Overall aim“Improving the access to and the quality of health and social services for marginalised
people”
To tackle health inequalities and to improve prevention, care and treatment services,
targeting blood-borne infectious diseases (BBID’s), in particular Hepatitis C and HIV/AIDS
among vulnerable and high risk populations
Why?
�Acces to health services is limited
�Quality of services is not sufficiant
�Policies are not targeted
Health problems of marginalised groups and people are a threat for public health and welfare !
How?
�Creating a platform for mutual exchange
�Collecting and reviewing existing evidence
�Implementing innovative approaches
�Addressing the policy level: Translation of outcomes and results towards the policy level
DPIP project 2013/14
� 30 partner from 15 countries� 08 universities / health institutes� 15 service provider (NGO's)� 02 drug user organisations� 05 European Networks
� Observer: EMCDDA, ECDC, WHO
Partner
� improve knowledge� improve capacities� Influence policies
Aims
� WS 0 Coordination FRG� WS 1 Evaluation CIAR� WS 2 Inventory CIAR� WS 3 Peer training SDUU� WS 4 Literature review CHIP� WS 5 Policy & Advocacy APDES
Working streams
Liver or Die
To inform and to be informed
To learn and to teach
Ett projekt som drivs av
Svenska Brukarföreningen,
med stöd av Smittskyddsinstitutet
Feedback
– hard to access young drug user
– lack of competence of health care professionals to communicate with patients
– test kits not available
– wrong information: cut and paste from HIV info
- great need of hep c support groups
- systemic barriers: opening/appointment hours
– no services on the country side
– fear of side effects – no information or only negative ones
– waiting lists for access
– active drug user are not treated, alcohol sober for 2 years
– no national guidelines, every hospital has own approach
Workstream 2
Inventory of effective interventions
Rationale
* Testing for HCV and referral to HCV treatment are key interventions
* In practice testing rates are low, except from substitution treatment
* PWUD are often not aware about risk of HCV infection
* Low-threshold services assume that most PWUD are tested in prison
THUS
HCV testing needs to be increased in particular in low-threshold services
Guidelines
Compilation of the most recent guidelines for HCV testing and
antiviral treatment
Aim
Guidelines as indicators for assessment and evaluation of
good practice in HCV testing, pre- and post-test counselling
and referral to treatment services
Delivered to active drug users
Interviews –drug users
Interviews with 50 clients of the low-threshold drug services
Method: Structured questionnaire
Access: through services that participate in the monitoring
Topics:
risk awareness and risk behaviour
previous HCV testing
willingness to uptake HCV testing
experiences with pre- and post-test counselling
acceptance of HCV treatment
Interviews staff
In services which implemented the monitoring toolQualitative face-to-face interviews
Objective> To identify possibles barrierrs barriers to testing and referral to treatment
at different levels> Structure - limited staff> Economic – limited funding for testing> Individual – clients not want to get tested
� Study results and toolkit� Toolkit with templates� 4 national events: Portugal, Finland, Germany, Romania
Results
� resource centre� peer training manual� policy & advocacy strategy� Literature review� Study results and toolkit
Results
Activities:
1. Mapping, analyzing and comparing existing national and European Hepatitis C action plans, strategies, recommendations and guidelines.
2. Development and implementation of 1 European and 4 national advocacy strategies.
3. Organising 1 European Parliamentary meeting and 4 national policy dialogue meetings.
4. Setting up a sustainable ‘Hepatitis C and drug use’ platform of experts and stakeholders.
Workstream Policy
� Facebook campaign� Hepatitis policy event EP, autumn 2014� final conference Berlin, October 2014
Next year
www.hepatitis-c-initiative.eu
Get involved [email protected]