining knowledge, confidence and empowerment


Other Maori with the same story made me feel better. My information improved enormously.


I received more information on different types of cancers and questions were answered and I am no longer ignorant.


I am more knowledgeable now than I was at the beginning it was at my pace and I could understand it better. Very warming for me to be in a kaupapa Maori setting.


A healing experience some of us have carried a load or a burden for a long time this was the first time I had cried since aunty died I was comfortable to do this, to tell my own story with


I feel spiritually uplifted.


Here?

Clinicians and specialists have a greater understanding of Maori who have a different worldview Barriers will be reduced simply by hearing stories in another setting as opposed to consultation in clinics only


CS Trainer will be supported by Maori co-facilitator at next KOETI facilitator training, February 2012 Source local funding from Cancer Society Divisions, Regional Cancer Networks Inequalities Funding and District Health Boards in order for Kia Ora e Te Iwi to be sustainable

Phase Three: A new arrival in the

whanau!

Roll out of Kia Ora e Te Iwi

Thank you! Development of Kia Ora e Te Iwi | 2011

Documents

The Development of Kia Ora e Te Iwi