7/21/2019 Dennis McGuire - 2015 Global Down Syndrome Foundation Roundtable

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Mbzjefhers Gehektfm fk Glwk

^ykgrlhe? M Nbfkfnfmks PerspentfveGekkfs HnIufre Pj.G

Nlksubtmkt

Iblcmb Glwk ^ykgrlhe Dlukgmtflk

7/21/2019 Dennis McGuire - 2015 Global Down Syndrome Foundation Roundtable

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Dlr tje pmst 35 yemrs

*

Mt tje Njfnmil MG^N & Gekver MgubtGlwk ^ykgrlhe Nekters

*

Ye jmve seek nblse tl 4000 pelpbe

*

& Gfmiklseglver 750 pelpbe wftj

Mbzjefhers Gehektfm

7/21/2019 Dennis McGuire - 2015 Global Down Syndrome Foundation Roundtable

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Nbfkfnmb ^mhpbe MG^N, mbb lver 701 (k836: )

Kl Blss ld dukntflk1k8=90 (59%)

Blss ld dukntflk drlh

klk reversfcbe gehektfm1

k873 ( =7%)

Blss ld dukntflk drlh mreversfcbe gfslrgers1

k8:4 (36%)

7/21/2019 Dennis McGuire - 2015 Global Down Syndrome Foundation Roundtable

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Blss ld dukntflk gue tl reversfcbe mkg klk-

reversfcbe gfslrgers, mbb lver 701 k8 =3:

Blss ld dukntflk drlh mreversfcbe gfslrgers1 k8:4 (49.3%)

Blss ld dukntflk drlh

m klk-reversfcbe

gehektfm1

k873 (>3.:%)

7/21/2019 Dennis McGuire - 2015 Global Down Syndrome Foundation Roundtable

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Dlr lbger Mgubts wftj Glwk ^ykgrlhe

Lbger tjmk 70)

Mbzjefhers fs m Gfmiklsfs ld exnbusflk

!

Blss ld dukntflk fs gue tl

reversfcbe nmuses fk m hmolrfty ld

nmses (@ 40%)! Nbfkfnfmks hust dfkg mky mkg mbb

plssfcbe jembtj lr psynjlslnfmb

nmuses ld m blss ld dukntflk

!

Cedlre hmafki m gfmiklsfs ld m

klk-reversfcbe gehektfm

7/21/2019 Dennis McGuire - 2015 Global Down Syndrome Foundation Roundtable

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Njmkie fk Dukntflk ?

Mbzjefhers. Gx ld exnbusflk

Sube lut

! Jembtj nlkgftflks

( Jypl-tjyrlfg1 sbeep mpkem1 nebfmn1 etn)! Hektmb Jembtj ( gepressflk, LNG,

trmuhm, etn)

! Bfde stmie njmkies & trmksftflks? Blss ld

sfikfdfnmkt ltjers etn.! Ekvfrlkhektmb stresslrs (jlhe, snjllb,

wlra)

7/21/2019 Dennis McGuire - 2015 Global Down Syndrome Foundation Roundtable

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Prlness ld exnbugfki ltjer nmuses fs klt

mk emsy tmsa? Juie lverbmp Gepressflk &

Mbzjefhers

^yhptlhs ld wftjgrmwmb, blss ldfkterest mkg pmrtfnfpmtflk fk

mntfvftfesDlr exmhpbe? Fs je klt crusjfki

jfs teetj!