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CAREGIVERS ARE PART OF THE TEAM Shawne O’Connell, MSW Program Manager San Ysidro Health Center Research & Health Promotion [email protected]

2016: Caregivers are Part of The Team - O'Connell

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Page 1: 2016: Caregivers are Part of The Team - O'Connell

CAREGIVERS ARE PART OF THE TEAM

Shawne O’Connell, MSWProgram Manager

San Ysidro Health CenterResearch & Health Promotion

[email protected]

Page 2: 2016: Caregivers are Part of The Team - O'Connell

Learning Objectives:• Discuss the roles and responsibilities of caregiving

• Discuss how to communicate effectively with caregivers

Page 3: 2016: Caregivers are Part of The Team - O'Connell

Who Are Caregivers?Caregivers (or informal caregivers) are unpaid family members, friends, or neighbors that assist with activities of daily living and/or medical tasks.

• States with the most caregivers: California 4,450,000 Texas 3,350,000 Florida 2,670,000

• About 34.2 million Americans have provided unpaid care to an adult age 50 or older in the last 12 months.

• 15.7 million adult caregivers care for someone who has Alzheimer's disease or other dementia.

Alzheimer’s Association, 2016

Page 4: 2016: Caregivers are Part of The Team - O'Connell

Caregivers Have Many Roles.

• Care provider

• Care coordinator

• Information source

• Advocate

• Smoke detector

Alzheimer’s Association, 2016

Page 5: 2016: Caregivers are Part of The Team - O'Connell

Caregivers Have Many Responsibilities.

Assistance with ADL/IADLs

Researching services or information on disease

Coordinate doctors visits

Manage finances

Communicating with providers and making

complex medical decisions

National Alliance for Caregiving and AARP, 2015

Page 6: 2016: Caregivers are Part of The Team - O'Connell

Caregivers as Part of the Team

• Partnerships with patients and caregivers are key to

managing chronic conditions

• Caregivers are your “inside man”

• Teamwork makes the dream work – but it isn’t always

that simple!

Page 7: 2016: Caregivers are Part of The Team - O'Connell

Communicating Effectively with Caregivers• Discuss caregiver expectations about response times to

queries

• Agree in advance on how much can be addressed in a single office visit

• Discuss role of other staff in your office/on the team (e.g., social workers)

• Communicate, communicate, communicate…

Page 8: 2016: Caregivers are Part of The Team - O'Connell

Communicating Effectively cont.

• Active Listening Listen & Respond

• Respect Opinions & Observations

• Teaching Instruct & Confirm

• Teaming Trust & Availability

Page 9: 2016: Caregivers are Part of The Team - O'Connell

Conclusions•Appreciate the level and complexity of care that many caregivers provide

•Communicate effectively with caregivers

•Actively involve caregivers in care planning, and support them in their roles and responsibilities

Page 10: 2016: Caregivers are Part of The Team - O'Connell

Resources for Caregivers• Southern Caregiver Resource Center http://caregivercenter.org/

• Alzheimer’s San Diego http://www.alzsd.org/

• San Diego County AIS http://www.sandiegocounty.gov/content/sdc/hhsa/programs/ais.html

• Caregiver Coalition of San Diego http://www.caregivercoalitionsd.org/

• National Alliance for Caregiving http://www.caregiving.org/resources/for-professionals/

Page 11: 2016: Caregivers are Part of The Team - O'Connell

References• Alzheimer's Association. (2016). 2016 Alzheimer's disease facts and

figures. Available: http://www.alz.org/documents_custom/2016-facts-and-figures.pdf. Accessed August 17, 2016.

• Mitnick, S., Leffler, C., Hood, V. L., & for the American College of Physicians Ethics, Professionalism and Human Rights Committee. (2010). Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships. Journal of General Internal Medicine, 25(3), 255–260. http://doi.org/10.1007/s11606-009-1206-3

• National Alliance for Caregiving and AARP. (2015). Caregiving in the U.S.. Available: http://www.aarp.org/content/dam/aarp/ppi/2015/caregiving-in-the-united-states-2015-report-revised.pdf. Accessed August 17, 2016.