0%

10%

20%

30%

40%

50%

60%

70%

80%

Messages Blood tests Clinic letters SkypeConsultation

Addingmeasurements

Adding Wearables ViewingDocuments from

library

Saving Time Definitely saves time Sometime time saving Doesnot save time

46%

27%

27%

Ease of use Easy Medium Difficult

66%

21%

13%

Registration process Easy Medium Difficult

10%

27%

33%

13%

17%

Age <25 25-40 40-50 50-60 >60

36.5%

66.3%

Gender Distribution Males Females

0%

20%

40%

60%

80%

Used >once Used once Not used butplan to use

Use of Secure Messaging

0%

10%

20%

30%

40%

50%

used morethan once

Used once Not used butplan to use

No plans touse

Online blood results

0%

10%

20%

30%

40%

Used more thanonce

Used once Not used but planto use

Clinical Correspondence

0%

5%

10%

15%

20%

25%

30%

Strognlyagree

Agree Not agreenor disagree

Disagree Stronglydisagree

Control of own record

0%

10%

20%

30%

40%

50%

60%

70%

Messages Blood tests Clinic letters SkypeConsultation

Addingmeasurements

AddingWearables

ViewingDocumentsfrom library

Enhance Relationship Definitely enhance relationship May enchance our relationship Doesnot save change our relationship

0%

10%

20%

30%

40%

50%

60%

70%

Messages Blood tests Clinic letters SkypeConsultation

Addingmeasurements

AddingWearables

ViewingDocuments from

library

Saving Cost Definitely saves Money / cost Sometime save money / cost Doesnot save money / cost

Use of a Web-based Personal Health Record (Patients Know Best) to build closer relationships with people with Type 1 Diabetes

A W Safi, A Basu, PH Davies Sandwell General Hospital

Objective

We investigated to what extent a web-based personal health record system, "Patients Know Best" (PKB), could add value to diabetes care and promote self-management. Methods A PKB account was offered to each person attending our type 1 diabetes service. Basic functions include secure messaging, direct access to laboratory blood test results and electronic receipt of clinic letters, with more advanced functions include Skype consultations, access to a resource library, storing & sharing measurements and linking trackers & wearables. PKB is designed to be user-friendly, with no training required for patients to use. After 6 months PKB users were surveyed for their views.

Summary

Personal health records are popular with people type 1 diabetes and have potential to enhance their relationship with their healthcare team.

Evaluation of PKB: September 2015

6%

14%

50%

30%

Skype Consultation

Used More than once

Used once

Not used but plan touse

No plans to use

14%

49%

37%

Tracker or wearable device

Used once

Not used but plan to use

No plans to use

Results: After 6 months 121 people with Type 1 diabetes had enroled and used PKB. Survey respondents were representative of our patient population, male:female 40:60 and median age 45. 73% had used PKB for more than 3 months. 73% found it easy/very easy to register; 60% found it easy/very easy to use. 92% had used secure messaging, 64% had viewed blood test results online, 70% had received clinical correspondence, 14% had had a Skype consultation (50% said they planned to use in future), 14% had added a tracker or wearable device (49% said they planned to use in future); 32% had added/stored Health-related measurements. 60% felt they owned/ fully controlled their PKB record. Time-saving potential was rated between 91-95%; cost-saving between 56-84%; enhancing the relationship with their diabetes team 71-98% (highest perceived benefit came from secure messaging).