Frederica CASSISFrederica CASSISPsychologist-Junguian Psychologist-Junguian

PsychotherapistPsychotherapistMaster Degree in Communication and Master Degree in Communication and

SemioticsSemiotics

Ambulatory of HemophiliaAmbulatory of Hemophilia

Department of Hematology ofDepartment of Hematology of

Hospital das Clínicas, SP, BrazilHospital das Clínicas, SP, Brazil

PARTICIPATION IN PARTICIPATION IN SPORTSSPORTS::

A GRADUAL DISCOVERYA GRADUAL DISCOVERY

BODY + MIND: AN ORGANISMBODY + MIND: AN ORGANISM

PREVENTIVE WORK WITH PARENTSPREVENTIVE WORK WITH PARENTSto prepare their children for sport to prepare their children for sport

activitiesactivities Learning about the different phases of your child´s Learning about the different phases of your child´s

emotional and physical development.emotional and physical development.

Learn how to avoid dangers and take advantage of Learn how to avoid dangers and take advantage of the environment you live in. the environment you live in.

Start physical activities with their child as soon as Start physical activities with their child as soon as they can.they can.

Decodify body language: your own´s and your childDecodify body language: your own´s and your child´s.´s.

Avoid over-protection: try out an activity, get to Avoid over-protection: try out an activity, get to experience it and evaluate together what to do experience it and evaluate together what to do afterwards.afterwards.

Prevention through Movements:Prevention through Movements:learning to do things with the bodylearning to do things with the body

Sports or sport activitySports or sport activity

Is sport for everyone?Is sport for everyone?

No! If the aim is athletic excellence No! If the aim is athletic excellence (competition).(competition).

Yes! If we understand sports activities as:Yes! If we understand sports activities as:1.1. regular practice; regular practice;

2.2. pleasure and discipline;pleasure and discipline;

3.3. character transformation when learning about losing character transformation when learning about losing and winning;and winning;

4.4. peer and nature interactions;peer and nature interactions;

5.5. find out about one´s abilities as well as body and mind find out about one´s abilities as well as body and mind limitations.limitations.

Sports and hemophiliaSports and hemophilia

A parent can help his child to be more A parent can help his child to be more conscious of his true possibilities and true conscious of his true possibilities and true limitations. limitations.

Sports with hemophilia mean:Sports with hemophilia mean:

1.1. LEARNING ABOUT THE HEMOPHILIA IN MELEARNING ABOUT THE HEMOPHILIA IN ME

2.2. IMMEDIATE MANAGEMENT IN CASE OF A BLEEDIMMEDIATE MANAGEMENT IN CASE OF A BLEED

3.3. CARE WITH TARGET JOINTSCARE WITH TARGET JOINTS

4.4. PHYSIOTHERAPY STRENGTHEN ESPECIALLY THE PHYSIOTHERAPY STRENGTHEN ESPECIALLY THE WEAK BODY PARTSWEAK BODY PARTS

5.5. CHOOSE SPORTS WHICH ARE RECOMMENDED. GET CHOOSE SPORTS WHICH ARE RECOMMENDED. GET PREPARED SLOWLY, BUT FIRMLY. NO RUSH!! PREPARED SLOWLY, BUT FIRMLY. NO RUSH!!

For the kidsFor the kids

You want to take up a particular sport?You want to take up a particular sport?

Ask yourself: WHY ?Ask yourself: WHY ?

Do you know what hemophilia is? What a Do you know what hemophilia is? What a bleeding is? And the consequences of not telling bleeding is? And the consequences of not telling anyone you have a bleed?anyone you have a bleed?

How much do you know, how much can you talk How much do you know, how much can you talk about it?about it?

Get information, prepare yourself and your body Get information, prepare yourself and your body by warming it up, have regular check ups, respect by warming it up, have regular check ups, respect your body needs for either resting or exercising.your body needs for either resting or exercising.

Say NO when you can not practice a sport that Say NO when you can not practice a sport that might endanger your health.might endanger your health.

Tips for kidsTips for kids

THE MORE YOU FEEL AT EASE WITH YOUR THE MORE YOU FEEL AT EASE WITH YOUR HEMOPHILIA HEMOPHILIA

THE MORE YOU WILL BE ACCEPTED BY A GROUP THE MORE YOU WILL BE ACCEPTED BY A GROUP AT SCHOOL, AT THE CLUB OR ANY OTHER AT SCHOOL, AT THE CLUB OR ANY OTHER PLACE.PLACE.

How should you feel at ease?: How should you feel at ease?: 1.1. By learning to tell others what hemophilia is By learning to tell others what hemophilia is

like and discuss your issues in confidence.like and discuss your issues in confidence.2.2. By setting your limits and limitations. Do what By setting your limits and limitations. Do what

you believe you cant. Go for it!you believe you cant. Go for it!3.3. Hemophilia may not change. However, YOU Hemophilia may not change. However, YOU

AS A PERSON, YES you CAN.AS A PERSON, YES you CAN.

Tips for parentsTips for parents

Sit down with your child and have a conversationSit down with your child and have a conversation

What does HE want to do?What does HE want to do?

How are you going to deal with it as a whole How are you going to deal with it as a whole family?family?

Make an Action Plan:Make an Action Plan:

1.1. Look for information about the sport he is interested in;Look for information about the sport he is interested in;

2.2. Take a clinical evaluation and look for necessary medical Take a clinical evaluation and look for necessary medical advice;advice;

3.3. Work on improving and preparing your child’s whole being Work on improving and preparing your child’s whole being for the sport;for the sport;

4.4. Learn about hemophilia, know how to talk about it in a Learn about hemophilia, know how to talk about it in a simple way. It is part of your child’s and your family lives.simple way. It is part of your child’s and your family lives.

Final thoughtsFinal thoughts

The child´s body must be a source of pleasure The child´s body must be a source of pleasure and of interesting challenges too.and of interesting challenges too.

Children need incentive and discipline.Children need incentive and discipline.

Incentive to physical activities in early ages Incentive to physical activities in early ages promotes balance, coordination and self-promotes balance, coordination and self-confidence.confidence.

Both parents and children are learning to live with Both parents and children are learning to live with hemophilia: Mistakes and achievements are part hemophilia: Mistakes and achievements are part of life.of life.

As a gradual process, it takes time and As a gradual process, it takes time and persistence to adequate your whole organism to a persistence to adequate your whole organism to a specific sport.specific sport.

““If a man carries his own If a man carries his own lantern, he need not fear lantern, he need not fear

darkness.”darkness.”

(Hasidic saying)(Hasidic saying)