Idasa – Governance and AIDS Programme

Human Rights and Democratisation

Jacqueline Nzisabira

Understanding AIDS-Induced Exclusion and its potential impact on Leadership

Presentation outline Introduction

• Background • Rationale

Unpacking the concepts Current Objectives Future objectives Conclusion

Introduction

Background Relevance of human right in the mission and vision of Idasa and GAP Evidence of exclusion from participation in previous research

Introduction

Rationale Conditions for a healthy democracy Data linking Human Rights, Democratisation and HIV & AIDS is scarce.Stigma and discrimination do prevent people from overall participation

Exploring the Concepts

Stigma and discrimination Exclusion Resilience

Exploring the Concepts

Exclusion

Stigma

Violation or observation of Human rights

Discrimination

Current Objectives

Current research objectives

Current research proposal

Advocacy and policy implications

EVIDENCE FROM CONSTITUTIONAL/POLICY/LEGAL FRAMWEWORK

POLITICAL PARTICIPATION/EXCLUSION

SOCIO/ECONOMIC PARTICIPATION/EXCLUSION

HIV and AIDS VULNERABILITY/RESILIENCE

POLITICAL PARTICIPATION/EXCLUSION

SOCIO/ECONOMIC PARTICIPATION/EXCLUSION

2nd level of analysis

1st level of analysis

EVIDENCE FROM THE PRIMARY DATA COLLECTION

CONCEPTUAL FRAMEWORK

Linking Governance, HIV and AIDS and Exclusion/participation: a framework

OBJECTIVES OF THE RESEARCH The major objective of this project is to gather

empirical evidence on HIV and AIDS - induced exclusion for the aim of promoting participation of PLHIV. This will mean the following thematic areas:

1. Policy and legislation

Explore the extent to which stigma and discrimination related to HIV and AIDS has contributed to exclusion.

Describing the impact of the constitutional, policy and legal frameworks on Human Rights.

Document Resilience avenues

2. HIV and AIDS related participation/exclusion In what ways are PLHIV excluded from political

life? In what ways are HIV and AIDS infected and

affected citizens are excluded from social-economic life?

In what ways has the advent of Antiretroviral Therapy (ART) influenced attitudes toward inclusion/exclusion of PLHIV?

OBJECTIVES OF THE RESEARCH

3. Mitigation measures/resilience avenues

What measures are taken by the infected, affected, the state and non-stale actors in mitigating stigma and discriminations based on ones HIV status (resilience avenues).

OBJECTIVES OF THE RESEARCH

Beyond theory

Empirical cases (SA): ultimate right violation: G Dlamini story, Mpho’s story

Social rights violation: Nkosi’s story Workplace exclusion stories Exclusion from families and

communities

INDICATORS OF EXCLUSION

POLITICAL INDICATORS Participation in electoral process Representation in political process Participation in political process.

ECONOMIC INDICATORS OF EXCLUSION Labour market; Ownership of the means of production; Property ownership; Insurance and other Financial Services; and Other goods e.g. food.

Social Exclusion: Education Health Reproductive and family life Traditional land

INDICATORS OF EXCLUSION

Research Partner Organizations COUNTRY PARTNER

COUNTRY PARTNER Institution

1. Burundi IDEC

2. Cameroon ASSEJA

3. Ghana CEDEP

4. Uganda MISR

5. Mali CEDREF

CONCLUSION Future Objectives

Specific vulnerability related to children infected by HIV

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