F R O M I N S I G H T T O I M P A C T

O T T A W A T O R O N T O C A L G A R Y V I C T O R I A E D M O N T O N

Presentation to aHUS Canada

April 6, 2013

Challenge for Rare Disease

Do Canadians want to provide the best

possible access to therapies for rare

disease?

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Our Current Status

In Canada:• Historically a province-by province approach• Result?

– Patchwork of services– Individualized approval process in order

to gain access – Inconsistency across provinces– Trying to take a pan-Canadian approach

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Every OECD country has a rare disease strategy both for approving and paying for therapies except for Canada.

Hospitals29%

Drugs16%

Physicians14%

Other Professionals11%

Other Health Spending6%

Public Health6%

Administration3%

Capital5%

Other Institutions10%

Perspective on Spending in Canada

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2.8 million Canadians are living with rare disorders.

The cost is not heavy on healthcare spending but rather on the individual

= Ongoing tensions

Perspective on Spending in Ontario

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Hospitals35%

Doctors and Practi-tioners27%

Prescription drugs8%

Long-Term Care Homes

8%

Community Care6%

Other*17% $44.77 billion

total spending on health care in Ontario, 2010-11

$3.45 billion on prescription drugs

Understanding the Life of a Legislator

7:00am - 9:00am Meetings w stakeholders, events and/or briefings with Ministry, bureaucracy and staff, what’s the

headline of the day

9:00am - 10:30am House duty and committee dealing with legislation

10:30am - 12:00pm Question Period followed by media availability

12:00pm - 3:00pm Cabinet meetings, caucus meetings, stakeholder meetings, meetings with Ministry, staff and

stakeholders

3:00pm - 6:00pm House is sitting – Ministers are supposed to be in the house for House business (introduction of bills;

debates; etc) but may ask for leave to attend events/ meetings

6:00pm - 10:00pm Events, receptions with stakeholders

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No single elected official can stay on top of all the issues

that come before the Legislature all the time

Getting Started

• Who are you?• What are you asking? • Why are you asking?• Where should you go first? • When do you ask?  

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TIPS: Engaging with Elected Officials• Build relationships• Bring solutions• Educate• Rally your forces• All politics are local• Approach legislators strategically• Make sure message is simple and concise• Tailor your message and keep it positive• Know your opposition• Form alliances• Timing is key• Choose your battles carefully

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REMEMBER

TIPS for a Successful Meeting• Be punctual• Dress appropriately• Prepare: Know what you are going to say. Have your materials prepared

as a “leave behind”. Research the politician’s background, his/her interests and his/her connection to your issue.

• Rehearse: If you are going in as a group, meet before hand to discuss who is going to say what and review potential questions and answers.

• Be brief• Work with staff: Brief the politician’s assistant before the meeting • Leave behind material: 1 page briefing note, fact sheet, etc. Make sure

that the handout has a specific “ask”• Always follow up a meeting with a personal “thank you” note

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DO

TIPS for a Successful Meeting

• Threaten • Argue• Offer votes in exchange for support• Waste time with small talk• Discuss political fundraising• Raise questions that you are not prepared to answer• Never stretch the truth or you risk losing credibility - stick to the facts

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DON’T

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But there is still a long road ahead to

make this possible…

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www.globalpublicaffairs.ca

Contact

Ottawa50 O’Connor Street, Suite 901

Ottawa, Ontario K1P 6L2

Telephone: 1 (613) 782-2336

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Toronto, Ontario M5V 3B5

Telephone: 1 (416) 979-3930

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Calgary, Alberta T2P 2Y5

Telephone: 1 (403) 264-3800

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Victoria, BC V8W 2C4

Telephone: 1 (250) 294-7194

Edmonton10060 Jasper Avenue, Suite 2020

Edmonton, AB T5J 3R8

Telephone: 1 (780)-665-4946

AffiliatesMontreal & Quebec City

www.tactconseil.ca

Telephone: 1 (514) 667-0196