REYE’S SYNDROME

a Special Invitation from the

In Memory…

Pictured above are just a handful of the precious children who

lost their lives to Reye's Syndrome.

We say, “No More! Not One More Child!”

Stand with us!

Join us and say, “No More!”

The National Reye’s Syndrome Foundation invites

you to join an elite membership whose mission is to

eradicate the incidence of Reye's Syndrome.

We invite you to join an elite membership who cares

about saving children’s lives.

We invite you to be the Champion of Children we

know you are.

We invite you to join us as a Member of the National

Reye’s Syndrome Foundation.

Join Us!

Let’s make history together

as we eradicate the

incidence of

Reye's Syndrome!

You are Invited

From the President’s Desk

Board of Directors:

John E. Freudenberger

President

Larry M. Lasky

Vice President

Robert McKeown

Treasurer

Terri J. Freudenberger

Secretary

Marianne Piemonte

Aspirin Committee Chair

Thomas H. Glick, M.D.

Chairman, Scientific Advisory

Board

Trustees:

Barbara A. Bogenschutz

James F. Johnson

Barbara A. Ortiz

Stephen Pumm

Shirley Rice

Dear Donor,

The mission of the National Reye’s Syndrome Foundation is to eradicate the

incidence of Reye’s Syndrome. We are a registered 501(c)3 charity,

established in 1974 as a children’s health advocacy organization.

Our mission touches every single child born today. It has to. We absolutely

can not allow this disease, which has no cure, to victimize our children! With

your help, and with your support, Reye's Syndrome Awareness programs can

continue forward, and one day we willwillwillwill eradicate this killer of children.

What is Reye’s Syndrome? What is Reye’s Syndrome? What is Reye’s Syndrome? What is Reye’s Syndrome?

Reye’s Syndrome is mysteriously triggered in children after flu, chicken pox,

and other viral infections, seriously affecting the brain and liver. The disease

attacks children between the ages of birth to about 19 years of age.

We are not a large organization like the Cancer Society or Diabetes

Foundation. We are a small organization with a large goal, who, for 37 years,

has provided Reye's Syndrome Awareness Programs, Reye's Syndrome

Research, and Counseling and Assistance to families who have suffered the

trauma of Reye's Syndrome.

The National Reye’s Syndrome FoundationThe National Reye’s Syndrome FoundationThe National Reye’s Syndrome FoundationThe National Reye’s Syndrome Foundation

My wife, Terri, and I founded the National Reye’s Syndrome Foundation in

1974 right after we lost our precious 5 year old daughter to Reye's Syndrome

on Palm Sunday in 1973. At the time, we had no idea what Reye's Syndrome

was. Many doctors didn’t know what Reye's Syndrome was. Someone had to

step up and try to prevent this disease from happening to other children. We

took on that challenge, and to this day, we continue to guide the Foundation

in its quest to eradicate the incidence of this horrible children’s disease.

In the pages that follow, you will be introduced to some of our Awareness

Programs and how they have been life savers. You will learn a bit about our

history, and our commitment to children.

Although a small organization, we accomplish great projects year in and year

out. We invite you to join us as a donor; as a Champion of Children.

Every $100.00 you donate reaches 1000 children. How many children’s Every $100.00 you donate reaches 1000 children. How many children’s Every $100.00 you donate reaches 1000 children. How many children’s Every $100.00 you donate reaches 1000 children. How many children’s

lives would you like to save today?lives would you like to save today?lives would you like to save today?lives would you like to save today?

As one philosopher stated; “The great use of life is to spend it for something

that will outlast it.”

Join us. Help us continue the mission of eradicating Reye's Syndrome.

John E. Freudenberger President

Aristotle said, "I did not give it to the man, but to humanity."

National HeadquartersNational HeadquartersNational HeadquartersNational Headquarters

426 N. Lewis Street

PO Box 829

Bryan OH 43506

Toll Free: 1-800-233-7393

Direct: 419-636-2679

Email:

nrsf@ReyesSyndrome.Org

Website:

www.ReyesSyndrome.Org

blogat.rsgifting.org

www.KidsCanWin.com

www.AnniePill.com

ReyesSyndrome.mobi

www.RSGifting.Org

Teaching Tweens & Teens the Danger of Self Medicating

My son Michael developed Reyes' Syndrome in 1980, following a bout of

Chicken Pox. I feared Reye’s since several children in our city died from it

that same year, so I was aware, at least, that it existed, through reading

their obituaries. Thank goodness I was. When he began vomiting, I called

our pediatrician, who also had some experience with Reyes. She asked me

to keep a check on him, note symptoms, and call back in several hours. I

did...we went to the ER on the doctor's orders, and hours later, were

transported to St. Christopher's Hospital, 60 miles away. Michael survived.

Today, many parents can learn about Reyes' without the only source being

obituaries. Pediatricians are better informed and the National Reyes'

Syndrome Foundation has done a fine job of educating the public. I

understand there is a push on by the Foundation regarding the issue of

teens and self-medicating. The Foundation’s job is far from over it seems,

and it won't be until every parent is aware of Reye’s and the symptoms.

Valerie McCracken, Easton, PA

YYYYes, the Foundation has taken on the project to Teach Tweens and Teens the Danger of Self-Medicating. It is a serious conversation. Desperate emails and phone calls from parents and school

nurses validate the Teen Self-Medicating problems we are seeing more and more of today. 41 percent of

teens mistakenly believe that abuse of OTC medicines is less dangerous than abuse of illegal street

drugs, and most report that prescription drugs are easier to get than illegal drugs!

The best protection we can provide is to talk with our teens and tweens. Educate them. Teach them to

read warning labels, teach them to investigate side-effects, teach them to talk to a parent or a medical

professional before taking that pill, teach them to be cautious.

Someone needs to take this issue in hand and create a program that can reach out to our Tweens &

Teens, and that is just what we are doing.

We are developing a website, in-house, at www.AnniePill.com to provide education and materials to

teens, tweens, parents, school nurses and medical professionals.

There is still much to be done on this site so

it becomes appealing to our teens and

tweens, and we invite you to Champion

Children by contributing toward the

development of this site, and or the creation

and printing cost of brochures and other

related educational materials to raise

awareness about this important issue.

Display it Proudly:

136,000 Annual School Packages Keeps Kids Safe Dear NRSF,

I have been a school nurse in southern California for the past 15 years and it never ceases to amaze me how misinformed some parents are. I still have to correct students who want to call their parents for aspirin. I also instruct parents who sometimes tell me that they will bring or have given their child aspirin. I always use this opportunity as a teaching moment to remind parents that children under the age of 19 should NEVER take a product containing aspirin. Many of our student are not covered by health insurance and do not have any regular health care. Some of our parents to do not read or understand English, and some have low cognitive functioning. I just wanted to thank you for providing Reye's Syndrome information I can hand out and use to teach from. Thank you. Nikki Williams, RN School Nurse,

Westside Union School District, California

You are most welcome, Nikki! We’ve been sending packages of Reye's Syndrome information to schools

for the past 32 years!

The Foundation now contacts more than 136,000 schools across the United States and its Territories

every year with a special Reye's Syndrome Information Package.

Handouts to parents include the information in both English and Spanish, and in easy to read and

understand formats.

We know you work hard to keep your students safe, and we are right in there with you, doing whatever

we can, year in and year out, to protect children!

Display it Proudly:

Your annual donation of $500.00 or more will help us offset the cost of this

yearly mailing to 136,000 schools.

You will know that you have reached millions of families with life saving Reye's

Syndrome information every year.

That new plaque on your wall will say it all: You are a Hero; a Champion of That new plaque on your wall will say it all: You are a Hero; a Champion of That new plaque on your wall will say it all: You are a Hero; a Champion of That new plaque on your wall will say it all: You are a Hero; a Champion of

Children!Children!Children!Children!

Too low they build who build below the skies….

I am a family practice physician who cares for infants, children,

adolescents and adults.

Patient education is my number one goal. As I am only able to

spend a small amount of time with patients in comparison to the

rest of their day, I rely heavily on the accurate information that is

available to patient's from outside sources in order for them to

make wise decisions regarding over the counter medications and

supplements.

All day long I find myself recommending the National Reye’s

Syndrome Foundation’s websites at www.ReyesSyndrome.Org, and

the blog at http://blogat.rsgifting.org to parents, grandparents and

caregivers of young children.

Thank you for all you do in assisting me in educating my patients.

Dr. Nancy L. Reye, MD

Indiana University Health, Bloomington, Indiana

Thank YOUYOUYOUYOU, Dr. Reye, for helping us spread awareness about Reye's Syndrome!

Education and Awareness are our two most vital areas. To promote both education and awareness the NRSF has Public Service Announcements, various websites geared to each awareness need and translate-able into 23 languages, an 800 number, and email so information is freely available 24/7. We give out Reye's Syndrome DVD’s; ‘Reye's Syndrome, a Real and Present Danger’ and our Medical Professional’s Reye's Syndrome Learning DVD; ‘Reye's Syndrome and its Mimickers’. We have a Scientific Advisory Board, all of whom are pioneers and well known doctors in their respective fields of research and medicine. We offer brochures, bookmarks, wallet size ‘ingredients to avoid’ cards, blogs, widgets, blidgets, rss feeds, websites, Facebook pages, all chock full of education and awareness about Reye's Syndrome and the Teens and Tweens self-medicating issue. Our print material, and our electronic material, is created in-house. The NRSF works with the FDA, the CDC, NIH, WHO, and many, many other organizations in creating, educating, and spreading Reye's Syndrome information and awareness.

The NRSF does not solicit government funding.

We rely solely on the generosity of people like you,

and corporate sponsorship.

We invite you to join us and Champion Children!

None goes his way alone:

All that we send into the lives of others comes back onto our own.

Why Support Our Mission to Eradicate Reye's Syndrome?

Red Willow County Health

Department: We are a

health department that

distributes the Reye's

syndrome form to parents

after the varicella vaccine

is administered to their

Newton Falls Elementary School: Distribution to incoming kindergarten parents at kindergarten readiness screening and parent meeting.

Scottsdale Community

College: Distribution

to nursing students

during Reye’s Syndrome

presentation.

Normandy School

District: Distributed

with a Presentation to 5,200

Students. I am a nursing

supervisor and I would like

to present to my nurses this

effort to practice safe OTC

administration.

New York

School

for the

Deaf: D

istribut

ion to

student'

s famili

es

United Independent School

District: Distribution to All

Nursing Staff so they can

disseminate to all campus

staff and 40,000+ Students.

Carrabec Hig

h School:

I have used

your informa

tion

for 20 years

. Thank you.

...I

still find m

any individu

als

that need ed

ucation abou

t

Reye's and a

spirin

Shelby High School:I used

your website for

instructional purposes today

and my students found it

useful and interesting, not

to mention shocking!!!

Dupont Hos

pital: For

t Wayne,

IN, Distri

bution to

ER, Case

Managers,

Pediatrics

College Prep Elementary School: Working

on educating the Hmong Community on

immunizations and care of kids after a

potential chicken pox outbreak.

Bartlett

Middle

School:

I have

always r

elied on

your

web page

to disp

lay

products

contain

ing

aspirin

for my

students

who bec

ome

ill with

fever.

Your

web page

has bee

n

very res

ourceful

.

Thank yo

u!

Healthcare Education Resources & Supply: Distributed during Universal or Pediatric First Aid classes and Weekly individual classes

Center for Employment Training/

Brighton Center: Hand-outs

during lecture to 50+ Students.

To know that one life has breathed easier because you lived

here… This is to have succeeded.

As the Child Development teacher at the Helen Berube Teen

Parent Program in Pittsfield, MA, I am thrilled with the

Reye's Syndrome material we just received. Thank you so

very much for your prompt response as I want all of our

young women to receive this valuable information.

A top priority of our program is to provide our young mothers

with appropriate information to allow them to become

proactive for their children as well as for themselves.

Again, please know how grateful we are for your immediate

attention.

Nancy A Peterson

The Helen Berube Teen Parent Program

Childrens Resource Network Centers: Thank you so much for

assisting us in training care givers and parents about Reye’s.

We will continue to inform others through our training

classes in hopes that one day all children will have the benefit

of early diagnosis leading to positive outcomes.

My daughter had Reye's Syndrome when

she was 3 years old. She will

graduate from nursing school to

pursue pediatric

nursing. I will

spread this

information

because I know

first hand how

important it is.

Thank you for your

continued efforts

to educate the

masses on this topic.

AccomplishmentsAccomplishmentsAccomplishmentsAccomplishments 2010 Accomplishments:2010 Accomplishments:2010 Accomplishments:2010 Accomplishments:

• January: The NRSF’s 35 Year Commemorative Book is published and

shipped to those who have ordered the book. All comments are

favorable.

• February: Through the efforts of the NRSF and its Aspirin Committee

Chairperson, Marianne Piemonte, Proctor & Gamble pulled the

marketing of their InstaCool Product, which appeared to be targeted

at teens and young adults. The NRSF designed a NASCAR race car and entered the Toyota "Sponsafy

Your Ride" Contest.

• March: Food Lion was contacted and the request was made by the NRSF to remove low dose and

"children's" aspirin from the baby aisle of their stores. They agreed, and the NRSF is monitoring the

situation.

• April: The Spring Newsletter went out. The NRSF's "Sponsafy Your Ride" car came in 76th out of

more than 10,000 entries, thanks to more than 1000 members, survivors, families and friends

voting for the car.

• May: The NRSF holds a Moving Sale fundraiser and raises more than 600.00 the first day. Dr Terry

Hurst retires as the director of the Lake Park Annual Bowl-A-Thon after more than 30 years of

guidance and support in the longest running fundraiser for the NRSF. A special letter and plaque

was given to Dr Hurst and presented to him by Trustee, Marianne Piemonte.

• June: The 36th Annual Meeting is held June 5th, 2010 at the Washington House Inn in Cedarburg,

Wisconsin. Board of Directors and Trustees are elected for a 2 year term. A mobile website goes

online at reyessyndrome.mobi

• July: Pepsi Refresh Everything Grant application submitted to Teach Tweens and Teens the Dangers

of Self-Medicating. Registered AnniePill.com Created a YouTube Video; Annie Pill for Refresh

Everything Pepsi Grant. Opened up www.RSGifting.org the NRSF's new donation / legacy / estate

information website. Established a presence on LinkedIn, Facebook and Twitter Social Networking

sites. New Heart-Shaped Logo Lapel Pins were donated to the Foundation by the Jeffrey Lasky

Foundation and Tim & Cindy Pitterle.

• August: Pepsi Refresh Everything Grant Application is approved for September voting. People in

cities across the US rally the votes for the NRSF's Pepsi Refresh Everything Grant; To Teach Tweens

& Teens the Dangers of Self-Medicating. Registered Kids Can Win.com

• September: Reye's Syndrome Awareness Month. Voting for Pepsi Refresh Everything Grant; Started

in 267 place, ended in 182 place. Filed for Indiana Corporate Registration.

• October: Fall Newsletter went out, including 2011 Membership Drive; Be A Member Add A Member

Campaign. KidsCanWin.com website developed.

• November: Created first Blog at blogat.rsgifting.org Created first Widget for Google, Yahoo, MSN and

other home pages. Created first Blidget for anyone to download and add to their home page. Created

Facebook Cause: Teach Tweens & Teens the Dangers of Self-Medicating. New Donation Canisters

are available.

• December: Re-created our School Download Package to include information about Chicken Pox

Parties and updated information about Flu medications and added salicylate ingredient cards, and a

trendier look to the entire school package.

On the Inside of the NRSF On the Inside of the NRSF On the Inside of the NRSF On the Inside of the NRSF

The Inner Workings of the National Reye’s Syndrome Foundation, Inc.

The NRSF is under the direction of a four member volunteer Board of

Directors; a President, Vice President, Treasurer, and Secretary.

There is a seven member volunteer Trustee Board that includes our

Aspirin Chairperson and our Scientific Advisory Board Chairperson.

Our volunteer Scientific Advisory Board consists of seven prestigious

medical doctors and researchers who graciously volunteer their time and expertise.

Both our Medical Director and Legal Counsel volunteer their time and expertise as well.

Everyone who participates with the NRSF volunteers their time and skills.

The Foundation has only one person on payroll, and that is our Administrative Assistant, whose skills in

Office Management, Volunteer Coordinating, Desktop Publishing, Website Design and Management and

Accounting actually saves the NRSF thousands of dollars each year.

Office space for the NRSF is donated, as are ‘overhead’ expenses like electric and Internet access.

97% of all donations to the Foundation are spent on Program Services; Awareness and Education.

3% of donations are spent on Supporting Services like Management and General and Fundraising

expenses. All financial statements and our 990 are available upon request.

As you can see, we take our Program Services very seriously. We understand the power in Education

and Awareness. We know we save young lives.

We invite you to create a Legacy for yourself, and or, your company.

We invite you to get involved with the National Reye’s Syndrome Foundation—a Foundation you can

count on to be responsible for your trust in our mission to eradicate the incidence of Reye's Syndrome.

We invite you to touch the lives of children in your community. In the United States, and around the

world.

We need you. We need you. We need you. We need you.

They need you. They need you. They need you. They need you.

We invite you to be a Hero, and Champion

a Cause that Saves Lives….

Join Us Join Us Join Us Join Us

Your Opportunities Our commitment is to eradicate the incidence of Reye's Syndrome.

We know that with education and awareness about Reye's Syndrome, we can accomplish our mission.

♦ Your opportunity is to be a Hero, a Champion, for children.

♦ Your opportunity is to be a part of History in eradicating this disease.

♦ Your opportunity is to involve yourself, and or, your company in supporting a program that

benefits children in your community, across the United States, and around the world.

Where Your Donation is Needed

♦ Every Year we mail out a postcard to 136,000 schools across the US and its Territories. Every Year we mail out a postcard to 136,000 schools across the US and its Territories. Every Year we mail out a postcard to 136,000 schools across the US and its Territories. Every Year we mail out a postcard to 136,000 schools across the US and its Territories.

School Nurses are directed to a page on the ReyesSyndrome.Org website where they download a

package of Reye's Syndrome information in both English and Spanish.

You might ask why we just don’t use email to remind our School Nurses about downloading this Reye's

Syndrome package. What we have discovered is that School Nurses are moved around through districts,

or they go to work in hospitals or private practice. Email addresses change every year. Schools close and

new ones appear every year. Email in this instance just does not work.

We’ve gotten the cost down to printing a postcard and non-profit postage: $40,000.00 every year.

And, this mailing reaches millions of families with Reye's Syndrome information every year. This

Awareness program is the most powerful tool we have today.

♦ Teaching Tweens and Teens the Dangers of SelfTeaching Tweens and Teens the Dangers of SelfTeaching Tweens and Teens the Dangers of SelfTeaching Tweens and Teens the Dangers of Self----MedicatingMedicatingMedicatingMedicating

Teens and Tweens are at serious risk of Reye's Syndrome. They take medication without consulting

parents or caregivers, they share medications at school. They do not think to talk to a doctor or other

health professional about their symptoms, they self-diagnose and then self-medicate.

We know how to reach out to this group. We have a plan we know will work. We can incoporate this

issue with our annual school mailing, and provide information to School Nurses as a download from the

ReyesSyndrome.Org website.

We have to reach out to these youngsters where they spend their time; the Internet. We can develop, in-

house, a powerful website that Teens, Tweens, Parents, Nurses and Medical Professionals can use for

education on this self-medicating issue. We will use YouTube, Facebook and the various other social

network sites to spread our message to teens and tweens.

Public Service Announcements would assist in spreading education about this issue quickly.

As with any startup venture, capital needs to be raised to jumpstart the much needed educational and

awareness programs. Estimated cost of this most important project is $150,000.00 Once in place, all

this project would require is maintanance.

Every $100.00 you donate reaches 1000 children. Every $100.00 you donate reaches 1000 children. Every $100.00 you donate reaches 1000 children. Every $100.00 you donate reaches 1000 children. 97% of all donations to the Foundation are spent on Program Services; Awareness and

Education.

3% of donations are spent on Supporting Services like Management, and General Fundraising. How many children’s lives would you like to save today?

Membership Form

Annual Corporate Sponsor

I accept your invitation to become a Member of the NRSF!

Please enroll me as:

$500.00 - Guardian of Children

$1000.00 - Protector of Children

$2500.00 - Champion of Children

Annual Private Donor

$200.00 - Patron Membership

$500.00 - Benefactor Membership

$1000.00 - Guardian Membership I will donate materials; please list what

you will donate monthly or yearly:

Your Name

Company Name

Address

Phone

Email

Designated Contact Person

Phone

Email

Thank You!Thank You!Thank You!Thank You!

& & & &

Welcome!Welcome!Welcome!Welcome!

Your Comments:

** All donations are tax deductible.

Other:

My Company will Participate in Monthly

Fundraisers for Children

A __ monthly or __ weekly Dress Down day

A __monthly or __ weekly Raffle

I will place a NRSF Donation Canister at my site.

$2500.00 - Champion Membership

$5000.00 - Hero of Children

Reach out to the children in your Community, across the United States,

and around the world… Educate; Save Young Lives!

Teach me, because I do not know.

Reach out to me. Reach out to me. Reach out to me. Reach out to me.

Teach me. Teach me. Teach me. Teach me. Teach Our Teens and Tweens the Dangers of Self– Medicating. I will listen. I will listen. I will listen. I will listen.

Teach Me

and I will listen.

Help me keep my baby safe.

Grandparents as Caregivers

Remind us. Remind us. Remind us. Remind us.

We’ve forgotten. We’ve forgotten. We’ve forgotten. We’ve forgotten.

Don’t

breastfeed

and take

aspirin

products

Kids and aspirin products don’t mix!

Teach my MommyTeach my MommyTeach my MommyTeach my Mommy

“The great use of life is to spend it for something that will outlast it.”

FFFF ew will have the greatness to bend history itself; but each of us can work to change a small portion of events, and in the total of all those acts will be

written the history of this generation. -- Robert F. Kennedy

We thank you for taking the time to consider your participation with the

National Reye’s Syndrome Foundation.

Should you have further questions, or require additional

information, please contact us at:

National Reye’s Syndrome Foundation

426 N. Lewis Street

PO Box 829

Bryan, OH 43506

800-233-7393

NRSF@ReyesSyndrome.Org