Designing Decision Aids to Help Patients Choose Treatment Options

Designing Decision Aids to Help Patients Choose Treatment Options

Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman

HCIL

A Story

A Story

A Story

A Story

NCI Protective Treatments

Susan G. Komen fact sheets

A Decision Aid Framework

• Decision Type• Timescale• Measurement Types• Data Source• Personalization Level• Information Format

Decision Type

• Binary• Multi-Option• Combination• Continuous

Management

Price, Cameron, Butow 2007

Baseline (No Treatment)

Drug A Effect

Decision Type

• Binary• Multi-Option• Combination• Continuous

Management

Drug MainEffects

Hawley et al. 2008

Drug SideEffects

Decision Type

• Binary• Multi-Option• Combination• Continuous

Management

Jones et al. 2011

Treatment Choices

Total EffectOfTreatmentChoices

Decision Type

• Binary• Multi-Option• Combination• Continuous

Management

Jones et al. 2011

Timescale

• Single Projected Point• Multiple Projected

Points

Zikmund-Fisher et al. 2008

5 year risk

Timescale

• Single Projected Point• Multiple Projected

Points

National Cancer Institute Risk Assessment

Main TimeReference

AdditionalTime Reference

Measurement Types

• Number of Side Effects• Side Effect Rates• Treatment Durations• Lifestyle Impact• Success Rates• Survival Rates• Mortality Rates• …

Data Source

• Summary of Literature• Model Based• Electronic Health

Records

Susan G. Komen Fact Sheets…With References

Data Source

• Summary of Literature• Model Based• Electronic Health

Records

Hughes Risk App

Exposed ModelParameters

Data Source

• Summary of Literature• Model Based• Electronic Health

Records

Patients Like Me

Patient Self-Reported Records

Personalization Level

• Generalized• Personalized

National Cancer Institute

Same TextFor AllReaders

Personalization Level

• Generalized• Personalized

National Cancer Institute Risk Assessment

Patients MustUnderstandPersonalizationOptions

Information Formats

• Text• Graphics• Animation• Interactive

National Cancer Institute

Information Formats

• Text• Graphics• Animation• Interactive

Brown et al. 2011Same Metric4 Ways

Information Formats

• Text• Graphics• Animation• Interactive

Han et al. 2012

Animated recolor offigures every 2 seconds

Information Formats

• Text• Graphics• Animation• Interactive

Ancker et al. 2010

Clicking DrivesInformation Shown

DESIGNING A DECISION AID

Designing a Decision Aid

• Multi-Option (Decision Type)• Multi-Projected Points (Timescale)• Side effects, durations, patient preferences,

success rates (Measurement Types)• Age and BRCA1 positive accounted for

(Personalization Level)• Graphics with Interaction (Information

Formats)

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

Decision Aid Prototype

1

Decision Aid Prototype

2

Decision Aid Prototype

3

Conclusion

• Decision aids support patient understanding and choice between treatment options

• Categorizing decision aids with our framework exposes design opportunities

• Static, single measurement graphs do not support treatment comparisons

• Interaction and animation highlight and reinforce treatment differences

Thank You!

Special Thanks to Dr. Seth Powsner.

More Information lyndsey@cs.umd.edu

www.cs.umd.edu/hcil/treatmentview

This work is supported in part by Grant No. 10510592 for Patient-Centered Cognitive Support under the Strategic Health IT Advanced Research Projects Program (SHARP) from the Office of the National

Coordinator for Health Information Technology.