Medicine 2.0 Medicine 2.0 Maastricht, 29-30 november 2010Maastricht, 29-30 november 2010

E-health: E-health:

Perspectives Of Children, Parents And Perspectives Of Children, Parents And

ProfessionalsProfessionals

Needs, Obstacles And ChallengesNeeds, Obstacles And Challenges

Prof. Ria Reis Lex Winkler, MDChristine Dedding, PhD. Sjouke Liem, MSc.

Cyberclinic

1. Medical information

2. Panel of experts

3. Peer contact

4. Emotional support

Research

• Phase I: Diabetes Cyberclinico Needso Pros and cons

• Phase II: Asthma Cyberclinico Needso Effects of Cyberclinic:

1. Emotional wellbeing2. Participation

Dynamic Learning Process

Diabetes Cyberclinic

Results I

Diabetes Cyberclinic Results II

Asthma CyberclinicImprovement I: Trust

Asthma CyberclinicImprovement II: Panel of Experts

Asthma Cyberclinic

Improvement III: Personal Stories

Community of Learning?

Asthma Cyberclinic Results I: Needs & Perceived Value

Children Parents Health professionals

1. Information

2. Fun

3. Emotional support

1. Information

2. Insight in child’s perspective

3. Peer contact for children

1. Peer contact for children

2. Information for children

3. Insight in child’s perspective

Asthma Cyberclinic

Results II: Effect Study (preliminary)

‘I gained more self confidence and courage. Also, I

shouldn’t think I am any different from other kids because I have asthma and can’t be as active in sports activities, because that’s not true!’

‘The Cyber Clinic helped me to find out what asthma is and what can be done about it. You can get things off of your chest and be yourself, ask others questions and get pleasant responses. It’s just a very pleasant site!’

Asthma Cyberclinic Results III: adults

1. Trust

• Information

• Expertise of panel of experts

2. Risks

• Incorrect / negative information

• Out of sight of adults

Conclusion

1. Added Value• Information• Emotional support

2. Lurking Online

Embrace lurking