EPF newsletter

1/4

//SEPT 2017 ISSUE

W elcome to the latest issue of our Newsle�er!

Our campaign on Access to Healthcare is swi�ly approaching its end with the closing mee�ng planned for 6th of December in the European Parliament,Brussels! Please save the date. In the mean�me, read the interview of MEP Sirpa Pie�käinen on why she decided to champion the campaign area onsustainable investment in healthcare systems. #Access2030

Earlier this year, we launched the EPF Breakfast Briefings, video podcasts on current policy topics and useful informa�on for the capacity building ofpa�ent organisa�ons. Open to EPF Members only, the live sessions are then made available via our YouTube channel, as on demand podcasts. See here asmall recap of the first episodes and subscribe to our channel for more updates!

As always, EPF representa�ves have been very busy a�ending various mee�ngs recently. Two were par�cularly interes�ng as they will be a stepping stonetowards future EPF policy ini�a�ves: a upcoming statement on nutri�on and its role in diseases management; and the new ini�a�ve of the OECD onpa�ent-reported outcomes and experiences, fostering a pa�ent-centred culture for health systems performance assessment.

Some news to share as well on the project por�olio: �me to end the PRO-STEP tender project with a final conference in Brussels on the 23rd and 24th ofOctober; while CHRODIS Plus gets under way pursuing the ac�vi�es undertaken by its predecessor CHRODIS.

The EPF Capacity Building Programme is going from strength to strength, with recent training sessions in Bulgaria where par�cipants receive tailoredinforma�on on how to set up coherent, transparent and sustainable fundraising plans.

Endorsed this year as a new member of EPF, the Na�onal Coali�on of Disabled People of Greece takes on our 5 ques�ons-interview, sharing theirpriori�es and challenges as pa�ent organisa�on.

This month our Blog hosts the beau�ful story of Inge Vandelannoote, an IBD pa�ent, on how valuable the rela�onship between pa�ents and nurses canand should be.

Finally, some news regarding the EPF Youth Group, with Andreas Christodoulou (EPF Youth Group and cancer survivor) sharing his experience ona�ending the Young Cancer Europe congress; and some updates on the group itself: happy to welcome two new members and to gather soon for theirautumn annual mee�ng in Leuven, Belgium!

Enjoy the reading!

Marco Greco, EPF President and Nicola Bedlington, EPF Secretary General

MEP PIETIKAINEN: 'ONLY A LONG-TERM VISION CAN ENSURESUSTAINABLE INVESTMENT INHEALTH'

EPF BREAKFAST BRIEFINGS: AGREAT WAY TO START YOUR DAY!

SEE OUR VIDEOS ON OUR YOUTUBEPAGE

UPCOMING EVENTS

02-04/10/2017 | Alzheimer Europe Conference - Caretoday, cure tomorrow

Berlin, Germany

04-06/10/2017 |20th European Health Forum

EPF newsletter

2/4

MEP Sirpa Pie�kainen (EPP, Finland) is one ofthe 5 champion MEPs of the EPF Campaignon Access to Healthcare. A member of theCommi�ee on Economic and MonetaryAffairs at the European Parliament, MrsPie�kainen supports our work onsustainable investment in healthcare acrossthe EU.

Earlier this year, EPF decided to propose aninnova�ve way of communica�ng withmembers: the EPF Breakfast Briefings. Thesevideo podcasts are meant to help membersto get the latest updates on European healthpolicy and to receive prac�cal advice toimprove their organisa�on and skills.

READ MORE » READ MORE »

NUTRITION: FROM BARENECESSITY TO ESSENTIALCOMPONENT OF DISEASEMANAGEMENT

OECD PARIS INITIATIVE: ASSESSINGHEALTH SYSTEMS THROUGH THEPATIENT’S EYES

EPF is currently developing a Posi�onStatement on informa�on to pa�ents onfood and nutri�on. The document will buildon our previous work on the area ofnutri�on and will be a stepping-stonetowards a closer focus in 2018.

For several years, EPF has been calling forpa�ent-centredness to be adopted as a keyaspect of healthcare quality measurementsand for appropriate indicators to bedeveloped. For this reason, we weredelighted to see the launch of the OECDPaRIS Ini�a�ve in January 2017, which doesjust that.

READ MORE » READ MORE »

PRO-STEP FINAL CONFERENCE –SHARING RESULTS ON SELF-MANAGEMENT IN PATIENTS WITHCHRONIC CONDITIONS

KICK OFF MEETING OF THECHRODIS PLUS JOINT ACTION: IT'STIME TO IMPLEMENT

The final conference of the EU-funded PRO-STEP pilot project will take place in Brusselson 23 and 24 October 2017. Around 100delegates are expected to a�end the eventwhere the projects' preliminary outcomeswill be presented.

From 18 to 20 September 2017, partnersgathered in Vilnius for the official launch ofthe Joint Ac�on CHRODIS Plus, which will aimto implement the ini�a�ves iden�fied in theprevious CHRODIS Joint Ac�on.

Gastein Valley, Austria

EPF speaker Nicola Bedlington

10/10/2017 |Health Care Summit 2017

Geneva

EPF speaker Nicola Bedlington

10/10/2017 |Mental Health and Migra�on in Europe:Suppor�ng refugees, migrants and asylum seekers’mental health - Mental Health Europe

Brussels

EPF a�endance: Ka�e Gallagher

11/10/2017 |Mental Health promo�on in theworkplace, a mul�-stakeholder dialogue - Europeanalliance for mental health - employment and work event

Brussels

EPF a�endance: Ka�e Gallagher

16-18/10/2017 |eHealth Conference – Health in theDigital Society

Talinn

23-24/10/2017 |Capacity Building Event Poland

Warsaw, Poland

EPF a�endance: Elena Balestra

25/10/2017 |HTAi PCIG mee�ng

Paris

EPF a�endance: Valen�na Strammiello

EPF newsletter

3/4

READ MORE » READ MORE »

CAPACITY BUILDING IN BULGARIA:FUNDRAISING 101

5 QUESTIONS TO: THE NATIONALCOALITION OF DISABLED PEOPLE -GREECE

In August EPF concluded the third module ofits Capacity Building Programme in Bulgaria.15 organisa�ons, including 7 newcomers tothe programme, developed their fundraisingstrategy and shared best prac�ces.

Every month we put the spotlight on one ofour members. This month, we are delightedto catch up with our new member theNa�onal Coali�on of Disabled People ofGreece, represented by its President IoannisVardakastanis.

READ MORE » READ MORE »

EPF YOUTH GROUP: NEWMEMBERS, NEW IDEAS!

(BLOG) YOUTH CANCER EUROPE2017 MEETING – ‘PATIENTS ARENOT ALONE’

As the summer winds to an end, the EPFYouth Group is preparing for its annual FallYouth Group mee�ng, which will be heldfrom 29 Sepember-1 October in Leuven,Belgium. On the menu of these two days:debriefing on the first Summer Training forYoung Pa�ent Advocates, brainstorming inprepara�on of next year’s edi�on, advocacyplanning, and group governance.

Andreas Christodoulou (EPF Youth Group andcancer survivor) a�ended the recent congressof Young Cancer Europe held in VilniusLithuania in late August. A great opportunityfor him to share his experience and learn bestprac�ces from fellow pa�ents. Read his storyon our blog.

READ MORE » READ MORE »

(BLOG) FROM NURSE TO EQUALPARTNER: READ THE STORY OFINGE, IBD BELGIAN PATIENT

EPF newsletter

4/4

EUROPEAN PATIENTS' FORUM Rue du commerce 31 1000 Brussels BELGIUM

Phone : +32 (0)2 280 23 34 Email : info@eu-pa�ent.eu www.eu-pa�ent.eu | eu-pa�ent.org/blog

Read on our blog the beau�ful story of IngeVandelannoote, on how a nurse-pa�entrela�onship turned into a trusted andbeneficial partnership. Full story here.

READ MORE »

This e-newsle�er arises from the 2017 Health programme, which has received funding from the European Union, in the framework of the HealthProgramme. Disclaimer: The content of this e-newsle�er reflects only the author's views and the Execu�ve Agency is not responsible for any use that may bemade of the informa�on contained therein.

If you no longer wish to receive emails from EPF, simply send an email to mailing@eu-pa�ent.eu to unsubscribe.

Please note that some links may not work anymore because the ar�cles have moved, do therefore not hesitate to look at the news sec�on where all the ar�cles are archived or contactcommunica�ons@eu-pa�ent.eu for more informa�on.