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What is health literacy and how has it evolved over time Presentation to the NASIOM Roundtable on Health Literacyrsquos workshop Health Literacy and Precision Medicine An Important Partnership 3 March 2016
William (Bill) Elwood PhD
NIH Office of Behavioral and Social Sciences Research WilliamElwoodnihgov
301-525-5433
HLN Capacity process decisions
The degree to which individuals have the capacity to obtain
process and understand basic health information and
services needed to make appropriate health decisions o Healthy People 2010 2020 Institute of Medicine 2004 Ratzan amp Parker 2000
Communication for the public good o Ratzan 2001
The degree to which individuals can obtain process
understand and communicate about health-related
information needed to make informed health decisions
o Berkman Davis amp McCormack 2014
NIH-funded health literacy research
bull Understanding and promoting health literacy
OBSSR-led PARs 2004-2016
PARs = Special review andor receipt considerations
bull Investigator-initiated and other standard FOAs
536 projects $504 million through FY2015
bull 9600+ health-literacy publications in PubMed
Legend
FOA = Funding Opportunity Announcement
PA = Program Announcement one type of NIH FOA
Literature of health literacy
Operationalizes and places topic in clinical personal and
health-specific settings to demonstrate that while health
literacy may comprise an individualrsquos capacity such capacity
is constantly in flux given a personrsquos
bull Milieu
bull Group(s) to which one belongs
bull Type of setting and
bull Wellness andor disease issues
that a person faces at any given time
Individual health-literacy capacity varies
Themes from NIH portfolio
Disease issue
Settingcontextsituation
Target-population group
Wellness issue
Target populations
bull American Indian adults
bull Teen mothers
bull Multiple age groups
bull Physicians nurses practitioners
pharmacists
bull Health-practitioner students
Disease contexts
bull Cancer-risk groups
bull Diabetics with foot ulcers
bull (Non-)adherent cancer glaucoma
and HIV patients
Increased emphasis on communication
bull Family discussions
bull Language proficiency levels
bull Self-reported literacy and numeracy
abilities
bull Patient-physician communication
bull Prescription-dosing education
bull Shared-decision-making processes
bull Negotiation processes to obtain
o Informed treatment consent
o Research participant consent
with patientsparticipants
across educational levels
Research models development tests
Models include
o Cultural- and linguistic-tailoring of interventions
o Social-network analyses
o Wait-listed randomized controlled trials
Development and tests of
o New and existing tools to measure human health literacy
o Whether and how health information is sufficiently clear so typical
patients are likely to understand it
o Reliability and validity of tests across
patient populations
healthcare provider types
health care organizations
Hypothesis-generating
Studies on complex health problems
bull Qualitative study with GPs patients
pharmacists
How to improve prescription adherence
among people who take multiple scripts for
multiple conditions
bull What types of conversations with elders
are most effective to determine what life-
sustaining treatment they envision
before they become unable
To decide
To converse
Common element Communication
The symbolic means people use to describe themselves
their feelings situations issuesmdashto account for their
behaviors and to induce recognition or influence among
others
bull obtain process understand and communicate about
health-related information needed to make informed
health decisions
bull obtain process and understand basic health information
and services needed to make appropriate health
decisions
bull communication for the public good
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
HLN Capacity process decisions
The degree to which individuals have the capacity to obtain
process and understand basic health information and
services needed to make appropriate health decisions o Healthy People 2010 2020 Institute of Medicine 2004 Ratzan amp Parker 2000
Communication for the public good o Ratzan 2001
The degree to which individuals can obtain process
understand and communicate about health-related
information needed to make informed health decisions
o Berkman Davis amp McCormack 2014
NIH-funded health literacy research
bull Understanding and promoting health literacy
OBSSR-led PARs 2004-2016
PARs = Special review andor receipt considerations
bull Investigator-initiated and other standard FOAs
536 projects $504 million through FY2015
bull 9600+ health-literacy publications in PubMed
Legend
FOA = Funding Opportunity Announcement
PA = Program Announcement one type of NIH FOA
Literature of health literacy
Operationalizes and places topic in clinical personal and
health-specific settings to demonstrate that while health
literacy may comprise an individualrsquos capacity such capacity
is constantly in flux given a personrsquos
bull Milieu
bull Group(s) to which one belongs
bull Type of setting and
bull Wellness andor disease issues
that a person faces at any given time
Individual health-literacy capacity varies
Themes from NIH portfolio
Disease issue
Settingcontextsituation
Target-population group
Wellness issue
Target populations
bull American Indian adults
bull Teen mothers
bull Multiple age groups
bull Physicians nurses practitioners
pharmacists
bull Health-practitioner students
Disease contexts
bull Cancer-risk groups
bull Diabetics with foot ulcers
bull (Non-)adherent cancer glaucoma
and HIV patients
Increased emphasis on communication
bull Family discussions
bull Language proficiency levels
bull Self-reported literacy and numeracy
abilities
bull Patient-physician communication
bull Prescription-dosing education
bull Shared-decision-making processes
bull Negotiation processes to obtain
o Informed treatment consent
o Research participant consent
with patientsparticipants
across educational levels
Research models development tests
Models include
o Cultural- and linguistic-tailoring of interventions
o Social-network analyses
o Wait-listed randomized controlled trials
Development and tests of
o New and existing tools to measure human health literacy
o Whether and how health information is sufficiently clear so typical
patients are likely to understand it
o Reliability and validity of tests across
patient populations
healthcare provider types
health care organizations
Hypothesis-generating
Studies on complex health problems
bull Qualitative study with GPs patients
pharmacists
How to improve prescription adherence
among people who take multiple scripts for
multiple conditions
bull What types of conversations with elders
are most effective to determine what life-
sustaining treatment they envision
before they become unable
To decide
To converse
Common element Communication
The symbolic means people use to describe themselves
their feelings situations issuesmdashto account for their
behaviors and to induce recognition or influence among
others
bull obtain process understand and communicate about
health-related information needed to make informed
health decisions
bull obtain process and understand basic health information
and services needed to make appropriate health
decisions
bull communication for the public good
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
NIH-funded health literacy research
bull Understanding and promoting health literacy
OBSSR-led PARs 2004-2016
PARs = Special review andor receipt considerations
bull Investigator-initiated and other standard FOAs
536 projects $504 million through FY2015
bull 9600+ health-literacy publications in PubMed
Legend
FOA = Funding Opportunity Announcement
PA = Program Announcement one type of NIH FOA
Literature of health literacy
Operationalizes and places topic in clinical personal and
health-specific settings to demonstrate that while health
literacy may comprise an individualrsquos capacity such capacity
is constantly in flux given a personrsquos
bull Milieu
bull Group(s) to which one belongs
bull Type of setting and
bull Wellness andor disease issues
that a person faces at any given time
Individual health-literacy capacity varies
Themes from NIH portfolio
Disease issue
Settingcontextsituation
Target-population group
Wellness issue
Target populations
bull American Indian adults
bull Teen mothers
bull Multiple age groups
bull Physicians nurses practitioners
pharmacists
bull Health-practitioner students
Disease contexts
bull Cancer-risk groups
bull Diabetics with foot ulcers
bull (Non-)adherent cancer glaucoma
and HIV patients
Increased emphasis on communication
bull Family discussions
bull Language proficiency levels
bull Self-reported literacy and numeracy
abilities
bull Patient-physician communication
bull Prescription-dosing education
bull Shared-decision-making processes
bull Negotiation processes to obtain
o Informed treatment consent
o Research participant consent
with patientsparticipants
across educational levels
Research models development tests
Models include
o Cultural- and linguistic-tailoring of interventions
o Social-network analyses
o Wait-listed randomized controlled trials
Development and tests of
o New and existing tools to measure human health literacy
o Whether and how health information is sufficiently clear so typical
patients are likely to understand it
o Reliability and validity of tests across
patient populations
healthcare provider types
health care organizations
Hypothesis-generating
Studies on complex health problems
bull Qualitative study with GPs patients
pharmacists
How to improve prescription adherence
among people who take multiple scripts for
multiple conditions
bull What types of conversations with elders
are most effective to determine what life-
sustaining treatment they envision
before they become unable
To decide
To converse
Common element Communication
The symbolic means people use to describe themselves
their feelings situations issuesmdashto account for their
behaviors and to induce recognition or influence among
others
bull obtain process understand and communicate about
health-related information needed to make informed
health decisions
bull obtain process and understand basic health information
and services needed to make appropriate health
decisions
bull communication for the public good
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
Literature of health literacy
Operationalizes and places topic in clinical personal and
health-specific settings to demonstrate that while health
literacy may comprise an individualrsquos capacity such capacity
is constantly in flux given a personrsquos
bull Milieu
bull Group(s) to which one belongs
bull Type of setting and
bull Wellness andor disease issues
that a person faces at any given time
Individual health-literacy capacity varies
Themes from NIH portfolio
Disease issue
Settingcontextsituation
Target-population group
Wellness issue
Target populations
bull American Indian adults
bull Teen mothers
bull Multiple age groups
bull Physicians nurses practitioners
pharmacists
bull Health-practitioner students
Disease contexts
bull Cancer-risk groups
bull Diabetics with foot ulcers
bull (Non-)adherent cancer glaucoma
and HIV patients
Increased emphasis on communication
bull Family discussions
bull Language proficiency levels
bull Self-reported literacy and numeracy
abilities
bull Patient-physician communication
bull Prescription-dosing education
bull Shared-decision-making processes
bull Negotiation processes to obtain
o Informed treatment consent
o Research participant consent
with patientsparticipants
across educational levels
Research models development tests
Models include
o Cultural- and linguistic-tailoring of interventions
o Social-network analyses
o Wait-listed randomized controlled trials
Development and tests of
o New and existing tools to measure human health literacy
o Whether and how health information is sufficiently clear so typical
patients are likely to understand it
o Reliability and validity of tests across
patient populations
healthcare provider types
health care organizations
Hypothesis-generating
Studies on complex health problems
bull Qualitative study with GPs patients
pharmacists
How to improve prescription adherence
among people who take multiple scripts for
multiple conditions
bull What types of conversations with elders
are most effective to determine what life-
sustaining treatment they envision
before they become unable
To decide
To converse
Common element Communication
The symbolic means people use to describe themselves
their feelings situations issuesmdashto account for their
behaviors and to induce recognition or influence among
others
bull obtain process understand and communicate about
health-related information needed to make informed
health decisions
bull obtain process and understand basic health information
and services needed to make appropriate health
decisions
bull communication for the public good
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
Individual health-literacy capacity varies
Themes from NIH portfolio
Disease issue
Settingcontextsituation
Target-population group
Wellness issue
Target populations
bull American Indian adults
bull Teen mothers
bull Multiple age groups
bull Physicians nurses practitioners
pharmacists
bull Health-practitioner students
Disease contexts
bull Cancer-risk groups
bull Diabetics with foot ulcers
bull (Non-)adherent cancer glaucoma
and HIV patients
Increased emphasis on communication
bull Family discussions
bull Language proficiency levels
bull Self-reported literacy and numeracy
abilities
bull Patient-physician communication
bull Prescription-dosing education
bull Shared-decision-making processes
bull Negotiation processes to obtain
o Informed treatment consent
o Research participant consent
with patientsparticipants
across educational levels
Research models development tests
Models include
o Cultural- and linguistic-tailoring of interventions
o Social-network analyses
o Wait-listed randomized controlled trials
Development and tests of
o New and existing tools to measure human health literacy
o Whether and how health information is sufficiently clear so typical
patients are likely to understand it
o Reliability and validity of tests across
patient populations
healthcare provider types
health care organizations
Hypothesis-generating
Studies on complex health problems
bull Qualitative study with GPs patients
pharmacists
How to improve prescription adherence
among people who take multiple scripts for
multiple conditions
bull What types of conversations with elders
are most effective to determine what life-
sustaining treatment they envision
before they become unable
To decide
To converse
Common element Communication
The symbolic means people use to describe themselves
their feelings situations issuesmdashto account for their
behaviors and to induce recognition or influence among
others
bull obtain process understand and communicate about
health-related information needed to make informed
health decisions
bull obtain process and understand basic health information
and services needed to make appropriate health
decisions
bull communication for the public good
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
Increased emphasis on communication
bull Family discussions
bull Language proficiency levels
bull Self-reported literacy and numeracy
abilities
bull Patient-physician communication
bull Prescription-dosing education
bull Shared-decision-making processes
bull Negotiation processes to obtain
o Informed treatment consent
o Research participant consent
with patientsparticipants
across educational levels
Research models development tests
Models include
o Cultural- and linguistic-tailoring of interventions
o Social-network analyses
o Wait-listed randomized controlled trials
Development and tests of
o New and existing tools to measure human health literacy
o Whether and how health information is sufficiently clear so typical
patients are likely to understand it
o Reliability and validity of tests across
patient populations
healthcare provider types
health care organizations
Hypothesis-generating
Studies on complex health problems
bull Qualitative study with GPs patients
pharmacists
How to improve prescription adherence
among people who take multiple scripts for
multiple conditions
bull What types of conversations with elders
are most effective to determine what life-
sustaining treatment they envision
before they become unable
To decide
To converse
Common element Communication
The symbolic means people use to describe themselves
their feelings situations issuesmdashto account for their
behaviors and to induce recognition or influence among
others
bull obtain process understand and communicate about
health-related information needed to make informed
health decisions
bull obtain process and understand basic health information
and services needed to make appropriate health
decisions
bull communication for the public good
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
Research models development tests
Models include
o Cultural- and linguistic-tailoring of interventions
o Social-network analyses
o Wait-listed randomized controlled trials
Development and tests of
o New and existing tools to measure human health literacy
o Whether and how health information is sufficiently clear so typical
patients are likely to understand it
o Reliability and validity of tests across
patient populations
healthcare provider types
health care organizations
Hypothesis-generating
Studies on complex health problems
bull Qualitative study with GPs patients
pharmacists
How to improve prescription adherence
among people who take multiple scripts for
multiple conditions
bull What types of conversations with elders
are most effective to determine what life-
sustaining treatment they envision
before they become unable
To decide
To converse
Common element Communication
The symbolic means people use to describe themselves
their feelings situations issuesmdashto account for their
behaviors and to induce recognition or influence among
others
bull obtain process understand and communicate about
health-related information needed to make informed
health decisions
bull obtain process and understand basic health information
and services needed to make appropriate health
decisions
bull communication for the public good
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
Hypothesis-generating
Studies on complex health problems
bull Qualitative study with GPs patients
pharmacists
How to improve prescription adherence
among people who take multiple scripts for
multiple conditions
bull What types of conversations with elders
are most effective to determine what life-
sustaining treatment they envision
before they become unable
To decide
To converse
Common element Communication
The symbolic means people use to describe themselves
their feelings situations issuesmdashto account for their
behaviors and to induce recognition or influence among
others
bull obtain process understand and communicate about
health-related information needed to make informed
health decisions
bull obtain process and understand basic health information
and services needed to make appropriate health
decisions
bull communication for the public good
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
Common element Communication
The symbolic means people use to describe themselves
their feelings situations issuesmdashto account for their
behaviors and to induce recognition or influence among
others
bull obtain process understand and communicate about
health-related information needed to make informed
health decisions
bull obtain process and understand basic health information
and services needed to make appropriate health
decisions
bull communication for the public good
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
Define health literacy today
bull A dynamic state of being thatrsquos dependent on an
individualrsquos personal and social experiences with
wellness health illness
bull Mental physical changes health information needs
bull Communication how people convey needs access
information and seek recognition that their meaning
corresponds to the otherrsquos
bull Health literacy studies communication thought and
other sociobehavioral processes that facilitate
knowledge abilities and skills to obtain and maintain
optimal health and wellbeing
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
References
bull Askelson NM Chi DL Momany ET Kuthy RA Carter KD Field K amp Damiano PC (2015) The importance of
efficacy Using the Extended Parallel Process model to examine factors related to preschool-age children enrolled
in Medicaid receiving preventive dental visits Health Education and Behavior 42 805-813 DOI
1011771090198115580575
bull Barton JL Trupin L Tonner C Imboden J Katz P Schillinger D amp Yelin E (2014) English language
proficiency health literacy and trust in physician are associated with shared decision making in rheumatoid
arthritis Journal of Rheumatology 41 1290-1297 Doi 103899jrheum131350
bull Berkman ND Davis TC amp McCormack L (2010) Health literacy What is it Journal of Health Communication
15(S2) 9-19 DOI 101080108107302010499985
bull Bond KS Jorm AF Kitchener BA amp Reavley NJ (2015) Mental health first aid training for Australian medical and
nursing students An evaluation study BMC Psychology 3 11 Doi 101186s40359-015-0069-0
bull Boscolo-Hightower A Rafton SA Tolman M Zhou C amp Ebel BE (2014) Identifying families with limited English
proficiency using a capture-recapture approach Hospital Pediatrics 4 16-22 Doi 101542hpeds2013-0040
bull Boyer Y amp Stacey D (2015) Cultural adaptation of a shared decision making tool with Aboriginal women A
qualitative study Medical Informatics and Decision Making 15 1 Doi 101186s12911-015-0129-7
bull Carollo S (2015) Low health literacy in older women The influence of patient-clinician relationships Geriatric
Nursing 36(2 Suppl)S38-42 Doi 101016jgerinurse201502017
bull Champlin S amp Mackert M (2015) Creating a screening measure of health literacy for the Health Information
National Trends Survey American Journal of Health Promotion in press
DOI httpdxdoiorg104278ajhp140604-ARB-253
bull Chan HK Hassali MA Lim CJ Saleem F amp Tan WL (2015) Using pictograms to assist caregivers in liquid
medication administration A systematic review Journal of Clinical Pharmacy and Therapeutics 40 266-272 Doi
101111jcpt12272
bull Chung SY amp Nahm ES (2015) Testing reliability and validity of the eHealth Literacy Scale (eHEALS) for older
adults recruited online Computers Informatics Nursing 33 150-156 Doi 101097CIN0000000000000146
bull Coleman CA amp Fromer A (2015) A health literacy training intervention for physicians and other health
professionals Family Medicine 47 388-392 httpwwwstfmorgFamilyMedicineVol47Issue5Coleman388
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
bull Elwood WN (1999) Burden of sin Transmitting messages and viruses in a stigmatized plague (pp 3-9) In WN
Elwood (Ed) Power in the blood A handbook on AIDS politics and communication Mahwah NJ Lawrence Erlbaum
Associates
bull Elwood WN amp Allen MP (2015 December 17) US-certified health literacy NIH facts and training tools for people and
organizations NIH OBSSR Connector blog post
bull Elwood WN (2015 December 8) The literature of health literacy Over 20 years of science to improve knowledge
skills and health NIH OBSSR Connector blog post DOI 1013140RG2110704726
bull Feng A Wang L Chen X Liu X Li L Wang B Luo H Mo X amp Tobe RG (2015) Developmental Origins of
Health and Disease (DOHaD) Implications for health and nutritional issues among rural children in China Bioscience
Trends 9 82-87 In press PubMed PMID 25902951
bull Fung AW Lam LC Lui VW (2010) Could hypothetical scenarios enhance understanding on decision for life-
sustaining treatment in non-demented Chinese older persons Aging and Mental Health 14 994-999 DOI
101080136078632010501065
bull French KS (2015) Transforming nursing care through health literacy ACTS Nursing Clinics of North America 50 87-
98 Doi 101016jcnur201410007
bull Goeddel LA Porterfield JR Jr Hall JD amp Vetter TR (2015) Ethical opportunities with the perioperative surgical
home disruptive innovation patient-centered care shared decision making health literacy and futility of care
Anesthesia and Analgesia 120 1158-1162 Doi 101213ANE0000000000000700
bull Hamann J amp Heres S (2014) Adapting shared decision making for individuals with severe mental illness Psychiatric
Services 65 1483-1486 Doi 101176appips201400307
bull Institute of Medicine Committee on Health Literacy (2004) Health literacy A prescription to end confusion
Washington National Academies Press
bull Institute of Medicine (2015) Roundtable on Health Literacy main webpage
httpiomnationalacademiesorgActivitiesPublicHealthHealthLiteracyaspx accessed 20 November 2015
bull Jacobs RJ Caballero J Ownby RL amp Kane MN (2014) Development of a culturally appropriate computer-
delivered tailored Internet-based health literacy intervention for Spanish-dominant Hispanics living with HIV BMC
Medical Informatics and Decision Making 14 103 Doi 101186s12911-014-0103-9
bull Jang H amp An JY (2014) Social network analysis of elders health literacy and their use of online health information
Healthcare Informatics Research 20 216-225 Doi 104258hir2014203216
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
bull Jensen KB Morthorst BR Vendsborg PB Hjorthoslashj CR amp Nordentoft M (2015) The effect of the mental health
first-aid training course offered employees in Denmark Study protocol for a randomized waitlist-controlled superiority
trial mixed with a qualitative study BMC Psychiatry 15 80 Doi 101186s12888-015-0466-1
bull Jull J Giles A Minwaashin Lodge The Aboriginal Womenrsquos Support Centre Kenning C Protheroe J Gray N
Ashcroft D amp Bower P (2015) The potential for using a Universal Medication Schedule (UMS) to improve adherence
in patients taking multiple medications in the UK A qualitative evaluation BMC Health Services Research 15 94
Doi 101186s12913-015-0749-8
bull Kiechle ES Bailey SC Hedlund LA Viera AJ amp Sheridan SL (2015) Different Measures Different Outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1538-1546 Doi 101007s11606-015-3288-4
bull Kim EJ amp Kim SH (2015) Simplification improves understanding of informed consent information in clinical trials
regardless of health literacy level Clinical Trials 12 232-236 Doi 1011771740774515571139
bull Koh HK Berwick DM Clancy CM Baur C Brach C Harris LM amp Zerhusen EG (2012) New federal policy
initiatives to boost health literacy can help the nation move beyond the cycle of costly lsquocrisis carersquo Health Affairs 31
434-443
bull Komenaka IK Nodora JN Hsu CH Martinez ME Gandhi SG Bouton ME Klemens AE Wikholm LI amp Weiss
BD (2015) Association of health literacy with adherence to screening mammography guidelines Obstetrics amp
Gynecology 125 852-859 Doi 101097AOG0000000000000708
bull Litchfield IJ Bentham LM Lilford RJ amp Greenfield SM (2014) Test result communication in primary care Clinical
and office staff perspectives Family Practice 31 592-597 Doi 101093fampracmu041
bull Logsdon MC Davis DW Stikes R Ratterman R Ryan L amp Myers J (2015) Acceptability and initial efficacy of
education for teen mothers MCN American Journal of Maternal and Child Nursing 40 186-192 Doi
101097NMC0000000000000126
bull Loueng JL Fitz AL Maack BJ amp Miller DR (2015) Evaluation of health literacy tools for correct prescription
understanding Journal of the American Pharmacists Association 55 273-277 Doi 101331JAPhA201514110
bull Mackert M Champlin S Su Z amp Guadagno M (2015) The many health literacies Advancing research or
fragmentation Health Communication 30 1161-1165 DOI 1010801041023620151037422
bull Mackert M Champlin SE Pasch KE amp Weiss BD (2013) Understanding health literacy measurement through eye
tracking Journal of Health Communication 18(Suppl 1) 185-196 Doi 101080108107302013825666
bull Margolis DJ Hampton M Hoffstad O Malay DS amp Thom S (2015) Health literacy and diabetic foot ulcer healing
Wound Repair and Regeneration 23 299-301 Doi 101111wrr12311
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
bull Mayberry LS Rothman RL amp Osborn CY (2014) Family members obstructive behaviors appear to be more
harmful among adults with type 2 diabetes and limited health literacy Journal of Health Communication 19(Suppl 2)
132-143
bull McClellan FM Wood JE Jr Fahmy SM amp Jones LC (2014) Musculoskeletal health disparities Health literacy
cultural competency informed consent and shared decision making Journal of Long-Term Effects of Medical
Implants 24 195-204 DOI 101615JLongTermEffMedImplants2014010918
bull McNaughton CD Korman RR Kabagambe EK amp Wright SW (2015) Health literacy and blood glucose among
Guyanese emergency department patients without diagnosed diabetes A cross-sectional study Diabetology amp
Metabolic Syndrome 7 31 DOI 101186s13098-015-0028-1
bull Moser DK Robinson S Biddle MJ Pelter MM Nesbitt T Southard J Cooper L amp Dracup K (2015) Health
literacy predicts morbidity and mortality in rural patients with heart failure Journal of Cardiac Failure 21 612-618
DOI 101016jcardfail201504004
bull Nair SC amp Ibrahim H (2015) GCP compliance and readability of informed consent forms from an emerging hub for
clinical trials Perspectives in Clinical Research 6 104-108 Doi 1041032229-3485154012
bull Or C Dohan M amp Tan J (2014) Understanding critical barriers to implementing a clinical information system in a
nursing home through the lens of a socio-technical perspective Journal of Medical Systems 38 99
bull Peay HL amp Henderson GE (2015) What motivates participation in HIV cure trials A call for real-time assessment
to improve informed consent Journal of Virus Eradication 1 51-53 PMC4392850
bull Pellowski JA Kalichman SC amp Finitsis DJ (2015) Reliability and validity of a single-item rating scale to monitor
medication adherence for people living with HIV and lower health literacy HIV Clinical Trials 16 1-9 Doi
1011791528433614Z0000000004
bull Periyakoil VS Neri E amp Kraemer H (2015) No easy talk A mixed methods study of doctor reported barriers to
conducting effective end-of-life conversations with diverse patients PLoS One 10 e0122321 DOI
101371journalpone0122321
bull Petersen I Desmedt C Harris A Buffa F amp Kollek R (2014) Informed consent biobank research and locality
Perceptions of breast cancer patients in three European countries Journal of Empirical Research on Human
Research Ethics 9 48-55 Doi 1011771556264614540600
bull Ramos IN Ramos KS Boerner A He Q amp Tavera-Garcia MA (2013) Culturally-tailored education programs to
address health literacy deficits and pervasive health disparities among Hispanics in rural Shelbyville Kentucky
Journal of Community Medicine and Health Education 3 pii 20475 Doi1041722161-07111000250
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
bull Ratzan SC amp Parker RM (2000) Introduction In CR Selden M Zorn SC Ratzan amp RM Parker (Eds)
National Library of Medicine current bibliographies in medicine Health literacy Bethesda NIH NLM publication
CBM-2001
bull Ratzan SC (2001) Health literacy Communication for the public good Health Promotion International 16 207-214
httpheaprooxfordjournalsorgcontent162207long
bull Rivero-Meacutendez M Suaacuterez-Peacuterez EL amp Soliacutes-Baacuteez SS (2015) Measuring health literacy among people living with
HIV who attend a community-based ambulatory clinic in Puerto Rico Puerto Rico Health Sciences Journal 34 31-
37 httpwwwncbinlmnihgovpmcarticlesPMC4394204
bull Roh S Brown-Rice K Pope ND Lee KH Lee YS amp Newland LA (2015) Depression literacy among American
Indian older adults Journal of Evidence-Informed Social Work 12 614-627 DOI 101080154337142014983284
bull Sarkar M Asti L Nacion KM amp Chisolm DJ (2015) The role of health literacy in predicting multiple healthcare
outcomes among Hispanics in a nationally representative sample A comparative analysis by English proficiency
levels Journal of Immigrant and Minority Health 1-8 Doi 101007s10903-015-0211-3
bull Schuster AL Frick KD Huh BY Kim KB Kim M amp Han HR (2015) Economic evaluation of a community health
worker-led health literacy intervention to promote cancer screening among Korean American women Journal of
Health Care for the Poor and Underserved 26 431-440 Doi 101353hpu20150050
bull Sentell T amp Braun KL (2012) Low health literacy limited English proficiency and health status in Asians Latinos
and other racialethnic groups in California Journal of Health Communication 17(Suppl 3) 82-99 Doi
101080108107302012712621
bull Simon MA Tom LS Nonzee NJ Murphy KR Endress R Dong X amp Feinglass J (2015) Evaluating a bilingual
patient navigation program for uninsured women with abnormal screening tests for breast and cervical cancer
implications for future navigator research American Journal of Public Health 105 e87-94 Doi
102105AJPH2014302341
bull Slota C Sayner R Vitko M Carpenter DM Blalock SJ Robin AL Muir KW Hartnett ME amp Sleath B (2015)
Glaucoma patient expression of medication problems and nonadherence Optometry and Vision Science Journal 92
537-543 Doi 101097OPX0000000000000574
bull Smith SG OConor R Aitken W Curtis LM Wolf MS amp Goel MS (2015) Disparities in registration and use of an
online patient portal among older adults Findings from the LitCog cohort Journal of the American Medical
Informatics Association 22 888-895 Doi 101093jamiaocv025
bull Son YJ Jeong S Kang BG Kim SH amp Lee SK (2015) Visualization of e-Health research topics and current
trends using social network analysis Telemedicine Journal and E-Health 21 436-432 Doi 101089tmj20140172
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
bull Tadakamadla SK Quadri MF Pakpour AH Zailai AM Sayed ME Mashyakhy M Inamdar AS amp Tadakamadla
J (2014) Reliability and validity of Arabic Rapid Estimate of Adult Literacy in Dentistry (AREALD-30) in Saudi Arabia
BMC Oral Health 14 120 Doi 1011861472-6831-14-120
bull Theiss JD Hobbs WB Giordano PJ amp Brunson OM (2014) Undergraduate consent form reading in relation to
conscientiousness procrastination and the point-of-time effect Journal of Empirical Research on Human Research
Ethics 9 11-17 Doi 1011771556264614540593
bull Trujillo JM amp Figler TA (2015) Teaching and learning health literacy in a doctor of pharmacy program American
Journal of Pharmaceutical Education 79 27 Doi 105688ajpe79227
bull US Department of Health and Human Services Office of Disease Prevention and Health Promotion (2010)
National Action Plan to Improve Health Literacy Washington DC Author
bull USDHHS (2000) Healthy People 2010 Washington USDHHS
bull USDHHS (2010) Healthy People 2020 Washington USDHHS
bull Stein L Pettersen KS Bergdahl M amp Bergdahl J (2015) Development and validation of an instrument to assess
oral health literacy in Norwegian adult dental patients Acta Odontologica Scandinavica 73 530-538 Doi
1031090001635720151007477
bull Storch D amp Jackson JL (2015) Capsule commentary on Kiechle et al Different measures different outcomes
A systematic review of performance-based versus self-reported measures of health literacy and numeracy Journal of
General Internal Medicine 30 1537 Doi 101007s11606-015-3325-3
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