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Presentation of Workshop on Technology for Healthcare and Healthy Lifestyle 2011Friday 2nd Dec 2011Mesa Redonda Ihttp://www.tsb.upv.es/wths2011
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Looking forward the “classical” e-patient: approach to a typology PSINET Research Group
Open University of Catalonia. [email protected] @armayones
III Workshop on Technology for HealthCare and Healthy
Life Polytechnic University of
Valencia
+ Challenges in Health Social
Networks We need to know more about “Law of attrition” here is the
observation that in any eHealth trial/tool a substantial proportion of users drop out before completion or stop using the application. (Eynsebach;2005)
“Our user (APTIC) shows a high level of self-efficacy, perceived social supports in the PRE analysis” …Can we improve more the “key variables”? What about the rest of patients?
Our (unrealistic) vision: “If I create a “wonderful” Social Network , people will come”.
Not taking in account the role of Facilitator/ Community manager? …Are you specialist in human behavior? ….Captology.
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Why the people “hate” my Social Network?
Why they don’t are “active users” with a high level of participation?
Why they don’t come? It’s “Free” and “Wonderful tool for the patients”
Why we are working for only a part o population?
At list……
Do you have questions like?...
+ Where are the ePatients?
+ We need to know more about
ePatients:
Evaluating all their characteristics:
Educational level
Age
Attitudes
Informatics skills
Informational skills
Reading level
Writing skills
Social skills
Expectative about health/disease
Interest in collaborate in research
+ Our approach
Survey/Focus Group/In-deep interviews about demographic and social information
Use of two specific Scales (or create one)
-eHeals Scale: eHealth Literacy Scale
-Patient Activation Measure Scale.
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+ eHealth Literacy Scale
I know what health resources are accessible through the Internet.
I know where to find useful health resources on the Internet.
I know how to find useful health resources on the Internet.
I know how to use the Internet to find answers to health issues.
I know how to use the information you find on the Internet about health for me to be helpful.
I have the skills to assess health resources found on the Internet.
I can distinguish in Internet health resources of good quality of poor quality
I feel safe when using Internet information in making health decisions.
+ Patient Activation Measure (PAM)
When all is said and done, I am the person who is responsible for managing my health condition.
I am confident that I can take actions that will help prevent or minimize some symptoms or problems associated with my health condition.
I know what each of my medications do.
I am confident that I can tell when I need to go get medical care and when I can handle a health problem myself.
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I know the different medical treatment options available for my health condition.
I have been able to maintain the lifestyle changes for my health that I have made.
I know how to prevent further problems with my health conditions.
I am confident I can figure out solutions when new situations or problems arise with my health.
I am confident that I can maintain lifestyle changes like diet and exercise even during times of stress.
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eHealth Literacy/ PAM
High eHealth
Low eHealth
High PAM
“Ideal” ePatient
“Analogic patient”
Low PAM
“Digital Citizen”
Risk patient/Exclusion
But, if…we combine both..?
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+ At the end…The Personalized intervention with ePatients can be a good strategy to improve our knowledge about
Personalized Medicine: Right Drug, Right Patient, Right Moment
Personalized ePatient Intervention Right Social Media Tool, Right Person,
Right Moment
