Bienvenido, WelcomeLatino Health Riverside

Research 101Center for Healthy Communities

&Office for Research Integrity

December 10, 2016

Why would your organization partner with researchers?Ninfa DelgadoRiverside Community Health FoundationJuliet McMullin, PhDCenter for Healthy Communities

Questions we can answer together:Identify research questions that matter to the community

Learn about community priorities, assets, needs, and capacity

Conduct research projects to address community priorities

Evaluate the impact of programs and interventions

Provide community-based research training for community, students, fellows, and other early career researchers

COMMUNITY-ENGAGED RESEARCH WITH COMMUNITY-BASED AGENCIES & ORGANIZATIONS: A RESOURCE MANUAL FOR RESEARCHERS – UCSF http://ctsi.ucsf.edu/ce

Research Process and Community EngagementAnn Cheney, PhDCenter for Healthy Communities

Collaborative Research and Joint Decision-making

Development of research designResearch questions, plan, methods

Implementationprogram delivery, data collection, data analysis

Disseminationpublications, presentations, reports, networking

What is the role of community and academics in this process?

Barbara, 2000; Nicolaidiset al., 2011

Others Forms of Community EngagementCommunity Review Board (CRB) participation

One-time meeting to obtain meaningful community input

Community Advisory Board (CAB) participation

Routine meetings throughout projectParticipant recruitment

During data collectionData collection and analysis

CRB: Research Development StageObtain meaningful community input on research design and implementation plans

Provides opportunity for community experts to review and provide immediate feedback on the research project prior to implementation

An Example: Engaging Vulnerable Latinos in Substance Use & HIV Research

How do we connect to this community?How can we approach the topic with community members?

Sensitive topics, gender?What kind of methods should we use? Focus groups, one-on-one interviews?How much should we remunerate participants?

CommunityAdvisoryBoard (CAB)CAB Members

Represent key stakeholder groupsGuide ProjectProvide key input

Community and campus stakeholdersCommunity members and students in recovery, students, directors of substance use and student health programs, and researcher

Work to increase awareness of students in recovery

one way is through community-engaged researchPhotoVoice Project

UCR Collegiate Recovery Advisory Board

Participant Recruitment

Addressing Mental Health among Rural African Americans in Arkansas’ Mississippi Delta

Tri County Rural Health Network

Community ConnectorsLived in the communities“insider” understanding of the communityTrusted community leadersRecruited participants through their social networks

Data CollectionWhat did they do?Selected community leaders who:

Participated in deliberative methods training programCo-facilitated framing sessionsFacilitated community forumsWrote forum report

Latino Health Riverside Facilitators

Ann CheneyAnn.Cheney@medsch.ucr.edu

Types of Research and Research DesignDario Kuzmanovic, MHScDirector, Research Integrity

Comparative Effectiveness ResearchGreer Sullivan, MD, MSPHDirector, Center for Healthy Communities

What is “Effectiveness?”

Definition: Producing a definite, decisive, or desired effect in a “real world” setting

To show effectiveness you must have A specified, clearly defined intervention or treatment Careful measurement of appropriate outcomes

• A treatment (medication, psychotherapy, diabetes management program, etc.) is tested in a “real world” setting, using

• Randomized controlled trial (RCTs) with specific outcome measures.

• After many trials, evidence begins to accumulate for or against effectiveness.

• When preponderance of evidence shows effectiveness, the treatment becomes an evidence-based practice.

What is “Effectivness Research?”

What is Comparative Effectiveness Research?

Research that compares two or more treatments or interventions known to be effective (that is, evidence-based practices)

Comparisons often include many different kinds of measures: clinical outcomes, acceptability, feasibility, cost

Questions to ask when partnering with researchers

Irene Martinez, Executive DirectorFiesta Educativa, Inc.Christina Reaves, MPHDeputy Director Center for Healthy Communities

Questions CBOs may ask researchers

How will the research benefit our agency and community? Is your idea already funded? If not, how long will it take to secure funds?Have you collaborated with CBOs before?What resources will support our participation?

Questions CBOs may ask researchers

Are there funds to support sustainability?How will we share in recognition from the research findings?How will we handle any impact the results have on our community (or clients we serve)?What rights will we have in case there are disputes about the use of the results?

Questions researchers and funders may ask CBOs

CBO letter of support for the proposal

Often drafted by research teamNot a formal commitment Names grant, researcher & funderDescribes CBO & role on grantEndorses the intent of the proposal

Questions researchers and funders may ask CBOs

Memorandum of understanding between CBO and university

Describes proposed project – specifically timelines and deliverablesIdentifies responsibilities of the CBO and universityBoth CBO and university signs

Questions researchers and funders may ask CBOs

Sub contract

Scope of workTimeline for deliverablesBudget – personnel, equipment, overhead, etc

Process for CBO to invoice university

Prior to executing sub contract, university may ask for:

Registration, incorporation (non-profit status)Organizational bylawsList of individuals authorized to sign Audited or prepared financial statement for past 3 yearsCurrent fiscal year budgetOrganizational chart; mission statement; Board of Directors

Questions CBOs may ask themselves

Is the Board of Directors supportive of this project?

How will the project impact our other work?

Do we have the infrastructure to manage a sub contract?

Reporting, invoicing, providing back up

Gracias, Thank you

¡Felices Fiestas!Happy Holidays!

From the staff & faculty at the Center for Healthy Communities

and Office of Research Integrity