Second HOPE Network meeting

30th June 2015

10:00 - 10:45am: Introduction and check in

10:45 - 12:00pm: Sarah Ashurst, Patient Opinion

12:00 - 12:15pm: Break

12:15 - 1:15pm: Learn, Borrow, Steal

1:15 - 2:00pm: Lunch

2:00 - 3:00pm: Rowan Davies, Mumsnet

3:00 - 3:30pm: Reflection & discussion

3:30 - 4:00pm: Buddying & site visits

Overview of the Day

Social Media

Overview

• Use of social media globally

• Use of social media in

healthcare

• What is it used for?

How did we get here?

1980s

BBS

Bulletin Board Systems

Compuserve

File sharing

News

Events

1990s 2000s 2010+First basic systems

for sharing info

File sharing

Email

True social

networking begins

4th screen technology

Geosocial networking

Social Media by NumbersAs of March 2015

1 billion registered accounts

288m active accounts

700m active accounts

300m active accounts

300m active accounts

Social Media Users2010 - 2018

• 8 in 10 UK adults are online

• 98% of 16 - 24 and 25 - 34 year

olds are online

• 42% of 65+ are online

• 62% of UK adults use a

smartphone

• 66% of UK adults have a current

social networking site profile

• Nearly all of these have a

Facebook profile but 57% have

more than one profile

UK Social Media Stats

*Ofcom Adults’ Media Use and Attitudes Report 2014

• 6 in 10 complete Government

processes online

• Nearly 50% say that they prefer

using email or websites to

complete government

processes

UK Social Media Stats

Younger users are more

likely to agree that they

should be free to say what

they like online (six in ten

(59%) of 16-24s compared

to 25% of those aged 65+)

*Ofcom Adults’ Media Use and Attitudes Report 2014

Only 12% of the population

does not have internet access

and does not intend to get it in

the next 12 months

Social Media & health

• Approximately 75% of internet

users have searched for

health information online in

the last year

• The most commonly

researched topics are specific

diseases, treatments or

procedures, and doctors or

other health professionals

• Use of health and

fitness apps

increasing hugely

(62% increase Jan -

June 2014)

• “Quantified-self

movement” - people

measure every

aspect of their lives

with the help of

technology

Social Media & health

What do we use social

media for?

Social media typically consists of four characteristics

that have changed the way that people and

organisations interact:

1. Community

2. User-generated content

3. Rapid distribution

4. Two-way dialogue

Community

• Social media

provides a way for

healthcare workers

to connect with one

another (e.g.

@WeNurses)

Online communities provide

a way that patients with the

same condition can

exchange information, get

support and access

resources.

Online patient-led

communities enable the

crowd-sourcing of

information on managing

and treating disease.

Community

User-Generated Content

e.g. Blogs, discussion forums, podcasts

Two-Way Dialogue

Rapid Distribution

Patient-led communities are

now able to shape research

and monitor results of trials.

Using Facebook, patients have

been able to ‘unblind’ double-

blind clinical trials, challenging

power hierarchies and raising

questions about how to manage

research in the era of social

media.

“One of the greatest risks of social

media is ignoring social media”- Don Sinko, Cleveland Clinic

Social media & healthcare

interaction

In 2012, PwC tracked the social medial activity of

healthcare companies and online communities in the US

for a week to develop a ‘snapshot’

• Despite concerns that social media will solicit negative

conversations, the majority (80%) of mentions across

all organisation types were neutral

• Only 5% were negative

Social media benefits

Social media can provide the new opportunities to:

Listen: Capture conversations and understand what is

happening

Participate: Publish & promote content and messages

Engage: Interact one-to-one, one-to-many or many-to-

many to exchange information or advance a discussion

Questions?

Comments?

Sarah AshurstSenior Subscriber Support Officer

Rowan DaviesHead of Campaigns and Policy

Buddy & Site Visits

• Ideas generated by Network members

• What are they? How could it work?

Buddy

• Types of buddying and buddying relationships

• Developing buddy profiles

Site Visits

• Commitment to share

• Offer a visit / ask for a visit

How do we get going?

• Still a good idea?

• Complete profiles

• Self-directed, facilitated by HOPE Network