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What's new on the research front
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“We want more people into clinical trials; more people getting that chance to get the very latest drugs. Our ambition is this: at least 10 per cent of people with dementia should be able to take part in clinical trials – up around ten times from today”
March 26 2012: Prime Minister’s Challenge on Dementia: Delivering major improvements in dementia care and research by 2015
The Prime Minister’s Challenge on Dementia Delivering major improvements in dementia care and research by 2015 : A report of progress (November 2012)
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Dementia Themed Call announced• £22million investment in 21 new studies into dementia
research• An important step in solving the challenge presented by
dementia• DeNDRoN will be helping to deliver many of these
studies in 2013.
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Progress on the PM Challenge
• Memory Services National Accreditation Programme (MSNAP)
• Doubling dementia research• Investment in brain scanning• Social science research• Participation in clinical research • MRC Brain Bank• Major Industry event• Capacity building• Two international initiatives• Lab of molecular biology• Themed Call for Dementia
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Where we fit in…
National Institute for Health Research
The Clinical Research Network:
Provides practical support researchers need to run clinical studies in the NHS,
allowing more studies to happen, and more patients to take part.
Commissions and funds NHS and social care research
Trains and develops
researchers
Supports facilities for
research (e.g. Biomedical Research Units)
Cancer Dementia and
Neurodegenerative Diseases
Diabetes Medicines for Children
Mental Health Stroke Primary Care Comprehensive
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DeNDRoN delivers cutting edge research in the NHS
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4 BRCs/BRUs
247 RESEARCH ACTIVE TRUSTS
A Local DeNDRoN Community
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National Picture Increasing patient participation in research
How DeNDRoN are doing it• Involving patients and carers in development of research study ideas• Recruiting participants into our studies quickly through our staff ‘on the
ground’• Embedding research in clinical practice
• 100% coverage across England (CLRN / DeNDRoN partnership)• 18 improvement projects to evaluate and compare different ways to
embed research – toolkit to be released in March 2013• Working with the Royal College of Psychiatrists to support research in
its Memory Service National Accreditation Programme (MSNAP) – research standards added to the accreditation
• Working with Social Care Institute of Excellence (SCIE) on Dementia Gateway to include a research element
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Enabling Research in Care Homes - ENRICH
ENRICH Toolkit Network of Research Ready Care Homes launched
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Recruitment and Feasibility Tool (RAFT)
• RAFT is a consent for approach register for patients with dementias.
1. Self-registration 2. Patients being asked in the course of
their routine clinical care, if they are interested in being contacted about research, and signed up to the Register in some way.
• Public facing website and helpdesk live in the new year.
• 6 NHS early adopter sites to demonstrate this process from March 2013.
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Impact of research
For organisations it can: • Directly and indirectly enhances the quality of life for
patients• Professional development opportunities for staff• Provide additional income to your service• Support from DeNDRoN local research network in the
delivery of studies• Demonstrates your commitment to the Prime Minister’s
ambition “10% of patients into clinical research”• Research active centres have better outcomes• Generates research questions for local schemes
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Patient’s benefit
• Feel good – helping other people• Taking part in scientific advances
(I was part of that!)• Learning more about the disease
and about research methods• Improving self management• Improved outcomes (new
treatments, more regular follow-up)
• Opportunity to input into further research ideas and design
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How patients can get involved?
• Participate in a study• Engage in discussion
groups • Develop patient and carer
information leaflets• Support a research project
or advisory group as a member
• Become a champion for research
• Talking in groups with researchers to discuss their research proposal
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How NHS staff can get involved?
• Talk to your patients about research opportunities
• Signpost patients to the national register
• Contact your Local Research Network
• Find out what studies are available– UKCRN portfolio – Clinical Trial Gateway
• Join the Memory Services National Accreditation Programme (MSNAP) and become research active.
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Further information
DeNDRoN
Please visit our website or contact us on:
T: (020) 3206 4960
W: www.dendron.nihr.ac.uk
