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F R O M I N S I G H T T O I M P A C T
O T T A W A T O R O N T O C A L G A R Y V I C T O R I A E D M O N T O N
Presentation to aHUS Canada
April 6, 2013
Challenge for Rare Disease
Do Canadians want to provide the best
possible access to therapies for rare
disease?
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Our Current Status
In Canada:• Historically a province-by province approach
• Result?
– Patchwork of services
– Individualized approval process in order to gain access
– Inconsistency across provinces
– Trying to take a pan-Canadian approach
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Every OECD country has a rare disease strategy both for approving and paying for therapies
except for Canada.
Hospitals29%
Drugs16%
Physicians14%
Other Professionals11%
Other Health Spending6%
Public Health6%
Administration3%
Capital5%
Other Institutions10%
Perspective on Spending in Canada
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2.8 million Canadians are living with rare disorders.
The cost is not heavy on healthcare spending but rather on the individual
= Ongoing tensions
Perspective on Spending in Ontario
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Hospitals35%
Doctors and Practi-tioners27%
Prescription drugs8%
Long-Term Care Homes
8%
Community Care6%
Other*17% $44.77 billion
total spending on health care in Ontario, 2010-11
$3.45 billion on prescription drugs
Understanding the Life of a Legislator
7:00am - 9:00am Meetings w stakeholders, events and/or briefings with Ministry, bureaucracy and staff, what’s the
headline of the day
9:00am - 10:30am House duty and committee dealing with legislation
10:30am - 12:00pm Question Period followed by media availability
12:00pm - 3:00pm Cabinet meetings, caucus meetings, stakeholder meetings, meetings with Ministry, staff and
stakeholders
3:00pm - 6:00pm House is sitting – Ministers are supposed to be in the house for House business (introduction of bills;
debates; etc) but may ask for leave to attend events/ meetings
6:00pm - 10:00pm Events, receptions with stakeholders
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No single elected official can stay on top of all the issues
that come before the Legislature all the time
Getting Started
• Who are you?
• What are you asking?
• Why are you asking?
• Where should you go first?
• When do you ask?
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TIPS: Engaging with Elected Officials• Build relationships
• Bring solutions
• Educate
• Rally your forces
• All politics are local
• Approach legislators strategically
• Make sure message is simple and concise
• Tailor your message and keep it positive
• Know your opposition
• Form alliances
• Timing is key
• Choose your battles carefully
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REMEMBER
TIPS for a Successful Meeting
• Be punctual
• Dress appropriately
• Prepare: Know what you are going to say. Have your materials prepared as a “leave behind”. Research the politician’s background, his/her interests and his/her connection to your issue.
• Rehearse: If you are going in as a group, meet before hand to discuss who is going to say what and review potential questions and answers.
• Be brief
• Work with staff: Brief the politician’s assistant before the meeting
• Leave behind material: 1 page briefing note, fact sheet, etc. Make sure that the handout has a specific “ask”
• Always follow up a meeting with a personal “thank you” note
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DO
TIPS for a Successful Meeting
• Threaten
• Argue
• Offer votes in exchange for support
• Waste time with small talk
• Discuss political fundraising
• Raise questions that you are not prepared to answer
• Never stretch the truth or you risk losing credibility - stick to the facts
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DON’T
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But there is still a long road ahead to
make this possible…
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www.globalpublicaffairs.ca
Contact
Ottawa50 O’Connor Street, Suite 901
Ottawa, Ontario K1P 6L2
Telephone: 1 (613) 782-2336
Toronto310 Front Street West, Suite 620
Toronto, Ontario M5V 3B5
Telephone: 1 (416) 979-3930
Calgary633-6th Avenue South West, Suite 1000
Calgary, Alberta T2P 2Y5
Telephone: 1 (403) 264-3800
Victoria1070 Douglas Street, Suite 360
Victoria, BC V8W 2C4
Telephone: 1 (250) 294-7194
Edmonton10060 Jasper Avenue, Suite 2020
Edmonton, AB T5J 3R8
Telephone: 1 (780)-665-4946
AffiliatesMontreal & Quebec City
www.tactconseil.ca
Telephone: 1 (514) 667-0196
