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This poster decribes the evidence-based ICF-related content specification of mICF.The goal is to provide content based on a bio-psycho-social-spiritual approach in the context of an ethical, human rights and legal framework.The first service user journeys to be tested are: older persons, adults with chronic diseases, children and youth with vulnerable conditions.
mICF Work Package 2 Content Specifications
17-23 October 2015 Manchester
United KingdomPoster Number: 000
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2015
Title
Objectives
Stakeholders must face a new reality of service user-driven data, responding in ways that address questions of ethics, human rights and legislative discourse.The task includes the following steps:• Ensure content is aligned with
ethical and human right practices• Investigate how mICF could
strengthen clinical practice, especially how mICF will move ethics, human rights and legislative boundaries as the concept of service user-driven data becomes reality
• Address ethical dilemmas relating to the linking between the mICF and traditional records systems
• Explore ethical and human right issues relating to data security, data sharing, big data, research, policy development, continuity of service provision and interprofessional practice.
Conclusions
1MarselisborgCentre, Aarhus University and Central Denmark Region, Denmark; 2National Institute for Health and Welfare, Finland; 3ESTeSC Coimbra Health School, Portugal; 4McMaster University, Canada; 5JAMK University of Applied Sciences, Finland; 6University of Stellenbosch, South Africa; 7Communication Supports Inventory – Children and Youth (CSI-CY), United States; 8World Confederation for Physical Therapy, United Kingdom
• Set up the natural language collection system and market it to users and professionals to get their input of words, terms, synonyms
- link to
• Link natural language to ICF - link to
• Enable continuous natural language collection and analysis to enhance the mICF
www.icfmobile.org
We present the development of the content for the mobile ICanFunction (mICF) solution. This is the second work package (WP2) in the mICF innovation and research work program. WP2 entails close interaction between professionals and service user representatives for research-informed and ethical content development for all consortium languages.
Introduction
Maribo T1, Anttila H2, Martins A3, Kraus de Camargo O4, Paltamaa J5, Snyman S6, Steiner SAM7, Sykes C8, on behalf of the International mICF Partnership
The objectives of the content specifications are to:• Ensure the content to be aligned
with the best ethics and human rights practices
• Ensure that content complies with legislation
• Develop and refine questions (i.e. what to ask and how to ask it)
• Identify appropriate responses to the potential answers to questions
• Select relevant person-reported outcome measures (PROMs)
• Determine ways to use ICF and PROMs in optimising a service user’s assessment, enabling shared decision-making and interprofessional goal setting.
• Utilise technology to link the use of natural language to ICF
• Translate the content• Refine the content specifications
based on iterative development cycles and feedback from the in-market experimentation.
Task 1: Ethics, Human Rights, Legislation and Training
Task 2: Defining the relevant ICF content for patient journeys
• The starting point is existing ICF code sets; relevant sets are to be selected (i.e. what to describe)
• Develop and refine questions for the selected codes
• Identify appropriate qualifiers (i.e. how to answer)
• An iterative process of repeated testing and assessments will ensure relevance and quality
• Content is refined based on results from “Disciplined in-market experimentation” - link to
Task 5: Translation into other languages
Task 3: Selection of PROMs for the mICF to facilitate outcome monitoring over time
• Identify relevant valid, reliable and responsive PROMs
• Negotiate regarding use agreements
• Link PROMs to ICF • Refine PROM use based on results
of the disciplined in-market experimentation - link to
Task 4: Utilise technology linking natural language to ICF
• Translate content using international guidelines
• Cognitive debriefing and pilot testing - link to
• Refine the final version• Translations will ensure
implementation of the mICF in Impact and in economic evaluation - link to
The content specifications are divided into five different tasks:
WP4
C
@ICFmobile
Abstract
WP4
WP3
WP5
WP5 WP6
WP3
WP4
WP5