Page 2 l Grace Centre for Newborn Intensive Care 2016 ...€¦ · Page 6 l Grace Centre for Newborn Intensive Care 2016 Annual Research Report Heads of department Associate Professor

Grace Centre for Newborn Intensive Care2016 Annual Research Report

Page 2 l Grace Centre for Newborn Intensive Care 2016 Annual Research Report

Grace Centre for Newborn Intensive Care 2016 Annual Research Report l Page 3

Grace Centre for Newborn Intensive Care .................................4

Grace Research Unit ..............................................................4

Heads of department .............................................................7

Research staff .......................................................................7

Grace researchers..................................................................8

Publications..........................................................................10

National oral and poster presentations .....................................12

International oral and poster presentations ...............................15

Research supporters and collaborations ...................................16

Clinical Neonatal Nursing Fellowship .......................................16

Continuing studies ................................................................17

Contents

‘Our vision is to lead practice through research and knowledge translation that improves clinical care and outcomes’


Grace Centre for Newborn Intensive Care

The Grace Centre for Newborn Intensive Care (GCNIC) at The Children’s Hospital at Westmead is a key service within the Sydney Children’s Hospitals Network (SCHN) and comprises a Neonatal Intensive Care and High Dependency Unit, Department of Neonatology, the Grace Research and Education Units and the Grace Developmental Clinic. GCNIC strives to be a centre of excellence in clinical neonatal care, with clinical and educational practice based on contemporaneous evidenced-based research.

As the major level six referral unit for babies with surgical and cardiac conditions, GCNIC is a unique component of the NSW Pregnancy and Newborn Services Network, with approximately 600 admissions each year and an average length of stay of 10 days. Infants are admitted for complex surgery for congenital or acquired acute conditions (45%); congenital heart conditions requiring surgery (35%), and complex medical conditions (20%).

The clinical service provides acute assessment, diagnosis, stabilisation, treatment and care of critically ill neonates as well as developmental follow-up programs for neonates who have undergone surgery within the newborn period. The GCNIC practice an individualised developmentally supportive model of care for infants and families.

Grace Research Unit

The Grace Research Unit is a leading neonatal research unit with a commitment to multi-disciplinary research. Our researchers collaborate with colleagues in multiple departments within the Sydney Children’s Hospitals Network, nationally and internationally. Grace is an academic research unit, with the majority of the research team having completed or being currently enrolled in higher research degrees. Monthly research meetings are conducted and staff members present their research at these meetings prior to presenting at national and international conferences. Critical Appraisal is also held monthly for the unit to remain up to date with current research and challenge thoughts and practice. We have skills in all aspects of conducting research including study and database design, statistical analysis and the writing of papers for publication. We successfully support a nursing clinical research program, medical and nursing honours students, registrar/fellow college projects and Masters and PhD researchers.

Our achievements in 2016

52 national and international presentations

$3 million in research funding

37 published papers 20 collaborative research projects



Heads of department

Associate Professor Karen WalkerKaren is a Clinical Associate Professor with the University of Sydney. She is the research manager at GCNIC and leads and facilitates the collaborative research program. She is also a Senior Research Fellow with the Cerebral Palsy Alliance. Her research interests include the outcomes of neonatal intensive care, the global challenges of disability and multidisciplinary collaborative research projects.

Natalie Fairbairn Natalie is the Research Officer at GCNIC. She has been a senior occupational therapist at GCNIC and has worked here since 2012. She is currently completing a PhD investigating the long-term developmental outcomes of eight to nine year olds who have had major cardiac and non-cardiac surgery.

Emre IlhanEmre is a research assistant and a physiotherapist with a passion for neonates, pain management, research and health ethics, and research design and statistics. Emre has assisted the research team at GCNIC on various projects such as the DAISy8 Study. Emre is planning to undertake research on the epidemiology of pain in cerebral palsy across the lifespan.

Professor Nadia Badawi AMNadia is the Medical Director and co-head of the GCNIC. Nadia is also the Macquarie Group Foundation Chair of Cerebral Palsy at Cerebral Palsy Alliance Research Institute. Her research interests include cerebral palsy, newborn brain damage, outcomes of neonatal intensive care and neonatal surgery.

Angela Casey Angela is the Nurse Manager of GCNIC and has been in this role for six years and has over 10 years nursing management and leadership experience within SCHN. Angela has a keen interest in nursing leadership and workplace culture.

Dr Robert Halliday Robert is a Senior Staff Specialist Neonatologist and the head of department at the GCNIC. In addition to his clinical commitments he has maintained an active role in medical informatics, clinical process redesign, epidemiological research and post graduate medical education.

Research staff



Grace researchers

Lois Aguanta Lois has been a Registered Nurse and researcher at GCNIC for five years and is interested in providing encouraging and supportive environments for families learning to adapt to Neonatal Intensive Care Unit (NICU). Her research project is entitled “Helping Skin to Skin Care (SSC) Stick: Using a point-of-care reference tool to improve initiation and documentation of SSC within a Surgical NICU.”

Amy Barker Amy is a Transitional Nurse Practitioner and has been a member of the GCNIC team for seven years. Her initial research stemming from her nursing Honours degree focused on postoperative pain assessment and management following major neonatal surgery. Her current research focus surrounds the management of complex newborns who are discharged on non-invasive respiratory support.

Dr Peter Barr OAMPeter is a Neonatologist, researcher and previous head of GCNIC. His studies have included clinical case reports, clinicopathological case series, and cohort studies in sick newborns, studies of novel procedures and treatments in sick newborns, studies of psychological health and/or personality in bereaved parents, NICU parents, NICU nurses and neonatologists.

Dr Kathryn Carmo-BrowningKathryn is the Deputy State Director of Newborn and paediatric Emergency Transport Service and a Senior Staff Specialist in Neonatology in the GCNIC. Her passion is delivering equitable care to rural babies and children and her research is in the haemodynamic stability of the newborn in retrieval – with a focus on improving survival and outcomes for those babies born critically unwell in rural locations.

Cathryn Crowle Cathryn is a Senior Occupational Therapist in GCNIC. Cathryn has an interest in the developmental outcomes of cardiac and surgical infants, particularly relating to the early identification of cerebral palsy. Her PhD investigates the use of the General Movements Assessment to predict neurodevelopment in infants who have undergone surgery in the neonatal period.

Alyssa FraserAlyssa has worked at the GCNIC for the past three years where she began her nursing career as a new graduate nurse. She was recently regraded as a Clinical Nurse Specialist and is currently acting as a Clinical Nurse Educator.

Claire Galea Claire is a Statistician and Research Associate at GCNIC. Claire works with specialists undertaking PhDs, Masters and research projects. Claire is responsible for the statistical design and analysis of projects ensuring that data collection, management and reporting are of the highest standard.

Priya GovindaswamyPriya is a Clinical Nurse Educator in GCNIC and she has worked in emergency and critical care for over 10 years. Priya has a Master’s degree in paediatric nursing and she is currently undertaking research for her MPhil on needs and stressors of parents in the surgical NICU. Priya is passionate about supporting learning and development within the clinical setting.

Nadine Griffiths Nadine is a Nurse Educator and Clinical Nurse Consultant at GCNIC. Nadine is interested in promoting staff development in the clinical setting by supporting the development of innovative unit-based education initiatives. She is a Newborn Individualised Developmental Care and Assessment (NIDCAP) Certified Professional; she is currently undertaking additional training to become the first NIDCAP trainer in Australasia.

Christine JorgensonChristine has worked in GCNIC for nine years as a Registered Nurse. This year she joined the research team as an audit officer, maintaining the NICUS database. She has a strong interest in supporting and participating in collaborative research projects.


Grace researchers

Caroline Karskens Caroline has been part of GCNIC for over 15 years. She is a Registered Nurse in both clinical and research areas. She continues to be involved in research projects, both medical and nursing. Maintaining the NICU’s database is her primary role.

Philippa MannPhilippa is a Registered Nurse at GCNIC and is also a PhD candidate at Western Sydney University. She is researching Australian practices and perceptions in relation to twin co-bedding in the neonatal period. She hopes to use this as a foundation to conduct a multi-centre trial investigating benefits and risks of the practice for her PhD.

Dr Bhavesh Mehta Bhavesh is a Neonatologist and Clinical Lecturer at the University of Sydney. His interest area is sleep and he is currently completing a PhD on the prevalence of sleep disordered breathing in neonates and their long-term neurodevelopmental outcomes.

Dr Himanshu Popat Himanshu is a Neonatologist and Epidemiologist. He is completing a PhD on the effect of delayed cord clamping on systemic blood flow and cerebral perfusion in preterm infants. He has a special interest in point-of-care ultrasound, cardiovascular hemodynamic, cerebral perfusion, biological signal processing and early identification of at-risk infants.

Associate Professor Kaye Spence AMKaye is a Clinical Nurse Consultant, Associate Professor (Adjunct) at Western Sydney University and a certified NIDCAP Professional. Kaye is interested in supporting nurses with research, developmental care, feeding complex neonates, pain management and translational research.

Dr Amit Trivedi Amit is the coordinator of advanced training in Neonatal and Perinatal Medicine the RACP’s Advanced Training Committee. He is also a supervisor of advanced trainees in neonatal/perinatal medicine. Dr Trivedi has a Masters in epidemiology and has much experience in research. Amit’s main research interests are around nutrition and growth.

Dr Alison Loughran-Fowlds Alison is a Senior Staff Specialist and Neonatologist in GCNIC. She was awarded her PhD in 2011 and holds a Clinical Lecturer position at the University of Sydney. She is the head of the Grace Development Clinic. Her focus of interest is following the neurodevelopmental outcomes of infants who have undergone major cardiac and general surgery, and integration of the General Movements Assessment into developmental review of surgical infants.


Publications

11. Lain S, Lawley C, Winlaw D, Walker K, Badawi N, Nassar N. Educational outcomes following cardiac procedure in the first year of life: a population-based record linkage study. Heart, Lung and Circulation. 2016;25(2):S307.

12. Maheshwari R, Tracy M, Badawi N, Hinder M. Neonatal endotracheal intubation: how to make it more baby friendly. Journal of Paediatrics and Child Health. 2016 1;52(5):480-6.

13. Mann P, Walker K, Green J. Twin-to-twin transfusion syndrome and potential applicability to the barker hypothesis. Journal of Neonatal Nursing. 2016;22(5):223-227.

14. McGillivray A, Polverino J, Badawi N, Evans N. Prospective surveillance of extreme neonatal hyperbilirubinemia in Australia. The Journal of Pediatrics. 2016 Jan 31;168:82-7.

15. McIntyre S, Blair E, Goldsmith S, Badawi N, Gibson C, Scott H, Smithers-Sheedy H. Congenital anomalies in cerebral palsy: where to from here? Developmental Medicine & Child Neurology. 2016.

16. Mehta B, Hunt R, Walker K, Badawi N. Evaluation of preoperative amplitude-integrated electroencephalography (aEEG) monitoring for predicting long-term neurodevelopmental outcome among infants undergoing major surgery in the neonatal period. Journal of Child Neurology. 2016 31(11):1276-81.

17. Mehta S, Joshi A, Bajuk B, Badawi N, McIntyre S, Lui K. Eligibility criteria for therapeutic hypothermia: from trials to clinical practice. Journal of Paediatrics and Child Health. 2016.

18. Morgan C, Crowle C, Goyen TA, Hardman C, Jackman M, Novak I, Badawi N. Sensitivity and specificity of General Movements Assessment for diagnostic accuracy of detecting cerebral palsy early in an Australian context. Journal of Paediatrics and Child Health. 2016;52(1):54-59.

19. Morgan C, Novak I, Dale RC, Guzzetta A, Badawi N. Single blind randomised controlled trial of GAME (Goals-Activity-Motor Enrichment) in infants at high risk of cerebral palsy. Research in Developmental Disabilities. 2016;55:256-67.

1. Badawi N, Keogh JM, Casey A. Privacy for neonates: ‘All the world loves a baby’. Journal of Paediatrics and Child Health. 2016;1;52(3):253-5.

2. Barr P. Psychological well-being, positive changes in outlook and mental health in parents of sick newborns. Journal of Reproductive and Infant Psychology. 2016;23:1-1.

3. Browning-Carmo K, Lutz T, Berry A, Kluckow M, Evans N. Feasibility and utility of portable ultrasound during retrieval of sick and late preterm infants. Acta Paediatrica. 2016.

4. Crowle C. Earlier diagnosis of neurodevelopmental disability can only help infants in neonatal intensive care units. Developmental Medicine and Child Neurology. 2016;58(4):361-8.

5. Diffin J, Spence K, Naranian T, Badawi N, Johnston L. Stress and distress in parents of neonates admitted to the neonatal intensive care unit for cardiac surgery. Early Human Development. 2016;103:101–107.

6. Dunne B, Brown K, Sholler G, Trivedi A, Smith G, Winlaw DS. Fatal acute appendicitis in a neonate with congenital heart disease. World Journal for Pediatric and Congenital Heart Surgery. 2016.

7. Dwyer GM, Walker K, Baur L, Badawi N. Developmental outcomes and physical activity behaviour in children post major surgery: an observational study. BMC Pediatrics. 2016;3;16(1):123.

8. Griffiths N, Spence K, Browne J. Utilizing a primary care model of nursing during a NIDCAP advanced practicum: does it make a difference? One Patient’s Experience. developmental observer. 2016;9(1):10-11.

9. Griffiths N, Spence K. Is there a place for infant massage within a developmentally supportive framework of care? developmental observer. 2016;9(1):12-13.

10. Herbert DL, Barnett AG, White R, Novak I, Badawi N. Funding for cerebral palsy research in Australia, 2000–2015: an observational study. BMJ Open. 2016;1;6(10):e012924.


Publications

20. Novak I, Walker K, Hunt R, Wallace E, Fahey M, Badawi N. Stem cell interventions for people with cerebral palsy: systematic review with meta-analysis. STEM CELLS Translational Medicine. 2016;5(8):1014-25.

21. Reid SM, Meehan E, McIntyre S, Goldsmith S, Badawi N, Reddihough DS. Temporal trends in cerebral palsy by impairment severity and birth gestation. Developmental Medicine & Child Neurology. 1 January 2016.

22. Shepherd E, Middleton P, Makrides M, McIntyre SJ, Badawi N, Crowther CA. Antenatal and intrapartum interventions for preventing cerebral palsy: an overview of Cochrane systematic reviews. The Cochrane Library. 2016.

23. Singh T, Mehta B, Trivedi A. Hypocalcemia presenting with multifocal seizure in a baby with osteopetrosis. Journal of Paediatrics and Child Health. 2016;52:246.

24. Smithers-Sheedy H, McIntyre S, Gibson C, Meehan E, Scott H, Goldsmith S, Watson L, Badawi N, Walker K, Novak I, Blair E. A special supplement: findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine & Child Neurology. 2016;181:267-271.

25. Smithers-Sheedy H, Raynes-Greenow C, Badawi N, Fernandez MA, Kesson A, McIntyre S, Leung KC, Jones CA. Congenital cytomegalovirus among children with cerebral palsy. The Journal of Pediatrics. 2016;181:267-271.

26. Spence K. Re: the effects of a one-to-one nurse-to-patient ratio on the mortality rate in neonatal intensive care: a retrospective, longitudinal, population-based study. Watson, et al. 101:3 F195-F200. Archives of Disease in Childhood. Published 4/5/2016.

27. Spence K, Griffiths N, Crowle C, Mercieca H, Kerslake G, Pettigrew J, Juarez M, Loughran-Fowlds A, Clarke S, Casey A. A developmental care strategy in a surgical NICU. Developmental Observer. 2016;9(1):16-17.

28. Spence K, Sinclair L, Morritt ML, Laing S. Knowledge and learning in speciality neonatal nursing practice. Journal of Neonatal Nursing. 2016;22(6):263-276.

29. Spence K. Historical trend in neonatal nursing – developmental care and NIDCAP. Journal of Perinatal and Neonatal Nursing. 2016;30:273-276.

30. Territory AC, Wales NS., Badawi N, Balde I, Goldsmith S, Karlsson P. Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. 2016.

31. Trivedi A, Maheshwari R, Tarnow-Mordi WO, Saxena N. Lactoferrin for the post-operative management of term neonates after gastrointestinal surgery. The Cochrane Library. 2016.

32. Trivedi A, Teo E, Chan W, Tarnow-Mordi W. Probiotics for the post-operative management of term neonates after gastrointestinal surgery (Cochrane protocol). The Cochrane Library. 2016.

33. Verrall C, Ross J, Walker K, Loughran-Fowlds A, Cole A, Sholler G, Badawi N, Winlaw D. The brain-heart axis: rates of neurological and neurodevelopmental morbidity in contemporary neonatal cardiac surgery. Heart, Lung and Circulation. 2016;25:S311.

34. Verrall C, Walker K, Loughran-Fowlds A, Troedson C, Ayer J, Egan J, Halliday R, Orr Y, Sholler G, Badawi N, Winlaw DS. Redefining the incidence and impact of acute brain injury after neonatal cardiac surgery. Circulation. 2016;134(1):A18564.

35. Walker K, Loughran-Fowlds A, Halliday R, Badawi N, Stewart J, Holland AJ. Developmental outcomes at three years of age of infants with esophageal atresia. Journal of Pediatric Surgery. 2016;51(2):249-51.

36. Jain S, Lawley C, Winlaw D, Walker K, Badawi N. Educational outcomes following cardiac procedure in the first year of life: a population-based record linkage study. Heart, Lung and Circulation 25:S307 August 2016.

37. Novak I, Thornton M, Morgan C, Karlsson P, Smithers-Sheedy H, Badawi N. Truth with hope: ethical challenges in disclosing ‘bad’ diagnostic, prognostic and intervention information. Ethics in Child Health: Principles and Cases in Neurodisability. London: MacKeith Press September 2016.


1. Badawi N. Adults with cerebral palsy. RMSANZ conference. Workshop Chair, organising committee and speaker, Melbourne, 18 October 2016.

2. Badawi N. CHD survivors in NSW – long-term outcomes. Monash Biennial Cardiovascular Symposium, Melbourne, 3 October 2016.

3. Badawi N. Early detection and early intervention. Presentation at Fundraiser for Cerebral Palsy Alliance Cypress Lakes, Hunter Valley, 19 March 2016.

4. Badawi N. MRI in the newborn. The 27th Annual Susan Ryan Neonatal Seminar, Parramatta, Sydney, 5 August 2016.

5. Badawi N. Neurodevelopmental outcomes following PDA surgery. Monash Biennial Cardiovascular Symposium, Melbourne, 4 October 2016.

6. Badawi N. Prevention and early diagnosis of cerebral palsy. Third Annual Neopaed conference, Sydney, 2 September 2016.

7. Barker A, James K, Mehta B. The impact of a nurse practitioner led Acute Review Clinic of patients discharge from the surgical NICU. The Australian College of Neonatal Nurses Annual Conference, Melbourne, 2016.

8. Barker A, James K, Mehta B. The impact of a nurse practitioner led Acute Review Clinic of patients discharged from the surgical NICU. The Children’s Hospital at Westmead Grand Rounds, Sydney.

9. Barker A. Facilitating discharge – getting a baby home on CPAP. The 27th Annual Susan Ryan Neonatal Seminar, Parramatta, Sydney, 2016.

10. Barker A. Incidence of developmental dysplasia of the hip in one surgical NICU. PSANZ, Townsville, Queensland, 2016.

11. Crowle C, Badawi N, Walker K, Novak I. Does the trajectory of General Movements improve in infants following surgery? PSANZ, Townsville, Queensland, 22-25 May 2016.

12. Crowle C, Badawi N, Walker K, Novak I. Does the trajectory of General Movements improve in infants following surgery? The 27th Annual Susan Ryan Neonatal Seminar, Parramatta, Sydney, 5 August 2016.

13. Crowle C, Badawi N, Walker K, Novak I. Does the trajectory of General Movements improve in infants following surgery? Westmead Hospital Research Symposium, Sydney, 24-26 August 2016.

14. Crowle C. Predictive value of the General Movements Assessment (GMA) in the neonatal surgical population for developmental outcomes at one year of age. Postgraduate Student Conference, Rosehill, NSW, 2016.

15. Dawson P, Lingwood BE, Elby Y, Colditz PB, Boyd RN, Badawi N, Koorts PJ, Kumar S, Flenady V, Hurrion E. Neuroprotective benefit of sulphate in the preterm infant: designing a preclinical interventional study using the preterm pig (Sulphate Pig Outcome, SpigOt study). IMPACT meeting Townsville, Queensland, May 2016.

16. Fraser A, Green J, Walker K. Maternal cocaine abuse – a literature review. The 27th Annual Susan Ryan Neonatal Seminar, Parramatta, Sydney. 2016.

17. Goldsmith S, McIntyre S, Balde I, Smithers-Sheedy H, Karlsson P, Novak I, Badawi N (2016). A decade of the New South Wales Cerebral Palsy Register [Poster]. AusACPDM Conference, Adelaide, March/April 2016. Developmental Medicine & Child Neurology 58 (Supplement 3): 60.

18. Goldsmith S, McIntyre S, Balde I, Smithers-Sheedy H, Novak I, Badawi N (2016). Spastic hemiplegia in New South Wales: motor severity and associated impairments [Presentation]. AusACPDM Conference, Adelaide, March/April 2016. Developmental Medicine & Child Neurology 58 (Supplement 3): 48.

National oral and poster presentations


19. Hobson D, Spence K, Trivedi A, Thomas G. A national survey of feeding practices of infants with gastroschisis: time for consistency. 20th Annual Congress of the Perinatal Society of Australia and New Zealand, Townsville, Queensland, 2016.

20. Kinross D, Spence K, Sinclair L for the NSW Clinical Nurse Consultant Network. Breastfeeding outcomes and support across NICU’s in NSW. 20th Annual Congress of the Perinatal Society of Australia and New Zealand, Townsville, Queensland, 2016.

21. McIntyre S, Smithers-Sheedy H, Blair E, Reid S, Goldsmith S, Paget S, Badawi N, Epps A. The Australian Cerebral Palsy Register: new findings and emerging controversies [Workshop]. AusACPDM Conference, Adelaide, March/April 2016.

22. Minter K, Spence K. Challenges of caring for the small surgical patient. 20th Annual Congress of the Perinatal Society of Australia and New Zealand, Townsville, Queensland.

23. Morgan C, Novak I, Dale, R, Guzzetta A. Badawi N. GAME. Results of a single blind randomized controlled trial. Australasian Cerebral Palsy Developmental Conference, Adelaide, March/April 2016.

24. Novak I, Walker K, Hunt R, Fahey M, Wallace E, Badawi N. Stem cell interventions in cerebral palsy. Australasian Cerebral Palsy Developmental Conference, Adelaide, March/April 2016.

25. Reid S, Meehan E, McIntyre S, Goldsmith S, Badawi N, Reddihough D (2016). Gestation-specific trends in cerebral palsy prevalence and impairment severity in Victoria, Australia, 1983-2009 [Presentation]. AusACPDM Conference, March/ April 2016, Adelaide. Developmental Medicine & Child Neurology 58 (Supplement 3): 32.

26. Spence K. Antenatal Bookings for a Children’s Hospital: trends and pathways. The 27th Susan Ryan Neonatal Seminar, Parramatta, Sydney, 2016.

27. Spence K. Challenges of caring for the small surgical patient. PSANZ, Townsville, Queensland, 2016.

28. Verrall C, Loughran-Fowlds A, Walker K, Sholler G, Cole A, Ross J, Badawi N, Winlaw D. The brain-heart axis: rates of neurological and neurodevelopmental morbidity in contemporary neonatal cardiac surgery. CSANZ Adelaide, 4-7 August 2016.

29. Walker K, McIntyre S, Morgan C, Fahey M, Novak I, Badawi N. Advances in Research into Cerebral Palsy Breakfast Session. Australasian Cerebral Palsy Developmental Conference, Adelaide, March/April 2016.

National oral and poster presentations



International oral and poster presentations

10. Loughran-Fowlds A, Ilhan E, Halliday R, Badawi N, Holland A, Walker K. Developmental Outcomes Following Surgery for Small Bowel Atresia. Pacific Asian Paediatric Society, Hawaii, USA, April 2016.

11. Malhotra K, Krishnan U, Holland A, Bajuk B, Badawi N, Oei J, Bolisetty S. Admissions and outcomes of infants with oesophageal atresia/trachea-oesophageal fistula in NSW and the ACT from 1992 TO 2010. 4th Oesophageal atresia conference, Sydney, Australia, September 2016.

12. Morgan C, Novak I, Badawi N. Improving motor outcomes in infants at high risk of cerebral palsy. GAME, a randomised controlled trial. International Conference on Cerebral Palsy and other Childhood-onset Disabilities, Stockholm, June 2016.

13. Novak I, McNamara L, Badawi N, Morgan C, Fahey M, Boyd RN, Bosanquet M, Jardine L. Knowledge Translation Project – International Clinical Practice guidelines on Early Detection and Diagnosis of infants at High-risk of Cerebral Palsy and Cerebral Palsy Early Years Conference, Cairns, August 2016.

14. Novak I, K Walker, R Hunt, E Wallace, M Fahey, N Badawi. Stem cell interventions for people with cerebral palsy: systematic review with meta-analysis. International Society of Stem Cell Research, San Francisco, USA, 2016.

15. Spence K, Lawhon G, Lubbe W, Fernandez Dias P. Developmental care: a global perspective. 27th Annual NIDCAP Trainers Meeting, Bologna, Italy, 2016.

16. Spence K, Lawhon G, Lubbe W. Developmental care: how are we doing globally. 9th International Neonatal Nursing Conference, Vancouver, Canada, 2016.

17. Tyberkhan J, Nyapilo A, Browne J, Spence K, Griffiths N. Distance learning for APIB training. 27th Annual NIDCAP Trainers Meeting, Bologna, Italy, 2016.

18. Tyebkhan J, Nyapilo A, Spence K, Browne J, Griffiths N. Online technology augments NIDCAP and APIB training. 27th Annual NIDCAP Trainers Meeting, Bologna, Italy, 2016.

19. Walker K, Badawi N. Organising Committee Neonatal Stroke Summit, Los Angeles, USA, February 2016.

20. Walker K, Badawi N. Organising Committee Neonatal Stroke Summit, Los Angeles, USA, February 2016.

21. Walker K. Oesophageal Atresia developmental outcome’s – NSW experience. International 4th Oesophageal Atresia Conference, Sydney, Australia, September 2016.

22. Walker K. Global challenges in Disability. Council of International Neonatal Nurses, Vancouver, Canada, 2016.

1. Akhter R, Hassan N, Martin F, Muhit M, Rahman R, Smithers-Sheedy H, Jones C, Badawi N, Khandaker G. Factors affecting dental caries among bangladeshi children with cerebral palsy. 94th General Session and Exhibition of the IADR, Seoul, Republic of Korea, June 2016.

2. Badawi N. From destitution to hope. Presentation at United Nations for UN Women and the Foundation for Gender Equality, New York, May 2016.

3. Crowle C, Badawi N, Walker K, Novak I. The trajectory of general movements in infants following surgery in the neonatal period. International Conference on Cerebral Palsy and other Childhood-onset Disabilities, Stockholm, June 2016.

4. Griffiths N. The changing focus of an interdisciplinary developmental round to support neonates, families and staff in a surgical neonatal intensive care unit (NICU). 27th Annual NIDCAP Trainers Meeting, Bologna, Italy, 2016.

5. Jani P, Tracy M, Hinder M, Badawi N. Regional vascular tissue oxygenation and perfusion changes in relation to umbilical artery vascular insertion in neonates. Paediatric Academic Society, Baltimore, USA, 2016.

6. Walker K, Novak I, Hunt R, Wallace E, Fahey M, Badawi N. Stem cell interventions for people with cerebral palsy: what does the literature say? Council of International Neonatal Nurses conference, Vancouver, Canada, August 2016.

7. Kasparian N, Nielson-Jones C, Glover V, Swinsburg D, Walker K, Badawi N, Austin M, Barnett B, Grant K, Kirk E, Winlaw D, and Sholler G. Early life experiences of infants with heart disease and their parents: psychobiological pathways of influence and for intervention. International Marce Society for Perinatal Mental Health Biennial Scientific Conference, Melbourne, September 2016.

8. Kasparian N, Nielson-Jones C, Glover V, Swinsburg D, Walker K, Badawi N, Austin M, Barnett B, Grant K, Kirk E, Winlaw D and Sholler G. Psychobiological outcomes in parents and their infants after fetal or postnatal diagnosis of complex congenital heart disease. International Congress of Behavioural Medicine, Melbourne, December 2016.

9. Khandaker G, Smithers-Sheedy H, Novak I, Jones C, Badawi N, Muhit M. Bangladesh Cerebral Palsy Register (BCPR): developing a cerebral palsy register and surveillance of children with CP in a low- and middle-income country International Conference on Cerebral Palsy and other Childhood-onset Disabilities, Stockholm, June 2016.


Research supporters and collaborations

The Fellowship provides an opportunity for a clinical neonatal nurse to learn about research by undertaking a study with supervision. It is hoped that the experience will aid in the translation of research to practice.

Donna undertook a national survey of feeding practices of infants with gastroschisis with over 200 professionals including neonatologists, surgeons and experienced nurses working in surgical neonatal units in Australia and New Zealand. In addition a retrospective audit was conducted of feeding practices of infants admitted to GCNIC. Her research has resulted in the development of a feeding protocol for these infants. The protocol is being implemented for infants admitted with gastroschisis.

Clinical Neonatal Nursing Fellowship - Donna Hobson, Registered Nurse


Development After Infant Surgery (DAISy8)The DAISy8 study is following up the children at eight to nine years of age who were previously seen at one and three years as part of the DAISy study. We are looking at the longer term developmental and educational outcomes of eight to nine year olds who have had neonatal cardiac or non-cardiac surgery when they are compared to children who have not had early major surgery. The study is assessing the children’s cognition, language, attention, behaviour and movement skills.

General Movements After Infant and Neonatal Surgery (GAINS)The General Movements Assessment (GMA) is a validated and reliable method of identifying infants at risk of neurodevelopmental disability, including cerebral palsy, with the aim of intervening early and improving outcomes. However, minimal data exists on the use of the GMA among infants who have undergone surgery in the neonatal period. The aim of this research is to investigate the use of the GMs assessment with infants following either cardiac or non-cardiac surgery, for the prediction of neurodevelopment at 12 months of age.

Sleep Disordered Breathing (SDB)SDB in neonates and their long-term neurodevelopmental outcome at three years of age. Evidence suggests that SDB is related to poor neurocognitive outcomes in children. The study looks at the prevalence of sleep-breathing problems in infants, in a cohort that had SDB as a neonate. The study involves assessing the child developmentally using Bayley Scales of Infant Development III, facial photography and conducting a sleep study.

Congenital Heart disease and Early support for family and Infant pSychological Health (CHERISH)CHERISH is a prospective cohort study investigating the prevalence, course and correlates of psychological morbidity in mothers and fathers following fetal or postnatal diagnosis of complex CHD, compared to healthy controls. It will also investigate the association between parental stress during pregnancy and later infant outcomes, family outcomes and economic costs.

Predicting and Preventing Leukaemia in children with Down syndrome (PreP21)Children with Down syndrome have a higher risk of developing childhood leukaemia compared to other children of the same age. Evidence is limited in this area, by routinely collecting blood samples of participants and testing for blood cancer cells we hope to develop a test that will in the future help predict which children with Down syndrome are more at risk of developing leukaemia.

Continuing studies


“I remember there was one patient who we didnt think would survive. His family brought him in just after he turned one and I burst into tears. I remember thinking, this is why I am here every day. It is incredibly rewarding to be allowed to be a part of a family’s journey and I am very grateful for that.” Professor Nadia Badawi

In 2017 Grace Centre for Newborn Intensive Care will launch the department’s strategic plan and continue to:

• Start new research projects

• Establish new collaborations

• Publish and present our research

• Support our postgraduate students

• Translate our research into clinical practice.


GRC4288/0617

Documents

Page 2 l Grace Centre for Newborn Intensive Care 2016 ...€¦ · Page 6 l Grace Centre for Newborn Intensive Care 2016 Annual Research Report Heads of department Associate Professor