Valerie J. Bradley, PresidentJon Fortune, Senior Policy AnalystHuman Services Research InstituteND 2011

System trajectory is unsustainable We can’t afford legacy systems States will need to do more with less Collective consciousness is fading Funding methods will change Self advocacy needs support

CHALLENGES: Wait lists growing More families in

crisis and more adults living at home

Not enough direct support staff

Old models too expensive

OPPORTUNITIES: Develop triage for

wait lists Work with case

managers re: family dynamics

Help train DSPs Disseminate

information on best practices

DD MUSEUM

CHALLENGES: Public institutions still

a factor in some states

More people in sheltered workshops than employed

Need to use current downturn to focus on what works

OPPORTUNITIES: Build the case for

institutional closures Identify barriers to

employment Conduct cost

analyses of trade-offs between legacy and person-centered services

CHALLENGES: Shrinking staff at

the central level Community system

has grown rapidly Pressure to manage

systems based performance data

OPPORTUNITIES: Assist states to

analyze and trend data

Participate in the collection of NCI data

Assist states with risk management efforts (e.g., mortality review, etc.)

CHALLENGES: Baby boom

generation retiring Loss of institutional

memory Need to develop

new leadership

OPPORTUNITIES: Conduct leadership

training initiatives Do a history of the

state system Work to instill values

in UCED trainees

CHALLENGES: Current level of

funding for some services can’t be supported

Funding needs to reflect individual need

Use of individual budgets should be expanded

OPPORTUNITIES: Assist states to align

funding with functional capabilities

Train individuals and families to use individual budgets

Evaluate self-direction

CHALLENGES: Self-advocacy groups

experiencing generational changes

Hard to organize when people aren’t in conventional settings

Self-advocacy groups need mentors and organizational support

OPPORTUNITIES: Sponsor self-

advocacy leadership opportunities

Include self-advocates in participatory research

Use self advocates as trainers and lecturers

Questions?

What did he say?