Overall aim“Improving the access to and the quality of health and social services for marginalised

people”

To tackle health inequalities and to improve prevention, care and treatment services,

targeting blood-borne infectious diseases (BBID’s), in particular Hepatitis C and HIV/AIDS

among vulnerable and high risk populations

Why?

�Acces to health services is limited

�Quality of services is not sufficiant

�Policies are not targeted

Health problems of marginalised groups and people are a threat for public health and welfare !

How?

�Creating a platform for mutual exchange

�Collecting and reviewing existing evidence

�Implementing innovative approaches

�Addressing the policy level: Translation of outcomes and results towards the policy level

DPIP project 2013/14

� 30 partner from 15 countries� 08 universities / health institutes� 15 service provider (NGO's)� 02 drug user organisations� 05 European Networks

� Observer: EMCDDA, ECDC, WHO

Partner

� improve knowledge� improve capacities� Influence policies

Aims

� WS 0 Coordination FRG� WS 1 Evaluation CIAR� WS 2 Inventory CIAR� WS 3 Peer training SDUU� WS 4 Literature review CHIP� WS 5 Policy & Advocacy APDES

Working streams

Liver or Die

To inform and to be informed

To learn and to teach

Ett projekt som drivs av

Svenska Brukarföreningen,

med stöd av Smittskyddsinstitutet

Feedback

– hard to access young drug user

– lack of competence of health care professionals to communicate with patients

– test kits not available

– wrong information: cut and paste from HIV info

- great need of hep c support groups

- systemic barriers: opening/appointment hours

– no services on the country side

– fear of side effects – no information or only negative ones

– waiting lists for access

– active drug user are not treated, alcohol sober for 2 years

– no national guidelines, every hospital has own approach

Workstream 2

Inventory of effective interventions

Rationale

* Testing for HCV and referral to HCV treatment are key interventions

* In practice testing rates are low, except from substitution treatment

* PWUD are often not aware about risk of HCV infection

* Low-threshold services assume that most PWUD are tested in prison

THUS

HCV testing needs to be increased in particular in low-threshold services

Guidelines

Compilation of the most recent guidelines for HCV testing and

antiviral treatment

Aim

Guidelines as indicators for assessment and evaluation of

good practice in HCV testing, pre- and post-test counselling

and referral to treatment services

Delivered to active drug users

Interviews –drug users

Interviews with 50 clients of the low-threshold drug services

Method: Structured questionnaire

Access: through services that participate in the monitoring

Topics:

risk awareness and risk behaviour

previous HCV testing

willingness to uptake HCV testing

experiences with pre- and post-test counselling

acceptance of HCV treatment

Interviews staff

In services which implemented the monitoring toolQualitative face-to-face interviews

Objective> To identify possibles barrierrs barriers to testing and referral to treatment

at different levels> Structure - limited staff> Economic – limited funding for testing> Individual – clients not want to get tested

� Study results and toolkit� Toolkit with templates� 4 national events: Portugal, Finland, Germany, Romania

Results

� resource centre� peer training manual� policy & advocacy strategy� Literature review� Study results and toolkit

Results

Activities:

1. Mapping, analyzing and comparing existing national and European Hepatitis C action plans, strategies, recommendations and guidelines.

2. Development and implementation of 1 European and 4 national advocacy strategies.

3. Organising 1 European Parliamentary meeting and 4 national policy dialogue meetings.

4. Setting up a sustainable ‘Hepatitis C and drug use’ platform of experts and stakeholders.

Workstream Policy

� Facebook campaign� Hepatitis policy event EP, autumn 2014� final conference Berlin, October 2014

Next year

www.hepatitis-c-initiative.eu

Get involved !eschatz@correlation-net.org