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JULY 2016
6370 LBJ Freeway
Suite 170
Dallas, TX 75240
(972) 620-7600
www.daps.us
july entertainer bio 2
health topic: dyskinesia 3
donations to non-event 4
non-event update 4
memorials, honors, donations 5
executive director’s message 6
special notices 6
group schedules 7
calendar of events 8
Beyond Homecare continues on page 3
Beyond Homecare:
Advocacy and Entertainment for Patients and Caregivers
As Community Outreach Manager for Cerna Home Care, Tim Powell is both
an advocate and an entertainer. “I’ve got a very eclectic background. I worked
as an ordained minister for 18 years in Oklahoma. I’ve been able to work with
seniors, and I’ve also been able to sing.”
Mr. Powell loves to share his musical talents with the people he’s passionate
about. “All of us can make a joyful noise,” he said. But first, he wanted to point
out a few facts about home care. “Home care and home health are not the
same things,” he said.
Home care is non-medical care given by unskilled providers, often called
“nurse aids”. He or she may assist with activities of daily living such as
dressing, eating, toileting, laundry, housekeeping, meal preparation,
transportation, or companionship. Their shift may be as short as four hours
or as long as 24 hours. Typically, home care is private pay because it isn’t
covered by Medicare or insurance and can cost from $18 to $24 per hour.
On the other hand, home health care is clinical medical care provided by a
registered nurse, occupational therapist, physical therapist, or other skilled
medical professional. Services provided may include skilled nursing,
administration of medicines, injections, medical tests, monitoring of health
status, or wound care. Doctors may prescribe home health services following
an inpatient hospitalization or a stay at a skilled nursing facility so that the
patient can more easily transition back to independence. Insurance, Medicare,
and Medicaid cover home health care when it is prescribed by a doctor.
Combining home health and home care gives patients the best possible care.
The home health staff can address clinical and rehabilitative needs while the
home care aide can help with personal activities and household chores during
recovery from a hospital stay.
“If you decide that home care is something you might consider, it doesn’t cost
anything to have someone come out to talk with you about it,” he offered.
by Margaret B. Schroeder
JULY
JUBILEE!
Come celebrate the birthday of
Clarice Dougherty, founder of DAPS.
entertainment:
Dave Tanner
presents
America’s Patriotic Melodies: The Stories Behind The Songs
Texas barbecue will be provided by Back Country Bar-B-Q, courtesy of
Warm Springs Rehabilitation Hospital of Allen. Please bring your favorite
salad, vegetable or dessert to share.
The luncheon is FREE to attend, but reservations are required by
Friday, July 8 at 3pm. RSVP by calling 972-620-7600 or
online at www.daps.us.
Monday, July 11, 2016
12:30 p.m. (Please note the earlier time.)
University Park
United Methodist Church
4024 Caruth Blvd (at Preston)
Dallas, TX 75225
See page 2 for bio.
INSIDE
PAGE 2 · DAPS · JULY 2016
Board of Directors
Chad Swank, Ph.D., President
Barbara Glass, Vice President
Cindy Weatherall, Advisory Council Liaison
Diana Winkelmann, Treasurer
Chris Clausen
Liza Farrow-Gillespie, J.D.
Bentley Foster
Ann Heidger
Mary Ellen Malone
Chick Martin
Heather Stevens
Jim Struble
Greg Wood
Dedicated to impacting and improving
the lives of those affected by
Parkinson’s disease
Medical Advisory Board
Shilpa Chitnis, MD, Ph.D.
Richard B. Dewey, Jr., M.D.
Richard L. Fulbright, Ph.D.
thDwight C. German, Ph.D.
R. Malcolm Stewart, M.D.
Gary L. Tunell, M.D.
Newsletter
Jill Dominguez, Editor
The DAPS newsletter is published monthly as an
information guide only, and does not serve as legal or
medical advice. We welcome your feedback,
contributions or requests. Please send to or contact:
Jill Dominguez
Phone: 972-620-7600
www.daps.us · facebook.com/daps.us
Submissions must be received by the 1st of the month
preceding publication date and are subject to editing.
Advisory Council
Sarah Atwood
Dusty Berry
Jean Blomquist
Ben Casey
Carlie Dorshaw-Moe
Shirley Hand
Charlene Noe
Sandi Pautler
Joyce Susman
Barbara Taylor
Executive Director
Mike Miles
July Entertainer Bio:
Dave Tanner
Dave Tanner is a native of
Gainesville, TX and a 5th-generation
Texan. He has been a full-time
entertainer for 45 years. In that time,
he has performed for three US
presidents, six Texas governors, and
European royalty.
Dave has been in over 300 radio and
television commercials. Children
know him as “Farmer Dooley” from
Barney the Dinosaur. He has also
acted in eight films, including the
Oscar-winning The Trip to Bountiful.
Join us at the July Jubilee as Dave
shares a treasury of heart-stirring
patriotic songs and tells of the
courageous, humorous, and even
incredible stories behind their
composing. From Yankee Doodle to
God Bless America, with many stops
in between, you’ll get to know the
composers and their times, while discovering the common thread that unites
these wonderful tunes: “American” ends in “I can.”
You can learn more about Dave at DaveTannerMusic.com.
At the General Membership Meeting
each month, snacks are donated by
various businesses in the DFW
healthcare community.
DAPS would like to thank
Warm Springs Rehabilitation Hospital
for providing snacks in May
and
Windsor Senior Living
for providing snacks in June.
JULY 2016 · DAPS · PAGE 3
Beyond Homecare continued from front page
Some of the questions to ask when caregivers and PWPs
(People with Parkinson’s) are interviewing a home care
service include:
What is it that uniquely qualifies your agency to care
for our PWP?
Can you provide cognitive care for Parkinson’s
disease (PD)?
Are the home care staff members compatible with
the PWP?
What kind of vibe do we get from this agency?
Do we get a warm and fuzzy feeling after meeting
the care team?
And the most important question of all is, does this agency
really believe in being an advocate for our PWP?
On the lighter side, Mr. Powell had a few trivia questions.
Q: Is it possible to lick your elbow?
A: No, but it’s always possible to lick your neighbor’s
elbow.
Q: Back in the old days of cars, where was the dimmer
switch located?
A: On the floorboard to the left of the steering column.
Q: During WWII, what did women do to look like they
were wearing stockings?
A: They drew a line down the backs of their legs using a
combination of charcoal and butter to look like seams.
Q: What 1969 Frank Sinatra song was associated with
the NASA flight to the moon?
A: Fly Me to the Moon
This launched Mr. Powell into a wonderful few lines of
Sinatra. His version of The Voice was a perfect reminder of
how great those years were.
Q: Who debuted on The Ed Sullivan Show but was only
filmed from the waist up because of his suggestive
dance moves?
A: Elvis Presley
Mr. Powell said he once met a woman who was in the
audience the night of that show. At that, he broke out into
Peace in the Valley while DAPS members sang along.
Powell’s velvety voice did not disappoint.
Q: In the opening scene of the musical Oklahoma, what
song was sung by Curly, played by Gordon MacRae?
A: Mr. Powell sang the answer: “Oh, What a Beautiful
Morning, oh what a beautiful day…”
“It’s all about perspective,” said Powell. It will be a beautiful
day if you focus on the good things in your life.
DAPS would like to thank Mr. Powell for sharing his insight
and his wonderful talent with us at the June meeting.
More information about Cerna Home Care can be found at
http://cernahomecare.com/dallas.
Dyskinesia is a difficulty or distortion in
performing voluntary movements, which
often occurs as a side effect of long-term
therapy with levodopa. But it can also result
from prolonged use of certain antipsychotics.
Dyskinetic movements look like smooth tics
and sometimes like an uncoordinated dance.
People who experience dyskinesia
sometimes mask the involuntary movement with finalistic
movements (if the arm starts moving on its own, they
might bring it to their head and adjust their hair, as if it
was planned). Regretfully, we don’t yet have a specific
therapy for dyskinesia. It normally improves with a
reduction or redistribution of levodopa therapy, but this
also is typically followed by an increase in rigidity or
tremors, so it is hardly a solution.
Unfortunately, today there is no good solution to actively
control dyskinesia. An important step is to actively adjust
your medications for maximum medical benefit with minimal
side effect; this is one of the reasons it’s so important to see
a movement disorders specialist, who will have specific
expertise in this area. Sometimes minimum adjustment in
dosage and frequency can improve motor fluctuation,
including dyskinesia. Dyskinesia can worsen under stress
(especially psychological stress), so reducing environmental
stressors is important. Obviously, different people reduce
stress in different ways. For some, it’s a yoga class, talk
therapy, lighting an aromatherapy candle; for others it’s
skydiving. What matters is figuring out what works for you,
and then working plenty of it into your routine.
Health Topic:
WHAT IS DYSKINESIA?
HOW CAN I CONTROL MY
DYSKINESIA?
Printed with permission from the Michael J Fox Foundation
https://www.michaeljfox.org/understanding-parkinsons/living-with-pd/topic.php?dyskinesia
More on the topic at: https://www.michaeljfox.org/foundation/news.html?tagid=196
PAGE 4 · DAPS · JULY 2016
Donations to Eighth Annual Non-Event
“Tour Yellowstone National Park”
Lion Geyser
Joyce & Larry Lacerte
Pam Michel
In honor of the friends I’ve made at DAPS
Mike Miles
In memory of Kenneth Boren
Mike & Donna Miles
In memory of Kevin Miles
In memory of Jim Harned
In memory of Leona Odom
Lone Star Geyser
Jean Blomquist
In memory of Ken Casaday
Jacqueline Brummel
In memory of Lee Brummel
Richard Doelling
Raul & Jill Dominguez
In memory of James M. (Jim) Harned
J. Robert Dyche
Jacob Goldfinger
Barbara & Dwayne Grooms
In memory of Kevin Miles
Matthew Haltom
Lee & Suzanne Hassell
Charles Jordan
Mary Ellen Malone
Brenda Merriman
Sandi Pautler
Ryan Phillips
Eddie & LaTrelle Power
In honor of Gene & Donna Burson
Zane & Angie Smith
In memory of Kevin Miles
Cody Trepte
In honor of Dale Trepte
Greg Wood
In memory of James O. Wood
Old Faithful
Eugene & Kelley Atwood
In memory of Mr. Gary Atwood
Les Barger
In honor of Lori White
Scottie Broyles
Shelley Broyles
Felix & Shelia Isaac
Laurie & Chris Jackson
Marsha Kreitman
In memory of Jacob Kreitman
Marla Moss
Lacy & Kelsey Noren and Shelby & Rendon Barlow
In memory of Gary Atwood (Father, Paw Paw)
Brian, Carrie & Casey Sadler
In memory of Joe Hickman
Brian Sartain
Holly Scott
In honor of Mike Miles
Dennis & Gloria Verbeek
The following are donations received in May.
Donations received prior to May were listed in the
May & June newsletters.
Non-Event Update
We officially called the end of the DAPS 8th Annual Non-Event Fundraiser at the end of the day on May 31st. As of
that day, we had raised $45,472 toward our very challenging Vista goal of $60,000. Since then, we have received
additional Non-Event donations totaling $1,947.00. This brings the current total to $47,419. Although we have not yet
reached the Vista, we can be proud and celebrate the funds that have been raised. To all who gave, thank you for
your support and your generosity. Your gifts will go a long way toward funding the many wonderful programs that
DAPS provides to the Parkinson’s community. Some have not yet sent in their Non-Event donations, and we are
expecting some corporate matching funds, so we could still reach the Vista and beyond!
Thank you to all who participated in our
“Tour Yellowstone National Park” Non-Event Fundraiser!
JULY 2016 · DAPS · PAGE 5
Ian Andersen
Dusty Berry
Edna Buentipo
Jill Dominguez
Raul Dominguez
Bentley Foster
Liza Farrow-Gillespie
Barbara Glass
Ann Heidger
Pam & Matt Michel
Mike Miles
Donna Miles
Sandi Pautler
Jackie Reis
Debora Schoene
Holly Scott
Joyce Susman
Cindy Weatherall
Diana Winkelmann
Greg Wood
MEMORIALS · HONORS · DONATIONS
MAY 2016
In memory of James M. (Jim) Harned
From: Appraisal Institute, North Texas Chapter
Jack Larkin
Lucy Martin
Kenneth Mighell
Bobby Peterson Family
Jan Scurlock Sanders
Randy Smith
Carol Baker
Jackie Hickman
Jane Slover
In memory of Madelyn & Morris Wolfe
From: Sharon & Stephen Blend
In memory of Ken Boren
From: Richard & Rita Doelling
Brenda & Billy Merriman
In memory of Barbara Matthews
From: Tina & Leonard Epstein
In memory of Byron E. Gammage
From: Ron & Shelley Gammage
In memory of Mary John Weeks
From: Rosalie Oliver, NB Class of 1962
Doyle & Camellia Wheeler
In memory of Ira Ann Lowe
From: Bernice Varner
In memory of Noel Gossett
From: Lyn Moore
In honor of Tony Valdez
From: Tina & Leonard Epstein
In honor of the special birthday of Nancy Andersen
From: Joyce Susman, Jeff & Monica, and Amy & Marc
In honor of the special birthday of Jean Blomquist
From: Joyce Susman
Donation to DAPS
From: Anonymous Individuals at May General Meeting
Lashanda Dixson, in recognition of
Ms. Jessie Hearn (mother)
Deanna Moody, in recognition of
Rita Moody (mother)
The Talbots, Inc.
DAPS at Custer Road (Plano)
DAPS at Lakeside (Dallas)
DAPS at Preston Hollow (Dallas)
DAPS at Trinity (Duncanville)
Conservatory at Keller Fundraiser:
Anonymous Individuals
Celia Fancher
Deanna R. Harvey
Elizabeth Spindel
Evelyn J. Wheeler
Janice Boyd
Lynn C. Cundiff
GEMs are donors who Give Every Month.
Our GEMs are very valuable!
Sign up on the DAPS website.
1 exercise class session
2 speech therapy class sessions
12 Dance for Movement Disorders Classes
12 care partner support group sessions
12 General Membership Meeting room rental fees
$5.00
$15.00
$25.00
$50.00
$100.00
...will provide for this each year:
Your monthly
donation
of this amount...
PAGE 6 · DAPS · OCTOBER 2014 PAGE 6 · DAPS · JULY 2016
Guilty as Charged
The “guilty parties” will know who they are if they should
read this. I had a delightful and very encouraging breakfast
meeting recently with three gentlemen who, in my opinion,
are among the movers and shakers in the Parkinson’s
community. It occurs to me that “movers and shakers” is
an odd phrase, especially to find its way into the DAPS
newsletter. But, it is the phrase that always comes to mind
when I consider those men and women who are not simply
sitting on the sidelines, but have come down from the
stands and onto the field to make things happen.
The gentlemen at this meeting were all a few years older
than I am. With that said, the energy, wisdom, and
commitment around that breakfast table was inspiring and
contagious. They had no way of knowing (and hopefully I
covered it well), but it was a day when I needed to catch
what they had or get an infusion of whatever it was that
they were on. And they, perhaps unknowingly, rose to the
occasion. I left re-energized and excited.
I wonder how often you and I have unknowingly been the
“infusion” that someone else needed. I suspect that we all
have found ourselves on both sides of that fence.
So, with this LifeLine I want to remind you and myself that
we never know when others are watching and that our
attitude really can be contagious. I can tell you that the
only thing that I have ever “caught” when attending one of
our DAPS groups is a case of excitement and rejuvenation.
I’ve never been written a prescription for that, and of
course that doesn’t come in a pill. Nonetheless, there are
occasions when it is the very thing that we all need most.
You are all quite good at encouraging one another and
it is contagious.
The jury is in and you are all guilty as charged! The
sentence: Keep up the good work!
Kindest Regards,
A message from Mike Miles
Executive Director
DAPS has partnered with Cariloop,
a company that provides
comprehensive services and tools
to help families plan for and manage the care of loved
ones. Each member is assigned a designated healthcare
coach and an online portal to help families navigate the
complicated healthcare maze. DAPS members will
receive a 67% discount off the annual price of Cariloop.
For more information, call 972-325-5836 so your family
doesn't go through the journey of Parkinson’s alone.
Please
mark
your
calendar...
Dance for PD® at Finley Ewing CVC:
NO CLASSES JULY 8 - AUGUST 8.
Classes resume on Tuesday, August 9.
Dance for PD® in Duncanville and Plano:
NO CLASSES JULY 4 - AUGUST 8.
Classes resume on Monday, August 15.
DAPS’ NO-CHARGE
exercise · speech therapy · support groups
JULY 2016 · DAPS · PAGE 7
THPHD GROUPS & CLASSES
The Movement Disorders Education and Resource Center
at Texas Health Presbyterian Hospital Dallas (THPHD)
at 8200 Walnut Hill Lane, Dallas, TX 75231 offers the following for free:
PD Patient Support Group Care Partner Support Group
3rd Thursday each month at 6 pm 4th Monday each month at 1 pm
Essential Tremor Support Group Atypical Parkinson’s Support Group
2nd Wednesday of odd months at 1 pm (PSP/MSA/CBD)
3rd Saturday each month at 10 am
For more information or to RSVP, please contact Kathryn MacDonell at
214-345-4224 or [email protected].
CARROLLTON:
Nor’kirk Presbyterian
3915 N. Josey Lane (972-492-1578)
Group Exercise:
Wednesday...10:00 to 11:00 am
Speech Therapy:
Wednesday…11:15 am to 12:00 pm
DALLAS:
Finley Ewing Cardiovascular &
Fitness Center, Studio 3
5721 Phoenix Drive (214-345-7074)
NO CLASSES JULY 8 - AUG 8
Dance for Movement Disorders:
Tuesday…2:00 to 3:15 pm
Thursday...2:00 to 3:15 pm
1st Saturday...11:00 am to 12:15 pm
Lakeside Baptist Church
9150 Garland Rd. (214-324-1425)
Group Exercise:
Wednesday...9:30 to 10:30 am
Speech Therapy:
Wednesday...10:30 to 11:15 am
Partners-in-Care Group:
Wednesday...10:15 to 11:15 am
Preston Hollow United Methodist
Church
6315 Walnut Hill Lane (214-363-4393)
Speech Therapy:
Tuesday...11:30 am to 12:30 pm
Group Exercise:
Tuesday...10:30 to 11:30 am
Thursday...10:30 to 11:30 am
DUNCANVILLE:
Trinity United Methodist Church
1302 S. Clark Rd. (972-296-2155)
Speech Therapy:
Thursday...1:00 to 1:45 pm
Group Exercise:
Monday...3:30 to 4:30 pm
No class last Monday of the month
Thursday...2:00 to 3:00 pm
Support Meeting:
Last Monday...6:30 to 8:00 pm
Partners-in-Care Group:
3rd Thursday...1:00 to 2:00 pm
Dance for PD®:
NO CLASSES JULY 4 - AUG 8
Monday...1:30 to 2:30 pm
No class last Monday of the month
GARLAND:
South Garland Baptist Church
1330 E. Centerville Rd. (972-271-5428)
Group Speech:
1st & 3rd Monday… 9:30 to 10:15 am
Thursday… 9:30 to 10:15 am
Group Exercise:
Monday...10:30 to 11:30 am
Thursday...10:30 to 11:30 am
Discussion Group:
Monday...9:30 to 10:30 am
Partners-in-Care Group:
Thursday...10:30 to 11:30 am
IRVING:
MacArthur Hills Sr. Living
1295 Kinwest Pkwy. (469-251-4349)
Group Exercise:
Tuesday...10:00 to 11:00 am
Friday...10:00 to 11:00 am
MESQUITE:
Mesquite Rehabilitation Institute
1023 North Belt Line Rd.
(972-216-2400)
Speech Therapy: Tuesday...9:30 to 10:00 am
Group Exercise:
Tuesday...10:00 to 11:00 am
PLANO:
Custer Road United Methodist
Church
6601 Custer Road (972-618-3450)
Speech Therapy:
Thursday...11:00 to 11:45 am
Group Exercise:
Monday...9:45 to 10:45 am
Thursday...9:45 to 10:45 am
Partners-in-Care Group:
Monday...9:45 to 10:45 am
Dance for PD®:
NO CLASSES JULY 4 - AUG 8
Monday...11:00 am to 12:00 pm
RICHARDSON:
Arapaho United Methodist Church
1400 W. Arapaho Rd. (972-231-1005)
Group Exercise:
Tuesday...10:00 to 11:00 am
Friday...10:00 to 11:00 am
NON-CONTACT BOXING
FOR PARKINSON’S DISEASE
Title Boxing Club of Allen
300 N. Greenville Ave.
214-644-2640
allen-greenville.titleboxingclub.com
Tuesday/Thursday..10:30 to 11:30 am
Wednesday...8:15 to 9:15 pm
Saturday...10:15 to 11:15 am
DAPS has partnered with
Title Boxing of Allen to obtain
reduced rates. Learn more about the
program at FreeMotionPD.com.
Contact the class trainer, Heidi
Weimer, with any questions
regarding schedules or rates.
Non-Profit
Organization
U.S. POSTAGE
PAID
Dallas, TX
Permit No. 3255
RETURN SERVICE
REQUESTED
Dallas Area Parkinsonism Society
6370 LBJ Freeway, Suite 170
Dallas, Texas 75240
(972) 620-7600
All General Membership and Board Meetings are held at University
Park United Methodist Church, 4024 Caruth Blvd., Dallas, TX 75225.
For more information, call 972-620-7600.
DAPS McKinney meets on the 3rd Tuesday of every month at
St. Gabriel the Archangel Church, 110 St. Gabriel Way, McKinney,
TX 75070. Email [email protected] for more information.
MARK YOUR CALENDAR
disclaimer: The contents or opinions expressed in this Newsletter are those of the individual writers or presenters and do not constitute an endorsement or approval by DAPS staff. Please consult your personal physician regarding your individual medical problems.
For change of address or corrections, please indicate the changes on this page and mail it to DAPS, or email: [email protected]
daps july jubilee
Monday, July 11 - 12:30 p.m.
Celebrate the birthday of DAPS’ founder, Clarice
Dougherty, with patriotic entertainment by Dave Tanner.
open board meeting
Monday, July 25* - 1:00 p.m. (*Note 4th Monday)
august:
NO GENERAL MEMBERSHIP MEETING
september annual kickoff
Monday, September 12 - 1:00 p.m.
daps mckinney
NO MEETING IN JULY OR AUGUST
next meeting in mckinney
Tuesday, September 20 - 10:00 a.m.
Topic: TBA
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