NHSNHS Improvement

Stroke

SPOTLIGHT ON:

Central to the work of NHS Improvement is the delivery and design of health services around theneeds of patients and carers. The way to achieve this is through meaningful involvement and thedevelopment of partnerships between patients, carers and healthcare staff to shape current andfuture service delivery.

Working with clinical networks and NHS organisations across England, we support clinical teams andmanagers, providing practical tools and techniques that transform, deliver and build lasting improvementsacross care pathways. Improvements that make a difference to patients, services and staff not only stroke butalso in cancer, diagnostics, heart, and lung services, meeting the quality, innovation, productivity andprevention goals as part of the QIPP agenda.

This is a snapshot of some of the excellent work that continues across the country, for further details andmore examples go to: www.improvement.nhs.uk/pee

In 2011, South Central Cardiovascular Network wereaware that their work to date on PPE was not as robustas it could be. They had a vision and ambition that:

• PPE should not be lip service• Work undertaken is based on real patient and carer experience

• PPE becomes an integral part of work taken forward by trusts.

The Stroke Association were commissioned to deliveran engagement project employing two patient andcarer involvement coordinators. With leadership fromthe network director and mentorship and coachingprovided by Wendy Gray from NHS Improvement, amodel was developed. One of the main outputs of themodel was the creation of a people bank to enablethem to involve people who have experience of usinghealth and social care services and their family andcarers in everything they do. A patient representativedevelopment programme is provided to all people onthe bank. A range of opportunities is then open tomembers on the bank:

• Taking part in events and panels• Co producing information• Peer review of services• Staff training.

Key learning• Recruit, train and support people to work with you• Design and deliver a training programme that’s flexible where healthcare staff and patients learn together

• Provide people with a range of involvement opportunities• Regular dialogue to maintain momentum• Feedback on impact of involvement• To start a conversation about improving quality means being transparent about the data, the outcomes peopleare achieving and managing expectations.

For further information contact the South CentralCardiovascular Network.

Patient and Public Engagement (PPE) in South Central - A Step Change

PATIENT AND PUBLIC ENGAGEMENT AND EXPERIENCE

PATIENTCARER BANK

CardiovascularSteering GroupStroke Steering

Group

PeerReviews

Panels

UIGs

EngagementsConsultations

A resource for patients, carers, family and friends affected by strokeDirectory of Services in Shropshire.

Shropshire and Staffordshire Heart and StrokeNetwork have developed and published anexcellent resource for patients, family and friends affected by stroke. Its aim is to provide help, advice and support to allow individuals to selfcare. Research shows that supporting self care canimprove health outcomes and increase patientsatisfaction.

The handbook has been produced in collaboration between NHS staff working in strokeservices, patients and carers across Shropshire and is supported by Shropshire County PCT.

Shropshire and Staffordshire Heart and Stroke Network

A three year project funded by the Department ofHealth, Community Voices involved working closelywith stroke survivors and carers, NHS Improvement,stroke networks, regional Stroke Association staffand other health and social care professionals toencourage survivors and carers to engage withcommissioners and providers. A key outcome of thework is the development of The Stroke InvolvementCharter. The charter lays out what stroke survivors andcarers need in order to make the engagement they areinvolved in effective.

Community Voices was an England only project andfocused on engagement with the NHS. However webelieve that these materials are useful to anyone whowants to use their experiences to improve the way thatcare and services are commissioned, planned anddelivered.

Stroke Association Community Voices

To view the booklet in full go to: www.networks.nhs.uk/nhs-networks/shropshire-and-staffordshire-heart-and-stroke/patient-public/DOS%20Final%20March%202012v2.pdf

For further information and to download thepublications go to:www.stroke.org.uk/involved/help-improve-stroke-care-and-services

SPOTLIGHT ON:PATIENT AND PUBLIC ENGAGEMENT AND EXPERIENCE

NHSNHS Improvement

Stroke