ENVISION 2020Strategic Planning for Individuals with Special Health Care Needs

July 19, 2011State Implementation Grantee Meeting

Baltimore, MD

Celebrate 2010The National Survey of Children with Special Health Care

Needs (NS-CSHCN 2005-06) Family Partnership and Satisfaction Status: 57%

Access to Medical Home Status: 47%

Access to Affordable Insurance Status: 62%

Early and Continuous Screening Status: 64%

Access to Community Based Services Status: 89%

Services to Transition to Adulthood Status: 41%

(

Celebrate 2010Family-centeredness and cultural competencerecognized as a standard of care:

Principles and definitions in place,Measurement strategies developed and

implemented;Strategies and tools for improvement emerging,

including integration of principles with EMR,Evidence-base emerging.

Celebrate 2010Medical Home recognized as a standard of

comprehensive, coordinated care:

Joint Policy Statement Closely linked with and conduit for Continuous

Quality Improvement,Expanded to adults as well as children,Demonstration programs in almost every state,Health plans, private sector leading the way

now,Tools in place and evidence emerging.

Celebrate 2010Unprecedented progress on financial issues

important to CYSHCN:

CHIPRA - new funding, state expansion options, including enhanced scope of benefits and pediatric health care quality incentives,

The Family Opportunity Act (FOA)-Medicaid programs can offer a buy-in option for families, 

Affordable Care Act - tremendous impact on adequacy of insurance for CYSHCN and their families.

Celebrate 2010Early and continuous screening expansion and

improvement:

Serving the Family from Birth to the Medical Home: Report from the Newborn Screening Task Force (2000),

Expansion of newborn screening core panel to 29 conditions,

Newborn hearing screening for all infants, New models and tools for screening in the medical

home, Bright Futures Guidelines

Celebrate 2010Access to community services organized for

easy use by families:

Innovative demonstration of community models of service delivery (Communities Can,(2000); Champions for Progress)

Application of Continuous Quality Improvement tools,

“Money follows the person” models of systems change,

Continuing emphasis on community inclusion.

Celebrate 2010Growing recognition of the importance of health

care transition for youth with special health care needs:

Consensus Statement on Health Care Transitions for Young Adults with Special Health Care Needs (2002),

Coming Soon: "Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home“,

Youth advisory councils/youth/young adult leaders at the national and state level,

Emerging innovative models of care for youth and young adults with special health care needs.

Functional and Clinical Outcomes

Resources and Policies

Community

Care Model for Child Health in a Medical Home

Health SystemHealth Care Organization (Medical Home)

Delivery

SystemDesign

Decision

Support

ClinicalInformatio

nSystems

Care Partnership

Support

Informed,ActivatedPatient/Family

Prepared,ProactivePractice Team

Family -centered

Coordinated and EquitableTimely & efficient

Evidence-based & safe

Supportive, Integrated Community

Prepared,ProactivePractice Team

CMHI

Envision 2020Charge: Build on the success of the past decade

to Envision the next:What should these systems constructs look

like in 2020?What is in place for the systems constructs

that we can build upon for the next decade?What can we as partners do or influence to

make a significant move forward?

Envision 2020Charge: Consider how emerging trends and issues

should be addressed from a systems perspective:Life courseHealth care reformQuality improvementCultural competenceHealth information technology

Envision 2020Charge: Criteria to

Consider: Relevance Compatibility Efficacy Regional and National Significance Outcomes and Potential Impact Sustainability

Envision 2020Charge: Be Innovative Be Specific Be Creative Think Beyond Title V

Optimal Quality of Life

L. Person 1/26/10

Envision 2020“True north lies in the experience of

patients, their loved ones, and the communities in which they live”

(Don Berwick)

Envision 2020Let us remember as each of us makes

decisions that will affect children- whether we are parents, educators, health professionals, or government officials-it is our duty to consider if that decision either affirms or denies a child’s most basic human rights”

(Polly Arango)