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Page 1: What is FASD?cbanational.rogers.dgtlpub.com/2011/2011-08-31/pdf/...hosted the first-ever national conference on FASD and the law, ... Stuart issued a clarion call for action in the
Page 2: What is FASD?cbanational.rogers.dgtlpub.com/2011/2011-08-31/pdf/...hosted the first-ever national conference on FASD and the law, ... Stuart issued a clarion call for action in the
Page 3: What is FASD?cbanational.rogers.dgtlpub.com/2011/2011-08-31/pdf/...hosted the first-ever national conference on FASD and the law, ... Stuart issued a clarion call for action in the

and/or other diagnosable men-tal health problems related tothe commission of their of-fences. In 2008, the Yukon

hosted the first-ever national conference on FASD and the law,which brought together experts and professionals to shareinformation about cross-country FASD initiatives, includingyouth justice projects in Vancouver and Winnipeg and effortsby Correctional Service of Canada to identify the prevalenceof FASD in the prison population.Since then, the Yukon has developed a justice training cur-

riculum on FASD, undertaken a prevalence study in the Yukoncorrections population with Justice Canada and is developinggreater collaboration between government departments.In 2010, the CBA passed a resolution, put forward by its

20 July · August 2011NATIONAL

The law of sentencing is also influenced by assumptionsabout free will. The purposes of sentencing — specific and gen-eral deterrence, denunciation, incapacitation, rehabilitationand the promotion of a sense of responsibility — all assumethat offenders are capable of “making choices, understandingthe consequences of their actions and learning from their mis-takes,” write the authors.“In short, Canadian criminal law is premised on assump-

tions about free will and individual responsibility, and tempo-rary and treatable departures from that norm,” they add.“These assumptions unfortunately do not fit well with what isknown about FASD.”The Yukon has been a leader in addressing the reality of

FASD in the criminal justice system. Judges Heino Lilles andBarry Stuart of the Yukon Territorial Court (both now retired),are considered pioneers in recognizing that crimes committedby offenders with FASD mustbe understood in the contextof the cognitive brain damagethey suffered and the systemneeds to change.In 2002, Chief Judge Barry

Stuart issued a clarion call foraction in the case of MarcelJacob, a 21-year-old who hadcommitted a vicious sexualassault. The judge sentencedhim to eight years in the peni-tentiary, but warned there willbe more cases like his unlessfamilies, communities andprofessionals learn to worktogether to address the rootcauses of crime.Jacob was neglected for

most of his childhood andphysically and sexually abused;his history was full of symp-toms suggesting FASD and hewas diagnosed with psycho-pathic tendencies and multiplepersonality disorders, the judgeobserved. How could thosewell-documented problems nothave been addressed? he asked.“The villain in this piece, as

in so many other cases, is noone person, no one agency ordepartment, but rather the sys-tem,” he wrote. “The fragment-ed, truncated system that hasno integrated vision or holisticapproach is the villain.”“We cannot stop the next Marcel Jacob with good inten-

tions, nor with small changes. . . . I believe there will alwaysbe a need for what the justice system currently offers, but itcan no longer be the only . . . approach to the underlying caus-es of crime, the conditions that generate so many ‘next cases’like Marcel Jacob.”In 2007, a Community Wellness Court was established in

Whitehorse in a partnership between the Yukon TerritorialCourt, Yukon Department of Justice and the Yukon FirstNations. It offers a therapeutic alternative for offenders withsubstance abuse problems, FASD or other cognitive impairments

What is FASD?• Fetal Alcohol Spectrum Disorder is the term used todescribe the medical diagnoses caused from maternalalcohol consumption during pregnancy. They include: FetalAlcohol Syndrome (FAS); partial Fetal Alcohol Syndrome(pFAS); Alcohol-Related Neurodevelopmental Disorder.

• Not everyone who drinks alcohol during pregnancy willhave a child with FASD: it also depends on genetics,maternal characteristics, nutrition, environment, develop-ment timing, reactions to other drugs and duration andextent of alcohol exposure.

• FASD manifests differently in every individual with analcohol-related diagnosis.

• Some individuals with FASD, especially those with FAS,have facial anomalies, such as short horizontal eye length,a thin flat upper lip and a flattened midface, but most donot have any visible facial or other characteristics.

• Approximately half of individuals with FASD meet stan-dard criteria for mental retardation (IQ less than 70).

• National guidelines for diagnosis of FASD were intro-duced in 2005. The challenge with diagnosis is not simplyto identify brain injury, but to assess a person’s ability inthe exercise of judgment, planning, memory and the abil-ity to cope independently with day to day life.

Source: The Path to Justice: Access to Justice for Individuals withFASD, Yukon Government; Consensus Statement on FASD — Acrossthe Lifespan, Institute of Health Economics, Government of Alberta.

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21Juillet · Août 2011 www.cba.org

are you doing? I have a file this thick on the topic,” he said,holding his hand about a foot above the table.Fia Jampolsky, a former Legal Aid lawyer who now

works for Cabott & Cabott in Whitehorse and serves on theCBA FASD Advisory Committee, remembers a client whocouldn’t spend more than three weeks out of the system. A“lost soul” who had been bounced around group homes

Yukon branch, urging the federal government to avoid crimi-nalization of people with FASD and allocate resources todevelop solutions. CBA past-president Rod Snow recalls ask-ing a meeting in Whitehorse in 2006 whether the branchshould take on the issue of FASD in the criminal justice sys-tem. A judge sitting across the table responded immediately.“Of course you should. If you are not doing that, what good

“I would get a phone call and [my client] would always be embarrassedand upset to be calling me. “He’d say: ‘Oh, I screwed up again’ which I don’t think is

necessarily the case. I think I felt like everybody else was screwing up.”

— Fia Jampolsky —Cabott & Cabott, and member of the CBA FASD Advisory Committee, Whitehorse

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22 July · August 2011NATIONAL

after his caregiver died, the 19-year-old was always in troublefor spontaneous crimes of opportunity: grabbing jackets offthe wall or stealing penny jars from hotels. Sometimes theoffences would escalate to break and enters or assault.

“I would get a phone call and he would always be embar-rassed and upset to be calling me,” she recalled in an inter-view. “He’d say: ‘Oh, I screwed up again’ which I don’t thinkis necessarily the case. I think I felt like everybody else wasscrewing up.”

For Jampolsky, he epitomized the conundrum of FASD inthe criminal justice system. “I don’t think his behavior isnecessarily criminal,” she says. “I think he’s a victim moreoften than he’s an offender and he lacks the services andresources that may have been able to stabilize him.” He wasdiagnosed with Alcohol Related NeurodevelopmentalDisorder (ARND), a form of FASD, but displays no physi-cal symptoms of the disorder. “I think it is hard for peopleto see him as anything less than willfully disregarding thelaw,” Jampolsky said. He wasn’t in the wellness court pro-gram because he missed too many meetings and could notfollow conditions.

Nils Clarke, executive director of Yukon Legal ServicesSociety, estimates that FASD is a factor for between 30 and 40per cent of his clients. “These are not people that are criminal

masterminds committing sinister offences of forethought andpremeditation,” he observed in an interview.

Jampolsky tried to work within the system to find a solu-tion that could break the cycle for her client. She asked thecourt for time to get assessments for a suspected cognitive dis-order, a measure not normally available to adults under theCriminal Code. The court nonetheless agreed to the request,but by the time the assessment was ready, her client “wouldhave spent so much time in jail that I would end up doing asentencing with him and he would get time served,” she said.

Efforts to get Jampolsky’s client into adult services also failed.“They would say, ‘This is voluntary so he has to be able to comein and make his meetings and tell us the path that he wants.’ Wellthat’s precisely the problem with an individual with FASD.”

What would have made a difference, she believes, is amulti-sectoral approach to the young man’s problems.“Everybody knew about him,” Jampolsky points out. “Hewas a product of the foster care system so he has a file a footthick. I know there are privacy interests, but I think more shar-ing of information and resources with a real focus on prevent-ing him from coming into the system would have been themost important approach.”

The last she heard, he was back in the system and a formerlegal-aid colleague was handling his bail review.

“We have to ask ourselves in each case, ‘Do we have whatthis person needs to be able to help them?’ and the sad reality

is sometimes we don’t.”

— Chief Judge Karen Ruddy —Yukon Territorial Court, Whitehorse

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A rough start in life

Lesley Carberry’s son Carl was a handsome young boywho displayed none of the outward manifestations ofFASD. That turned out to be part of the problem.

Unlike his younger brother, he didn’t have the physicalfacial features — the thin upper lip, short eye slits and slight-ly recessed jaw — associated with Fetal Alcohol Syndrome.Frank, on the other hand, was a “funny-looking kid,”Carberry told the Yukon FASD conference in 2008. “Andthank goodness he was because that diagnosis afforded him aprotection and services not available to his older brother, whodidn’t look funny and therefore didn’t come to the attention ofany medical professionals at the time.”

Carl was handsome, bright, charming, “very verbal, veryadept” and a people-pleaser. Teachers viewed him as capableand competent. But something was very wrong. “He was introuble really from the day we met him,” Carberry says. “Hisinability to accept consequences for actions, his inability to pre-dict consequences for actions — looking back, it’s all there.”

She and her husband knew very little about the early historyof their adopted children. In fact, Carl and Frank both hadendured an abusive childhood in a Dene Nation community inthe Northwest Territories. Carl had suffered a traumatic braininjury as a baby when his father smashed his skull against thewall. He spent over a year recovering in a medical foster homebefore being returned to his parents. His mother later took thetwo boys and moved to Whitehorse. The two brothers wereapprehended and placed in foster care after they were discoveredstealing food from a grocery store. Carl was 6 and Frank was 2.

They spent the next four years in a foster home where Carlwas physically and sexually abused by his foster father andfoster brother. Eventually, Carl and Frank were put up foradoption, their pictures appearing in an ad in the local news-paper. “Ray and I looked at them, and I said: ‘I think this isit,’” Carberry remembers.

After a rigorous home study, the boys, ages 10 and 6, came to

“My role is to ensure that citizens haveaccess to justice. In the Yukon, it’s clear we could

do better for those with FASD.”

— Dennis Cooley —Yukon Deputy Minister of Justice

Darren Vallentgoed of Schulich Law School inHalifax, has won the 2011 CBA National MilitaryLaw Section (NMLS) Law School, Sword & ScaleEssay Prize. Mr. Vallentgoed’s essay deals with theextraterritorial applicability of the Charter afterthe Omar Khadr decisions and AmnestyInternational v. The Canadian Forces.

The prize is presented annually for the best scholarly essay in mil-itary law or justice, public policy or public affairs related to

Canadian military law affairs. The Sword & Scale EssayCompetition prize consists of a monetary prize of $250 as well aspaid registration for the NMLS annual PD conference in Ottawaheld on June 14, 2011. The winning essay will be published inNMLS’ electronic newsletter, the Sword & Scale.

Full details can be found on the CBA’s website, at http://www.cba.org/CBA/sections_military/main/.

Darren Vallentgoed, de la Faculté de droit Schulich à Hali-fax, est le lauréat du Prix Salut militaire pour le Concoursde dissertation des facultés de droit 2011 de la Sectionnationale du droit militaire (SNDM) de l’ABC. Sa disserta-tion traite de l’application extraterritoriale de la Charte àla suite des décisions portant sur Omar Khadr et de l’af-faire Amnistie Internationale c. les Forces canadiennes.

Le Prix est présenté, à tous les ans, à l’étudiant ou l’étudiante endroit qui rédige la meilleure dissertation sur un thème de droit

militaire ou de justice militaire, de politiques publiques ou d’af-faires publiques se rapportant au droit militaire canadien.

Le gagnant reçoit un prix en espèces de 250 $, ainsi qu’uneinscription gratuite à la conférence annuelle de développement pro-fessionnel de la SNDM, qui a eu lieu à Ottawa le 14 juin 2011. Ladissertation de M. Vallentgoed sera publiée dans Salut militaire, lebulletin électronique de la Section.

Vous trouverez tout renseignement complémentaire sur le site del’ABC: http://www.cba.org/ABC/sections_military_f/main/.

OFFICIAL NOTICE/AVIS OFFICIEL

live with them. Frank had the benefit of supportive teachers andsocial workers who understood his diagnosis, but Carl struggled.

His teachers expected him to be able to perform at schooland would make excuses for him when he couldn’t. “Therewas no diagnosed disability,” Carberry says. “He’s charming,he’s first nations; they wanted him to succeed. So they let himoff with a whole lot of stuff.” He had trouble understandingconsequences and his parents’ efforts to make him learn fromhis mistakes were futile.

Attempts to express love and support and talk thingsthrough were interpreted as judgment and created confusionand misunderstanding, Carberry says. Tough love and behav-ior modification didn’t work. The family sought professionalhelp, but the situation was blamed on a variety of factors,including adoption breakdown, overprotective and unrealisticparents and an incorrigible son. “Systems and professionalscontinued to look for reasons, to focus on something thatcould be ‘fixed’ — either our son or us,” Carberry told theFASD conference. Carl started drifting from the family andtook up with a community that was more accepting than hishome: kids who were abusing drugs and stealing cars. It led tohis first encounter with the criminal justice system.

He was 13.

No ordinary court

It’s Monday afternoon in Whitehorse’s CommunityWellness Court and the first accused stands before ChiefJudge Karen Ruddy.

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Lesley Carberry place son bras autour desépaules d’un jeune homme souriant,dans la cuisine ensoleillée de White-horse. Elle lui présente votre correspon-

dante et lui demande s’il sait pourquoi il est venu.« Cerveau blessé », répond-il.

Frank, 33 ans, souffre de l’Ensemble des trou-bles causés par l’alcoolisation fœtale (ETCAF).Son frère Carl, 36 ans, également. Ils ont étéadoptés il y a 26 ans par Leslie Carberry et sonmari, Ray Marnoch. « Cerveau blessé » est lamanière dont Frank exprime le dommage per-manent qu’a subi son cerveau parce que sa mèrebuvait durant sa grossesse.

L’ETCAF est un terme général utilisé pourdécrire un ensemble complexe de blessures cé-rébrales résultant de l’exposition prénatale à l’al-cool. C’est l’une des premières causes de retardsmentaux, de troubles cognitifs et de dévelop-pement au Canada. Près d’une personne sur 1000en serait atteinte, beaucoup plus dans les régions

où la consommation d’alcool et la pauvreté sontplus répandues. Mais l’ampleur du phénomènedemeure peu connue, vu l’absence d’évaluationsystématique de l’ETCAF.

Chaque cas est différent et il dépend de laconsommation de la mère. Les symptômes inclu-ent la mauvaise mémoire, l’impulsivité, une inca-pacité à juger des conséquences de ses actes et lefait d’être facilement influencé par les autres.C’est une condition permanente qui en placeplusieurs sur la voie de la délinquance.

L’ETCAF signifie que Lesley Carberry et sonmari soutiennent toujours financièrement leursenfants adultes et les guident à travers les hautset les bas de leur vie quotidienne. Carl, qui vit àEdmonton avec sa conjointe et ses deux filles,n’est pas capable de conserver un emploi stable.Frank, qui habite à la maison, travaille dans ungrand magasin dans le cadre d’un programmede soutien aux employés. Il rêve d’y travailler àtemps plein.

« Je m’inquiète du fait que quand je mourraiet que mon mari mourra, il n’y aura personnepour s’occuper de nos enfants, dit Mme Carberry.Je m’inquiète du fait que s’ils se mettent dans letrouble parce qu’ils n’ont plus le même soutien,personne ne comprendra ce qui se passe. »

De mauvaises pésomptions

Le système de justice criminelle est bâti autourd’une série de présomptions qui sont en con-

tradiction avec la réalité de l’ETCAF. Le systèmeassume que les gens « peuvent faire des choixinformés et volontaires au moment d’exercerleurs droits ou de prendre la décision de com-mettre des crimes », ont récemment écrit le pro-fesseur Kent Roach et la juriste du Yukon, AndreaBailey, dans un article sur la pertinence del’ETCAF en droit criminel canadien.

Les principes de détermination de la peinesont aussi influencés par des présomptions delibre arbitre. La dissuasion, la dénonciation, la

Une autre formede justice Le système de justice criminelle n’a pas été conçu

pour tenir compte des déficits cognitifs associésaux troubles causés par l’alcoolisation fœtale.Mais le défi est de taille si l’on veutaider les personnes qui en sontatteintes à obtenir un meilleur accèsà la justice.

“How are you feeling?” the judge asks with a kind smile.“I’m feeling anxious,” the woman replies in a quiet voice. Shehad missed a recent court appointment, but the judge notes itis her first slip, suggests a change in scheduling and gentlyreminds her about the importance of showing up.

This sets the tone for the rest of the afternoon. Every signof progress earns a “Good job!” from the judge. “It’s been along road, but it will be nice to get to the end of it,” she tellsa young dark-haired man wearing an Evil Knieval T-shirtand a black hoodie. People who have failed to followthrough on commitments are quietly but firmly set straight.“Mr. Blanchard, we’ve missed you,” Judge Ruddy tells a manwho has missed the last two court appearances. “If you don’tshow up, we can’t help you. You need to think long and hardabout whether you want to be in this process. If no, we’ll goto sentencing on June 13.”

Clearly, this is no ordinary court.Therapeutic courts have gained popularity over the past 20

years as part of a move to restorative justice and a focus onrehabilitation and reconciliation. They have been establishedin Canada, the United States and Britain in response to the

stress placed on the system by increasing numbers of offendersand the recognition that the traditional approach addressesthe symptoms but not the cause of their legal problems,according to a paper on the Yukon wellness court prepared bythe Four Worlds Centre for Development Learning in Alberta.

They are based on the assumption that an integrated pro-gram of intense supervision, treatment, therapeutic support,and skills development will produce better results for theoffender (who must be willing to take responsibility for his orher behavior), the victims and the community. But findingresources to make it work, especially for structured supervi-sion, can be a challenge.

One of the most important roles of the Yukon wellnesscourt is getting a proper diagnosis for offenders with suspect-ed FASD. Once the individual is found to be a suitable candi-date for the program, the judge can order a formal FASDassessment. It costs $3,000 to $6,000; separate funding isavailable under the program since FASD assessments are notroutinely covered by provincial or territorial health plans.

“Once you’ve got that assessment, it’s not limited to thisprocess,” Judge Ruddy said. “Where people’s expectations of

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réhabilitation et la promotion d’un sens de laresponsabilité assument toutes que les délin-quants sont capables de faire des choix, decomprendre les conséquences de leurs actions etd’apprendre de leurs erreurs.

« Ces présomptions ne cadrent pas avec ce quel’on sait de l’ETCAF », ont conclu les deux auteurs.

Un tribunal pas comme les autres

Le Yukon est un leader quand vient le tempsde faire face à la réalité de l’ETCAF dans le

système de justice criminelle. En 2007, White-horse a créé un Tribunal communautaire dumieux-être, en partenariat avec la Cour territo-riale du Yukon, le ministère de la Justice et lesPremières nations du territoire. Cette cour offreune alternative thérapeutique pour les délin-quants avec des problèmes de consommation,aux prises avec l’ETCAF ou d’autres formes detroubles mentaux.

Dans une petite juridiction comme celle-ci, lesjuges, les avocats et d’autres employés de la couront rapidement noté que les mêmes personnesrevenaient toujours devant les tribunaux pourfaire face aux mêmes accusations et au non-respect de conditions.

Fia Jampolsky, une ancienne avocate del’aide juridique qui travaille maintenant chezCabot & Cabot, à Whitehorse, se souvient d’unclient qui ne pouvait passer plus de troissemaines à l’écart du système judiciaire. Lejeune homme de 19 ans était toujours dans letrouble pour des crimes spontanés : voler desmanteaux sur des murs, voler des pots de mon-naie dans des hôtels… Parfois, les infractionsescaladaient jusqu’à l’entrée par effraction oules voies de fait.

« Je recevais un coup de téléphone et il étaittoujours gêné et frustré de devoir m’appeler », sesouvient Me Jampolsky.

Pour elle, ce jeune homme incarnait la tra-gédie de l’ETCAF dans le système de justice cri-minelle. « Je ne pense pas que son comportementsoit nécessairement criminel, dit-elle. Je crois qu’ilest une victime plus souvent qu’il est coupable,en ce qu’il manque de services et de ressourcesqui pourraient l’aider à se stabiliser. »

Il a été diagnostiqué avec des Troubles neu-rologiques du développement liés à l’alcool(TNDLA), une forme d’ETCAF, mais il n’afficheaucun symptôme. « C’est difficile pour les autresde le voir autrement que comme une personnequi ne respecte pas la loi », note Me Jampolsky. Iln’était plus devant le tribunal du bien-être parcequ’il avait manqué trop de rencontres et ne pou-vait respecter ses conditions.

Les tribunaux thérapeutiques comme celuidu Yukon ont gagné en popularité au cours des20 dernières années. Ils sont basés sur l’hy-pothèse qu’un programme intégré d’intensesupervision, de soutien thérapeutique et dedéveloppement des habilités donnera desmeilleurs résultats pour le délinquant, les vic-times et la communauté.

L’un des rôles les plus importants du tribunaldu mieux-être du Yukon est d’obtenir un dia-gnostic pour les gens en apparence atteints del’ETCAF. Ce diagnostic aide par la suite à établirun plan de mieux-être aux délinquants, quiinclut une évaluation de leurs habilités.

Mais pour faire de véritables progrès, les indi-vidus ont besoin d’un environnement de vie sta-ble, sobre et supervisé. Et c’est peut-être là le plusgrand défi, note la juge en chef du tribunal,Karen Ruddy. Malgré l’existence de certainesfamilles comme celle de Lesley Carberry ou decentres comme la maison de transition de 20 litsopérée par l’Armée du salut à Whitehorse, « laréalité est que nous n’avons pas toujours » cedont ils ont besoin, reconnaît la juge.

Signes de progrès

L’ABC travaille avec le ministère fédéral de laJustice pour trouver des solutions au problème

de l’ETCAF dans le système de justice criminelle. En2010, l’Association a adopté une résolution exhor-tant Ottawa d’éviter de criminaliser les gens auxprises avec l’ETCAF et d’allouer des ressources pourdévelopper des solutions. Puis, en mars dernier, uncomité qui travaille sur le sujet a entre autresrecommandé d’amender le Code criminel pour per-mettre aux tribunaux d’ordonner une évaluationdes adultes susceptibles d’être touchés. Leschangements proposés permettraient aussi aujuge de ne pas tenir compte de certaines obliga-tions du code, comme des peines minimales, danscertaines circonstances.

Quand les ministres de la Justice du pays se sontentretenus de la question de l’ETCAF en octobre2010, ils ont donné leur appui aux efforts de sensi-bilisation de l’ABC et ont indiqué leur volonté decontinuer à échanger avec l’ABC sur le sujet.

Lesley Carberry est encouragée par tous cesefforts, mais l’expérience lui a appris que ceschangements doivent être accompagnés par desplans de soutien communautaire pour faire unedifférence à long terme. « Pour moi, ce qui estprometteur, c’est de voir plusieurs communautésqui luttent avec ce problème de supporter tantde délinquants aux prises avec l’ETCAF. Et ils pren-nent vraiment les choses en main et tentent desavoir quoi faire. »

Quand on lui demande ce qui l’a soutenu pen-dant toutes ces années passées à élever deuxenfants avec l’ETCAF, elle répond immédiate-ment : « Mes enfants. Mes enfants sont les per-sonnes les plus fortes que je n’aie jamais rencon-trées. Ils se relèvent chaque fois et se remettent àmarcher. Je ne suis pas certaine que je pourraisfaire la même chose. »

« Mes enfants sont mes héros. » N

them need to be modified that assessment is there and can stillbe used for other purposes.”The assessment helps the court develop a wellness plan for

each individual. The diagnosis is accompanied by an assess-ment of individual skills and abilities and recommendationson how to deal with them in the justice system. “The natureof the disorder differs from person to person,” Judge Ruddypoints out. “It helps you clearly understand what you canexpect from a particular individual in terms of what they cando and what they can’t do.”The nature of FASD means their behavior is not going to

improve over time. The goal is to create an environment andstructure that allows them to function in a way that keeps themfrom coming into conflict with the law, Judge Ruddy says. “Fora lot of [FASD clients], success is keeping them from offendingsubstantively over the period of time that they’re with the court.”Life skills programs such as Challenge, which also offers

vocational training and employment opportunities, providesome of that structure. But to make real progress, the individualneeds a sober, stable, supervised living environment. Andthat’s been the biggest struggle, Judge Ruddy admits. “There

have actually been people that we have had to turn awaybecause we can’t find that for them.”Sometimes family can help. The Adult Resource Centre

(ARC), a 20-bed halfway house for adult men operated by theSalvation Army in Whitehorse, is another option. For individ-uals who can function at a higher level and don’t need 24-hoursupervision, a semi-independent living situation can work.“We have to ask ourselves in each case, ‘Do we have what thisperson needs to be able to help them?’ and the sad reality issometimes we don’t,” she says.Dennis Cooley, the Yukon deputy minister of justice, says

the biggest challenge is finding funding and co-ordinating ser-vices to ensure clients with FASD get what they need. “Myrole is to ensure that citizens have access to justice,” he said inan interview. “In the Yukon, it’s clear we could do better forthose with FASD.”What would be ideal, Judge Ruddy says, is a comprehen-

sive housing project that provides programs and a supervisedliving environment. Longer-term programs to transitionoffenders back into the community are also needed.“Having something that assumes responsibility for meeting

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those needs outside of the justice system would be wonder-ful. But it’s going to take time for us to get to that stage. It’san evolution.”

Lucky to be alive

Carl was in and out of the criminal justice system fromage 13 until he was over 30. As a youth, he wasinvolved in stealing cars. He withdrew from his parents;

a series of psychiatrists framed his problems as attachment dis-order and adoption breakdown. A cognitive disorder wasnever considered.

“We were at a loss,” Carberry remembers. “It took us along time to understand that someone could be as bright asCarl and still be affected by pre-natal exposure.”

At age 15, he left home in a stolen vehicle. Later, he woundup in jail in Edmonton after being caught in a high-speedpolice chase in another stolen car. Back on the street with agroup of other young troubled kids, he got involved in drugsand alcohol. “I don’t know all the details of what happenedthere,” she says. “I know enough to know that he’s really for-tunate to still be alive.”

But Carberry and her husband never lost contact with Carland eventually rebuilt the relationship. She has a theory aboutwhy he left. “He knew he had to go because he felt he was

going to take us down,” his mother says. “I think he was right.I don’t think we were going to survive with him here.”

Carl was finally diagnosed with FASD in his early thirties.He understands that his life will be permanently affected bywhat has happened to his brain. But after the birth of his twodaughters, he gave up criminal activity (he has not been introuble with the law for the past six years) and stopped usingdrugs and alcohol. He wants his daughters to have a betterdad than he did.

Carl is a good father who loves his children, Carberry says,but he can’t manage without support from his family. “Thekey is to keep him in that strong husband/father role withoutoverwhelming him,” she says. “I don’t have many fears thathe’s going to slide back as long as we keep a support networkaround and as long as the money can last.”

Recently when she asked Carl what might have made apositive difference for him, he had two observations. First,when he was caught misbehaving, as a child, he felt it was likea little game: there weren’t enough consequences so he didn’tunderstand the path he was on. Second, he said, “People justneed to be kind.”

As for what the criminal justice system could have donedifferently, he says his natural father should have been chargedwith abusing him. “His father has never had any consequences C

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“These are not people that are criminal masterminds committing sinisteroffences of forethought and premeditation.”

— Nils Clarke —Executive director, Yukon Legal Services Society, Whitehorse

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28 July · August 2011NATIONAL

for anything he’s ever done to this kid,” Carberry says. “SoCarl grew up knowing that you could do those things to some-body and it didn’t matter.”

Signs of progress

FASD is a multifaceted issue with no easy solutions. Thereare no national surveillance or prevention strategies andresearch activities are fragmented and underfunded.

Multiple sectors, including health, social services, education,the courts and corrections, are involved which meansapproaches to services for individuals with FASD and theirfamilies can be haphazard.The criminal justice system has proved to be a blessing and

a curse for offenders with FASD. Some would never havereceived a diagnosis or any kind of therapeutic intervention ifthey hadn’t committed a crime. On the other hand, the systemitself creates unique challenges for them. Their inability to

connect behavior to consequences makes the process confus-ing and stressful; their impulsive behavior makes it a chal-lenge to comply with routine conditions and probation orders,and they struggle in the aggressive and uncertain prisonenvironment and are more likely to be victimized by otherinmates, according to a 2008 report submitted to the YukonDepartment of Justice by the Canadian Research Institutefor Law and the Family.When federal, provincial and territorial (FPT) ministers

responsible for justice and public safety met in October, 2010,there was strong support to continue to make FASD and thejustice system a priority item, and to engage the CBA in dia-logue about FASD as an access to justice issue.In March, 2011 the CBA FASD Advisory Committee and

the Federal Provincial Territorial FASD Steering Committeerecommended measures to improve access to justice for indi-viduals with FASD. They include education of justice profes-sionals, resources for community alternatives such as support-ive housing and alternative measures and diversion programs

that hold individuals accountable “consistent with their degreeof responsibility” [see sidebar below.]The committee also wants the Criminal Code amended to

address the unique challenges that FASD presents. For example,it recommends taking a page from the Youth Criminal JusticeAct to allow courts to order assessments of adults suspected ofhaving FASD. (Currently, courts cannot order assessments forsuspected cognitive disorders in adults unless the accused is con-sidered unfit to stand trial or not criminally responsible by rea-son of a mental disorder. These provisions do not apply or areconsidered inappropriate for individuals with FASD.) The com-mittee also recommends giving the judiciary discretion when sen-tencing individuals with FASD and removing barriers includingmandatory minimum sentences.Nils Clarke favours dual track sentencing provisions for

FASD and any other cognitive disorder where diminished capac-ity is recognized. “I would like the judges to have the tools to

have that parallel-track sentencing regime,” he said. “Thereshould be national consensus and it shouldn’t be that controver-sial. We should move forward and strike while the iron is hot.”Lesley Carberry is encouraged by the efforts she sees to deal

with the issue in the criminal justice system, but experience hastaught her that changes must be accompanied by correspond-ing community support plans to make a difference over thelong haul. “What’s promising for me is just to see differentcommunities struggling with how to support so many of thesehigh-volume offenders with FASD. They’re really stepping upand saying, ‘We need to know how to do this,’” she says, “It’svery, very tough stuff they’re trying to do.”When asked what has sustained her through the years of

raising two children with FASD, she answers immediately:“My kids. My kids are the strongest people I have ever met.They just get up and keep going. I’m not sure I could do that.“My kids are my heroes.” N

Beverley Spencer is editor-in-chief of National.

A call to actionThe CBA FASD Advisory Committee and members of the FederalProvincial Territorial FASD Steering Committee have suggested the fol-lowing measures to improve access to justice for people with FASD:

• Allocate resources for communityalternatives, including supportivehousing and social services, to avoidthe unnecessary criminalization ofindividuals with FASD;

• Develop alternative measures/diversion programs in the criminal jus-tice system that hold individuals withFASD accountable consistent with theirdegree of responsibility;

• Educate justice system professionals,including police, judges and lawyers,about FASD;

• Add sections of the Youth CriminalJustice Act that offer special protections toyouth to the Criminal Code to accommo-date the unique challenges presented byindividuals with FASD. That would include:

a. Allowing courts to order assessments ofadults that are believed to be affected byFASD at any stage in the proceedings andas early as possible;

b. Ensuring that counsel are present in en-counters with the criminal justice system;

c. Using case conferencing at an early stageto get collaboration among key players indeciding an appropriate response.

• Encourage all government ministriesto collaborate to share informationand co-ordinate and integrate services;

• Recognize that FASD is a life-long dis-ability distinguishable from a mental ill-ness that requires appropriate legal andsocial accommodations;

• Allow all sentencing options to beavailable to judges to allow them todevise just and appropriate disposi-tions for people affected by FASD;

• Limit unnecessary conditions, includ-ing bail conditions and terms of proba-tion, to avoid the unnecessary accumu-lation of administration of justicebreaches;

• Review standardized checklists andrisk assessments tools used by courtsand corrections to ensure their validityfor people affected by FASD.

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