Today’s Theme:In Electronic Health Records We Trust?

Building trust between patients / service users + other stakeholders in the development of EHRs in Ireland

1. Data sharing & use

2. Patient-clinician relationships

What contributions do patients want to make?

Challenges?

Opportunities?

What is an Electronic Health Record?

What is the National Electronic Health Record?

Moving  from  paper  records  locked  in  organisations  to  a  digital  patient  record  shared  across  care  settings

Main  Components

Examples:• Order  Communications   /  Results  Reporting• Medicines  Management• Clinical   Notesstems

Examples:• Single  Master  Patient   Index• Scheduling• Clinical   Notes  /  Records• Screening  &  Surveillance

NationalSharedRecord

CommunityOperationalSystems

AcuteOperationalSystems

Individual  Health  Identifier

The  “glue”   that   binds   all  this   together  and  maintains   integrity   and  security  across  the  system

The  Individual   Health   Identifier  Programme  is  a  key  enabler  that  allows   information   to  be  shared  about   a  patient

PharmacyGP  Systems Private  

Hospitals

Other  healthcare   providers  will   access  and  contribute   to  the  National   Shared  Record  through   the  Integration   Capability

What do Irish people think?

What are the benefits for patients?

• From having your health data stored in one place?

• From sharing your information and data?• for research• for evaluating and improving health, social care services?

• From how it afffects the relationship with your clinician?

Potential Challenges / Opportunities• Workload

• Sharing Information

• Access to Information

• Record Content

• Confidentiality

• Patient Consent

• Implementation

Northern Ireland eCR (estab. 2013)

• Provides clinicians with access to patient information

• Patients can see their data, opt-out policy

• +3 years – very few patients refusing a request to view data

• Consultations flow a lot better• If used to access info for 30+ patients, saves up to 60 mins daily

• Better quality of interaction• Frees up time for the ‘while I’m here’ scenario

Realising full potential of patient registries

• 109 ‘national data collections’ (HIQA, 2014)

• Under Health Info Bill, Minister will be able to insist that people mandatorily return to a limited number of gold standard registries

• Current challenges are stark:• Patient consent• Data Management• Governance• Cost of capturing data• Sustainability