d

Meeting Date and Time: Fourth Tuesday (of 5)

of the Month: September 23rd, 2014

6:00 pm

Home Office: 2406 Seminole Rd. Augusta, GA 30904 Phone: 706-364-1662 Email: info@parkinsoncsra.org

Meeting Location: St. John Towers - Main Dining Room

724 Greene Street Augusta, GA 30901

Big Turn-out at the August Meeting:

Big thanks to Paul Gustafson, Maria Nicholson, Connie Smith, and Jim Herzberg for a fun and beneficial August Meeting, with a huge turnout of about 58 members! Paul Gustafson introduced us to an exciting new exercise program for people with Parkinson’s disease (PD): boxing! The high intensity, non-contact boxing program is grouped by ability to benefit different levels of PD progression. The program can slow PD symptoms and improve mental clarity and memory. We will keep you updated as Paul works to bring Rock Steady Boxing™ for Parkinson’s to Augusta. Maria Nicholson & Connie Smith showed us their seated exercise routine that they do during their free exercise class twice a week here in Augusta (see below). Jim Herzberg, an exercise class regular, helped demonstrate. We had great audience participation as well! Thanks again to Paul, Maria, Connie, and Jim, and to all who came and joined in the fun!

Don’t forget to “like” us at facebook.com/parkinsoncsra to stay up-to-date!

The Tremor Newsletter September 2014

Aiken Meeting: Aiken Support Group will meet Thursday, October 2nd, 2014, at 1 pm, at: The Aiken Family Y, 621 Trolley Line Road, Graniteville, SC 29829 Brandon Elijah, Elder Law Attorney, will do a presentation on estate planning to include valuable information on wills, trusts, eldercare, and VA planning. For more info, contact Kathy Crist at (803) 640-1410

For the September Meeting: S.T.A.R.T. Research featuring LSVT-BIG:

Dr. Paul York (GRU's Hull Business College) and Dr. Charlotte Chatto (GRU's College Allied of Health Sciences), will present information about how they will use their very recently awarded Sheffield Memorial Grant from the CSRA Parkinson Support Group. They will be discussing plans to develop a system to bring the Lee Silverman Voice Training (LSVT) BIG exercise program to an interactive home screen that will give researchers and therapists immediate feedback on changes in the patients’ exercise performance. They will demonstrate the associated in-home technology. Joe Kelley, also a member of the study team, will act as a patient advocate in order to gain the greatest advantage for the people with Parkinson’s participating in the study. The team will soon need volunteers for this study. Don’t miss this great opportunity to get effective treatment and support research that is intended to continue progress toward treating Parkinson's disease symptoms!

Oops ... Correction from Aug.:

Last month in the paper version, in our announcement of recipients of the 2014 research grants, we listed Paul Long as a recipient. It should have been Dr. Paul York from GRU.

Come Join us for Exercise! Group Exercise Classes: Join us for fellowship, fun, and exercise every Monday and Wednesday at St. Mark United Methodist Church from 10:30 to 11:30 AM. The church is located at the intersection of Washington Rd. and Woodbine Rd. The class is led by Maria Nicholson and Connie Smith, and is free. Aquatic Exercise Classes: Aquatics exercise classes for people with Parkinson's or MS, Mon & Fri, 12 noon, at the Family Y on Wheeler Rd., Augusta. Free for members of the Y; $5 for others for access to the pool. For more info or to register, call or email the director, Claudia Collins: (706) 922-9664 or ccollins@familyy.org

Caregiver Corner:

Caregiver Support Group: Caregivers are invited to join the small group for lunch on Wed, October 8, at 1:30 pm at the French Market Grill West. Come prepared for good food, fellowship, laughter, and sharing. For more information, call Maria Nicholson at 706-736-2611.

Upcoming Events:

Powerful Tools For Caregivers:

An educational program for family caregivers Contact for Registration: Janice Adams, LCSW Caregiver Program Manager, (706) 650-5654

2014 Caregiver Awards Luncheon:

Tuesday, November 18, 2014, 10:00 a.m. – 1:00 p.m. Warren Baptist Church - Simmons Hall 3203 Washington Rd., Augusta, GA 30909 706-210-2000 or 888-922-4464 or dconklin@csrarc.ga.gov Living Well Workshops:

Register: (706) 650-5637 or rjester@csrarc.ga.gov

11th Annual Faith & Aging Conference:

“Life Re-Imagined: What’s Next?” Thursday, Sept. 25, 2014 8:30 a.m. to 3:00 p.m. The Doubletree Hotel, Augusta Health Fair: Sept. 27th, 9-12 at Tabernacle Baptist Church, Augusta Free Webinar: Managing Cognitive & Behavioral Changes in Parkinson’s:

Parkinson's can affect the way we think and act. Register now for our next free webinar, Wed, Oct. 8 at 1 p.m. ET to learn what's normal, what's not and what to do about it. www.parkinson.org/webinars

Sending Donations or Memorials

Donations or memorials for our local Parkinson Chapter to be used to help CSRA members and programs should be sent to:

CSRA Parkinson Support Group ATTN: M.A. Navarro, Treasurer 116 Lottie Lane Grovetown, GA 30813 Donations can also be made online at our chapter website: parkinsoncsra.org ... Just click the orange “Donate” button on the upper right, and click “Honor/Memorial Donation.”

Honor/Memorial Donations:

In Memory of Edward Reel, from Patsy Bergen In Memory of Paul Gentles, John Gentles' brother, from Alleluia Community Service Center

Remember these folks:

GWVH - Margaret Carden Golden Living - Katie Mae Pollard Camellia Walk - Mary Johnson

The Respite Care Grant Program: We are very excited about our new Respite Care Grant Program, which serves both patients and caregivers by providing a reprieve from daily routine to manage other demands on time as well as allowing a break in responsibilities for the caregiver. Download applications from our website, parkinsoncsra.org/resources/respite, or call the office at 706-364-1662. Fill out the application completely to expedite approval. If your application is approved, you will have a year from the date of approval to be reimbursed for up to $1000 for respite care. The Respite Care Grant Program is made possible by the money raised through our annual Moving Day Walk for Parkinson’s. Please support our efforts by telling your friends and family, starting a team, joining a team, participating as an individual, or making a donation!

Moving Day Augusta 2014 Walk For Parkinson’s Update: Seeking Business Sponsors: You Can Help!

Want to contribute to the Moving Day fundraising initiative in the easiest way possible? Here's how. Everyone knows of at least one company or business that may contribute. Simply e-mail the name of each business and the name of your contact(s) there to Kay Hays or Joe Kelley. The executive board will collect the information and contact the company to provide each business with an opportunity to help.

Join the Movement, Register today!

Registration for Moving Day Augusta 2014 is available now. Go to www.movingdayaugusta.org, where you can start a team, join a team, register as an individual walker, or make a donation. You should go ahead and register so you can start raising funds to fight Parkinson’s disease! Teams Kicked-Off in Style, Saturday, September 6:

Thanks to all who facilitated the kick-off breakfast and to all who participated. Thanks --- • To Mary Ann Navarro who took the lead in planning the Breakfast and who reminded us how our funds

are used to support families with Parkinson’s and researchers who are working for a cause and cure. • To C.J. Mitchell who monitored the program. • To Joe Kelley who set up the AV and inspired us with a video of past walks. • To Mary Navarro who exhibited the Navarro family walk t-shirt, who shared ideas for fundraising and

“fun-raising,” using the web for registering teams and following team progress. • To Kay Hays for suggesting additional ways to raise funds. • To Wilson Family Y for providing a perfect meeting room. • To Louie Navarro for being the man of the hour, carrying items to and from the building.

12 people were present representing 6 teams. Door prizes were awarded to three lucky people – Patricia Elam Jackson, Emma Grace Maroni, and Mary Navarro. All those present received a packet of information about team building and the history of CSRA Parkinson Support Group. Even if you missed the breakfast, you can start or join a team or register as an individual walker online, by mail, or on site the day of the walk. Information packets and forms for team-building and registration are available from khays65@comcast.net or 803-593-6605.

A Note from the Editor: E-Newsletter Just a little reminder that the Tremor E-Newsletter is now available! If you’re interested, email info@parkinsoncsra.org with “e-newsletter” in the subject. Thanks!

   

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

To the folks who have birthdays in September, we wish you a Happy Birthday!

Chapter Officers:

President: C. J. Mitchell – (706) 736-2383 Vice-President: Joe Kelley – (706) 855-6575 Secretary: Becky Bonin – (706) 373-7633 Treasurer: Mary Ann Navarro – (706) 863-6355 Walk Fundraising Chair: Kay Hays – (803) 292-1908

Web: www.parkinsoncsra.org

facebook.com/parkinsoncsra

@parkinsoncsra

A Message From C.J.: Greetings!

Hope you all have had a great summer, visiting with family and friends. They tell us fall is in the air, but if you step outside, it doesn't quite feel like it yet. Time is slipping up on us for the walk - will be in less than 8 weeks ... hopefully your teams are getting started - no donation is too small or too large ... Last year we were able to give 3 grants - this year we hope to be able to do the same, plus the Respite Grant Program is off the ground ... all of which we are able to do thanks to the funds we raise from the Moving Day Walk for Parkinson’s. If you'd like to help in any way, before and/or at the Walk, PLEASE let us know ...we can use any and all the help you can give! Look forward to seeing you at our next meeting Sept. 23! Have a Blessed Day, C.J.

Research Spotlight: Vitamin D Deficiency and Dementia Federal Health Update Elderly people with a moderate-to-severe Vitamin D deficiency are significantly more likely to develop dementia and Alzheimer’s disease, according to a recently published study, confirming a link that was much stronger than what the researchers had anticipated. The six-year study, published online in Neurology, examined 1,658 Americans, aged 65 or older, who at the start of the study had not suffered from dementia, cardiovascular disease or a stroke and who could walk without assistance. The team found that adults who were moderately deficient in Vitamin D were 53 percent more likely to develop a form of dementia; those with a severe deficiency were 125% more likely to be stricken with the disease. More than 44 million people around the world suffer from dementia, the researchers note, and that figure could triple by 2050 as the global population quickly ages.