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This poster decribes the evidence-based ICF-related content specification of mICF. The goal is to provide content based on a bio-psycho-social- spiritual approach in the context of an ethical, human rights and legal framework. The first service user journeys to be tested are: older persons, adults with chronic diseases, children and youth with vulnerable conditions. mICF Work Package 2 Content Specifications 17-23 October 2015 Manchester United Kingdom Poster Number: 000 WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2015 Title Objectives Stakeholders must face a new reality of service user-driven data, responding in ways that address questions of ethics, human rights and legislative discourse. The task includes the following steps: Ensure content is aligned with ethical and human right practices Investigate how mICF could strengthen clinical practice, especially how mICF will move ethics, human rights and legislative boundaries as the concept of service user-driven data becomes reality Address ethical dilemmas relating to the linking between the mICF and traditional records systems Explore ethical and human right issues relating to data security, data sharing, big data, research, policy development, continuity of service provision and interprofessional practice. Conclusions 1 MarselisborgCentre, Aarhus University and Central Denmark Region, Denmark; 2 National Institute for Health and Welfare, Finland; 3 ESTeSC Coimbra Health School, Portugal; 4 McMaster University, Canada; 5 JAMK University of Applied Sciences, Finland; 6 University of Stellenbosch, South Africa; 7 Communication Supports Inventory – Children and Youth (CSI-CY), United States; 8 World Confederation for Physical Therapy, United Kingdom Set up the natural language collection system and market it to users and professionals to get their input of words, terms, synonyms - link to Link natural language to ICF - link to Enable continuous natural language collection and analysis to enhance the mICF www.icfmobile.org We present the development of the content for the mobile ICanFunction (mICF) solution. This is the second work package (WP2) in the mICF innovation and research work program. WP2 entails close interaction between professionals and service user representatives for research-informed and ethical content development for all consortium languages. Introduction Maribo T 1 , Anttila H 2 , Martins A 3 , Kraus de Camargo O 4 , Paltamaa J 5 , Snyman S 6 , Steiner SAM 7 , Sykes C 8 , on behalf of the International mICF Partnership The objectives of the content specifications are to: Ensure the content to be aligned with the best ethics and human rights practices Ensure that content complies with legislation Develop and refine questions (i.e. what to ask and how to ask it) Identify appropriate responses to the potential answers to questions Select relevant person- reported outcome measures (PROMs) Determine ways to use ICF and PROMs in optimising a service user’s assessment, enabling shared decision-making and interprofessional goal setting. Utilise technology to link the use of natural language to ICF Translate the content Refine the content specifications based on iterative development cycles and feedback from the in- market experimentation. Task 1: Ethics, Human Rights, Legislation and Training Task 2: Defining the relevant ICF content for patient journeys The starting point is existing ICF code sets; relevant sets are to be selected (i.e. what to describe) Develop and refine questions for the selected codes Identify appropriate qualifiers (i.e. how to answer) An iterative process of repeated testing and assessments will ensure relevance and quality Content is refined based on results from “Disciplined in- market experimentation” - link to Task 5: Translation into other languages Task 3: Selection of PROMs for the mICF to facilitate outcome monitoring over time Identify relevant valid, reliable and responsive PROMs Negotiate regarding use agreements Link PROMs to ICF Refine PROM use based on results of the disciplined in-market experimentation - link to Task 4: Utilise technology linking natural language to ICF Translate content using international guidelines Cognitive debriefing and pilot testing - link to Refine the final version Translations will ensure implementation of the mICF in Impact and in economic evaluation - link to The content specifications are divided into five different tasks: WP4 C @ICFmobile Abstract WP4 WP3 WP5 WP5 WP6 WP3 WP4 WP5

mICF content specifications

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This poster decribes the evidence-based ICF-related content specification of mICF.The goal is to provide content based on a bio-psycho-social-spiritual approach in the context of an ethical, human rights and legal framework.The first service user journeys to be tested are: older persons, adults with chronic diseases, children and youth with vulnerable conditions.

mICF Work Package 2 Content Specifications

17-23 October 2015 Manchester

United KingdomPoster Number: 000

WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2015

Title

Objectives

Stakeholders must face a new reality of service user-driven data, responding in ways that address questions of ethics, human rights and legislative discourse.The task includes the following steps:• Ensure content is aligned with

ethical and human right practices• Investigate how mICF could

strengthen clinical practice, especially how mICF will move ethics, human rights and legislative boundaries as the concept of service user-driven data becomes reality

• Address ethical dilemmas relating to the linking between the mICF and traditional records systems

• Explore ethical and human right issues relating to data security, data sharing, big data, research, policy development, continuity of service provision and interprofessional practice.

Conclusions

1MarselisborgCentre, Aarhus University and Central Denmark Region, Denmark; 2National Institute for Health and Welfare, Finland; 3ESTeSC Coimbra Health School, Portugal; 4McMaster University, Canada; 5JAMK University of Applied Sciences, Finland; 6University of Stellenbosch, South Africa; 7Communication Supports Inventory – Children and Youth (CSI-CY), United States; 8World Confederation for Physical Therapy, United Kingdom

• Set up the natural language collection system and market it to users and professionals to get their input of words, terms, synonyms

- link to

• Link natural language to ICF - link to

• Enable continuous natural language collection and analysis to enhance the mICF

www.icfmobile.org

We present the development of the content for the mobile ICanFunction (mICF) solution. This is the second work package (WP2) in the mICF innovation and research work program. WP2 entails close interaction between professionals and service user representatives for research-informed and ethical content development for all consortium languages.

Introduction

Maribo T1, Anttila H2, Martins A3, Kraus de Camargo O4, Paltamaa J5, Snyman S6, Steiner SAM7, Sykes C8, on behalf of the International mICF Partnership

The objectives of the content specifications are to:• Ensure the content to be aligned

with the best ethics and human rights practices

• Ensure that content complies with legislation

• Develop and refine questions (i.e. what to ask and how to ask it)

• Identify appropriate responses to the potential answers to questions

• Select relevant person-reported outcome measures (PROMs)

• Determine ways to use ICF and PROMs in optimising a service user’s assessment, enabling shared decision-making and interprofessional goal setting.

• Utilise technology to link the use of natural language to ICF

• Translate the content• Refine the content specifications

based on iterative development cycles and feedback from the in-market experimentation.

Task 1: Ethics, Human Rights, Legislation and Training

Task 2: Defining the relevant ICF content for patient journeys

• The starting point is existing ICF code sets; relevant sets are to be selected (i.e. what to describe)

• Develop and refine questions for the selected codes

• Identify appropriate qualifiers (i.e. how to answer)

• An iterative process of repeated testing and assessments will ensure relevance and quality

• Content is refined based on results from “Disciplined in-market experimentation” - link to

Task 5: Translation into other languages

Task 3: Selection of PROMs for the mICF to facilitate outcome monitoring over time

• Identify relevant valid, reliable and responsive PROMs

• Negotiate regarding use agreements

• Link PROMs to ICF • Refine PROM use based on results

of the disciplined in-market experimentation - link to

Task 4: Utilise technology linking natural language to ICF

• Translate content using international guidelines

• Cognitive debriefing and pilot testing - link to

• Refine the final version• Translations will ensure

implementation of the mICF in Impact and in economic evaluation - link to

The content specifications are divided into five different tasks:

WP4

C

@ICFmobile

Abstract

WP4

WP3

WP5

WP5 WP6

WP3

WP4

WP5