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Presentation by Aarne Rajalahti announcing the launch of the European Self-Directed Support Network.
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The European Self-Directed Support Network
Aarne Rajalahti Development Manager
Service Foundation for People with Intellectual DisabilitiesEASPD Project Workshop, Istanbul, 26.9.2013
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We talk about person-centredness - but the service system is not person-centred
Local authorities trying to fit people into extisting services
Servicesavailable
Can they be person- centered?
People and their lifes and needs are different
Person-centered planning isn’t enough, if there are no real choices or services are always similar to everybody
Money is being spent on segregated services rather that inclusion
People don’t have real choices or control over their lives
Public tendering processes have mixed the picture even more. Bidding doesn’t fit in housing and support services of people with disabilities but is a growing reality
Laws
People with different lifes, needs and goals
Funding by taxation
“I sit in a day activity center and do nothing except drink coffee. I am a young man. Is this what my life will
always be?”
“My self-autonomy isn’t being respected in a service home. I wan’t to move out”.
“I’d like to spend my time sometimes with someone else than my mom or in a
group”
These are things that people with disabilities actually say:
Self-direction is a key to citizenship
”Citizenship model”, by Simon Duffy, The Centre for Welfare Reform
What is Self-Directed Support• Across Europe there are now different systems of funding and some different
experiments in self-directed support• However there are many differences between these systems and many different
words are used to describe these systems: – personal budgets – individual budgets – individualised funding – selfmanaged funding – self-directed support – service brokerage – direct payments etc.
• There are differences between countries. For example who can have a personal budget, what can it be used for, how systems are funded, what kind of support there is to self-direction.
What is Self-Directed SupportSDS is any system of funding that aims to enable people with disabilities to achieve full and active citizenship
We currently believe that an effective system will have the following qualities:
1. Rights - strong rights that give people proper entitlements2. Control - the person, or someone close to them, can control the budget3. Clarity - the systems, its rules and the budgets are clear4. Flexibility - budgets can be used in many different ways5. Ease of Use - it is easy to plan, manage budgets and control assistance6. Learning - information, advice and opportunities for innovation are available7. Contribution - budgets can help people make a contribution to society
Self-directed support funding systems do NOT refer to means/money for basic income (food, clothes, rent) which may be called salaries, pensions, income security, benefits etc. Self-directed support (partly) replaces funding that was given to services in the past.
Creating of a personal budget -from people’s needs, services and support they are entitled to
-from things people want to change or achieve
Making of a support plan (with support if needed)
Analyzation of a support plan ( + final budget)
Living life = organizing and getting the support and services, what’s written in the support plan
Evaluation = Is the support right and adequate
Revising of a budget
Person-centred planning
What do I want to achieve?What do I want to keep?
What do I want to change?
(Self) evaluation of support needs
One example of SDS
Why is self-directed support important
1. People with intellectual disabilities have theright to be in control.2. Services should be accountable to citizens with intellectual disabilities.3. People tend to make better decisions for themselves than other people make for them4. Quality increases with flexibility, innovation and challenge.
(Slide by Simon Duffy, The Centre for Welfare Reform)
Ideas for The European Self-Directed Support Network
Mission
To help persons with disabilities across Europe to achieve full citizenship by reforming systems for funding assistance and meeting the human rights of people with disabilities.
Ideas for The European Self-Directed Support Network
Objectives1. To identify systems of self-directed support used in Europe2. To identify and share good practice3. To identify obstacles to good practice4. To create a network of champions for self-directed support across Europe (of interested organisations, people with disabilities and families)5. To build alliances with other groups who are using self-directed support (not just people with disabilities)6. To help improve European policy-making on self-directed support
The first phase of the project
In the first phase of the project we aim to work with our partners to gather information about the progress of Self-Directed Supports across Europe and to establish connections with organizations in each European country who wish to be part of the project.
Our objective is to gather as much information as possible in time for the EASPD policy seminar on 4th December and to invite champions of self-directed support to the event for further discussion.
Online survey here: https://docs.google.com/forms/d/1UfGyDRJUGQJYXcdVm0i_98fdw1XdeT37NoZVclbE5aM/viewform
PartnershipWe need partners in all of the objectives. We need to •meet, share, learn •make research, build strategies •grow a network •use social media and easy to access -tools •organize events, lobby, publish papers•find ways for service producers to help•work together to promote people’s right to access full citizenship
The European Self-Directed Support Network
– want to join in? Contacts:
Aarne Rajalahti Dr Simon DuffyDevelopment Manager Director ofThe Centre for Welfare ReformService Foundation for [email protected] People with Intellectual Disabilities +44 7729 7729 [email protected]+358 40 517 4447
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