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Early identification and services – The role of developmental pediatrics. From 4th Child Protection Forum in Tajikistan, 2013.
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Health status of women/children in GeorgiaIndicator Statistical data
2009 2011
Maternal mortality rate 52,1 27,6
Antenatal visits 99,2 99,8
Skilled attendant at delivery 97,4 98,4
Under 5 mortality rate 16 13,8
Infant mortality rate 14,9 12,1
Underweight 1,7
Stunting 11,1
Sub-optimal breastfeeding 45
Children with disabilities or developmental Children with disabilities or developmental difficultiesdifficultiesLegislative basement
Approximately 8000 children with special need Community Based Services
Funded by the State
Early intervention services ( 0-7 years)
Day care centers ( 6-18 years)
Inclusive Schools
Inclusive kindergartens (limited)
Project based
• Home care services
Residential and Alternative Services
Specialized foster care for children with special needs (0-18 years)
Boarding schools
Two Residential Institutions (6-18 years)
One Infant Home (0-6 years) with increasing rate of children with disabilities (about 70%)
Residential Institutions of child care (unit)
Maternal and Child Health Care Services in Maternal and Child Health Care Services in
GeorgiaGeorgia
Women’s consultation
Family center Doctor
Maternity houses
Referral (transportation)
services
Outpatient clinics
ambulance
Diagnostic Centers
Clinics/ Hospitals
Child developmentcenters
Rehabilitation/ interventionprograms
Health care services
Preschool
Counseling parent education
Early identification, intervention in case of problems
Feasible: ~30 Contacts with Health System during pregnancy and first 2 years
3
2
Conceptual Overview:
MCH Contacts during 1000 day Period
Developmental Evaluation
Developmental surveillance
Developmental screening
Developmental assessment and
intervention
Primary health care
ECD Center
Mental Health Center
• EARLY IDENTIFICATION• ADEQUATE
MANAGEMENT / REFERRAL
Primary
health care
State Program on Child Health and Developmental Surveillance for
Primary Health Care Facilities
• Antenatal care - 4 visits of pregnant women in Women
Consultation/Maternity Units (prevention, assessment, identification of
high risk, diagnostics, counseling, referral)
• Delivery – based on risk, in different level maternity units (I,II,III), and
established referral system for transportation
• Healthy child visits – in outpatient clinic ( patronage visits)
• Ambulance services
Primary health care
Development of national guidelines and protocols for primary health care services (simple, easy to use, based on milestones and red flags of development)
Development of referral criteria for referral from Primary Health Care level to the National ECD Center
Development and implementation of mother–baby book (includes doctor’s record; mother notes; and main recommendations on breastfeeding, complementary feeding, child developmental milestones, and stimulation)
Development and revision (by international experts) of training modules on child development
Development of guidelines on child abuse and neglectTraining of primary health care staff on child development
Activities conducted by ECD center staff
ECD Center
Clinical direction
Educational Direction Research
Direction
ECD Center
Clinical direction
• CHILD DEVELOPMENT IS HOLISTIC.• Assessed by multidisciplinary team (pediatrician, neurologist, psychologist,
ophthalmologist…): Child physical growth, BMI based on WHO growth standards Risk factors of child development Child development using parent questionnaires and screening tools
(ASQ, PEDS, PEDS DM, Pediatric symptom check list, DENVER, MCHAT, RAVEN, KAUFMAN, WECHSLER, PIK 17 …)
Assessment of mother child interaction (BRIGANCE) Assessment of child behavior by psychologist Neurological assessment Visual screening Hearing screening Assessment of school readiness
• Counseling of parents
State Program on Child Development Screening at the ECD Center
ECD Center
Clinical direction
Some indices of developmental and behavioral problems
Over one year, 5’875 patients (0-6 years)
Case A Preterm girl born at 32 weeks of gestation, with very low birth
weight 1240, length 40 cm, small for gestational age, RDS
2 years old practically healthy child, she catches up in growth and her development is appropriate for her biological age
Maternity unit Children’s Hospital (NICU)
ECD
• retinopathy
• nutritional problems
•motor developmental problems
Specialized
ophthalmological
services Physical
therapy
Case B Boy 3 years and 6 month, with probable language development
delay
Now he is 5 years boy, with mild communication problems,
speech is understandable
Outpatient clinic
ECD
• autistic spectrum disorder
• deprivation
ABA therapy Home
visiting
program
Inclusive
Kindergarten
Case C Girl 3 year-old, with probable language developmental
delay
Now she is 4 years, starting to speak
Outpatient clinic
ECD
• hearing screening – hearing impairment
Full audio logic
assessment
Speech
therapist
Special Cochlear
Implants
ECD Center
Educational Direction
Development of
•Syllabus and Curriculum for 4th grade medical students on
CHILD DEVELOPMENT (materials for teachers and students,
lecture slides, case studies, tests)
•Materials on identification of child abuse and neglect for
students and teachers
•Two-month training program on CHILD DEVELOPMENT and
BEHAVIOR for residents
•Participation in Development and Validation of ELDS Standards
Development of training curriculum for medical staff
•Training activities
ECD Center
Research Direction
Nutrition problems and child development
Biological and social risk factors
Heavy metals and child development
Future PlansFuture Plans
CLINICAL DIRECTIONCLINICAL DIRECTION
Implementation of high sensitive and specific developmental
assessment and screening tools and upgrading the skills of
specialists (speech therapist, occupational therapist, behavioral
therapist)
Strengthening the referral system from the Primary Health
Care facility to National ECD center
Establishment of regional ECD centers
Future PlansFuture Plans EDUCATIONAL DIRECTIONEDUCATIONAL DIRECTION
Development of practical textbook on child development and
behavior
Training of medical staff from the primary level to regional centers
Society awareness campaign on importance of early years,
supporting child development and the benefit of early intervention
ALL DIRECTIONSALL DIRECTIONS
Establishing partnership between Georgian National ECD Center
with well functioning ECD centers in developed countries for
ongoing collaboration and consultations regarding patients,
assessment tools, teaching tools, research and etc.
ConclusionsConclusionsVulnerable children have a right to health and wellbeing
services to achieve their potential
The window of opportunity for early identification and intervention is short, but
The health sector in CEE/CIS Is in frequent contact with pregnant women, infants, and young
children Has the opportunity to prevent disabilities and delays and support
good parenting Can identify risk and intervene early to improve outcomes for children
There are many effective and efficient opportunities to improve the Continuum of Health Care and improve collaboration with other sectors
“We are guilty of many errors and many
faults, but our worst crime is abandoning
the children, neglecting the fountain of life.
Many of the things we need can wait. The
child cannot. Right now is the time his
bones are being formed, his blood is
being made, and his senses are being
developed. To him we cannot answer
‘Tomorrow’, his name is today.”
- Gabriela Mistral
Thank you for your attention